Your Vitiligo Stories

39 thoughts on “Your Vitiligo Stories”

1. Don’t be hopeless everything is possible …

2. The only thing that i can say is…NOBODY IS PERFECT!!!

3. jst tell her try to avoid nonveg diet bcoZ nonveg contains lactic acids. so it may aggravate the condition.
   good luck for the future .tc

4. I noticed vitiligo at about the age of six. It progressed steadily until I turned completely white at the age of 63. I refused to let the doctors get rid of all the pigment at once so I would not be spotted. I had hopes that a cure would be found . In short I would have them take all the pigment out because being one color is so much better than being spotted. Even though I miss my brown skin that protested me from the sun. Now I keep the sun screen companies in business.

5. I have had vitiligo for 14 years now, and I have a tattoo on my foot that I had originally gotten before there was a white spot there. Well, over time the vitiligo spread and began growing where my tattoo is. It did NOT affect the ink at all!! Also, this summer I spoke with a tattoo artist who told me that he tattooed a girl with vitiligo on her white patches and he said it was the best coloring he had ever done. He explained that the whiteness of her vitiligo was the best canvas he could have asked for. I say go for it!!

6. What’s your guys’s thoughts on getting tattooed over vitiligo? Has anyone here tried it? If so how did it work out?

7. Protopic cream worked for me. The light coloured skin disappeared after 3 months of use. Well worth the price (and covered by drug plans in Canada). I am so happy with the results. Before I would not even start my day without putting foundation on the area (which was right around my chin and mouth, therefore very visible). Now I do not even need to use foundation any more. Thank you to the skin specialist who prescribed it for me. It has changed my life!

8. Hi Trisha, Big hugs to you and your sister; how wonderful you are to help your sister! What makes vitiligo begin in individuals is not known, but i have read one story about a family who helped reverse the daughter’s vitiligo by taking vitamins (B12, folic acid) and changing to a gluten free diet. In the daughter’s case, I imagine that it must have been a food allergy that sparked the vitiligo gene to turn on.

   Since no cure for vitiligo has truly been found, I suggest experimenting with different foods and vitamins to find what may work for your sister.

   all the best,
   nathalie

9. Hey Nathalie… my sister has been suffering from vitiligo since she was 15 years old. We tried allopathic medicine. But it aggravated the problem. So we stitched to homeo pathy since then the problem bit in control but it has not subsided… marks are slowly apprearing over her body… She has patches in leg, stomach. Ears, face and back. When I read ur article I found that it can be helpful but since we are india.. many of the diet that u suggest are not available here… To add to misery my sister ha now shifted to a hostel for her engineering studies… so diet there is ful of non veg and self cookin sytem is not awailable… Please suggest something…we are in real need.please suggest a diet consisting of non cooked food if possible.

10. Melissa,

    I have had vitiligo for 13 years now since I was 11, and I must say the toughest times I ever had to deal with it was in high school. I had no friends or family who had vitiligo or had even heard about it. I wish I had a site like this when I was 17! It is such a relief to finally know what it is, and I hope you do rely on those who support you here. Best of luck and stay strong!!

11. When I was 12 years old, living in Jakarta, Indonesia, I had a small vitiligo spot on my right leg and the doctor prescribed Psoralen with 15 minutes exposure to the sun/ daily.
    3 months later the spot was gone!

    I now live in America and last year I had one spot on my neck and was treated with Protopic and laser. It has been one year with not muck luck. I asked for Psoralen but my doctor told me America does not produce them anymore.

    Few weeks go, I noticed many small spots around my mouth and forehead. I was so devastated! I am now undergoing more laser treatments 2X/week in addition to applying Protopic 2X/day.

12. Thanks so much for your encouraging words and kindness! May God bless you:)
    Its funny how i instantly felt a connection with the people who shared their stories on here. I know my family and friends accept and love me for me, and they try to understand what i have, but its not the same like with someone who really knows.

