A couple of months ago I began searching the internet for vitiligo success stories when I came across one that showed me that I was on the right track with my experiment.
Ilana is from Sweden and has been dealing with vitiligo, alopecia, and psoriasis. Her site describes how she stuck with a regiment of taking B12, Folic Acid, and tanning her skin, to re-pigment her skin. What I appreciated most about finding this information was the fact that she showed before and after photo’s which clearly show a 90% success in re-pigmentation.
Vitiligo Cover Lotion
i also have seen alot of cures for vitiligo the multivitamin,lotions nothing works ive had vitiligo for 8years already and im still looking.
Priya,
I took the same homeopathy meds for three years and the only thig that happened to was that my spots stopped from spreading about 70% but nothing desolved in my skin. I took 3x 4x 6x and now I trying Ayurvedic meds which are expensive but I just started taking them 3 months ago. Clearly I dOnt think their is a permanent cure for vitiligo but we can prevent our spots from spreading. I am sick and tired of taking pills. :(
Hi Hatira,
Please do be careful. We have never seen any photos of repigmentation from drinking mustard in water, nor have i read anything about this being used for people with vitiligo. We all want to find a cure for vitiligo, but let’s be very careful of the treatments suggested online :)
Thank you Jesse so much for sharing…I am going to try it.
Well the person who told me about it said to take 1 tea spoon in the morning with water. I was kind of skeptical but after reading about the benificial things of mustard seed I said to my self “what is there to lose” it’s been three weeks and haven’t seen much but I’m hopeful for this plus it’s the cheapest treatment
how would you use mustard see, internally or externally, I would like to try it. Thank you.
Please forgive me for all the posts as this is new to me!
What are peoples thoughts on skin camouflage? I am a white male and have several even whiter patches on my face. Is it worth it or is it better trying to try a treatment? OR both?
Thanks again
Mick
Thanks Nathalie for clearing that up for me. Yeah dont worry – i never fully trust the before and after pictures anyway!
Although I greatly appreciate and take your advice on board, why would they offer a money back gurantee if it didnt work?
Kind regards
Mick
Hi Mick, this has piqued my curiosity, so i’ve pulled some info off the internet searching for the domain name owners. Upon first glance of both Vitiligo Organics and Vitiligo Natural i notice that they both have almost identical bottles and logos. they are both registered to an Australian domain company; however, the Vitiligo Organics website states that they are in the U.A.E.- this also happens to be the same website that is using my before and after photos as one of their customer’s testimonials…worst of all for me, they say it’s a man’s hand, lol.
One more tidbit, one of the sites updated their domain status on Aug 19, 2011 and the other created the domain on Aug 16, 2011. could be a great coincidence, but looks suspicious to me.
My advice is to steer clear.
Hi Mick, this has piqued my curiosity, so i’ve pulled some info off the internet searching for the domain name owners. Upon first glance of both Vitiligo Organics and Vitiligo Natural i notice that they both have almost identical bottles and logos. they are both registered to an Australian domain company; however, the Vitiligo Organics website states that they are in the U.A.E.- this also happens to be the same website that is using my before and after photos as one of their customer’s testimonials…worst of all for me, they say it’s a man’s hand, lol.
One more tidbit, one of the sites updated their domain status on Aug 19, 2011 and the other created the domain on Aug 16, 2011. could be a great coincidence, but looks suspicious to me.
My advice is to steer clear.
Thanks Sudan for your response, i look forward to hearing how you get on and any further advice you might have.
Mick
Hi Mick,
I was lucky enough, I got my money back because it is mentioned on their website that we get full refund if it doesn’t work. No body else paid me back yet but fortunately Organics vitiligo did.
I have recently ordered vitiligel & vitilicaps for second month dose.I am already using it from last one month and haven’t seen any big difference and I am giving it try for another month, and will post here if I see any result.
Good Luck
Hi Mick,
My two cents is that if there were something on the market that truly worked, dermatologists and doctors would be able to recommend it. also, one of the companies you’ve mentioned actually uses one of my vitiligo cover before and after photos as proof on their site that their product works. I asked them months ago to remove it, but as they are located in Pakistan, they havent complied with my request.
Ok thanks, 2 1/2 months is quite sometime without improvement though. Hope all goes well and look forward to hearing how you get on.
Hi everyone,
Does anybody have much knowledge on the following VITILICAPS® 60 Softgels & VITILIGEL® 100ml by Lyconcepts Advanced Research®?
They seem quite confident about the product and state “86% of those affected and treated saw their white spots disappear after 6 months of uninterrupted treatment with VITILIGEL + VITILICAPS”
Many thanks in advance
Mick
About 2 1/2 months it did sound good but maybe just didn’t work for me I’ll keep trying it after all I got two bottles of it
Hi Jesse,
How long have you used it for? I am yet to try anything for my vitiligo but vitiligo organics seems to stand out alot on the internet.
Kind regards
Mick
I’ve tried vitiligo organics and quite frankly it sucks I haven’t seen results I’ve been taking b12 and it has done more than that stuff but very minimal some guy said his buddy tried mustard seed and it worked so I’ll try that and keep you guys posted
Hi Sudan,
I am torn between trying Vitiligo organics and the Vitligel and Vitilicaps. Can I ask you whether you got your money back from vitiligo organics as it was unsuccessful? Also, do you if there are any side effects for the Biovea products?
Many thanks in advance and if anyone else knows the answers or further info about the above products it would be greatly appreciated.
Mick
Wow long time no see wat up people???? Well here we go… After takIng three years of homeopathic Medicine…with very minor results, I am now trying Ayurvedic medicine. Seen few results in last three months but not satisfied yet. So lets give it about six months and then I will let ya guys know… Btw my vitiligo started in sept 2008. Later people. :)
I have tried vitiligo organics already and many other remedies on internet, but no help at all. well I never gave up and trying on Vitiligel (solution to apply on patches) and vitilicaps (tablets)from Biovea.com. I am using this just from last 20 days so can’t expect quick results as I have vitiligo from last 20 years, very little difference I can see in my patches now, but as soon I see more difference, I will comment on this site again. good luck
I’ve been using Vitiligo Organics for 3 months and havent seen a bit of change. Every night, left it on, washed it off in the AM and exposed my skin to sun. Also took a B12 supplement. I’m tired of the oil and the smell.
I didnt expect it to work but I thought I’d try!
I just bought vitiligo organics but already feel disappointed does anyone have any positive feed back for me. Anything would help
I just bought vitiligo organics but already feel disappointed does anyone have any positive feed back for me
Wow love da new website…been a while since i was last on dis site.. guys ay vitiligo sucks sometimes I was gettin such positiv results den i stopped medication n it got worse bt am back on it nw.. m still takin folic acid n b12, vitamin C bt m now on centrum multivitamin… bt i must say the only medication which i’ve seen freckles with is advantan cream with this mixture i also take.. the mixture is ma doctor’s prescribed concoction.. its ethlyl alcohol i think mixed with this other pill.. M already seeing freckles coming back to da same areas wher they had faded away.. much love fr dis site n da ppl in it.. mcwaaa
supplement with tyrosine, copper, zinc, folic acid, and vitamin b12.
HI PRIYA…CAN I HAVE UR HOMOEOPATHY DOCTORS ADDRESS IN INDIA…SO THAT I CAN ALSO CONSULT HIM.. THANKS
hi everyone, i have lip tip vitiligo typesince 20years ago it spread very slowly since 2 years ago the spot on my upper lip is spreading a bit ( itslike a small dots multiple) and it a little visible now. I am using PUVA and Clobetasol cream…2years ago its only took me about a week to cure it with puva but it reappear again 3 months ago and puva seems didnt work… any success story treating lips vitiligo?? i heard the most success one is treating it with mini-punch graft, anybody know how much is cost of mini-punch graft/skin graft?? is UVB therapy works for lip tip vitiligo? i am grateful if anyone reply
V,
I’m dark brown also, so I guess I would be considered safe. The doctor did not provide any ointments, maybe anti-biotics of some sort to heal or speed up the burning process. I have lived Atlanta, Ga for most of my life! My old doctor gave me a series of blood tests and B12 shots, but unfortunately he has passed. I can not find a doctor that gives me tests and actually cares about what I eat, they just put the light on me (I used excimer) and did not find complete success in it. Maybe I will try it again for a longer amount of time.
Tish,
I was told that caucasian’s are risk of skin cancer if they get PUVA treatment. I am brown and I was told by my doctor that brown/black skin people are safe from PUVA. I think this might be happening because you are in PUVA for prolonged amount of time did the doctor provide any ointments? if not ask for it. I think after getting the PUVA don’t rub your spots and apply aloe vera gel I have read that it helps.
The other question I have for you is did you move from Africa ( around equator) to northern hemisphere. The reason I ask is I read an article that when people moved from Africa to UK they start getting vitiligo as their body didn’t get the correct amount of Vitamin D. Check with your doctor for B-12/folic acid tests if they are low ask him for B12/folic acid tablets.
V
Hello V,
My reaction would be a burn that would eventually scab over. By the time it healed, it would be time for me to get another treatment. I’m Black.
Hi V,
My face would be burned; It was get swollen, puss up, and scab over. That healing process would take 3-4 days, then I would be ready to get another treatment. I’m Black.
Tish,
What bad reaction did you have with PUVA? If you are caucasian don’t use PUVA/Excimer.
As you are segmental all I can suggest is try to reduce STRESS. I think this is key for both kinds of vit.
V
Hello,
Has anyone heard of pigmento cream? It was recommended that I use it. I bought it today. I used the excimer laser treatment for a while with no results. I’m 27, and have had it since 13 yrs old. Its on the top right side of my forehead, its a little strip. The PUVA treatment was partially successful, but gave me such a bad reaction, I stopped. any suggestions. It hasn’t spread since I was 13. Its segmental of course.
Hello
first of all thankyou for this useful websit
secondly I am living in perth western Australia and I am looking for specialist clinic for vitiligo.
It is urgent. please catch up me with answer as soon as you can.
Thankyou
Andie,
I take B12 (1000 mcg), Folic Acid (600 mcg ) which I got from COSTCO. My Derm didn’t recommend it and unfortunatly my Vitiligo is still active. I think you should read Emily’s vitiligo experiment which is well documented on this site and maybe you can plan how to go about it. Regarding sun exposure I don’t think without applying any kind of oil I dont think will help you and as you dont live in northern hemispher I dont think it will that helpful. Read “RA’s Vitiligo repigmentation article” I think her approach with UVB lamp was very successfull.
Also I would recommend you to email/speak with Clinuvel as they might get scenesse in Canada sooner than in USA.
Hello,
I was diagnosed with vitiligo 2 weeks ago. I’ve always had this white spot on my chin, but never worried about it- until about 6 months ago when I noticed white patches on my back. Long story short, the dermatologist and my doctor were both less than helpful with the situation. My dermatologist recommended hormone cream and left me with no other options. I didn’t like that option so I did my own research. I’m SUPER glad I stumbled upon this website. It has been amazingly helpful with the questions I had ever since I found out about this.
I am just wondering (sorry if this has been answered already, but I couldn’t find it anywhere here) I decided I’m going to try the B12+folic acid+sun exposure treatment. I have no idea how much B12 and folic acid I should be taking daily. How soon after do I go on the sun? And for how long? Also, I live in Canada so we have long winters, short summers.. what can I do when summer is over?
Hi Nathalie, Ive had vitiligo since i was 15, its not that bad but im growing it on my hands and ppl have notice its bugs me a lil bit cuz i havent really heard of a cure but ive been hearing alot of ppl saying vitamen b12 and vit C, im a try what ive read on this site and i well keep you posted. thankyou its nice to know im not the only one out there.
Hi Everyone,
Has anybody tried recell yet? I would appreciate any info or contact numbers for recell therapy. Last time I heard the treatment was available somewhere in Europe. Thank you, and God Bless
Hi charles, I used vitiligo organics already for couple of months and it was totally useless but fortunately i got my all my money back.
Is anybody heared about Tolenorm ointment which is getting quite popula these days specially in India, as it is claim to be new research of vitiligo cure from some medical college of Chennai, India. please let us know if anybody used this or using this.
Thanks
Hello All,
I did not know this site exsisted, I have been diagnosed with vitiligo since 2004. I have it on my eye lids, finger tips, neck and lips. I have tried homeopathic medication but that made it spread even more so I stopped all treatments.
Lately I’ve become very concerned as its coming to a very pivotal time and stage of my life, I am 24 years old, I’ve got a great job and a supportive family. I have been looking for a cure for a while now but I do not trust anything at the moment.
I’m from the UK so the NHS is not greatest place to go with a skin condition like Vitiligo as their very unhelpful.
Recently I’ve started taking Gingko Biloba, Cod Liver Oil and Calcium tablets, I want to also take B-12 and Folic Acid, Can I add anything more to that?? Being Bangladeshi we have a very poor diet and use a lot of spices, can someone come up with a nutrition plan for me. On the positive I went to Bangladesh last year and the weather was really hot, some of my skin re pigmented without me being on any medication whatsoever.
Does anyone know anything about Babchi Seed Oil(Bakuchi), If so does it really work or can it be trusted because the last thing I’d want is for the condition to spread.
Thanks everyone,listening to your stories has put a smile on my face.
Any information would help.
Thanks
Delwar :)
Hello
What is the correct dosage of B12,Folic Acid?
Hi Nina, vitiligo cover lotion is not a scam. I’ve been using it for 8 years and have repeat customers all over the world who’ve been using it for over 6 years. Also, if you would like to contact me so I can help you with the lotion, please feel free to call, email, or Skype…all contact info can be found @ https://shop.vitiligocover.com
All the best,
Nathalie
hi thhou, what is it a photo of?
How may I attach a picture here? Thank you.
Hey everyone, I’m 33 and have had vitiligo for about five years. I have been going to the dermatologist for almost two years. So far the only treatments they have given me are these two creams fluocinonide and protopic. Like I said I’ve been using them for almost two year and I have not seen any improvement, it has only gotten worse. Now they want me to try a laser light therapy that is 300 dollars a treatment and I need about 20 treatments. So I started to look on the internet to see if I can find any other treatments. I have read most of what everyone has said and I will be checking in to some of the things I have read about. I’m glad I found this website, although I’m sorry that all of you have the same problem I’m glad to know there are people out there to talk to about it.
Hi all,
Has anyone heard of Vitiligo Herb? I have read a German forum where alot of people recommend this product. But their company is located at Pakistan. Not sure whether is a scam or not. Please let me know if anyone have tried it. Thanks
Hi All,
I m new here and i want to know more about the vitiligo cover lotion? Does it really cover the white patches? I have vitiligo on almost half of my leg and i cant wear any shorts and skirt. :(
Please let me know more if anyone have really tried the lotion. Thanks!
hi charles
i did order it for my son but it didnt work even 1% so i just called them few days back to ask for the refund…now thats wat i am gonna do send them back and try to get the refund. i did email them when i saw the packaging that its from Dubai but they never replied back…anyways u can try it for some days may be it will work for you…all the best..
Hi Charles,
From your description, i would make me wary to use this product, too. Perhaps show the medicine to your doctor or dermatologist before using it…just to be safe. :)
Has anyone ever use Vitiligo Organics? I found this on the web that they said they are an australia registered company, but when I received the package, it came from Dubai. The package looks strange;the bottle was wrapped with a piece of bubble wrap inside a brown envelop. Further, the description was printed on a photo copy paper. That photocopy was so bad that looks like it was printed from a thousand year old printer. So, it makes me feel that if I even wanted to use this “medication” or not.
Hi Nying,
that is wonderful news! by any chance, do you have any before and after photos you can share with us?
all the best,
nathalie
I’m 16 years old and my dermatologist asked me to apply tolenorm oil on the affected areas and triamcinolone around them then stay under the heat of the sun for like 10mins everyday. my vit stopped spreading and started to darken again.
Hi
I was wondering how does the vitiligo cover lotion work and is it effective for tan olive skin?
Thanks
hi pam,
i’m glad you found my site and thanks for taking the time to browse through all of the posts and comments!
I’d say the number one thing you can keep doing for your son is promote a healthy self esteem. bar none, this will help him live with vitiligo and face issues in life with a good attitude. Makeup is a great daily solution and on the other hand vitiligo cover lotion will last about a week. it works for males and females, and if you’d like to read more about it you can visit https://shop.vitiligocover.com
send me an email if you have any questions. i’d be happy to answer them :)
all the best,
nathalie
to Pam:
There are a lot of supplements and vitamins to look into (but skip Merry Clinic, they don’t work). The more common ones are B12, PABA, St. John’s Wort, Piperine, zinc. Another thing to have checked is thyroid function – many times an autoimmune condition like vit only appears because there’s another underlying autoimmune condition. Go to a MD who specializes in holistic medicine, because many times thyroid tests come up “normal” but that doesn’t mean thyroid function is good.
