I received a comment from a woman who thinks that she might have vitiligo and her words made me take pause to think. She spoke of having a few autoimmune diseases in her family and about the research she has done to try and find a cure for her own ailments.
The medical community may not agree with patients searching for a cure for their own condition since they have little or no medical training as to the specific complexities of the human body, but from a psychological standpoint, I think it’s the greatest emotional healer. It’s how they get their power back.
Don’t be too timid and squeamish about your actions. All life is an experiment. The more experiments you make the better. Ralph Waldo Emerson
After reading quite a few ‘vitiligo stories’, I’m going to go out on a limb today and state that perhaps the cure has been elusive because there are different types of vitiligo which are triggered in the individual patient as some sort of response to either an internal or external element. Be it a singular factor, such as stress, or many components comprised of food, allergies, and even common household products, something is turning this gene ‘on’, and we are simply going to have to find solace in discovering what activates the gene in our individual body system.
Discovery consists of seeing what everybody has seen and thinking what nobody has thought. Albert Szent-Gyorgyi
A while back I came across an article in a medical journal which detailed research being done to cure melanoma (skin cancer) using plasma of donors with Vitiligo because studies have shown that this “enriched” IgG formulation contains potent anti-melanoma activity (read the original blog).
I spent the morning trolling the internet for more on this subject and I found so much to share with you. There is no way that I can condense all of the different sources and do justice to the vast amount of critical information given, so I’ve decided to provide links. I trust that most have you have done extensive research on vitiligo; therefore, reading through mundane (yet informative) scientific/ medical journals is acceptable. Happy reading!
“Never let life’s hardships disturb you … no one can avoid problems, not even saints or sages.“Nichiren Daishonen
A couple of months ago I began searching the internet for vitiligo success stories when I came across one that showed me that I was on the right track with my experiment.
Ilana is from Sweden and has been dealing with vitiligo, alopecia, and psoriasis. Her site describes how she stuck with a regiment of taking B12, Folic Acid, and tanning her skin, to re-pigment her skin. What I enjoyed most was the fact that she showed before and after photo’s which clearly show a 90% success in re-pigmentation.
Hi everyone, this is a reprint of a blog from aug 2007. because there was such a tremendous response, for some reason the blog comments are unable to show many of the comments. just in case you would like to offer some advice or comment to posters, i’m reprinting a few of the now un-viewable comments. please use the new comment area below to respond.
As an Associate Professor in the Department of Neurology at the Oregon Health & Science University, what sparked your interest in finding a cure for vitiligo?
My field of expertise is the identification of potential new drugs from natural sources e.g plants used in traditional medicines. I started working on finding a treatment for vitiligo while I was employed at the Pharmacy Department, Kings College London, University of London. This arose as a result of Maxine Whitton, then Chair of the UK vitiligo society, contacting me to see if I could shed any light on a traditional Chinese herbal treatment that one of the Vitiligo Society members had been given. I have since relocated to Oregon Health Science University, Portland OR. Although I am now focusing on botanical treatments for neurological diseases, my work on vitiligo is continuing.
How did you first make a connection between piperine and vitiligo?
I’m including the following article today as a prelude to my next blog. Presently, I am conducting an interview with Dr. Amala Soumyanath. She discovered that piperine, the alkaloid in black pepper responsible for its pungency, stimulated the proliferation of melanocytes in cell cultures.
04/09/08 Portland, Ore.
OHSU and AdPharma, Inc. announce collaboration to develop promising topical agent for vitiligo, a skin pigmentation disorder that afflicts as many as a 100 million people worldwide
Oregon Health & Science University has licensed a family of compounds derived from black pepper extract on which it owns the patents to AdPharma, Inc. for potential pharmaceutical development. The compounds have shown potential in animal studies to be effective in treating vitiligo, a skin pigmentation disorder.