13. Hi, I am 25 from Malaysia and I have vitiligo for 5 years. I have vitiligo after I had skin infection on my leg 5 years ago. My skin develop white patches after the the infected area cured. I didn’t take any notice or mind the white patches until it began to spread. I had very sensitive skin where it is usually very dry and itchy. I will develop dark patches when I scratch the itchy area and the dark patches (skin) will eventually come off. When the skin came off , vitiligo will develop on that area.

    I only notice the trend after a few months. I try to control not to scratch my skin when its itchy and apply moisture lotion as much as possible. Now I have it under control. I notice it is spreading but very slowly.

    I went to visit a few doctors when I notice that the white patches was spreading and wanting to know what happen to me. The doctors just brush me off telling me that it will take time to heal and giving me some cream to apply on. None of them told me I had vitiligo.

    I found out what I had only after 3 years of having this disease accidentally on a website. Since then I knew that this disease is incurable and loss hope. I was ashamed of myself and do no like people asking me what happen to me.

    This website encourage me by letting me know that I am not alone with this disease. I hope that there will be a cure for vitiligo in the future. Thanks

14. Hi Melissa, big hugs to you and, yes, you’re not alone! anytime you need a shoulder to lean on or just need to vent, feel free to comment here. no worries, ok? you’re going to be great! nathalie

15. God does work in mysterious ways. I’m 17 and reading your story reminds me so much of myself.

16. I just found out yesterday that I have Vitiligo. I’m 17, but I’ve had this since i was about 9…. We never knew what it was, i had never seen anyone with it before, and never even knew a such thing as Vitiligo existed. A part of me is glad i finally know, but also it scares me, and I kinda wish i didn’t know what i had so i could keep living with the hope i could take a pill or have a shot one day and it’d go away.
    I have a large patch just below my knee and i have noticed new small patches, Its discouraging! But reading these stories and seeing I’m not the only one… kinda helps me, because i know now that other people know how i feel and I’m not alone.

17. what’s in jordan?

18. HI Can u pls advise me also that how much it cost? my daughter is only 4 years old but she started with some white spots behind ears, some on the necks.pls advise asap. thanks

19. Hi Drew,

    I am sure you have heard the story of Buddha, in which a woman whose child has died runs crying to Buddha and pleads with him to bring her child’s life back. Buddha says he would do it if she could get alms from any household in that neighborhood where there has been no suffering. The woman found that every single household had had some kind of suffering like an illness or a death. What I am trying to say here is that suffering is inevitable for everyone. Only, the way each one suffers is different. Nobody is an exception. So we get on by singlemindedly focusing on our strengths and focus less on our so-called external imperfections. What we focus on more, seems larger. Take care and God bless you!

    Sue

20. Hey Hassan Schuheil,

    I’ve been there many of times and let me tell you. It isn’t a fun ride having vitiligo and a sun burn which can happen every easy. I’ve come to find out using the juices from a aloe vera plant helped a lot but Note. You should always wear sun block out in the sun because of the UV rays even if it doesn’t seem hot out side. A Sun burn for people that have vitiligo like myself is ever good!! and can potentially cause skin cancer the reason being is and you probably already know. Vitiligo is a condition that causes depigmentation and for them spot or area’s that are affected there is not any protection against the sun rays!! A cold wash cloth applied to the skin and some aloe vera after will do the trick just give it some time and be careful

21. Thanks Sue,

    Yes, At times it can get very hard dealing with just self which is unfortunately the hardest person one will ever have to face in you life. Well at least it has been for me because there is no running away from self, there is no lying to self. There is just the harsh reality of the truth. As I’m looking in the minor at physical technicalities or looking deeper into one’s soul. Everyone has to do this at one point in there life and some do it many of times “even daily“. So I guess I’m not to different because everyone has there own self insecurities, and problems in life and deal with them as best as possible. Anyways I just wanted to say thanks for the up lifting post its nice to hear something positive for a change even if it is coming for someone I don’t really know. Thanks again and God bless

22. I have vitiligo since the age of 5. Now i’m 19. i’m not very good in english. First it was appeared on my underarm. . From 2008 onwards new white spots started to appear all over my body. I have gone through many treatments but nothing was effective.
    Yesterday i went on a picnic. that was a sunny day. Vitiligo Spot on my face got burn. :( it hurts me a lot. tell me what to do. is it better to put ice on bunrt spots?