Also, Elidel does nothing for Vitiligo, that’s an eczema/psoriasis cream. Some people have a little luck with Dovonex (I did not). You should let your son get 30 minutes of sunshine a day with no sunblock, preferably early morning or late afternoon.
The only treatments that seem to work to reverse vit right now are: Laser, which is expensive and never covered by insurance in the US, or Narrow Band UVB, which sometimes is. Some derms recommend PUVA, but that can make the vit worse, is unpleasant and ages the skin unnecessarily. PUVA is usually well convered by insurance, though.
Good luck!
First post, and first time reading through all the entries. My 14 year old son was diagnosed formally with vit 3 months ago. He has had a small white spot on his chest for years, but last summer his knees “exploded” in white patches. He now also has smallish patches on his elbows. Dermatologist prescribed Elidel, and moderate sun (always with sunscreen) which is great since he is an athlete. About a week ago, 2 small spots appeared on his chin, and 1 slightly larger on the side of his mouth, like a dimple. He is devastated! He has handled the spots on the rest of his body very well, and his friends and teammates have been kind in the past. As a pubescent teenager who is very self-conscious, how do I help him cope with this? I have applied a teensy bit of my foundation on his spots at his request, and it helps enough that he goes to school and games without any complaint. What is the cover lotion that Nathalie talks about, and where do I get it? Is it a good product for a male? I have had RA(rheumatoid arthritis) since I was 6, and the derm. said since vit is an autoimmune disease, it could be related/hereditary.
Hi Bimi,
Sorry if you misunderstood what I said. It was not a lie at all. That is what I was going through and had been for a really long time. Ever since I started taking my vitamins, the dizziness and blankness has gone away but the extreme tiredness remains, even when I have a slow day. My GP tested for just specific ones that he suspected may be the cause of what I was complaining about. I don’t think lying to a doctor is advisable because it can hurt you more than helping you.
To RA:
Hell yeh, I am very bad in telling lies lol
they can easely spot me on that haha
So you lied to him u feel overtired etc
and he suspected that ur low in iron and b12.
Also if they do a blood test, do they check for all vitamines
or for certain ones … ?!
Guess I will have to make a lie too
Hi Bimi,
Not consecutive means not two or three days in a row. But it’s ok to use the light on fixed days, for example, every monday, wed. saturday. So if your skin got pink and still is, wait till the pinkness is gone and then treat again. Over treating can cause more harm than good. Also, the next time you should not increase your time. After that treatment if your skin doesn’t get pink for 24 hours after treatment, you should increase the time by 5 seconds for the treatment after that one. Does that make sense?
My GP gave me a blood test because I went to him complaining of tiredness, dizziness and dark blankness that would appear all of a sudden and couldn’t stand and had to lie down right away. He suspected it was low iron or b12 and that turned out to be true. So if you feel anything that doesn’t make you feel your 100% you should be able to convince him for a blood test. If not, try changing your doctor.
i think a lot of autoimmune disorders are related. My mom has eczema and two of my dad’s sisters have vit. So for me genetics def. play a huge part.
I used the light today, so itchy!
@ RA “LIKE”
To RA:
“definitely NOT consecutive days” means not to take consistenly!?
in other words, try different days … ?!
two days ago, and treated my patched with 1 min 20 sec
and by next day i see my skin got pink lol and still is.
So shall i increase the sec by next time, guess not?!
Regards the blood test:
I live in UK and there is no way my GP would let me do the blood test without a good reasin, which would be “having an illnes” or something else which leads him to do me a blood test.
They are stupid! How else would I know about my vitamines ,,, without doing a blood test? Its insane, no wonder the medicine in UK is one of the worst in EU.
Must also say that my father hos got “psoriasis” a red fleshy patch on his forhead and even he did not know what that is. I read from other sources that vitiligo is linked with psoriasis, which makes me think that reason why I have it is cos of my dad :(
Thanks Natalie! When I was going through a very rough and miserable time, your website provided me with a lot of support and answers. I just want to do the same for others so no one feels like they don’t have anyone who understands and supports them.
Hi Ra,
I must find a way to put ‘like’ buttons for this comment section. Your answer is spot on…and i really appreciate the time and effort you put into helping others here. you’re a diamond :)
all the best,
nathalie
Hi Bimi,
it’s not that you are doing something wrong, it’s just that vitiligo is different for everyone. What works for one person may not for someone else. I know it can be disheartening sometimes but the way I see it, if people with vitiligo give up, then the derms. and scientists have no reason to look for a possible cure. So start by treating 3 times a week and definitely NOT consecutive days. Then if yous skin feels fine for a months or so you can feel free to go up to alternate days. You should be increasing the time by 5 secs every time you notice the skin not getting pink after a treatment. Increasing time every month may not be effective and it’s very possible that is the reason you have not seen desirable results.
As for the vitamins, I got blood work done and took vitamins that I was told to. Don’t start taking anything without seeing a doctor first and getting blood work done. Some vitamins that are fat solluble can build up in your body, which may be problematic. Good luck with the treatment and keep me posted. I like to know how other people with vit. are doing.
to RA
I started with 20 sec then increased 5 sec on top
after each month … even though I been using 40 to 50 sec
for a quite while now!
Treatment is 3 times a week.
Usually, I did 3 days in a row then 2 days off.
Guess I will have use it one day then next day off,
its like 1 0 1 0 1 0 1 etc. is this correct!?
Medicine in UK is really shit.
I seen e dermatologisht long time ago and she said “Nothing u can do about, just live with it” she did not even mention UVB treatment, all I had given was steroid cream which didnt help.
All this vitamines and ideas I get, is from the internet. Just wondering how ppl can have seen pigments within few months by using dermalight, and not me … :( i must be doing something wrong!?
Hi Sue,
I have been taking vitamins for a very long time but I got very diligent with them after I found out that they could help with repigging. I was on Iron, B12, Calcium, a B complex, vitamin E and grapeseed extract (and some extra ones here and there but this is the list I have stuck to for long periods of time). The first 4 were approved and recommended by my doctor but I added vitamin E and grape seed extract because of their high anti oxidant and skin healing properties. I have not been on any vitamins for the past couple months because they were making me nauseous, too much maybe? I am not sure but I am giving my body a break and will see how the next blood work goes. I think my mom got homeopathic medicine for me as a kid but I don’t take them anymore. I try to eat as healthy as I can. Lots of fruit and vegetables. I don’t take vitamin C in a pill form because it spreads my vit. but natural sources of vitamin c i.e. fruits and veggies, don’t seem to affect my vit.
I have also read and then seen on Dr. OZ that red fruits and vegetables protect against the sun. I am not sure what rays it protects from, but I avoid eating them on the day I intend on using the UVB. Although I am sure that the immunity builds over time and avoiding them for a day may not be good enough but I just can’t give up my red fruits… strawberries… yummm!
Ok Guys…So now I have stopped giving a damn about my vitiligo…i just dont care anymore…I am still taking my homeopathy medicine so lets see how many years it takes to cure it completely!
We are planning for our first baby very soon so i dont want to be depressed over this shit! :)
Hi Bimi,
Did some research online…Babchi oil a..k.a. Psoralea-Corylifolia is not a tanning oil. here’s what i found…
however, the things i read about it on ayurvedic sites claim it’s good for vitiligo…bit of a dilemma, but if it’s working for you, it’s working :)
Thanks RA, as always!!
It is heartening to note that you are getting better everyday. I am so glad for you. It also gives me hope for my little girl. As you say, I am going to restart the light, but will take it slow.
I was curious about one thing. Besides the light treatment, did you do anything different, say with diet and supplements? My girl is on probiotics, Vitamin D, iron, Vitamin C (there is a controversy about vitamin C & vitiligo!) and multivitamins. She is also on homeopathy. If there is anything else that I should try, could you please let me know? Thanks again. Take care.
hi all, has anyone tried recell yet? Its a new treatment that re-pigments you. Did it work well? If i ever have the money im going to have it done. I cant stand my vitiligo,its ruining my life.
Hi Sue,
I am really happy that one of the spots has almost cleared up. Congratulations!
I have the Solarx UVB, 1000 series. After taxes I paid about $2500 for it. I think that because she saw a spread in some of the marks, getting a full unit may be a waste of money. I think that after giving it a break, you should try the treatments under a doctor’s supervision again before buying a home unit. When I was 7, that is when my vit. started, my derm. did not recommend me to use any lights (although I am not sure if UVA was available back then), instead I remember sitting in the sun. I grew up in Pakistan though, so there was always plenty of sun around. With summer almost here (although there is a miserable amount of snow today :() maybe you should have her spend some time in the sun, avoiding the harsh afternoon sun of course. Hope this helps a little. I know how frustrating it can be to watch the spots grow. For the past 10 years, I have seen my vit. do nothing but spread. My parents and I are still amazed to see how fast the vitiligo is clearing up. I wish the treatment could work well for everyone using it but vit. seems to have a mind of it’s own. The same treatments don’t work for everyone.
Hi Bimi,
I have had vitiligo for about 16 years now. I can’t remember exactly how long I used the dermalight before I saw complete repigmentation. It was a few months.
Do you ever increase the time? or do you just stick to 40 to 50 sec? From what doctors and research has told me, the time needs to be increased every few treatments depending on the redness the light is causing. Using the light at a fixed 40 or 50 seconds will probably not generate the results you are looking for.
Nathalie:
Babchi oil is not a tanning oil, or is it?!
Yes, I do take Folic Acid, B12 + B6, Gingo Biloba
(trying to take them twice daily)
RA:
I wonder how long you used Dermalight80 for your face to get results … and also how long you had Vitiligo before you started the treatment?
I used it for at least 5 months 40 to 50 sec on each patch.
Hello RA,
It has been a while since I have posted here. Since you have been very supportive about my 7 year old’s vitiligo, I thought I would give you an update. My daughter had the excimer light 308nm treatment on her eyelids, chin, both knees and feet. The eyelids have cleared up(just a small dot left), but for some reason, with the light, her chin spot has gotten really big and so have the knees and feet. I am wondering why. I think the derm overdid the light (too much and too often) on her chin and rest of the area and the spots went crazy. I think that because those spots looked red, burnt and angry after the treatments.Now we have stopped the light because I am worried about the increase in spots. Your thoughts? Do you think I should get the full home unit? What is the brand name and how much does it cost? Thanks RA for your support.
Regards,
Sue
Hi Bimi,
I used dermalight 80 on my face and some other body parts before I bought my full home unit. I had excellent results with it. My face has repigmented 100%. I still get some white marks here and there on my face but the UVB treatment usually gets rid for them within a month now. I had vit. around my eyes, a patch on my left cheek and two small ones on each side of my lips. I treated 3 times a week and I did it on clean, washed skin, no oil or anything. When treating my body, however, I like to use olive oil. I also increase the time by 5 seconds when needed. Hope this helps.
Hi Bimi,
I’m not a medical doctor, but I can tell you that from my experience, and from what others with vitiligo have said, B12, Folic Acid, and Vitamin D are a good idea to take. Talk with your doctor or the salesperson at a nutrition store to find out what does would be safe yet effective for you. I’ve never used Babchi oil; however please note that using any form of tanning puts skin (anyone’s) at risk for cancer, so using an SPF lotion is beneficial and wise.
Am so tired of medication
Hi Nathalie
I been using it like 3 times a week
must admit that I have not been constintly using it.
Sometimes, I have not used it for 2 weeks etc.
However, i expose the patches to dermalight 80 for 40 to 50 sec each.
Before using it, I apply BABCHI OIL on my patches
apparently it helps. but not sure!!!!
I wish I saw little improvement
just to give me sign / hope.
PS: What vitamines are a MUST to be taking
and also what is the daily recommended dosage?!
Hi BiMi,
I’ve never used an in-home uvb product such as Dermalight 80, but i can tell you that sitting in the sun daily and/or getting professional NB-UVB treatments at my dermatologist using the Xtrac Laser did produce repigmentation. I’ve recently learned that the NB-UVB or UVA wave-length is crucial to success and it should be at least 308nm, and after a quick internet search i see that the dermalight 80 is supposed to be 311nm, which is high enough. hmmm, not sure why it’s not working. perhaps you should call the company to be sure that it is 311nm?
wish i could’ve had a better answer for you :)
all the best
nathalie
Hi
Wondering if anyone in here has been using DERMALIGHT 80 to treat vitiligo!?? If yes, did you have any improvements?!
I been using it at least since 6 months and NOTHING!!!!
I am also taking B12/Folic Acids and bunch other vitamin pills.
Can anyone in here be more concret ?
Thanks
Hi Anna,
Thanks for sharing your story with us. After exposing my skin to the sun I get the same little brown spots in my white patches, too. It’s perfectly normal…and it tells me that the ability to repigment isn’t completely gone. Take care and I hope to hear from you again. join us on our facebook page if you’d like :) all the best, nathalie
Hey everyone this is my first post, i happened to stumble on this website while looking for answers about my vitaligo, i prob spelled that wrong(sorry) But i have suffered from this skin condition since i was four, i have hated it but i am finally excepting it. I tried protopic for a while but it was just not working, then i used several different makeups to cover it up but it just wasn’t the same, i am now 20yrs old and this past summer was the first time i wore shorts without covering my legs. I have it on the front of my legs, my side, my elbows, behind my ears, arm pits, around my eyes, and on my hands. It sucks but my point being wearing shorts this summer i spent a lot of time in the sun and amazingly i ended up getting brown spots all over my legs from being outside is that normal?? And if anyone has had any success with anything other then medicines, please let me know. But also know that this shouldn’t hold you back from anything, yes i get looked at alot and it makes my feel uncomfortable, but it doesn’t stop me from enjoying my life or keep me from having relationships. Thanks everyone and good luck to all!
why people are not sharing their views on this site now a days…,,,pls guys share ur views it is very helpfull for the vitiligoins….
thanks shelly…..
To Amit,
My doctor’s email is Harjosan@yahoo.com
Please e-mail him with your problem and please mention that Supreet from USA referred you to him!!!
you can actually go on to the institutions site and see exactly what they are working on!fantastic!
Everyone!
If we don’t have an idea of what is happening in the world as far as research goes, with our disease, then take a look at this!!!
http://www.nvfi.org/map/road_map.php
How can we not be close to a cure, when so many people around the world are working on one?
hi shelly,,
pls mention Dr’s email id of phone no… so dat i can consult him.
thanks and best wishes to u
Hi Nathalie
First I would like to thank you for this kind website, actually I spent overnight awake to read what I can in your website, my question is that can you conclude (( what is your conclusion, & what you recommend )) to a people with such a disease as an advice not as a prescription. Dont forget that the darker skin types suffers from vitiligo more than the white skine type 1 or type 2.
Thanx alot with my best wishes to all
Zaidi
Hi SV,
I am really happy for all the great things in your life! I am sure the pigment is returning partially because you are no longer stressed… Hope the good stuff continues!
Thanks Nathalie .. She is too awesome … My vitiligo does not bother her one bit, she even gets angry at me when I say I don’t feel handsome at times.. Am on campus paying for registration.. Wish me luck bout to be an engineer soon .. This website is da coolest .. Ma vitiligo is weird these days some parts that r the lightest are getting pigment back .. Fingers crossed .. hope it continues
Hey Amit,
I live in USA but my doctor is in Amritsar Punjab…let me know if you need his e-mail or phone #…
dear bittu…i am using uvb from last 8 months by this 1 spot on my cheek 100% pigmented i stopped taking uvb on that spot. and now on that part spot reappears what to do now pls suggest…
hi shelly are u from delhi……if yes plz mention about the dr. with address. thanks
Hi All
This is my very first poste!
I got vitiligo since 2003 and literally got it direcly after I got out of a 6 minute sun bed also must say that was my first time when I got into a sun bed cos I never prefered it to be honest.
Anyway, patches developed time by time (slowly thanks god)
biggest patches I got are on my “but (arse) and my forhead, then it above the eyebrown, chin, ellow, finder tips etc etc.
However, must also admit, there were 2 spots down on my pennis *excuse my language* but now one disappeared completely n the other is faded! I mean ermmmm why!? I guess the smaller sports have higher change to recover themself as the bigger ones.
