We recently (6-6-98) started painting PABA on Emily’s left ankle once a day. The product we are using was recommended by H. “kee” Wanakee, Wanakeeh@aol.com, it is called DMAE-H3 and is made by Twin-Labs. PABA is part of the Folic Acid molecule. Kee sent me the following information that convinced me to start the DMAE-H3.
I talked to Twin Labs to find out exactly what is in the DMAE-H3 liquid that is much cheaper than the lotion, and the PABA is far more concentrated, and to my amazement, I was told the product is totally vegetarian. I asked several times, and demanded to know why it smells fishy. Again, I was told its totally veggie, though the material did not list which specific veggies were used. Could be sea veggies, for Kelp and other edible sea veggies smell like fish. You can call Twin Lab customer service at 1-800-645-5626.
Eat Your Greens
We added Super Blue Green Algae to our daughter’s diet, eating low on the food chain, 6-10-96. Two pills twice daily of the ‘Alpha’ (this is the least expensive of their products). We also gave her a veggie chewable multi-vitamin, we were less regular with this than the algae.
A friend of mine invited me to a lecture by a chiropractor about the Super Blue Green Algae (Multi-Level Marketing). The speaker mentioned that he had vitiligo and within 3 months it went away. I questioned him after the lecture and I didn’t get a warm feeling about his “vitiligo”. He didn’t seem to realize that there is also a fungus that causes similar depigmentation. He said his could have been the fungus. Anytime someone tells you he got rid of vitiligo in three months, you should question him.
Emily was able to swallow large capsules early on so we were lucky. Our other daughter Katie had more trouble, if we ever needed to have her take anything we would break it up in a spoonful of maple syrup.
We take a break from all supplements for a month each year. December works well for us; since there isn’t the intense sunlight we get the rest of the year.
As of, about 6-97, we stopped using the algae. We were trying to reduce the number of supplements we were giving to Emily. If we started loosing ground we felt we might go back to the SBGA.
Mind Body Connection
We are lucky that a local counselor and friend took interest in Emily’s vitiligo. He offered to consult with her for free. He gives her mental exercises to help her to repigment. He is a licensed Mental Health Counselor and he specializes in Mind / Body medicine Hypnosis, NLP, EMDR. We now pay him for his effort and believe that it is helping her. It gets her in the right frame of mind to support the healing process.
Since Susie’s brother committed suicide, we have been concerned about depression in our family. We had concerns that her vitiligo might one day depress her.
I received email from a suicidal teenager. Unfortunately, this is a permanent solution to a temporary problem. Vitiligo may seem permanent but it doesn’t have to be. If nutritional support isn’t for you, try depigmenting or camouflage. If you are feeling depressed try St. John’s Wort. Someone on VSIG said “I can’t force myself to be depressed when I take it” and I agree, it works that way for me.
One morning I woke up from a dream. This will sound awful but I immediately looked over to my wonderful wife with some very mean spirited thoughts. I literally hated her for what she was doing in my dream. This wasn’t just any ordinary kind of hate. Every cell in my body hated her, I was even trying to convince my intestinal flora to hate her. 🙂
Before I tell you what she was doing in my dream, I have to apologize to a whole group of people. You see I am showing a prejudice on my part, and that is not always easy to do. In my dream Susie was smoking cigarettes. Of course this is not a terrible thing, people do it every day. I just happen to have a completely unreasonable phobia towards it. Anyway, I finally worked out my anger and hatred, realizing it was a completely emotional reaction to a strange dream. So logic prevailed and I went back to sleep next to the wife that I so much adore.
The next day I didn’t even mention the dream to my wife and I went on with my life. A few nights later I woke up in a cold sweat. Of course Susie had once again been smoking cigarettes in my dream. Once again I must apologize to any smokers reading this, but I really hated her for smoking in my dream. I felt she had betrayed me and betrayed my trust. She knew that I couldn’t stand cigarette smoke and that I was also concerned about the health effects of smoking. We had talked about it early in our relationship and she knew how I felt. So I was justified in my hate, but wait, this was just a dream. I had to go back to sleep and forget this nightmare. Again I didn’t mention my dream to Susie.
Then again, for a third time, I had the same dream. I decided I had to mention the dream to Susie before I went insane, or any more insane. I mentioned my dream to Susie. I told her that I had these terrible feelings towards her and that in my dream she was smoking. I also told her that I had dreamt it three times. Her jaw dropped and she told me. She told me that she had in fact been smoking at work with some of the other waitresses. We had a terrible fight, after I said some mean things. Like I had not married a smoker and that I wasn’t going to be married to one. Terrible ultimatum and it goes to show the depth of my phobia. This dream really made the mind body connection for me. At least it makes it easier for me to believe the possibilities for healing, from first healing the mind.
If you think this is all a bunch of woo-woo garbage, I suggest as a minimum to get some counseling for stress management. Read You’ll See It When You Believe It by Wayne Dyer, it helped me deal with stress. Thinking of that book reminds me about a story; I met an old friend who told me that years earlier I had hurt her badly by something I said. I didn’t even remember saying it to her, but I didn’t doubt for a moment that I could have said it (I have my moments). I apologized to her for hurting her feelings. It was amazing that for years this thing I said and forgot about had been on her mind and bothering her. She carried it around for many years.
Wayne’s book put it another way, if you are in traffic and the person in front of you cuts you off, there are two ways you can process the information. You could get angry about it and stew over it, scream at the person and let it ruin your day. Think about who really is affected by this anger, you are. The other person, the one that turned right three miles back has gone on with their life and forgot about the whole thing. They might have not been aware of it at all. The second way to process this event is to realize that that person was doing exactly what they were supposed to be doing. You could choose to learn from the situation, drive more defensively and get along with your life. Wayne puts it much more eloquently and gives you tools to use to make life less stressful.
We are also simplifying our lives. Getting rid of things we don’t need, not volunteering as much as we used to. Learning to say no. This has reduced the stress level around our home.
To boost her self confidence we have emphasized sports. She tried gymnastics and is currently in soccer. She didn’t enjoy her first experience at soccer; she was the only girl on the team. She didn’t play soccer for a year after that, then an all girls team formed and she loves it.
She also is interested in acting and music. She sang a solo at the school talent show, January 1997.
You also might be interested in
Living with vitiligo in itself is very stressful; it changes[...]
I'm recording vitiligo podcasts which will be available for free[...]
Last week someone left a comment saying that he wished[...]