23. Hi Drew,

    You are a good person! It is so admirable to see you cope with such hardships and accomplishing a lot of things! Yes, vitiligo can be depressing and make you very, very sad and hopeless at times. But, please do not let the disease win. You are more than just vitiligo, you are this person with such talents that you have pursued such varied academic fields. Vitiligo is just a small part of you. It does not define you. Just keep your spirits high and hold your head high and be proud. God bless you! Take care.
    Sue

24. Hi, My name is Drew Davison. I come from a small town of 1,800 people. where everyone knows everyone. A very peaceful neighborhood where even stranger get greeted with a big smile and a wave at the county line. I guess you could say I was just your typical American country boy growing up. I was into sports, fishing, swimming, four wheeler riding and anything that would put the wind in my hair and the sun on my skin. At seventeen I got my first sports car a “Mustang” I drove for miles and miles with no where to go. At times I had a lead foot that was passed down from generations and Yes, it got me into some trouble but for the most part I was a very well mannered child growing up. I was a starter on the junior victory basketball team when I was just in fourth grade. Coach always told me “Boy, You have lots of potential keep up the good work and that mind straight and…. You’ll make it far one day . As basketball season ended and the baseball season began. I always looked forward to what the new season might bring. I played 3rd base stopping all that came, but that’s not what I was known for. A hard hitter called “Thunder” was my baseball name because when I hit the ball that’s what it sounded like THUNDER. Anyways moving on, My 8th and 9th grade year I got picked for class King which gave me great honor and pride plus the Queen picked was my school sweet heart. Loving life and everyone and everything in it. Nothing could hold me down. I was destined for greatness and ready to take on the world head on. Now that you know I little bit about me. I’m going to try to explain “vitiligo” and how it has effected my life.
    In 4th grade 11 years old summer of 1999 I woke up like any other day went and played some basketball came home and cooked some pizza rolls. After I started watching TV I got very bored and decided that I wanted to walk the family dog which was a Saint Bernard I asked my mom if I could and say said “ hunny you know he is a very big dog and you shouldn’t walk him but… If you really want to its ok. So I got the leash and went out side in a rush so excited for the very first walk with my new dog. Put the leash on him and off we went running, jumping and having fun. When I noticed that my shoe strings had came lose I stopped and bent down to retie them so I wouldn’t fall. At that same moment and dog came out the corner of a house that we was at and started grilling wanting to fight my dog. Next thing I know I’ve been drug down two blocks of freshly paved asphalt with my dog trying to wake me up. Still having a hold of my dogs leash I got back up and started walking back home looking at what was wrong with me. My skin had been ripped off by the asphalt almost to the bone on my knees, elbows and hands. Blood was everywhere I finally get back home still in a deluded stated I didn’t want to go into the house. I didn’t want my mom to get mad at me for getting blood everywhere or to hear I told you so. I just stood out side in front of a bay window waiting for my mom to yell at me. Finally waiting to talk with her because she was on the phone I told her I need help and put my bloody hands on the window she freaked out and we went to the ER. After all that was said and done and the scabs was gone. I had Vitiligo loss of pigment on my hands, elbows, and knees.
    At first everything seemed to be ok. I just figured with time it would heal but sadly that wasn’t the case and things started getting a little difficult for me. Insecurities, ashamed, and confused. I started trying to hide it from everyone wearing stuff under my shorts and stuff on my elbows to hide the vitiligo. On game days I couldn’t make a shoot because I felt like everyone was staring at me and couldn’t get my mind in the game and off my skin all my friends started getting mad at me. My 9th grade year my mom wanted to move back home wear must of my moms side of the family was. I encouraged that because I wasn’t happy and felt like everyone hated me and that if we moved it would all go away and things would became normal again. After the move I found that I loved being by my family but I felt even more alone and depressed then I ever had. The new school brought many new challenges that I just wasn’t ready for. Many kids didn’t want to sit by me because they felt like I had some contagious disease, and a onslaught of other rumors spared. Teachers was asking personal question that I didn’t feel comfortable answering at the time about my disorder. So the year we moved I quite playing sports all together and dropped out of high school 9th grade. I starting hanging out with people that was using drugs and drinking a lot thinking I hated my life and it couldn‘t get any worst. I started smoking weed and join a gang at the age of 17 years old. You my ask why would someone like you start going down a road like this. Well I really can’t explain it and don’t know why I did… but Ill try to explain. The same year I stopped going to school my mom and I got into a big fight because her husband called my friend a “nigger” and told my friend he wasn’t welcome in his house and my mom took his side and kicked me out “long story short“. Coming from a small town there was a lot of racist jokes comments cetera. I don’t know why but to me I felt like that if one man was to judge another by there pigment that they was judging me as well. So a part of me felt obligated to stand up for what I felt as right …..ME, HIM, or who ever. no matter who was hurt or who it was. You should treat people as equals and as my motto go’s “There is only one race and that’s the human race”. The other part of me was mad, saddened and felt betrayed by not only my own family but by everyone that I had ever known and loved. My new friend and his family took me in as I was there own and after that I felt like I had lost the world but gained a new family that wouldn’t judging me and would take me for me. For the next couple years I stayed with my new family and felt that everything was ok because they was fighting the same battle as me and we was going to make it out on the other side together because family sticks together.