I purchased myself the DermaLight 80 (not advertising here sorry) and used it since ermm about 2 months maybe!! No improvements yet … I am on about 40sec to 60sec sec per patch so yeh hoping to see any improvements in the future – hopefully.
Thanks god, my skin is quit white and patches are not that noticeable but whith a closer look you see the notice. hmmm shame, the medicine does not put their time and efford into this :( guess they do not see a massive profit/money making business – thats the reason why.
Regards to LOTION!!
What kind of lotion do I need to buy ?! does it come in different colour schemes or what?? never seen one and never used one !!
Pls let me know or even email me or whatever
Thanks
i have vitligo for more than 20 years . i took every sort of medicines nothing worked .now iam 25 years old not married yet pissed off really . 3 days back i exposed my body in sunlight. after it 2 pink patches developed around my lips . NOW IAM REALLY SAD , HOPELESS AND ENERGY LESS . I EVERYTIME LISTEN PEOPLE EXPOSE UR BODY TO SUNLIGHT BUT WHAT I GOT IN RETURN A FEW MORE WHITE SPOTS ON MY BODY. SINCE I WAS A 5 YEARS OLD KID . I LEARNED 1 THING ANY MEDIINCE IN ALLOPATHEIC , HOMO PATHEIC AND AYURVEDIC DONT WORK .
STAYING AWAY FROM MEDICINES, UVB EXPOSURE IS THE ONLY TREATMENT FOR VITLIGO.NOW I STARTED COVERING MY WHITE SPOTS WITH LOTION IAM TOO HAPPY . MY JOURNEY IS OVER FROM NOW “”””””””I WONT LOOK FOR ANY RESEARCH ON VITLIGO , GO FOR ANY MEDICINES FOR VITILGO “””””””.//////// I SAY THE WAR IS OVER”
hey shelly ,would like to know which homeopathy doctor u consulting thanks
Hi Shelly,
How wonderful to hear from you again with such positive news of your repigmentation. Your last comment was back in November 2010, so you’ve seen results in only 3 months? Fantastic. We would love to see your before and after pictures.
Thanks for being such an inspiration for sharing your results. We are so fortunate to have you as an active member of the community. All the very best to you.
Hello Beautiful People,
Wow! I am writing after a very long time so here is the update: Remember I told you guys that I started taking Homeopath medication like six months ago…well two of my spots are almost closing as my own skin color is taking over.I am so excited… I called my doc and he told me that it will take up to to 2 years for all my other spots to disapper. Also I can continue my medication during my pregnany cuz it has no side effects.
Peeps please avoid: Raw onions, Tamarind, Mango Pickes, White Bread, White Cheese, Eggs, Sour Cream, Cottage Cheese…mostly stuff thats white!
I do get upset sometimes looking at my spots but we are way better than people who suffer with cancer or AIDS. Atleast we can live our lives and stay healthy!
Hang in there…as their is a cure for VITILIGO!!!!!
I HATE THIS WEBSITE FOR BEING SUPER SLOW!
hi there , anyone heard of ayurhealthline .Anyone tried it.
Congratulations on your new girlfriend, Sibusiso! In the 7 years of running this site I don’t think there has been another comment that has made me smile more than this one :)
Got a new girlfriend :)
heyy :)
i’v read about lauras vit. organic treatment and i was thinking of trying it.
iv got vit everywhere and my back is nearly completely white.
has anyone else tried vit organics??? and if they have, was it positive??
xx. elle
the dermatology centre, put that in google and you should find the website for this clinic in london that does recell for vitiligo.
Jack,
My B-12&Folic Acid levels were always normal but I still have Vitiligo. I believe that all Vitiligo victims suffer from low B-vitamins or our body doesn’t use it well ( I dont have proof of this.)
Regarding Piperine it is available in the market as Bio-perine. Most of the vitamin shops carry it… I got piperine from Wilner Chemists and I got the one with 90% piperine. I made a paste of it with water and had UVB treatment. I saw two small brown spots after a month but I discontinued it… I am planning to continue the treatment next year with a new diet ( A Ph miracle diet which is very much similar to Emily’s experiment).
Keep us in the loop if you continue with your Piperine experiment.
hi jack,
good news that you’re tests showed normal levels of folic acid and b12! even though this might make one believe that these results point towards no link, there may be many causes that trigger vitiligo in individuals…my b12 levels are low when i dont take supplements. it would probably much easier to find a cure if there were at least 1 known common link between all vitiligo patients.
i wish you and your family all the best in the new year!
nathalie
Hi All,
I have been tested for my Folic and B 12 levels and they are both fine. With Ilana were her levels low? and if so, how low?
I have just started some steriod cream and some ointment which is meant to work with the UV treatment. It is meant to be a very slow process. I will be seeing a dermatoligist who specialises in RECELL in March and I will post the results. I have heard numerous times people mentioning peperine. Does anyone now where it can be purchased from?
Wishing everyone the best for the New Year.
Jack
Hey guys this was officially the worst year of my life … Couldn’t even enjoy the soccer world cup in my own country … I have such little faith that my vitiligo will get better though I’m seeing improvement, feel so ungrateful bt I jst can’t help it but be depressed .. :(
WISHING ALL MY VITILIGO FRIENDS AROUND THE WORLD A VERY MERRY CHRISTMAS AND A HAPPY 2011!!!
IT COULD BE OUR YEAR.
GOD BLESS YOU ALL!
zz,
My suggestion would be to buy the cover lotion.
The best thing they ever invented was the Q -tip.
I use a Q-tip to cover my spots with the lotion.
Put a bit of the lotion on a Q tip and rub it smoothly, in circles on the spot.
If it’s not enough, apply again later in the day.
You won’t believe how it will cover your spots.
But don’t put a heavy layer on, just lightly.
If you have hyperpigmentation like I do around the spots, it won’t cover that, but it just makes the sposts less noticable.
Let us know how it goes.
Mary, most of the people who take Folic acid also have to take B-12. Please check that as well. I am taking around 2000mcg on a daily basis.
V
hi mary,
i think that taking an excess of anything is never a good idea; however, we, as people with vitiligo, have a deficiency of folic acid, so taking a supplement (maybe higher than the normal dosage) to bring us up to the ‘normal’ level should be okay, don’t you think?
What does everyone think about the latest news about Folic Acid.
They are sayin that if you take too much of the supplement, that you have a higher risk of developing Colon Cancer.
Lots of us here are taking this supplement–Should we stop?
Hi,
Have Anybody tried DR Shah’s (LifeForce) Homeopathy ?? How effective is it ??
I am having Dr Shah’s medicine from last 2 months but dint see any benifit yet…
Anybody Please Update..
Calling on ZZ this site is not the same without you. we need to know if you have your skin graft procedure done.
Hi RA.
Yes I’m really excited about it.
It’s like what you have said before, at least I’m fighting it and doing something.
Even if it doesn’t work, at least I will have tried –but it will work!!
He did not mention as yet at to how he will treat my hyperpigmentation.
He could hardly see it (I cover it very well.
In mid January when I go back, he said that I will have to remove my make up and then we will discuss various options.
I’ll let you know. If it works, I can give you all the info.
In this Dermetology unit, they also have s Vitiligo support group, it would be interesting to go sometime.
Hi Sue,
Thank you for your kind words.
I believe that with the Microskin, they digitally take the colour and skin tone, and enter into a computer. They then create a perfect colour match, it’s amazing!!
There is an “airbrush” application for large area and sponges for smaller spots.
Natalie has posted the Dr Oz video here on this post, so you can see it. I recall it being $600 for the airbrush application? not sure though. They do have a website. I’m hoping the more larger cities will start to do it and the cost will come down.
There are so many great things to help us now.
My mother in law has Glaukoma, the doctors said that she should have been blind a long time a go–she isn’t. She has such a positive attitude that we know it has contributed to her keeping her vision.
She is my inspiration…the mind is very powerful.
Also, my cousin has Vitiligo and she is great about it. She always says “It won’t kill me” and “it’s not cancer” she is always happy and smiling. We both have loving and supportive families that care more about us than our skin.
A friend of mine from high school just died from skin cancer.
I know that her family would rather have her here with Vit, than be gone from skin cancer….that has really brought it home for me!!
Hi Mary,
That’s great! I am glad you can start your treatments soon and wish you all the luck. From my research and success stories I have read, I would have expected the repigmentation rate to be higher than 50% but I hope we’re all in the lucky 50% :).
I cover my face when treating my body with the full unit, however, I use the handheld unit I have, on my face on an as needed basis. I have caused a little bit of hyperpigmentation on one of my cheeks from using steroids (worst treatment ever!) and I am afraid it will get worse if exposed to the UVB.
Did the derm tell you how they will treat your hyperpigmentation?
Hi Mary,
My daughter is being treated by a derm. who uses a handheld excimer lamp. There is very slow repigmentation that too only on some spots. He is also treating her eyelids which worries me about any damage to the eyes. Have you heard of Microskin? I am thinking of going to New York city for a consultation for my daughter. I heard it is expensive. I dont know how effective it is in camouflaging the vit. spots. What are your thoughts? Good luck with your light treatment. I think your positive thinking, good diet and the light will help you repigment faster. Warm wishes, friend.
Sue
Hey RA and Lana,
I went to Toronto West this morning to get my first consultation for the Narrow UV Band.
The derm was great, he was very nice and seemed open to discussing new developments for the future for Vitiligo (refreshing).
He said that he may be able to lighten the hyperpigmentation I’m getting on my face (due to the vit). I’m really happy about that.
They are in the process of buying the Excimer Laser, cost is 450,000.
He thinks that they will get one soon.
I will start the full body UV in January. It’s so great that OHIP covers all this.
He said that they do not do the “face” as the sun takes care of that for us. How did you treat your face.
I asked him what the “repigment rate” was and he said 50%. I was hoping that it would be more, but I’m going to think positive and hope that I am in that 50%.
My Vitiligo has started to slow down, although spreading, but much slower that at first.
I’m taking Ginkgo,Folic Acid and B12, I hope it’s slowing it down.
Hey guys .. Done with my exams.. Wish me luck but i was under immense pressure this year so at times I couldn’t focus as much as i did without vitiligo … This website helps a lot makes one feel that they are not alone.. enjoy ya’llz day or night
Hi Sarah,
Thanks for the info. I stopped using the cream and this oral medication I was taking because I agree with you, two pimples on my face won’t kill me, but I will be devastated to see a vit. spot on my face. I LOVE honey when treating my acne, it does wonders after just one use. Not sure if you have tried it, but yogurt also works well, as it is a natural exfoliant, so it is not harsh on your skin.
RA
I would say STAY AWAY from the cream!! I too have moderate acne and from the moment I was diagnosed with vitiligo I’ve stopped all prescriptions and OTC acne products. This is because I’ve found out most of the products contain phenol, which is thought it may potentially speed up the progression of vitiligo. So nowdays, I only use DIY natural products for my acne.
At the mo, I’m using aloe vera gel and emu oil everynight for my acne. I’ve heard aloe gel is good for acne and so is emu oil, to some extent. The reason I’m using both is, when I use aloe vera gel on its own my skin becomes too dry. Bare in mind using emu oil on its own can cause you to breakout as it can clog the pores. Some people said they use emu oil on its own and didn’t cause them to breakout, but I’m not going to take chance.
Slapping up organic honey with few drops of tea tree oil now and then does wonder to acne scars :)
My acne is getting better…. but very,very slowly and it can be frustrating at times. Would it clear my acne for good? hmmmm, I have no idea. However, one thing I’m very certain about… I rather live with acne forever than having to deal with a single vitiligo spot anymore.
i am fully agreed with kashif ishrar……go for sun bath…do pranayams[kapal bhati and anulom vilom]……some aasans and excercises in morning….drink water in the morning from copper vessel(3 to 4 glass) which is kept at forenight…..go for ayurvedic medicine like…bakuchi,tulsi,neem etc….
one soap from malaysia product of dxn also helped me…gapochi ganoderma….
hope is the best of all things….hope for the best…
Hi zz,
How is you protopic/UVB treatment going? Any positive results yet?
Hi Shelly,
I am very aware of the fact that this website is for people with vitiligo, as is suggested by the name and millions of posts on the site :). I have vitiligo and was using a certain cream for acne and was just wondering if it may cause vitiligo to reappear on my face, as the cream may cause hypopigmentation, i.e. lightening of the skin.
RA
this place is for Vitiligo peeps not acne…
Hey Tiger
I am from California, USA
Hey,
I recently started using Tretinoin cream for acne (it is also used as anti-wrinkle), and it does wonders, overnight. However, when doing some research on the internet, I found that it may cause hypopigmentation. I have been using the cream for a few weeks and have not noticed any hypopigmentation but I am scared I might get vit. patches on my face. Has anyone used this cream?
SHELLY,
where r u from ?
thanx
TIGER
The medicine i am taking is Arsenicum Sulph flav 6X…and some other homeopathy medication which was made by the doc…I am going for a stronger dose next month…You can read about this online!
Hi Shelly,
It sounds like your homeopathy doctor is asking you to remove dairy from your diet–it might be working for you.
It would be great if you could post an email contact.
thanks for all your info.
Seriously guys just try to consult a homeopathy doctor…two of my spots are kinda blending in with my skin and I bearly started my treatment 5 months ago…May be it will give you hope…
hi i emailed the Clinuvel people but they said its not availble yet as they still need to do test trials to make sure its safe and effective. The trials are not being done here yet so noone in the UK can take part in the trials yet. But they said if/when they do have trials here that you should talk to your doctor or dermatologist about trying it.
Hello everybody, I have vitiligo like you and Know how you feel. I hate it to. It is like a handi-cap or disability. And if we try to pretend it isn’t so bad that’s when other people will remind us that it is. I get the stares all the time. I have even been followed in a store once or twice and stared at. I read some where on the web one time that Vitiligo could be caused by candida, but I don’t know. I just wanted to share this. Be strong, your not alone.
hi
My name is natalie and my youngest son jason has vitilgo for the past two years.
i would like to start raising money for more reseach to be done into vitiglo . as it not a life threathing disease they not much reseach done. I live in australia.
Ok so here is the deal…My treatment is called Homeopathy Treatment. My medicine is coming from India. I can give you my doctors # and e-mail for more information. I am pretty positive that you can find some Indian homeopathy doctors in UK. Please google it and call up some doctors.
Also, Nathalie I contacted my doctor regarding not eating white stuff. He said in my case I just have to quit raw onions, tamarind and pickels. But the pharmaciest said that If the white stuff I am eating is coooked and mixed with other stuff then its not harmful. Just like fried or grilled onions and not raw!
Just to be safe I am going to quit plain yogurt, white cheese, creamcheese, sour cream and hard boiled eggs.
People please do not kill yourself because of VITILIGO their are so many other people in this world that are more miserable than we are.
Also my doc said that he can cure my vitiligo but it can come back any time and I would have to start the treatment again.
I am just glad my family is being very supportive and that gives me courage to fight!!!
zz i thought you going to have surgery call mktp
hi shelly,
hahaha@ “switched from whiskey to Red wine so yea”!
i am french, but i have lived in the U.S. most of my life, so i am americanized but have european characteristics and mannerisms :)
i know just how you feel when you say that you feel disappointed when you see the vitiligo at night. i use the vitiligo cover lotion and when it’s time to reapply i see the vitiligo and hate it. otherwise, day to day, i dont really notice it at all, so it always takes me aback when i see it.
i’d be interested to hear your doc’s reasoning for the ‘diff color’ making a difference, because that makes no sense to me, lol.
talk soon,
nathalie
my homeopathy doctor said she could only stop mine from spreading,not cure it. i cant stand my vitiligo its ruining my life.
Hey Nathalie Pelletier
I am not sure…I was kinda confused about that too…I will confirm it with my doctor one more time…btw I have switched from whiskey to Red wine so yea…
Its funny I told my husband to stop eating all those things because I have to stop…I love yogurt but can’t have it anymore so he is ready to do it for me…That will keep me motivated to keep the treatment going!
I have two round circles around my eyes! I cover it with mac make up and my glasses but at the end of the day when you wash your face you can see them…seeing in the mirror just makes me disappointed!!!
Anywho btw where r u from Nathalie?
hi shelly,
it is tough to be diligent about lifestyle changes, even with the promise of being cured, but taking things a day at a time (or even hour by hour at first) the transition will get easier.
the stuff your homeopathic doctor told you to avoid sounds right by what i’ve learned, but how does changing the color of milk or cheese change their basic compounds?
keep us updated on your progress! :)
I am trying homeopaty treatment…doctor told me that my vitiligo will be cured for sure but it will take some time. Things to avoid for me: pickels, raw onions, tamarind, everything white like milk, cheese, sourcream, creamcheese…you can mix something in the milk to make it look non white same with cheese and other stuff…I am not sure about alcohol and smoking…It is going to be a hard ride without all these things… AHHHHHHHHH!
