Living with vitiligo changes the way you see yourself — and sometimes, the way you see the world. Your experience matters, and sharing it can help someone else feel less alone.
I’d love to hear your story. There’s no right or wrong way to tell it. Just speak from the heart.
A few things to think about as you write:
Where were you in life when vitiligo first appeared — and how did it change things for you?
What kept you going on the hard days?
Was there a moment when you started to see your life differently?
Who helped you along the way — and what would you tell someone who’s just been diagnosed?
Your full name and email will always be kept confidential. I only use your first name if you give permission, and I’ll never share your email with anyone.
My name John I had vitiligo since I could remember, I’m 19 now and it’s still hard somedays, I have No problem with the way I look till someone reminds me how I look, growing up I been called many names from cow to Dalmatian, vitiligo has covered most of my body and this is my first time spilling my feelings to people, ugly is the word I dislike most because it hurts the most, someone called me that today. I needed to vent to stop crying, depression sucks don’t let No one bring y’all down, we are all beautiful in God’s eyes, Thanks everyone for y’all stories it helped me alot, and everyone with vitiligo stay strong y’all not alone.
Hi I wanted to share about my visit with a Dr. I have seen her in the past but it just got too expensive so I stopped going. Two years later I returned to participate in one of her vitiligo studies and I was treated with latisse, the product used to make your eyelashes grow, these is indeed the best results I have gotten. In four months almost all the spots she treated were about 40% filled in or freckled. Unfortunately the study ended but I’m going to try to see her monthly to see if she can keep treating me with latisse.