    I started rapping to channel my anger into something positive because a life of violence or be hide bars wasn‘t me. At this point I was somewhere around 19 years old and had been writing for a couple year now. I set out to free the minds of people from racist believes through my lyrics and actions but lacked the education and didn‘t feel like I was accomplishing anything. I needed help and a education was the answer. Past experiences made me feel like I would rather die then go back to a traditional school setting I know it was differently a mental block on my part but It felt so strong anyways I wasn’t ready to give up. So I set out to find something more my style but didn‘t know what it was GED maybe I didn‘t know. So I went online and did some research and found that you can get your high school diploma online threw James Madison high school. A school that had online classes for a real high school diploma made me excited. As I felt I needed a education and Finally I found a school that not only might my standards but was also better then a GED. James Madison high school I attended and graduated in 2004 with honors. After graduating I was feeling pretty good about myself but still had moments of high depression. As my vitiligo was spreading and I didn’t know how to contain it. I went to the doctors for the second time in my life about vitiligo. I thought that maybe there might have been a new break though of technology for vitiligo treatment or something. What I found was that there still is no 100% guarantee cure for vitiligo and must treatments are high risk for cancer plus very expensive.
    As I don’t make very much money just getting to the skin specialist was a very challenging task costly. So I already knew treatments wasn’t even an option. I decided going to college was probably the best for me if I wanted to bet this mental roller coaster that vitiligo has put me threw. At the Age of 20 vitiligo has been spreading for 9 years which has left me very embarrassed about my skin and is starting to take a toll on me emotionally. I’m starting to wear a lot of long sleeve shirt out in public when its hot. I’m losing jobs because of my temper and feeling like I want to kill myself sporadically and don’t know why any of these emotions arise or who to deal with them. Me and my mom started talking again which was a good thing and I moved back in with her because I didn’t have a place to say but with that came a lot of different feeling. Don’t get me wrong I love my mom but I needed someone to talk with and she couldn’t even admit that I had a disorder and it drove me crazy because I needed her sympathy and help. So in 2006 I went to a Heavy equipment operator school in the hope to make a lot of money fast so I could try and cure this disorder. Graduated top of my class in 2007 and started working on the railroad making some pretty good money as a operator. About 7 months into working I started doing research about vitiligo and the treatments that was out there. I didn’t wont a treatment that was know for causing cancer. I find this product that was supposed to work miracles. Well long story short it did the opposite and my vitiligo spread like crazy and went into full body vitiligo. At this time I got very depressed and quite my job for multiple reasons one being that the sun was starting to make my skin red and it was hurting a lot. 2nd reason was I started wearing long sleeve shirts all the time in public and in the summer I was starting to pass out because of the heat. 3rd I don’t know just depressed
    As of right now I am currently a home owner and working three 14 hour night shifts with disabled people and love it. Thinking about going back to school for skin care to get a better grasp on human skin and maybe just one day I will found something that well truly work and isn’t a scam. I can’t say that vitiligo as taken over my life but it has differently played a big part in it. I wish I could change it, cure it, fix it whatever but I can’t and that’s the truth so I well deal with it as all of you do to and hope that my family will stick by me. I wouldn’t be the same person if I didn’t have vitiligo. so I guess there is pro’s and con’s to it all and for all you parents out there with kid or kids suffering from vitiligo. I do realize that vitiligo doesn’t just affect your child it affects you as well and maybe at times more so on you. Just to let you know it’s ok to recognize there disorder and talk about it and figure out ways to deal with it not only for them but for yourself. Just know your there support and safety net when they are confused and depressed as they are your safety net when times get hard. We all are touched by this crashing disorder one way or another but staying together that’s what makes family… Family. For all you people out there that have vitiligo YOU are BEAUTIFUL and never let ANYONE tell you any different. The world is yours for the taking just don’t let it drive you crazy like it has me. I’m currently 26 years old and lived with vitiligo for 15 years almost half my life and it isn’t getting any better. But I sure hope it dose GOD BLESS and I wish you all the world.