Am scared of surgery .. What if it just gets worse .. I just pray fr repigmentation on my lips thats the most important part but the hardest .. It’s better now coz I’m on medical aid… I’ll try getting more sun as possible ..
has any one used vitiligo cover lotion. Does it work???
SV save your money and do a skin graft or mkpt i am talking to the doctor right now about the procedure.
I jst get depressed by all this treatment i’m taking … My hands were starting to show some re pigmentation and now I’m loosing the freckles and even getting worse .. And now i can’t even pin point what medz were helping me … :( but what can you do life must go on …
Hey RA,
It’s worth a try!
hey,
i am from pakistan. but still i have no answer to my question. does vitiligo cover lotion work or not???
could some one please answer my question
RA i hear new story everyday don’t kow what to believe.
hey,
I was watching this show this morning called Remedy Me and they were using acupuncture to treat a girl with vitiligo. After only 2 months the girl saw a significant difference, the mark beside her lips was gone, around one eye was gone and the one around the other eye was shrinking. Has anyone here ever tried acupuncture and seen any success?
that it Ven got it
I think she means nationality :)
sORRY LEE I DINT GET YOU, NAT??
M what is your nat?
hey all,
Hope every one is doing good. Can any one please tell me about the cover lotion. DOes it work well on asians!! and generally does it work well on all skin tones. Please reply as i am about to buy this product. thank you
Hi Sue,
I stopped for a year or more (i think), my treatment seems a blur to me, which is why i started writing everything down when I got the home unit. Anyway, at the beginning of this year i started seeing some of the vit. around my eyes coming back so I started treating it with the light and it went away within a month. I got lazy and stopped and it came back so I am using the light again. I don’t use it on sunny days, and the small patch on the top corner of my eye was freckling on it’s own. So to conclude, you can’t ever really stop a treatment for vit. because it will come back. I don’t like the idea of exposing my eyelid to the light so often because it can cause premature aging, so I rest the light till I see even the smallest hint of white and I start treating again. This method has worked for me so far. The vit. around my eyes came back during a stressful period, so maybe it wouldn’t have if I hadn’t been so stressed. Unfortunately, there isn’t enough research for us to know anything conclusively. It’s all based on our own experiences.
I am really glad your daughter is freckling. I hope it continues! It will be 3 months in a week since I have been using the home unit and I really want to post pictures. I hope I have enough courage to, so people can see the crazy freckling :)
Hi RA,
You are right about the light treatment. My daughter has some freckles now on some of her spots (more on her chin and nothing at all on her feet and knees) after we started the light. I remember your post where you say your face is clear of vit. now with the light treatment. But do your keep up with an occasional light on the face or have you stopped? The reason I ask is that I have heard that once you stop the light the vit. comes back. Can you please clarify?
Cheers,
Sue
Hi Rein,
A lot of people seem to think Dr. Shah is a scam. However, with vit. you never know because what works for one person may not work for someone else and vice versa. Some people with vit. think that homeopathy in general made their vit. spread. The best possible investment in a treatment seems to be a UVB light. If can’t afford, sunlight during dawn or dusk may have similar effects.
Hi Rein,
I am giving my daughter homeopathy by Dr. Shah from India. I think that the medicine has made some spots fade away but on the other hand I find some new spots on other areas. So I am not sure at all if it is the medicine or something else that I am doing. For instance, my daughter is off gluten for the last six months. So good luck with your medicines.
Regards,
Sue
Hi im rein from ohio, i am thinking of buying these vitimins for my vitiligo, which i have all over, the doctors name is dr shah. from india has anybody heard of him? because i am planning to spend all of my time and money into his treatment otherwise. i do not have the money for laser treatments or any doctor appointments, nor do i have insurance. any advice?
zz no body want to help spotty like us
Hi RA
Thnx a milli fr da advise..I’ve never tried cover lotion and am not sure if it’s available in South Africa but I’ll give it a try… I’ve seen some success coz all my spots that were on my head have gone away and am seeing freckles on some patches on my thighs but it has gotten worse on my hands especially the last month .. I think stress really does make it worse … I’ve been using protopic 0.1 %, fish oil, b12 and folic acid for a while now probably one or a combination has helped with the spots that have dissappeared …
hey has any one tried out the vitiligo cover lotion. How well does it work. I am asiani have moderate skin tone. can any one tell me how well does it work on modertate skin tone ppl???
When I was 18 I had one white stop on my hip the size of a tooney and it disappeared about three years later.
Today I am 51 and last May 2010 I started noticing multiple white dots on my hands and forearm after a long boat ride. I read on the internet that if it was a fungus it would disappear with a shampoo for dandruffs because of the zink in it. Well my V is spreading and itching. I am using reactine for the itching and it works well. I went to see my doctor for blood test etc. and she said that my thyroid gland is not working enough (too slow)! Hoping that this is my problem! Also by the end of the summer I hated my skin very dark tan with white spots all over. Next summer I am planning to keep a long sleeve sweater because the V is not as obvious without a tan.
Hi SV,
I can relate to the whole makeup situation. I didn’t do so many things I wanted to when I had vit. on my face because I didn’t want my makeup to come off. But I was able to treat it with UVB. Have you tried any treatments successfully? One thing I have noticed, is that when I seem to care, other people seem to as well. Recently I have been acting like there are no marks on my hands and most people act the same way around me, minus the kids and the elderly. It takes time to kind of get used to it but till it does, you have makeup and coverup options. Have you tried cover lotion? A few people have used it and are happy with it. If you want to look for Mary’s posts, she talks about how well it covers up for her. And it’s not makeup so you don’t have to worry about smudges. I believe it’s all natural products so it’s not going to spread your vit. either. Hope you’re feeling better :). Take care
Where is ZZ?
why people are not sharing their experience…not its more than week…guys this website is very helpful for the concern….plz. keep on sharing..
thanks
god bless us
ZZ im here in Arizona, USA…
again, ive been missing the capsule (12 capsule /day) just too many…oil once a day and looks like its working for me…..
I so need a hug. It was better when I had my girlfriend waiting for me at the flat now there’s no one must just rely on calls from family and posts from u guys. Am on campus doing an assignment with my group, I’m so tired and didn’t even eat that much cauz I’m afraid of the makeup being smudged….clearly its gonna be an all nighter …Its hard especially being male and being dependent on make up… Bt i’ll survive
Been taking Vitilax and the oil from Dr. Li. its been 3 months and I dont take 12 capsule a day as recomended sometimes i dont drink it all, but I do use the oil once a day instead of twice a day. I have spots under my chin and some in my nose + above my eyebrows. I noticed some of my white spot under my chin are gone. it is working for me well so i cant complain. Also noticed that the white spot in my face is not bright white anymore.. I’m asian with brown skin so its easy to notice the spot in my face.
Love how ya’ll call it V .. Sounds like some cool mutation type thing
Mary, I hope that we meet one day so that I can give you a hug. You’re always a source of positive energy and your words touch my heart. Thank you!
Natalie,
When I come into my office in the morning (I work from home) the first thing I do is turn on my computer and then check this site.
Sometimes, before I even check my emails.
It’s become a part of my daily routine now since I have been diagnosed with V. Maybe it’s to see if some new miracle happened over night somewhere in the world that will possibly cure it or maybe someone has a new treatment to slow it down or re pigment. Or maybe its just for some wonderful words of hope and inspiration. And, that’s what happened for me…this morning.
I’m going to live by that quote.
Thanks Natalie
zz, 7.5 million people DIE each year from cancer, and there still isn’t a cure. Vitiligo is an emotionally debilitating disease, but at least we aren’t going to die from it. Just as those with cancer, or any of the other myriad of diseases we humans contract, we have to have patience for a cure to be found and faith (yes, blind faith) that those in charge of finding a cure are working hard to discover it, not sitting around shooting the breeze over coffee or tea.
In my 15 years of living with vitiligo, I have dealt with caring doctors and doctors who need to go back to school to learn bedside manners. In the end, though, I have realized that it is up to me to either accept the behavior or not, because honestly, though it would be nice, the job of a general practitioner or dermatologist is to help with our physical ailments to the best of their ability, not to coddle us. Politeness is always appreciated, but in their line of work it’s not required. Basically, if I don’t like their attitude I have every right to keep looking for another doctor until I find one that meshes with my wants and needs. The unsatisfactory doctor loses a patient (and all of my money), and I walk away with my pride in tact.
Everyone who visits this site is living with vitiligo, and I can guarantee that not one of them enjoys it, but many have found a way to at least get along with it…even those with vitiligo covering over 75% of their body. We all get down, at one time or another, about having vitiligo and I completely understand the need to vent those frustrations…I am here, for everyone, to listen and offer support.
Quite a few people have taken the time to respond to your comments with helpful tips and great advice, and I would really like for you to take a moment, next time you visit the site, to think of how you can best use your words to support/inspire other people, because in turn, that will be the best way to help yourself.
Hi zz,
I understand your frustration. When I was a kid, I used to think the same way. But now that I am old enough to understand the world around me, I know that there are a lot of other illnesses that are life threatening and therefore take priority over vit. There is research being done but either you don’t research enough or you don’t think it’s good enough. The latest study done that showed vit. to be an autoimmune disorder is a major one because it shows that we may be treated with similar medication that other autoimmune disorders are treated with. I have been to a few doctors who were very dismissive of my condition and it disheartened me. But through my research and other people’s experiences, I have been treating myself for a while and so far, I am satisfied with the results. We meet here to discuss ideas and experiences. Constantly bad mouthing doctors/researchers is not going to solve anything. If anything, your stress is going to worsen your condition.
I have read about this vitiligo treatment in Cuba. They claim that it cures vitiligo 100%. It is called Melagenina Plus. It is made from human placenta. You go to Cuba for 3 days, they give you treatment and show you how to use it and then you take this Melagenina Plus home to apply.
Did anyone hear anything about this treatment and did anyone have any success with it?
I am considering this treatment and would love to hear from anyone that has used it.
Lily
if you have stable vitiligo just keep it up by using protopic or uvb and hope it will not spread on you. I believe in the next two year there will be a break through in treating/cureing vitiligo. don’t worry zz you are not little kid i hear you already married and have kid.
zz,
you are expecting too much so soon.
I know its tough believe you me. But, Natalie has been kind enough to create this site to help all of us, to be a place where we can all go for support and to let us all know what is being done around the world for us, hope not despair!
This seems so stressful for you, and it will make your Vitiligo worse!
If you just google “vitiligo conference 2010” all kinds of information comes up, that’s a good way for you to learn what’s happening around the world right now.
Remember, all of this takes time. Even though, it has been too long for help for us, lots of things have changed already for us. Treatment is better, make up is better and maybe we are all being accepted more, so you don’t have to feel so bad.
You are not dying of an illness, you have to appreciate that..
I am talking about regular people that does not have vitiligo like us do. even the media does not care. they rather cover woman soccer or amature fight before vitiligo.
ZZ i don’t think many people care about this vitiligo congress.
Living with vitiligo is very hard …Sometimes i feel like i compalain 2much some ppl have it so much worse and are facing so many other obstacles … I do hope in time i’ll be happier with myself
Hi everyone …THere are so many things that we’re supposed to do or not supposed to do it ends up being hard to even stick with one treatment…I do pray that a worth while treatment becomes available soon…
Hey everyone,
I was watching this segment the other day cal “Wylde on Health” and they were talking about treating autoimmune diseases through diet. They mentioned vitiligo, which obviously caught my attention. According to them, even if we are not allergic to gluten or dairy, we should cut them out of our diets. I have cut out dairy, with the occasional cheating with ice cream (I LOVE ice cream) but i find it really difficult to give up gluten, as it is present in everything around us. I know couple people on here have benefitted from giving up gluten. Anyway, I found it very interesting because most discussions about diseases seem to exclude Vitiligo.
I also want to share my progress with UVB. I started using my full home unit on August 9 and I now have freckles on every part of my body (other than hands and feet). I can’t wait till they all connect because right now it’s even more cosmetically unappealing than just plain white patches lol. I love these brown freckles!
Katie, thank for that explanation.
My derm didn’t tell me any of that, you have a good one!
It’s such important information, shouldn’t they all tell their Vit patients this?
Sue, My dermatologist explained to me that Protopic works from the outside-in, so she said that once my pigment returns to normal I need to continue to use the Protopic for at least 2-6 months longer so that it makes permanent changes. She explained that even when the SURFACE skin returns to normal, the underneath layers have not yet, so if you stop using Protopic too soon, your Vitiligo will eventually resurface as your skin exfoliates. Hope that explanation helps you…
Katie
Hi ZZ,
Thank you. My daughter is getting the uvb light treatment. But we just started the protopic on her eyelids. We are not using the light on her eyes though. Not sure if it is safe. Would you know if protopic will temporarily make the spots away and then make them worse later? Because we used steroids last year and one patch got really worse after that. Any input will be appreciated.
Chris,
So far it is not proven that food( red meat, diary, lemon/lime) increase vitiligo.
According to traditional medicines ( Ayurveda,Unani,Homeopathy ) it is recommended not to eat lemon,diary,chicen,beef,pork related food in any form. Stress is also a factor for vitiligo.
I think you have a better chance of controlling/reducing your spots at the initial stages. If I were you please check have some tests done and make sure it is vitiligo and not Gluten related. There was a post recently on this site I dont remember exactly who it was from but the Doctor she visited wrote an book “Gluten”.
Lot of Vitiligo patients also use Folic-acid,B12, Ginko Bilbao supplements. Make sure you are taking both Folic acid and B12 together.
I hope this helps in your fight against vitiligo.
Regards
Went to the doctors yesterday and found out I have vitiligo. I’m 18 and thus far it’s only on the first two toes on my left foot. Only found out it was there after this summer when I was in the sun a lot of the time. I remember my friend telling me many years ago that my toenails were a weird colour and that it was probably a pigment problem (his dad is a doctor) but I didn’t think anything of it.
I’ve read that eating red meat and dairy can cause vitiligo to manifest further and more rapidly. Can anyone recommend perhaps some foods than can help with skin pigmentation? I currenltly have becon most mornings and minced meat in the afternoon with chicken in the evening and am curious as to if this could cause more problems than it’s worth.
The odd thing is that the white patch on my foot has brown freckles inside on the large toe and around the nail there is still pigment that fades out quickly to white. It’s freaking me out as I’ve seen some horror stories and pictures or vitiligo. I don’t want to sound insensitive to those that suffer from this badly as I can’t imagine it is easy in visual and psychological aspects.
I’m looking to buy some vitamins to help my skin and I get regular sun exposure and exercise so here’s hoping it’s just an isolated patch of vitiligo on my foot. Stressful as I have university in four days!
Hi,
I am new to the website. Nathalie, thank you for starting this. My 7 year old daughter was diagnosed with vitiligo a year ago. I have been moving heaven and earth since then to get rid of the disease. No success so far. But it is heartening to read the stories of other people with vit. I pray that one day there will be a cure for vitiligo.
Hi zz,
i’m sorry, I thought that your face had more Vitiligo on it.
You are very lucky, you don’t have much at all.
No, you would not want to use the cover lotion all over your face.
I would try a bit, very thin layers, on your patch, you might be quite surprised.
Have a look on the internet for foundation to cover scars and such, may work for you.
take care,
Mary
hi
where can i find VITILAX here in Dubai,UAE ??
and can i bought it without a prescription from a dermatologist ??
Hi zz,
I have read various comments on different vit. support websites that smart shade makeup seems to work well for people with vit. The cover lotion may also be a great option for you if you don’t want to wear makeup. When I had vit. on my face, I wore the two-toned makeup, specially for people with vit., by coverfx and then the regular foundation on top to even it all out. They have great foundations with very natural coverage. I still use the regular foundation to cover acne scars and I always get compliments on how nice my skin is, people don;t even seem to notice I have makeup on. You just have to find the right shade, which may take a while. You seem very stressed, which is not going to help your vit. at all. I am not sure what your background is, but I am of Indian origin with olive skin. The vit. is VERY noticeable on my hands. I used to always pull my sleeves over it (thanks to Canadian weather I can wear full sleeves for about 10 months in a year without looking like an idiot lol). But about a few months ago I realized that if anyone judges me or makes comments about my vit. is ignorant and flawed for hurting me for something that I have no control over. There are still times when I cry after seeing my reflection in the mirror. But you have to know that all we can do is treat the vit. and be optimistic. Anger and pessimism is not going to get us anywhere. I have been treating with UVB and even though the results are very slow, I see new freckles everyday. I know it may take a good 2 years before I am vit. free (if possible) but just treating it and knowing that I am doing something positive for my vit. makes me feel a lot better.
have you tried to cover the little patch on your face with an over-the-counter foundation? I know that it is typically used by women, but it would be an ideal quick fix. you wouldn’t have to put it over your entire face, just dabbing it on the white patch may blend it satisfactorily.
thank you for posting the link to Illana’s original site, kjell!
