Imagine something very personal and precious being taken away from you a little at a time. You’re not in control of when it goes and you can’t argue about the amount removed. This is the predicament faced by people with vitiligo – a common skin disease that causes areas of the body to progressively lose […]
Oftentimes there are great ‘conversations’ that go on over on our Vitiligo Friends facebook page. Today, was an especially good one that I wanted to share with you. Friend wrote: I have to ask how you all have coped with having vitiligo. I have had it for about 9 years now. It just keeps getting […]
A few days ago Kam left a comment here about her success with protopic repigmenting vitiligo. It’s wonderful and hopeful news… I had quite a lot of pigmentation around the eyes mainly. First my GP told me there was nothing that could help me.
From my heart to yours, I wish you a healthy and prosperous New Year filled with exciting adventures! Many hugs, Nathalie
Nathalie talks with a stranger at a cafe, Elizabeth, about what looks like vitiligo white patches on her arms and forehead, but is actually a condition she was born with. Elizabeth grew up in a family that called her white patches “birthmarks”, and 1 out of every 3 family members have the birthmarks, as well…what’s […]
I had the need to talk to others about vitiligo. The more people I talked to the better my chances of finding a cure. One thing was sure, I couldn’t talk to my wife about it. She would just clam up, she couldn’t face it. Just ignore it and it will go away. I am sure I didn’t make it easy for her to talk about, I was very frustrated, frustrated with the disease and with not being able to talk to her about it.
Being open with people about your vitiligo is a very liberating experience, and one that you will not regret! I would be the first to raise my hand if we were asked collectively, “Who tries to cover their vitiligo?”. Primarily, I cover my vitiligo because I prefer not to look at it, and secondarily, for […]
Tonight I came across a very interesting article about a product sold online which is used to whiten the skin so the vitiligo white patches are no longer obvious. Sounds like a promising alternative, but it comes with potentially deadly side-effects.