    P.S. When my dad passed away i got a big spot of white hairs and read if you use dandruff shampoo “blue” on vitiligo it would cure it. So i tried it for two weeks applied it and left it on for 20mins and then washed it out and to my surprise it work after them two weeks!!! and has never came back. knock on wood Lmao. I’m thinking about trying that with my body to see how it works plus taking vitamin pills because I’ve heard that vitamin B helps reproduce pigment cells. Ill keep you updated. Thanks for your time

25. mi punto blanco lo tuve en el 2009, tengo 37 y un dermatologo me dio medicina para manchas causadas por el sol.fue un error.pero no siguio. despues tuve muchos problemas cuando viaje a mexico y me salio mas alrededor de la boca.ahora tomo medicina para repigmentarme ,pero no dejo de sentirme mal cuando me veo al espejo. me da tristesa. pero espero y trato de mejorar cada dia.
    gracias.

26. Hi everyone, my name is marilyn 30 yrs. of age and I just had my vitiligo a year and half and i have it on my face left side around my eye and it gets bigger but not that much but it really turns down my self-esteem and self-confidence that i usually have and right now having the hard time to find a job because of the feeling that it will make my situation worse whenever my condition gets worst too. I am having some medication which is applying a cream and taking vitamins prescribed by my doctor but it seems no good result from it so i’m getting the point of I need to accept this as part of my life now having all the criticisms from other people. I’d love to hear some advice or much more remedies that could at least help me get back on the track again and live my life freely and happily with my family.

27. Hey sakshi,
    I too like you almost gave up on any treatment. But recently came across this website . I will be traveling to Germany next year and then to jordan. To me it seems very promising. I think you should try it [if financially possible]. I have spoken to a lady whose son has vitiligo too and she only takes her son to jordan twice each year and its working wonders for her son.