Adress for Ilana sweden
hope this will make it, ilona has had a hard time , she is fantastic
and you to are great
best wishes Kjell
zz are you using the cover lotion?
It’s amazing!!!
This is what I do;
The key is to ex foliate your face first (scrub it well), then put the lotion all over your face ( a thin layer) then touch up in spots.
It takes a few hours for the colour to come out.
Sometimes I put it on before I go to bed, in the morning it’s ready.
It matches my original skin tone!! it’s fantastic.
Unfortunately, though it’s not always enough. So, I touch up with make up (cover fx camouflage and foundation) and that’s it…you would never know I had vitiligo.
zz; Are you male or female?
Anybody here from Metro Atlanta, GA area?
Hi All,
I just though I would pass this along.
We all know about this breakthrough….
But, all of a sudden now instead of reading ” no cure” full stop, we’re seeing stories like this!!!
it’s just such a great feeling.
Thanks song4mozart, Nathalie and everyone for the words of encouragement.. It’s hard at times cauz you ask yourself why me what did i do??. But it’s the same thing that ppl with cancer or who are in wheelchairs ask themselves. And they’ve got it worse than us.. It does get easier but there’s just those tough days… This website really helps thnks!!!
Hi SV:
Your comment touched my heart. I feel so much for younger people who are struck with vitiligo. I got it when I was 28 years old and already married with two children, but it was still psychologically debilitating nonetheless. However, I’ve learned that truly loving yourself is the key to hurdling any obstacle. After 8 years of wearing pants and long sleeve tops, I learned to accept myself as I was and to love myself enough to wear shorts and short sleeve tops in warm weather. Slowly, the vitiligo began to fade away and my skin is actually returning to “normal”. I still have a few war wounds, but I believe this improvement is due to the power of PRAYER – first and foremost – and the ability to LOVE myself for who I am on the inside. After all, who we are on the inside reveals itself on the outside. God bless you, SV, and my prayers are with you! <3
Hi zz,
The Vit on my cousins face seems to be spreading, that’s why her face just looks even toned, pale but even. Being of Italian origin, the skin on our faces just seems to go a few tones lighter than before. When she wears makeup, it’s not as noticeable.
She has a friend who has gone all white, and she hopes that she goes all white as well. She is OK with it.
She isn’t doing anything for her Vit, not even vitamins. I told her about this website. It doesn’t seem to bother her as much anymore.
The thing about Vit that scares me is the dark lesions. She does seem to have this “overspray” look to her face in areas.
What can be done about these lesions. We have so many great treatments on the horizon, but what can be done about the lesions that may appear.
My cousin has dark ones on her feet.
I’ve been lucky, mine on my face just look like big freckles.
It’s funny, my husband has reddish hair and lots and lots of freckles.
His hands are whiter and his arms now look like my cousins. He has had to deal with his freckles all his life as a curse when he was young. He says now I’ll just be like him lol.
Hi zz,
How’s your treatment with UVB and protopic going? Seen any results yet? I remember you saying that the hair in the white patches grows white. Unfortunately, that may mean that your treatment may take longer because the melanin is present in the hair/hair follicle. White hair means the melanin is completely dead. So the melanin from the surrounding areas of the vit. (the brown skin) will eventually spread to the white patches after treatments. This is the theoretical scenario. Let me know what’s going on. Good luck!
Hi Mary,
I usually cover the vit with clothes. I tried the cover lotion but it doesn’t seem to work for me, I am probably just not doing it right lol. I used to use the coverfx two-toned makeup to cover the vit on my face. I no longer need it, which is great news :). I also have the most annoying one on the base of my neck. It’s very light though, i need to put the smallest amount of makeup on it for it to disappear. I am of Indian origin so the vit. is very noticeable on my skin. Everyone has seen my hands. I have only ever had one bf who was very bothered by it, kept asking about it. Most other people that I associate with frequently seem to act like it’s not even there. Like you said, we can have so many other diseases that are so much worse than vit. It’s not the greatest thing to have, but we’ll live :). I hate not being able to wear what I want though. I bought a really pretty skirt and I hate wearing it with leggings so I just stopped wearing it. Maybe in a couple years I will be able to wear shorts and skirts. Till then, I have decided to be strong and not cry about it everyday, like I used to. Good luck to you with your treatment. Yours doesn’t seem to be as extensive as mine. Have you tried any treatments at all? Most people with vit. seem to be anemic. So get blood work done, if you haven’t already and see what vitamin supplements you may need. Protopic also seems to work really well on people’s face, so you might want to try that as well. I think the combination of UVB and protopic has given people the most success. Good luck and keep me posted about any progress or results. It’s always great to hear about people’s experiments and successes.
Hi RV,
All of us here, have bad days that’s for sure.
Mine seem to be Mondays for some reason, the rest of the week, I’m fine.
Anyway, My cousin has it and she is a hair stylist.
She gets asked all the time about her condition, now less because her face is clearing nicely and you can’t even tell as much. Her arms just look like she has freckles (there’s hope for us).
She has such a good response to people. She just shrugs her shoulders and says “it won’t kill me, who cares, it’s just your skin, it’s not me” and she goes on (she has had it 10 years). When I use the same response with people, it’s like magic, I feel so much better.
As my wacky dermatologist always says to me “it’s the best disease you can have”.
Really, everyone it seems have their own crosses to bear.
I went to a backyard party on my street last night. You always feel sorry for your self and then you talk to other people.
1 person had a stroke at 40. One person has bone cancer and is in remission. One person’s husband just left her with 3 kids and one person’s son (17) has brain cancer. I went home in a daze and kept thinking to myself “how could you be so shallow” they would trade with me in an instant!!
RV, it won’t kill you, who cares, it’s just skin and it not you!
Hi RA,
Thanks so much for your reply.
I have only had the diagnoses for Vit 1 1/2″ years, so it’s all still so fresh for me.
I have it on my lower back (that’s where it started). I have it on my face, I’m fair already, so you can’t really notice it. I use theCover Lotion and a great camouflage make up (), I chose a lighter color one and that seems to make my face look uniform. If you go lighter, it seems to work with the white patches. The parts that bother me the most is the base of my neck (I have some spots) and the front of my lower legs. I can’t wear v necks or short skirts in the summer. I think it’s great that you are making the effort to re pigment. It buys us time! I would do it just so I can go back to wearing what I want.
If you can buy 2 years a time, then so be it and hopefully the cure will be around the corner. It’s better than doing nothing.
Do people notice yours or is it pigmented enough now, that people don’t notice it?
thanks again,
Hi SV,
I know just how you feel. If I don’t put on my cover lotion, my vitiligo shows and, sadly, it stops me from doing even the simplest thing as going to the gym. School is much more important, though, and I urge you to talk to your professors. Explain your situation and how vitiligo makes you self-conscious. You may be very surprised at the help you will receive when they understand that your missing classes due to being lazy or uncaring. Dare to reach out for help, or at least their understanding ;)
Nathalie
Hi Mary,
I have never had experiences with a tanning bed so I am not sure if it’s like a tanning bed. I have to stand in front of it. First the front and then the back.
My research has also shown that UVA is more harmful but some doctors just don’t seem to know anything, they are so ignorant about vitiligo.
Unfortunately, since there is still no “cure”, the repigmentation is not permanent. The spots on my face started to reappear about 2 years after I stopped treating them. I started treating them again and they disappeared in about a months. It seems like till there is a cure to stop depigmentation, we have to continue to treat if we want to stay repigmented. I am depigmented a lot so I don’t even know how long it is going to take for me to get all the way there, if that is even possible. My face and chest are the fastest to repigment though and those two areas always bothered me the most. How extensive is your vit? maybe you can just buy a handheld, which is only a fraction of the cost of the full unit.
Having a really hard time lately …DOnt even feel like going to classes at times…Sucks having vitiligo and ppl just don’t understand at times that u have bad days…
Wow RA,
Good for you.
is it like a tanning bed? i don’t understand these doctors.
Isn’t UVA more harmful? It could damage skin cells and have the potential to cause cell mutation, why wouldn’t the doctor prescribe UVB?
Anyway, that’s great that your having such good results!
Do you know if it can be permanent? Have the rest of your spots remained pigmented?
thanks for sharing.
Hi all,
I’ve had vitiligo for over 30 years mainly on my head and hands. I’ve been treating it with a hand held uvb lamp for about 4 months now and had some good results. My forehead has repigmented almost completely. I’m also repigging around the eyes and mouth. My hands and digits are proving quite stubborn but I’ve seen minor improvements. Patience is certianly needed and dont expect results overnight. Good luck to all.
Hi Mary,
I bought the unit. My doctor wouldn’t prescribe UVB, wanted me to treat with UVA. So I initially bought a handheld device to see its results and was very satisfied. After about a year of using the handheld, i bought the home unit. I had to pay for it all myself but if it works I think it’s worth it. I think there is one person here from the GTA area who found a doctor who gave her a UVB referral. I can’t remember who it was, but if you’re reading this, please respond to the post :).
Hi RA,
Since I am in Ontario as well, if you don’t mind me asking, where are you getting the full body done?
If you don’t want to post it here, I can give you my email.
thanks Mary
Has anyone here used tanning oil before their UVB treatment?
Hi zz,
My treatment is going great! I see new freckles everyday. Today I saw browning of big patches on my chest. I think my chest will be cleared up within the next few months. The legs will take longer but there is still a lot of freckling. I remember you asked how to get rid of the itching. I used vaseline after the treatment yesterday and my skin was no longer itchy. So try doing that.
for ZZ
email i received from Dr. Henderson
Hi Lee,
Unfortunately I cannot give medical advice without having seen you in the clinic myself. Your dermatologist should be able to discuss with you if they feel comfortable combining UVB and protopic.
With regards to the answers you provided, I think that you may be a candidate for the MKTP procedure. To determine this, we would need to see you for a consultation visit in our clinic. You should know that the cost of this procedure ranges from $3,500 to $4000. If you are interested in scheduling a consultation in our clinic, please let me know and I can help set this up for you.
Thanks again for your interest. I wish you the best of luck,
Marsha Henderson, MD
Research Fellow
Department of Dermatology
Henry Ford Medical Center
3031 W. Grand Blvd., Suite 800
Detroit, MI 48202
Research Office (313) 916-6964
Fax (313) 916-5334
hi zz,
i understand what you’re feeling, but don’t despair. the good news is that scientists and companies are finally looking for a solution to help ppl with vitiligo. i started this website 6 years ago and i can tell you that the amount of serious work being done for vitiligo now is amazing compared to when i first started.
zz, i read all of your comments, and i want to tell you that it’s thoughtful ppl like you who make a difference because youre helping others get through life with vitiligo. it may seem like a small thing to answer someone on here, but it means a lot to them.
i have emailed them but no reply either
Aiden u sound like a gr8 kid…funny too… I understand how you feel but trust me one day you will found some1 who will love you just the way you are… All the best
This new Recell treatment sounds very promising hey…It’s like we’re zeroing in a cure..
Hi,
As well as me having vitiligo on my penis shaft as well as my pubic hair turning, since I was 10 I noticed 2 small white patches on the head of my penis. Would this be considered vitiligo? Would protopic or UVB remove the white patches on my penis head.
After realizing I had vitiligo on my penis when i was 13 (im 16 now) it utterly destroyed me, entirely. Fancy your average teenage boy going through such. I live in a city (wellington New Zealand) were kids these days are so cruel.
Is there any cure for the spots on my penis head? Will any treatments work? Is there any special dye to change the color of my pubic hair around my little pecker?
PWhy did i get vitiligo? My Parents never had it so why should I? Im a handsome young chap and it all gets spoiled, and i will probly never lose my virginity.
I never came out expecting to be perfect, but at lease not with a pink-white willy ruining my olive complexion :(
My vitiligo started to kick in when I started my new intermediate school, and i knew know one. Life was bad, and i struggled with alot of things. I was around 12 (ive had the spots on my penis head sinse i was 10). If my condition gets treated, meaning my penis shaft and pubic region restores its pigment will the pubic hairs go their natural color,
thanks guy, you rock, i
Hello every one,
I strongly urge every one to go visit the link that mary has posted. Thank u mary. After reading this article i am hopeful that real soon there will be a cure for vitiligo. Ppl there is a wide research going on for which ppl with vitiligo are urged to come foward and participate. I hope all of you do read this aricle!! Thank you god and thank u all who made are working on finding a cure!! god speed
thanks for the find mary! i will gain access to the article from the new england journal and post it here for all to enjoy ;)
Hi everyone,
I always love coming across anything new in the treatment of Vitiligo,
Please read;
https://www.vitiligosupport.org/newsletters/summer10.html#2
Some of this information we already know.
What is really exciting is that because the New England Journal of Medicine has confirmed that Vitiligo is an autoimmune disease – that the cause of vitiligo lies in our immune system, that quite possibly, current and future drugs that are being used to stop the progression of other autoimmune diseases such a Rheumatoid Arthritis can be used to stop the spreading of Vitiligo! and then slowly try to re pigment after that using other treatments.
It really feels good that scientists and doctors are out there working for us, and new discoveries are in the near future!
Hello all,
can anyone please guide me about the vitamen dosage. I am gonna start with B12, folic acid and fish oil. May b copper and zinc too?
Hello All,
hows every ones struggle to cure vitiligo coming along.
I am planning to start with the vitamen intake. Can any one please guide me as to what dose should i take for b12, folic acid and omega 3(fish oil). Thank you, hope to get a reply soon
I have had what Dr.’s think is vitiligo since 1991. Quite honestly, they act like it’s nothing, and even had the nerve to say I was a beautiful woman and shouldn’t worry about it. Idiots! In the meantime, I suffered from low self-esteem to the point I never wanted to go anywhere. My twenties and thirties were spent in pants and long sleeve tops to cover my spots. It wasn’t until 2000 that I decided to wear shorts and short-sleeved shirts. It was extremely difficult, but I was so tired of being a slave to this skin affliction, and I didn’t want to be a slave to it anymore. Also, I began venturing out in the sun for small periods of time. Before, I would avoid the sun like the plague. Slowly, my white spots began to turn pink, then light brown, and now I have light brown and dark brown spots, but at least there are no stark white spots. Some areas have completely “healed”. Another thing I’ve noticed is, when I was pregnant two years ago, I took prenatal vitamins religiously every day. I noticed areas on my skin which never tanned before actually tanned! Now my skin is even better, but I still have those stubborn spots that are not as dark as the rest. I am Hispanic and have light brown skin. Although, I am grateful my skin has gotten much better, I would like to be completely healed since I believe it is possible. I have been reading about several treatment options and am interested in the natural approach. I have read the information on the Merry Clinic site because it uses natural herbs and traditional Chinese medicine. I am, however, extremely leery of any product one takes by mouth. With so many side-effects that show up years later, I do not want to take something which will cause far greater harm than good or which will make a bad problem worse. Can anybody who has taken these herbs for a while please shed some light on this for me? Also, I would really like to see before and after photos of those who have had success taking these herbs. Thank you! :)
Hello every one. i discovered this forum today and read thru all the post dating back to 2008.
Tarana would u plz be a little more elaborate on that fish oil and that 85epf thing that you were talking about?
Jon- what is detox and how long did it take u to get rid of ur patches.
I treied a homeo pathic treatment once when i was a kid. i was suppose to take psoralea, early in the morning and was placed on a very restrictive diet. No diary foods and no meat except mutton. i carried this teatment for 18 months and it cured alot on my patches on my back. But i did this treatment about 10 to 12 years back. im 21 now. Now i just have the patches on my feet and hands. I am getting worried because they are spreading dot by dot on my feet and arms/ hands. i am planning to get my test done so that i could start with the vitamens i hope theyu help!!
thanks lee. im from the UK, do they have it here? i emailed recell but still no answer.
hi lee,
what type of work do you do with the center for disease control?
nathalie
Nina, i also email them. here you go
Greetings,
We appreciate your interest in ReCell, unfortunately at this time ReCell is not available for sale in the United States therefore there are no doctors currently using ReCell in the US. We have just begun clinical trials and are hoping for FDA clearance within the next 2 years. We encourage you to please check our website http://www.avitamedical.com for updates. Again we appreciate your interest in our product and apologize that we do not have further information at this time.
Kathryn Byrne
Avita Medical Americas, LLC
10 Tower Office Park Suite 220
Woburn, MA 01801 USA
did they answer your call? what did they say? did they tell you if you have to pay?
zz good idea i called them yesterday. let ring them up yall
hi zz,
my dermalogist have prescribed tacrolimus ointment 0.1% cream and nvm tab once a day with uvb twice a week……its working but very slow. all the best to everybody for the treatment
also… I really like the results of my UVB treatments… its not fast but it works… I know i can fight this with patience and diligence :)
Hi zz,
I have crazy itching after UVB treatment as well. I take anti-allergy and I also use oils. I have tried aloe as well. All of these things have helped reduce the itchiness but nothing has eliminated it. I have asked this question on here before but no one responded so I figured no one had either had this experience or a solution to my itching problem. Anyone has anything they have done successfully?
hi S,
i am taking uvb treatment from Delhi.
Hi Tiger,
I stay in Bangalore..What are you doing to cover your vitiligo?
Hello Everyone. I am a 23 yr old female from Louisiana. I have been having vitiligo for 10 years now, and i never really cared about it or even really paid attention to it until these past couple of months where it is really getting worse. I have it extremely bad on both hands up to my wrists, on my face a small amount, but ugly though, on my feet and private areas. I am noticing it spreading on my arms and legs since this past summer and am really getting unhappy. I have two little girls, a 3 yr old and a 1 yr old so money is tight. I would like to try the uvb lighting and the protopic. Does anyone know how much this uvb light runs and if anyone has one that they dont need anymore, I would like to get it.
Cathy~ If the treatment you are trying for your son works, please let us know!
DEAR S,
WHERE IN INDIA??
thankyou for posting that mary. iv never heard of it untill now. i just hope its all legit and not dodgey.
Hi Moorthi,
Please publsih the address of Dr which you will meet in Sept. I am very curious to know abt it since I have vitiligo and stay in India.
HI, my son was diagnosed with Vitiligo last year. WE’ve been seeing a dermatologist who prescribed protopic, but it didn’t do anything. They told me jsut to put him in the sun..and then it started to spread. It’s on his neck and it’s spreading up his face. My neighbor is from Congo and she had Vitiligo when she was a teenager. The herbalist in her village gave her this “root” cream and tea and it went away in a matter of months.
I am trying it now with my son in hopes that it gets cured and doesn’t re occur anywhere else on his body.
Any idea what this “root” could be?
I’ve been applying fish oil , protopic 0.1% for the past 2 months and I think thats the reason I’m gettin some pigment back. Getting re pigmentation in some parts but getting worse on others. I also take B12 and folic acid.
HI everyone…I’ve realized that patches under hair re pigment faster. I had small white patches on the back of my head and under my chin and they disappeared with very little treatment. I often forget bout them and don’t even treat them bt saw that they were gone when I shaved my head yesterday. But vitiligo is very unpredictable though every bit of re pigmentation gives one hope. Is there any research or treatment around this issue.
Has anyone heard of “ReCell”?
Here is the link
This sounds amazing.
It just gives me such a good feeling that progress is being
made everyday.
Let me now what all of you think.
If you have localized Vitiligo then you can try Mometasone Furote Ointment USP. It comes in 15 mg packets. When I was in the early stage I tried this as recommended by my Physician. You will have to apply and rub it hard two times a day. After couple of months it slowly disappeared. But my problem was I keep getting new spots faster then I could cure with this ointment. It was costing about $30 for 15mg. The same medicine in India I was able to get for less than $3.
Tiger,
I do not have the physical address. But I was told it is near Hyderabad in Andra Pradesh. I will give you the whole scoop by the first week of September. I will be visiting them.
Moorthi
hi moorthi,
where in INDIA (location) place which you have mentioned above. actually i am from india. please post the address so that i gather some information regarding it will be very helpfull.
thanks
Thanks you K. You saved me lots of time and money. It looks like there is really not much of cure available. We should just take it easy and enjoy life. Like some one said “is just the skin not us”. You are who you are. If people reject you it is their problem not ours. One of my Dr. friend told that there is really not a cure there but you can take different treatment just for your own satisfaction. Feel good that you are doing something about it.
Moorthi
Hello Moorthi,
I took Dr. Lie medicine in 2007 for 4 months and did not see any improvement. I will not recommend her to you at all. She looks more as a spam. I have also other friends that took her medicine and did nothing at all. Also a final note, her medicine is not approved by FDA and god knows what it is. I thought just to let you know.
Thank you Walt. I will look forward to your feedback. In my case it is spreading fast. At this rate I will be all white soon. I am going to India in about three weeks. My mom said there what a person in my home town got cured through some Doctor in the neighboring state. I am going to check that one also. Otherwise I may just let it go all white. I will also post some feedback after that.
Moorthi
Hello Moorthi,
I been taking the Vitilax and the oil from Dr. Le for 6 weeks now and I haven’t seen any changes; I’m also taking B12, Folic Acid and Multivitamins. I know she mentioned to not expect any changes for 3 or 4 months. I looked for information or feedback regarding her products, but wasn’t able to find much. I will post another update in 4 weeks.
Good luck to you!
Walt
Over one year ago I had a white spot under my right arm and my doctor told that there is not medicine. When I went to India I showed to a homeopathic doctor and he gave some medicine. He told me to avoid citric acid (lime, orange, lemon etc.,). I tried few months and did not see any improvement. During that time when I went for regular medical check up my Dr. told me that there are couple of Enzyme levels are very high indicating that liver may be producing high levels of those. I got scared and stopped taking that medicine. After few months when I did the medical check up it was normal. Since then I have not tried anything and it is growing all over my body and beginning to come on my face too. I read few good things about I am planning to visit Dr. Lee when go to Bay area next month.
Any advice will be greatly appreciated.
Moorthi
hi laura no problem,i understand. hopefully i can try myself soon
@ nina…
i am sorry..but am not applying d oil..i will start again from today..my dad s health took most of my health..which left me too much tired to apply the oil…soo hopefully i ll start again from today…
A dermatologist also told me that if the treatments dont help me to pigmentation, one good option could be hair grafts, beacause i have localized vitiligo on the beard area , but it has to be stable for at least 6 months , it means that the spread has to be stopped.
Hi everyone, im from El Salvador (America Central) , first of all , im sorry for my bad grammar.
I want to share my experience with you
I have vitíligo, two White patches appeared on my face two years ago, now I have more patches and they are bigger with the time, I only have the problem in the right side of my face and two patches on my neck, I have visited the best dermatologists in my country with post grades in United States but the treatments didn’t make effect.
My first 1 ½ year , the doctor prescribed me dermovate( a topic steroid that helps to stop the depigmentation) , elidel, meladinine (tablets that in theory helps the pigmentation with the exposure to the sun )
The last 4 months I have being using Vitises Gel ( a product from Spain that contains melon extract, gingko biloba extract, and calcium chloride and Daivonex.
Nothing has helped me.
We have to be clear that the drugs do not produce the same results for everybody.
In two weeks I am going to start with Melagenina Plus that was prescribed by my new dermatologist who studied Medicine in Cuba. I have read different points of view about this therapy, some of them good and some of them bad, but I have hope and I believe in God that this treatment is going to give me good results.
Good luck for everyone, my better wishes for all of you.
has laura reported back on the vitiligo organics she’s trying yet? has anyone else tried it? i want to try it but havent got enough money yet.
Hi SV,
I am so sorry to hear that. Break ups can be difficult. I can’t tell you not to be too upset because when I went through something similar I noticed a small spot reappearing on my eye and one beside my lips… i fought it very aggressively with UVB and it went away very fast… unfortunately the ones on my hands don;t go away so fast. Try meditating, it helps me a lot.
RA thanks for the replies. I just broke up with my girlfriend of 3yrs, been so stressed lately and i was jst tired of being unhappy. She just changed suddenly & week after week I’ve realised that I’ve taken a back seat in her life. Two minutes of quality time with her was impossible to get. I hope this doesnt make my vitiligo worse because I’m so so sad. Still using protopic and vitamins…
Hi Drew,
Not sure if you know about this but there is smart shade makeup that a couple guys with vitiligo found helpful. Also, if you want to experiment, food colouring can give you a good colour without looking like makeup. I use it on my hands on special occasions and i really like it. Good luck and stay optimistic, stress can really worsen vitiligo.
I just got diagnosed with it. It’s a couple of light patches on my face and right now I’m on protopic. The doctor and I haven’t discussed UVB treatments yet. I’m pretty sure my insurance plan will cover it, it’s a very good plan thankfully. Anyway I’m trying to stay optimistic about the whole thing and I think in my case it was triggered, possibly exacerbated by, severe emotional trauma. I was in one of those situations where you just feel trapped and I remember breaking down and just crying and crying. It was literally the worst I have ever felt in my life. Shortly afterwards this white spot appears out of nowhere on my cheek. I’m feeling much better right now and I’m trying to stay positive. I’m taking some vitamins and ginkgo biloba. Hard to say if it will stop the spread but I certainly have a lot of energy right now. I’m more of a planner so I’m think long term right now. Right now I’m in the middle of picking out a makeup that works for guys. The facial stubble makes it a litter harder. Dermablend was little too cakey so I’ll probably try out colortration. At least they give you a kit and I hear a bottle can last you a really long time.
Hi zz,
At the moment, the UVB alone seems to be working on my face and body so maybe I shouldn’t use protopic for now. I am just really annoyed with all doctors right now and how lightly they treat our condition. How is your treatment going?
Hi SV,
I agree with you 100%, people who don’t have vit. can easily say “it is just skin” or “its just a cosmetic condition” or “it adds character”. On the other hand, these very people freak out when they have the smallest pimple or mark on their face or anywhere else. Yet if i complain about white marks on my hands or legs, I am being immature or childish or Vain… thats the worst one, i am being shallow. If only people who don’t have vit. knew how it feels… I have tried to be comfortable with it and I am pretty good with answering people’s questions now but sometimes I feel like the more questions I answer, the more questions people want to ask. And not just about the skin condition but about my personal life, for example how does my significant other deal with this? Like he is some great guy for being able to deal with my “condition” I can easlity turn around and point out a million flaws in these people who seem so focused on the skin on my hands. It drives me insane at times…
SOme doctors are such bad ppl. The one comment i’ll never forget was from a stupid chemist, he told me to stop wasting my time vitiligo can never be treated…Its so easy for ppl who dont have this to dismiss this as something that has no cure or treatment…Try living a day with vitiligo and we’ll see how you feel. I think ppl with vitiligo are one of the strongest ppl there are….
Hey Mary,
Sunnybrook is the one in Toronto, right? every time I have seen my doctor about vit. I have been refered to UVA not UVB. The UVB I use was prescribed by a doctor from back home and obviously his prescription holds no value in Canada. When I saw my doctor the last time, he said PUVA is the proven treatment for vit. and UVB may just be used in conjunction with it but not on its own. Maybe I need to change my doctor. My derm. seems to be more interested in patients there for cosmetic purposes. I am so frustrated with all doctors. I should search for a doctor who has a little more experience with vit. than the doctors and derms. I have been seeing. Thanks for your help!
Hi RA,
I live in the Toronto area too and my dermatologist will perscribe Protopic. I don’t know if I can list his name here, but he is in Oakville on Lakeshore Rd.
I’ve had my Vit for just one year. I’m taking B12 and Folic and will now try Ginkgo. I’ll look into fish oil as well.
I’m starting my uv treatments at Sunnybrook Hospital in the fall.
We are very lucky in Canada because OHIP covers it (Ontario health insurance plan). Your doctor just has to refer you.
Hope this helps.
Mary
Hi SV,
I am glad you are seeing repigmentation. I asked my doctor to write me a prescription for protopic but he refused, made me soooo angry because protopic works great for vit. Now I have to wait a good 4 months to see my derm. who MIGHT then prescribe protopic. Most doctors treat vit. patients like they are dumb for bothering with a treatment. I hate the way they dismiss my research and my vit.
Hi everyone…I’ve been using vitamin C, b12 and folic acid from last year and then a month ago i started using fish oil on my skin, protopic 0.1% and ethyle alcohol with a pill disolved in it…I’ve started seeing freckles and re pigmentation on my hands and on the oldest spots…it seems to be spreading in some parts and getting better in others…Am in university in Johannesburg and i hope i’ll keep on getting more pigment….
Sbu
THANKS RA FOR REPLYING.WISH U GOOD LUCK
Hi Tiger,
I read on vitiligo support international that a few people have treated their vit. successfully with ayurvedic medicine. I am very interested in that but I don’t think that form of treatment is available in Canada and as a student I just don’t have the monetary funds to travel to India right now. If you are able to find a good treatment let me know and then maybe I will be able to contact them from here. Silly question, but is ayurvedic similar to herbal treatments??
Hi Tarana,
I myself take fish oil and several other vitamins because I want to do what I can to fight this. I have the dermalight 80 but that is mainly because it was the cheaper one when I was buying it. I believe you need a NB (narrow band) UVB and not BB (broad band) and you need to look for 310-312 nm wavelength as these are supposedly the best wavelength for treating vit. I don’t really have any problems going in the sun after using the UVB but then again most of the vit. areas are covered by clothing. I recently developed a small spot on my face and have been using UVB on it but I have gone out in the sun after without problems, I do wear SPF 30 on my face all year round. Also, in addition to fish oil most people with vitiligo have benefitted from taking a combo. of B12 and folic acid. I have always been low on these so have been taking them as well. Good luck with the treatment and keep us updated as it is always good to hear other people’s experiences and successes :)
Thank you for your reply RA! I agree repig by just fish oil sounds funny, but like you said you never know with vit. I am going to look at evay for nb uvb handheld. Are there any specifics when purchasing one? Also can I get under sun after using uvb? Any advice would be greatly appreciated. Thank you.
thanks RA for replying. i live in INDIA. i have also heard from many people that from some ayurvedic medicine helps in not spreading. i know some people in india who have taken some treatment and have stopped spreading but i hesitate to ask them about. If u know some good ayurvedic medicine which helps pls. state. as it will be very helpful for everybody. thanks
Hi Tarana,
Repigmentation with nothing but fish oil sounds a little unusual but with Vit. you never know what works lol. I am glad you know people who have repigged because that gives you a lot of hope. I am doing UVB and I like the results, I purchased a handheld device from ebay but I am now considering gbuying a full home unit so I can treat my vit. properly. I have an apointment with the doctor today and am going to see if he’ll write me a prescription for the light and for the protopic. Good luck with your treatment. people using Protopic have seen great results so I am sure it will work great for u as well.
Hi Tiger,
I live in Toronto, Canada so every summer we have different Farmer’s markets. This one is close to my house so this info. is of use only to people who live in Toronto area. Also, I have no idea how well this will work. For all I know this may be a scam so I don’t want people to spend their money if this is nothing. I am going to try it out for myself and report back any progress I see. Where do u live?
Hi everyone! My boss has vitiligo, I noticed very few white spots on his hands, his wife told me that he has a vitiligo, and it was bad, he actually repigmented. She told me he has been taking fish oil religiously 3 times a day, and that’s all he has done for his vitiligo, and it helped him. She mentioned something about the fish oil has to be more than 85 EPF or something like that, I forgot now,it’s been a while. So that, I have been taking concentrated fish oil for a month now, no results yet. I am thinking about purchasing UVB light. Could anybody please tell me where to purchase it. I just started using protopic too. A friend of mine who is Japanese has vitiligo when she was 7, she remembers her mother used to apply a very greasy cream to her neck and forearm for years. She has no vitiligo now, but on her neck where she had vitiligo skin is a little darker, but it looks fine. Hers seems like was a segmental vitiligo: on her neck and arm only. She didn’t know the cream’s name, but I am sure it was protopic, because protopic was invented by japanese, and it is greasy, because of its vaseline content. So far protopic and fish oil seems like works from what I have heard, and I am doing it for right now, but would like to start UVB light tx. Thank you all for sharing information, good luck, and god bless you all.