    Cheers,

28. Hello! I’m 19 and i’ve had vitiligo since i was in 4th grade! its super embarrassing,I have it on my legs,a few patches on my hands.It bothers me too much as people stare too much.I have to think so many times before wearing whatever I like. :( We’ve tried too many treatments but nothing was effective enough.it hasn’t spread but i would love if it vanishes away. :(

29. Hello! I’m 19 and i’ve had vitiligo since i was in 4th grade! its super embarrassing,I have it on my legs,a few patches on my hands.It bothers me too much as people stare too much.I have to think so many times before wearing whatever I like. :( We’ve tried too many treatments but nothing was effective enough.it hasn’t spread but i would love if it vanishes away. :(

30. What a wonderful website.

31. What a wonderful website.

32. I am 43 years old and have had full blown vitiligo for 6 years. I don’t like to leave my house for the stares and terrible jokes. i have vitiligo over 75% of my body there is no hiding it.I wish there was a cure or at least more understanding from the rest of the human race about this terrible thing.

33. I like the website
    i just knew that i have vitiligo

34. Hey Nishu Im Zack Im 15 and have vitiligo. Iwould like to know what your son is taking and the name of the doc. I highly appreciate it.

35. hi nishu my name is kim im 34 cme from philippines and now im living in ireland now and i have vitiligo 2yrs ago help me please..can you give me the details of doctor of your son…please help me..thanks

36. hi nishu my name is kim im 34 cme from philippines and now im living in ireland now and i have vitiligo 2yrs ago help me please..can you give me the details of doctor of your son…please help me..thanks

37. Hi, i’m new to your website and are very glad to be part of it.
    I have vitiligo since i was 9. I fell into a well when i was about 8 and soon after i started getting white spots. My very first dermatologist told my parent that often Vitiligo start if patient live or experience an amotional shock in their lives, LIKE DEATH OR AND ACCIDENT…EXT.
    Not only i got Vitiligo but on top of that i’m scared of the dark for being stuck inside the well for more than 24 hours. I had hard time living with vitiligo all my life but for the past 10 years i really accepted it and embraced it.
    When i was much younger i took Meladinine for many years and did the UV light. I could have gotten cancer from it but thank god did not. So wright now i discovered Vitilax that i have been taking for 2 years now. I have to say that most of my knees spots are gone but everything else is still the same. Today i’m still searching for a cure. I go to the beach and the pool and have no problems getting in my tiny Bikini. I have an awesome body and i wont let anyone give me a weird look because of my spots. I love who i am and love the skin that god gave me.

    I hope that everyone who reads my story feels the same because that’s why we are here after all to support each other.

38. Amen, Dalton :) Enjoy the summer…you’re going to have a wonderful time at camp! all the best to you, nathalie

39. I’m 15 and i have had this since i was 13 i got it from stressing!!! When i try to calm down and don’t stress or bath for months it start to go away! But i’ve been swimming for the first time this vacation i guess it’s where i don’t know these people and never see them again, but next week is camp with all my friends.! Im lieing and saying that i was in a fire when i was a baby i just want to be normal i always dream if i didn’t have it how much better my life would be! But i will never know.. I really wish life could go back when i was a little kid and not have it and not worry i guess i’ll just go on through life with it one day i think i will find the reason god has gave me this to embrace and show other people who have it, that you can be happy and have this at the same time.. Don’t worry how people judge you because in the end all that matters is what god thinks!! I hope everyone is okay with theres im not yet i won’t lie and say it don’t bother me because some times i think about it but mom says im missing out on so much!! But that tan beautful skinny boy everyone ust to say i was!! What will happen when i lose my tan i drop hints to my girl friend about it all the time and she is like if you wasn’t so handsome i wouldn’t be with you but if someone can’t love me for me.. Who are they going to love me for!! Its my time to grow up and move on!! I pray it goes away but i’ll live with it.. I’d live better with out it but will make it with it to! Give me a amen if you agree :))