RA,
WHERE IN FARMER’S MARKET………PLS EXPLAIN,
THANKS
Heyy,
There is this guy that comes into where I work and he told me that he knows a guy with vit. who was able to treat his vit. very sucessfully within a year. There’s a farmer’s market here where this Aboriginal man sells herbal medicine. He has lots of satisfied patients, not just for vit. but for several other issues. My mom picked me up the oil and some formula to take internally. I started using the oil but am gonna have my uncles, one’s a pharmacist and the other is a doctor, to take a look at the ingredients before I can ingest it. I am still gonna continue with my UVB treatments and hopefully will see results faster. For some reason I have a really good feeling about this, and I am a very pessimistic person.
Hi zz,
I just started using the protopic so haven’t seen any results yet. I like the results I am seeing from UVB but the handheld device I have is not enough for the vit. I have. Most people’s vit. stops spreadng once they start using the UVB, however, for that to happen, the entine body needs to get the light, which is why I am buying the full unit. I havent’s used the light in about a week and a half because I was away so I have not seen too many new freckles. I can’t really afford to take time off cos I am applying to law schools so it is getting hectic. I am going to apply to England as well cos I was born there, from what I remember you live in England right??
Hi zz,
I do that often, breathing and meditation but I am super stressed lately because of a whole lota stuff going on. I noticed a few more white freckles under my chin today. It is almost unnoticeable unless I lift my face up and point it out but it is still depressing cos I don’t know how fast it will spread. I have started UVB and protopic on it but I see it getting darker every day. I cried for about an hour this morning, immature, i know but I feel so helpless at times. I do everything in my power to control it, vitamins, uvb, meditation and exercise but vit. seems to have a mind of its own. Thats the thing i hate MOST about vit., the feeling of helplessness you get when you just don’t know what to do. It’s super hot these days and I feel like an idiot walking around in full sleeve shirt. This guy came in to where I work today and told me he thinks its sexy, it adds character. I wish I could see it the same way. Sorry for going on… i just need to vent… hope things are going better for you than they are for me…
Hey Katie,
Mine seems to be stress. There are times when I hav eburned or scarred my skin during a low-stress phase and my skin healed back to my normal brown colour. However, these past few days I have been VERY stressed and have noticed an increase in my vit. I try to calm myself down but sometimes nothing works.
Hi Clinton,
From what I know, everyone’s depigmented skin is approximately the same color, I’ve met other whites, blacks, hispanics, etc. and it seems to be basically the same color on everyone.
Like you said, it’s not “white” but it is approximately the color of a brand new Caucasian baby that has absolutely no tan. If you have a fair complexion then you may be right that if you didn’t have a tan it would be very hard to notice.
If you have insurance with a good prescription plan I recommend seeing a dermatologist and getting Protopic which will help repigment your white spots. (it would have cost me $260 if I had to pay for it, but only $50 b/c of my insurance plan. You might even get it for less than that depending on your prescription copay…) Protopic works better when you have exposure to UVB light, so if you enjoy being outside enough for a good tan you should have good results with it.
There seem to be a lot of different triggers for vit. Mine is basically the result of trauma to my skin like a cut, scrape, burn, blister, etc… when it heals the scar is often white. For the most part, mine doesn’t spread, it just sticks to where I scarred.
I’ve heard a dr. call my brother’s kind something like halioligo or helioligo – his vit seems to appear in a circle around a mole, like a halo, then the mole turns white too, leaving a little white circle, but his never seem to change or spread after that… just wondering if yours was similar to his.
Then there are people whose vit. seems to appear out of nowhere with no apparent cause or trigger… this seems to be the case in majority of people, esp. those w/ widespread vit.
I’d be interested in people’s opinion on this – have any of you identified your ‘trigger’?
Hello everyone,
I am a 22 year old caucasian male from the US. I noticed some small spots on my upper back a couple summers ago but thought nothing of it. They never spread and almost appeared to go away completely at times. But in the past two months I have seen a larger portion of my back and even parts of my neck and chest become white. Since then I have been doing lots of reading online and this site has been great. My biggest concern is to stop the spreading of the spots, if they stay where they are I can definitely live with it. It seems from what I have researched that most people who have used Dr. Shah’s homeeopathic regime have good results if just that it controls the spreading of spots. Do people find this to be a good consensus? Another random thought, is everyone’s depigmented skin the same color? My depigmented areas are noticeable because I am quite tan but they don’t appear to be that white. I was wondering if I just don’t tan if they would even be noticeable. Anyways, sorry for rambling on and any response to my question about Dr. Shah or anyway to control the spreading would be great. Thank you.
zz –
yes, 14 yrs.
no, not only on my hands(really my fingers – probably 30%), also feet (prob 40%), and spots on my arms & legs where I have scarred from past injuries. probably only 1% if you don’t include my hands & feet
but protopic is working well to repig those. every spot is at least starting to repig.
yes, including hands & feet probably only 5% total.
Have been communicating with Dr Morales…the Dr from Guatemala who apparently has found the cure for vitiligo. If anyone is interested ,just go on youtube and search for vitiligo cure from Guatemala or something similair and you will see. it costs 500 us dollars for a 4 month course…..still debating about it. Comunication in english not bad but not that great either.
All the info will be given on his you tube movie
Hi zz,
I am not giving up. I think my body is more or less 50% depigmented. I have been treating for a few months now and am satisfied with the results. However, I am still depigging while also repigging. I am going to buy a full UVB unit soon and if after a year my vit. doesn’t stop spreading and I havent seen significant results then I am going to depig. I know it is irreversible and have thought about it a lot. No one seems to be unhappy with their decision to depig. I have read a lot of people’s posts on vitiligo support international and everyone seems to be happy with their even skin tone. I have been living with vit. since I was 7 and I am sick of hiding under clothes. I am starting to get comfortable showing my hands and feet but I would never consider wearing shorts or skirts. I just want even skin tone and if it doesn’t go back to being brown then I am willing to even it out by making it all white. If you decide to go to Beijing, keep us posted about your progress.
zz –
My understanding is that vit is an autoimmune condition where my body is keeping the skin cells from producing melanin. The cells have the ability to produce pigment but they are being blocked from doing so. So you’re right as far as it coming from inside the body and working its way out to the surface. That’s why my dr. said to keep using protopic up to 6 months after I repigment so that it can work it’s way down to the bottom layer of skin cells.
As for the cost – Protopic is VERY expensive, without insurance it would cost me almost $300 per tube. With insurance it’s only $50. She may have been asking to see if you had insurance to help you with the cost because she would give you something else that’s less expensive if you didn’t.
I’ve been using protopic and tanning off and on for about 2 years. I don’t remember my box saying that it may cause cancer but quite frankly it’s not high on my list of concerns…. seems like anything can cause cancer if you live long enough to get it – tanning (indoors or outside), smoking, air pollution… the list keeps going… I’ve heard that they think drinking bottled water that has been left in your car for a long time (especially in the summer when it gets so hot) is being linked to breast cancer. I’m sure they’ll someday say that being left-handed might cause cancer, too :) Quite frankly, having vit and therefore no natural protection (tan) from the sun might just make my risk of skin cancer higher than the average person.
I’m not a big worrier so I don’t let much get to me, but good luck w/ your Chinese medicine and hopefully it will all work out for you!
zz – I started noticing it about 14 years ago (I’m 27). Mine seems to be trauma-induced… so if I scraped my knee or cut my arm, or got a blister from my shoes, etc., as the wound healed the pigment may or may not come back. Some scars healed fine, others healed white. Then from these “points of origin” some on my hands, feet & face spread but most of the rest look exactly the same as the day they happened.
Hi ZZ,
The only patches I have repigmented 100% are the ones on my face but I have great results everywhere else and I have not been doing the treatment for too long. So I am very hopeful. However, since I have vit. on maybe 50% of my body I have given myself till next year. If I don’t see enough results I will depigment and be all one colour. I agree with Katie on the whole, how you react to a situation is up to u. I have always loved my hands, and wore nail polish and rings but stopped wearing them about 2 years ago when the vit. spread to my hands. Instead I tried to hide hands under long sleeves. Not this summer though! I decided to be happy with the way I am and went out and bought tons of nail polish and rings to wear on my fingers. If other people are going to look at me weird for something I have no control over then thats a flaw in them not me! Don’t get me wrong, I am veryyyy diligent with my treatments but I have decided to not let my vit. take over. I am more than just the girl with vit. and you need to see yourself like that as well. As for combining all the vtmains that you are taking, I take most of them with the exception of st. john and ginkgo. The only vitamin i seem to have a problem with is vitamin C other than that I have no problems. But like i said before, make sure to introduce these vitamins wih a lower dose so you’re not overloading your liver. How are your uvb treatments going?
zz, I will email you pics tonight when I get home. I live in Florida, USA. Thanks for the best wishes, too!
My thoughts about getting depressed are this – how you react to a situation is optional… I think of vit the same way I think of small boobs – some guys may look at me and automatically not be interested, but I wouldn’t want one of them for a boyfriend anyway! I’d rather use my physical attributes that some may not like as a buffer so I know up front if someone is superficial person who I don’t want to be with anyway. Much better than finding it out down the line when I’m already emotionally invested in that person and then they break my heart when I discover what a jerk they really are!
I made a choice long ago to be proud of who I am no matter how I look, and that choice has become such a part of me that now when people ask me about my vit I smile and tell them. They can tell from my attitude that it’s not something I’m embarrassed about and never has someone had ill intentions or been mean about it, actually most often they have a friend or family member with vit andthey are trying to gather info for them, and they are so happy that I shared with them what I know so they can help their friend.
My best advice for all of us is that we are beautiful exactly how we are. God made us exactly like we are and we can be CHOOSE to be proud of that! Something good may even come of it, like finding an online support group and making online friends from 1/2 a world :) True friends will love you unconditionally, so don’t be embarrassed or ashamed of who you are. If you can embrace who you are, and see repigmentation as a bonus but not a necessity, peace will come. And with peace comes better vit treatment results!!
Hi ZZ,
if you want to send me your email address, I will send you some before/after pictures from 2 years ago (before I started w/ protopic) and from now. All I have done to treat it is protopic and tan, haven’t regularly taken vitamins, etc. ever… My vit is very sporadic, I’d say it’s probably less than 5 or 10% of my body. it’s most prevalent on my feet, probably 40%.
I have seen comlpete repigmentation on my face, almost none on my body are completely repigmented, but all the areas that used to be completely white are probably 50% to 75% speckled with pigment. Only spots that haven’t really improved are fingers & feet but I haven’t been very consistent w/ treatment. My boyfriend just proposed on July 2, and since then I have set a secret goal to be diligent about protopic use to see if I can repigmented before we get married :) I’m being much more consistent now, for the last 2 weeks, and I’m even starting to see some good improvement on hands & feet now too.
I have a 9 year old son and he has had vitiligo since he was 3. His vitiligo started as a small patch on the corner of his mouth and over the years progressed to his entire body. He has more white vitiligo patches than regular skin pigmentation. About 5 years ago his dermatoligist prescribed Protopic cream and it did succesfully clear up all the white patches on his face. Unfortunately though, I did stop the Protopic when I learned on the news that it was linked to cancer in lab tests. Since then I notice that the only thing that seems to clear his white spots up is the sun. My son is a very handsome boy with a positive attitude towards this skin disorder. My only wish is that people wouldnt be so ignorant and heartless and stare and whisper in his face, including grown adults. You would not believe the amount of times I have caught grown ups just staring in awe at my boy, how rude!
Sorry, the above comments are for zz
It is called Non-Segmental type. There is usually some form of symmetry in the location of the patches of de-pigmentation. NSV can come about at any age, unlike segmental vitiligo, which is far more prevalent in teenage years. I have the same type vitilgo for almost 10 yrs. I also get new two –three new spots in a year. I think you best bit is not to think about it at all. I think you might have vitiligos more but has not visible so much. When you get tan that is when it begins to appear more visible.
My advise is just eat healthy,( vegetables, fresh fruit) stay away from any fried food. Reduce your red meat and dairy consumption as much as you can. Stay positive, start exercise, I am doing Yoga every other day and it helps, going to gym everyday, sometime running and swimming. One or the other type of exercise I do everyday. In general stay strong and positive because there is nothing anyone can do about it. I know it is easy to say but don’t let the spots bother you at all.
Hi ZZ,
I have been taking a combination of vitmains for a while without any problems. However, introduce the vitamins from the minimal possible dose and spread them out during the day. Once your body is used to the vitamins you can take them together if you want. I say this because if you start a heavy dose of too many vitamins at the same time, it will cause an overload on your liver which may worsen your vit. just for a few days. So just to be on the safe side, start in small doses. As for my progress, I am seeing new freckles every day but its still not a drastic change but that is probably because I have a lot of vit. and still use a handheld device. I am planning on purchasing the full unit soon. Or it may be because I have had this for so long and I just want it gone… but patience is important I guess. I have heard great things about gingko but have never taken it. In one of his posts, Bryn mentions that he takes it and I think he is getting positive results.
hi everybody: Has anyone knows about a nb uvb lamp that is sold at ebay and the seller is from Israel. I live in Louisina, USA and I am about to order one of this lamps… any advice…
Hey zz,
I don’t take the st john worts but I know people with vit. do. I take the other vitamins. Also, add vit. E and green tea because they are antioxidants and there’s research showing that vit. is caused by oxidative stress, that antioxidants help fight. How are the light treatments going??
IS ANYONE KNOW ABOUT MELAGINNA PLUS I WANT TO KNOW WHICH SELLER ARE SAFE AND RELIABLE I WANT TO BUY IT FROM EBAY?IS ANYONE BOUGHT FROM EBAY?
PLEASE SHARE ME ?
hi laura,has the vitiligo organics done anything yet?
theres also P20 all day suncream that lasts for 10 hours
I have had Vit for 11 years. As of January 2010 I have switched to a gluten free and dairy free diet. I cannot believe what is happening to me in the last 6 months. I have tried everything to make the spots come back and this hole time it just required a change in diet. Your liver/intestines/kidneys (one or all of them) are being damaged by the food you eat. Your body simply can’t handle the gluten and dairy. Step one is to do a detox. I bought a $17 one from whole foods and I highly recommend it (it has a green box). Then go gluten and dairy free the best you can for couple months and see what happens. Remember that all skin disorders are inside out. Fix the inner and the outer will fix itself and the outer is a reflection of your inner body. It takes time but I think the three most important things are detox, change in diet and uvb light treatment or lots of sun. The light treatment is the last part required to make the spots come back. Once you have fixed the inner, the light treatment will really start to bring back the pigment. Good luck!
hi russ i use piz buin all day long sun cream,it lasts for 6 hours. its the longest lasting one around atm i think. but its £20 a time.
hello everyone…
i agree with RA…vit c made my vit spread more… in fact my doc told me to stop taking it..since its citric…sooo it kind of lightens the skin…if i understood him well…. but i stopped takin it and the spread stopped… i used elidel ..but had much luck with it…now i m tempted to try protopic…since from wht i have read ppl are getting more results with it… re vitiligo organics… well… cant say for sure ..i guess its still too early..but the scar on my knee…turned brownish..when before it was purple in d middle and with a wide white outline..ie…it was turning white… on one of my wrist the light brown circle in the top of the patch is getting wider… but obviously it might be a coincidence…guess time will tell… i was not treating everyday. i have started trying to apply every night now since wed… will keep u updated…am not using uvb or sunlight… dont have much time to use that kind of treatment at the time being… well..guess this is all… ;) from time to time i ll post …nd let u know should i have some positive results with this vitiligo organics….
laura
Hey zz,
I have had vit. since I was 7 and I am 22 now. My vit. was very minimal and stable till I moved to Canada around 14ish. Thats when it started to spread rapidly. Maybe the stress of moving or lack of sun. Who knows? I never really cared much about it to treat it. Everyone has always thought I am beautiful. Had several boyfriends who didn’t care about it. Then I dated my last botfriend who constantly kept questioning about it and made me feel like that’s all I was… the girl with vit. So after he cheated on me I decided to do something about the vit. I am starting to repig. in just 3 months and still have a great personality and law school brains hehe. So i guess it’s his loss :)
Hi Katie,
I used the protopic for an hour. No burning or anything! Thanks for the great advice. I am going to get a prescription for it so I can start using it on my chest as well. Have you repigmented significantly?
PS – your UVB lamp is probably stronger UVB than the tanning bed I use, so experiment on your own. BTW, you can absolutely use Protopic if your skin is pink. I use a really thin application, especially on sensitive skin like near my eyes. Also, it’s basically a medicine mixed into vaseline, so you could always “dilute” the Protopic with some extra vaseline if you think it’s too potent and want to try a lesser strength.
RA & ZZ – my derm. told me that when you use Protopic, you should continue to use it 2-6 months AFTER the pigment comes back. she explained to me that your pigment will reappear in the top layers of skin first and work its way down. So, if you don’t use it long enough even after the spots are gone they will eventually reappear b/c you didn’t get to the bottom of the problem. Hopefully that helps.
ALSO, I use Protopic and tan on the SAME day, not alternate days. This is b/c my derm. told me I should try to get at least 10 min of sunlight each day I use it for the UVB in sunlight to help the medicine. Well, tanning gives me more UVB in less time, and isn’t dependent on weather so I try to tan at least 2-3 days a week, and I do them together… I try to put the Protopic on first and wait 30 min or so for it to soak in & then go tan…
Hello all,
I’m new in the forum, and I would like advice. I have had vit for about 7 years, I have it around my eyes and on my fingers; I was diagnosed with tyroid problem and currently taking medication. I been using Dr. Li’s Vitilax capsules and oil for about 20 days and so far no change, I also started taking folic acid (1600mcg) vitamin B12 (2000mcg) vitamin C (500mg) Johns Wort (600mg) and centrum multivit, I’m changing my diet also, reduced my dairy intake by 90%, red meat intake by 50%, I was a big soda drinker and not enough water, I changed all that, eating broccoli and spinach, raw, almost daily. For same reason I felt that when I started taking medication for my tyroid, my vit started to develop faster, I was in remision for a few years, so something had to trigger it, I have to admit, I have a big problem controling my stress, any input or ideas on how to keep it from spreading?
Also I would like to purchase a UVB lamp hopefully without a prescription, any ideas or comments on how and where to buy it?
Thanks!
Walt
Hi zz,
I take a long list of vitamins. Some advised by my doctor, after my blood tests, and some extra antioxidants that I learned about from my own research. Get blood work done before starting any vitamins. Most people with vit. benefit from b12 and folic acid. Vit. C is good for some and bad for others. I found it to cause my vit. to spread so I stopped taking it after 2 weeks. As for diet, I eat VERY healthy. LOTS of fruits and vegs. And I drink a glass of fresh fruit juice every day. I use diff. combos; of fruits and vegetables. Beets, carots and celery is supposed to be good for us. I just got a test done to see if I am gluten intolerant and I am waiting for the results. After which I will have to give up gluten as well. I am mostly off dairy as I find it to upset my stomach. Skin is an eliminatory organ, so it tries to eliminate anything wrong in your body through sweat, acne and for us, thorugh vitiligo. So you’re gonna have to figure out what may be causing your vit. to worsen. I am also going to get my thyroid stuff checked out. Don’t make any drastic changed to your diet and vitamins without consulting a doctor first. I also exercise almost daily and meditate when I am feeling very overwhelmed because of vit. or any other problems. It helps manage the stress. Once again I gave a very long answer to your short question lol. Good luck with it all and I wish you all the best with your repigging.
Hi Katie,
Thanks! that was helpful. I left it on all night. Now I know not to :). I used steroid creams before because I never did my research. The vit. on my face went away but after 2 years I see some small spots. Almost unnoticeable but I want to start treating them right away so they have a better chance of leaving. Thanks again :)
RA, Protopic did burn a little when I used it around my eyes, too, but it also corrected the pigment loss very quickly. My advice is to use it very sparingly on sensitive, thin skin like around your eyes, and get some sort of a soothing, cooling moisturizer safe for near your eyes to use after. Also, I would wash my face about an hour after – it mostly absorbs by then, but that way the residue isn’t on your skin so long… kind of like bleach strips for your teeth – effective in less than an hour, very painful if left in direct contact for too long! (I’ve made that mistake too :))
Hope this helps…
Katie
Hey all,
I read several success stories about Protopic. My mom had some left over from when the doctor had prescribed her. I used some around my eyes because I felt like the vit. was coming back. I put the protopic around my eyes at night and they burned like crazy the next morning and 12 hours later they are still itchy and irritating me. The skin also feels hot. Is this normal? I was going to as my doctor to give me a prescription for it but now I am thinking maybe not. Any experiences? Thoughts??
Hi zz,
Yea… they’re supposed to turn pink. The pinkness on my legs usually disappears oovernight now but the one on my chest stays for 1 to 2 days. I don’t do the next treatment on pink skin because I am afraid of burning it. So I wait till it is almost the whitish colour. However, for some people their vit. patches just start to fade (lucky them!) so it’s never back to bright white. Over time you will determine when to do the next treatment. Did you experience any itching? I get crazy itching :( aloe vera or oils help a little.
Hey zz,
I combine the oils. I use one part each of coconut, jojoba and avacado cos I just find it easier that way but for vit. E I use just a few drops as it is very greasy. I apply a very thin layer before the treatments and I also apply it at night. If my skin starts to peel or itch after a treatment, I apply it right after as well. Good luck with the treatment and keep me posted about the results.
Hi zz,
I keep a log of all the timings and vitamins and anything else I do for my vit. So I was going through it for you. I started my treatment on a regular basis, that is, 3 times a week on April 15th. Before that I wwas really on and off with my treatment. So since April 15th, thats about 3 months, I have ALOT of freckling in my legs. My legs are depigmented about 70%. My chest is depigmented about 70% as well. My chest has now repigmented about 30% and legs maybe 10 to 15%. The combination of oils that I use: coconut oil (because of its cooling and soothing effect), jojoba oil (because it is the closest to the consistency to oil the created naturally by our skin), vit. E (because it is high in antioxidants), and avacado oil (because Dr. OZ said avacados help with melanin production… lol.. i know silly me). Some people also use olive oil because it also helps “catch” the light. I am going to add that to my oil combo. as soon as I get a chance to buy one.
I am not an expert on the treatments but I think the most common way of doing it is three times a week starting at 50 secs per area. I don’t think it makes a diff. whether the light is heating up or not. Keep increasing the time 10 secs each treatment till you are able to get pink. I am up to 5 mins on my hands and they still don’t get pink. Areas that are exposed to the sun may not get pink very easily, however, make sure you don’t overdo the light and burn your face.
As for what days you should do the light, that all depends on your schedule. It is summer vacation for me so I have quite a bit of time during the week. I have started treating my legs every other day mainly because of how thick the skin is. But i started off with just 3 times a week. Google Vitiligo support international and visit the website if you haven’t already. Search for protopic and you will see a lot of posts reharding using protopic and uvb. I haven’t used protopic so can’t tell you my personal experience about that. I am thinking to start it soon though cos I saw a tiny little vit. mark on the left side of my lips, I intend on fighting it aggressively :). Ok this was a very long post lol… let me know if you have any more questions.
Hi ZZ,
UVB is supposed to be used on clean skin. I use a combination of oils before starting the treatment because moisturized skin absorbs light better than dry skin. Don’t ever use uvb on skin where you still have protopic because it will burn. From what I know, people use protopic on days that they don’t use UVB. I don’t know how long it will take to see reults on your face but I started seeing freckling on my legs in about 3 or 4 weeks I think. Face should respond much faster. Also, I think your vit. is newer than mine, so hopefully you will see results even faster. Just have to be very diligent and not give up too early on if you don’t see results. Good luck!
I HAVE BEEN DIAGNOSED WITH VITILIGO, DOCTOR HAS ADVISED NVM TABLETS AND GEL TACROLIMUS OINTMENT. ANY BODY IN DELHI CAN VISIT DR. PAUL CLINIC, PASCHIM VIHAR, DELHI. I AM ALSO UNDERGOING UVB THERAPY. I THINK IT REALLY WORKS ON WHITE PATCH.
Dear all, I just want to say that I think its so wonderful that everyone is sharing and helping each other. I’m 44 and white English with vit for approx 6 years. I feel so fortunate in comparison to so many others. I haven’t tried any treatments yet but may be tempted by vitamins. Was very stressed for years but am now happy – whatever life throws my way. Laura – I’d be very interested to hear more about your Vitiligo Organics trial – as it seems to contain Coconut Oil – which I know has proven successful for some (so at least seems a sensible correlation). Also, does anyone know of a good ‘one a day’ sun cream? I get so lazy and sometimes burn – which isnt good. Keep up the great work everyone – it really does help. Nathalie – I think you’ve done something amazing. I’ve read through 2 years of comments and I guess it would be good to somehow try to summarize some of this stuff or draw some conclusions. Not sure how, though. All the best. Russ.
i tried chinese medicine for a year but it didnt work. can i get protopic from my GP or do i have to get referred to a dermatolagist? i did try it once but it gave me a burning sensation on the patch on my eye,but was fine on my other patches. can it work on its own? i cant afford a UV lamp.
Okay, since there isn’t any effective treatment of vitiligo, I am moving on to a concealer. What is a good concealer for small vitiligo patches please? Thank you
Walter, I used her capsules and vitamins but not the oil. I used it for 6 months and she told me that I should be able to see improvement within two months, but nothing happened. I absolutely did not see any improvement at all. I told you my result,good luck for you and keep us posted.
Hello,
Any comments on Dr. Li, from Merry Clinic, I just started using the capsules and the oil.
Thank you.
Hi all,
I have been diagnosed with alpocia barbae on my face but these areas of no beard growth also remain white (whiter than my normal skin) when my face is tanned. I am pretty certain that I have been mis diagnosed and also have vitiligo as I have white discoloured areas on my inner thighs and also one under my armpit. Does anyone know if these are linked? I have tried numerous things with no success and some areas on my face are getting worse and spreading.
hi friends, i m from india having vitilgo for 30 years ten years back i have taken puva thearpy for one year with medicene it stopped spreading so i left treatment then .now after ten years it again started spreading very fastly so i again trying same for it now doctors put me on tab prednisolon 20mg calcium 500 and omez tab plus tacrolimus ointment and trice aweekly puva thearpy from one month i m taking all this but still it is spreading i have seen in above post vitiligo spreads with bad habbit of eating and no body movement . so i will try this both things with positive frame of mind and later put my results on it .
ZZ,
I have never used narrow band UVB, but I do use Protopic ointment & go to tanning salon and use the bed that has the highest % UVB light. I have seen significant progress – all pigmentation returned to my face, which was the only part that really concerned me, and a lot to areas on my arms, legs & torso. Only part that’s not really working is my feet & fingers, but I’m not very consistent about my treatment & those are the two hardest areas to repigment anyway.
I recommend trying the UVB, but also see about Protopic, it is stimulated by UVB so it will only help your UVB treatment. If you can’t get protopic right away, I did see some improvement by tanning bed alone before I ever knew of Protopic, but the results were pretty drastic for my face once I got it and was doing both – I got 100% pigment back on my face within about 2 months!
Hi all
I live in Nairobi i have had vtligo for about more than 20 years, but it was only on my fingers and lips and feet so i wasn’t worried but now after i give birth It’s getting worse and i don’t know what to do is there anyone who knows how to stop it from spreading
Hi ZZ,
I live in Canada. I have had vit. for about 14 years and I think about 60% of my body is covered in almost all areas except my face and neck. I used a steroid cream on my face, which I do not recommend. I used it without doing any research first and I still regret it. The vit on my face went away but the skin around my eyes seems thinner. Also, my research has taught me that steroid creams are never a permanent solution. Neither is uvb, that is, you have to do maintenance treatments for the rest of your life, if you dont, the vit. comes back because there is no “cure” just treatments. I started treatment about 2 years ago. I started it on my face and the vit. was around my eyes, one spot on my cheek and two spots on each side of my lips. I think it took about 8 or 9 months for the vit. to clear up on my face completely. I started using UVB on my body at the beginning of 2010, however, I was not very regular with it till recently. I started seeing freckling in about a month but the progress is slow. You have to keep in mind that my vit. is really old. It is easier to treat vit. if its newer. I am still happy with the results I am getting and will continue to be persistent and patient with my treatments. I think I answered all your questions plus a little more lol. Good luck with it all and try to start treating as soon as you can.
Hi zz,
No problem. I have seen great results and want everyone to have them as well as I know how difficult it can be to live with vit. I have the dermalight 80 but i don’t think it matters what brand you get just as long as it is 310-311 nm. Good luck with everything!
Hi,
Has anyone had any experience with this Melagenina Plus from Cuba. I read their research and seem to suggest a higher cure rate not 100% with no relapse noted. I was wondering whether anyone has tried it from the institute with any result ?
Hi Mary,
This is the ratio I use: 2 blue, 4 green, 4 red, 7 yellow. I also add rubbing alcohol to it. If its too dark i simply add more alcohol to it. But this blends in really well. I tried using vitiligo cover lotion and it doesnt seem to work. You said you have olive skin and it still works for you. Maybe I am doing something wrong. I don’t know. I exfoliated before using but it still goes orange on my hands. Maybe I should try on my legs and see how it works there. If the cover lotion works for you though, it’s a better option then what I use because you don’t have to worry about not wahsing your hands and stuff. Without wahshing my hands it lasted about 7 or 8 hours I think. I use it as a last resort because nothing else has ever worked.
Hi ZZ,
I have never used protopic but not only have I read great things about it but I have seen a lady I know who used it and half her face was depigmented, it’s all repigmented now. From what I know, protopic works great on your face. As for the UVB, I have great things to say about that. I am starting to see a lot of brown freckles in vitiligo patches that I have had for 10 years or even longer. I am also on different vitamins and try to eat healthy. Good luck with the treatment. Be positive and I am sure it will work great for you.
Hello everyone,
Ive been receiving comments from this site to my email inbox for a while and ive been taking the time to read some of the comments.
i personally would recommend taking Meladinia tablets as long with UVB treatment. I used to take 2 of the tablets and wait 2 hours then go under the sun for 30 minutes and i saw a lot of my original skin colour return, including both my hands where apparently is the hardest place to return the original skin colour.
I wish i have taken some before and after pictures, but in saying that my skin is NOT 100% returned to normal. im only 20 and currently studying and working and find it hard to find time to go under the sun.
i also recommend to look into a company called microskin, they scan your skin colour and give you a liquid form colour of your original skin which you can apply over the white patches. it has made a BIG improvement in my self confidence and self image, i use it almost every day. it cost a bit but i dont mind as i cant put a price on my happiness.
all the best and good luck!
Hi RA,
Yes could you pls post your food colouring ratio that you use.
I have olive skin tones as well, so I think it would be a great base to start with. How long does it last?
I use the vitiligo cover lotion right now, I think it’s amazing!!
You can’t even tell I have vit on my face!!
The key is to exfoliate once a week (as Natalie mentions)and this way it will not look orange after you apply it.
I put it on using a light amount, layering.
This is definately the key for me.
After the first layer, I then go back touch up the spots and it works beautifully.
It’s given me back my life, I feel normal again.
I think if I use it in comb with the food colouring, I will need to use less.
Thanks for sharing!
Hi RA,
Yes could you pls post your food colouring ratio that you use.
I have olive skin tones as well, so I think it would be a great base to start with. How long does it last?
I use the vitiligo cover lotion right now, I think it’s amazing!!
You can’t even tell I have vit on my face!!
The key is to exfoliate once a week (as Natalie mentions)and this way it will not look orange after you apply it.
I puy it on using a light amount, layering.
This is definately the key for me.
After the first layer, I then go back touch up the spots and it works beautifully.
It’s given me back my life, I feel normal again.
I think if I use it in comb with the food colouring, I will need to use less.
Thanks for sharing!
well…some updates..bout using vitiligo organics… i lost track tho of how long i have been using it… must be apprx a month!!! tho not sure… well, so far no results… a strange thing tho happend… i put it on around my mouth nd under my nose…nd went for 5 min in d sun… i had a bad sunburn…and after 3 weeks…the spots are still pinkish..which is indeed very much strange… i did not get any pigment back where i got sunburnt… i did not apply again on my face… since i m scared it will make my vit worser…i have however noticed that the vit on one of my wrists..there is a brown circle… like as if someone painted it with a light brown pencil …. and inside the circle it is still white however… i have to say as well that i am not using any light treatments..since my dad is sick..nd that leaves me little time for myself at the moment. I have to say as well that i do not apply every day… must have forgotten to apply it round 5-6 times in a month..this is because i d be very much tired.. and i am forgetting things lately… i will however update later on … even if i will not have any positive outcome.
I too would love to color my hair but I am afraid of the chemicals since I have heard they can make your vitiligo worse. Are there any doctors with the National Vitiligo Foundation that could offer some knowledge and guidance.
Hi Elizabeth,
I know I am responding kinda late but I didn’t have a suggestion to your question before as I had used several products unsuccessfully to make my vit. less noticeable. I started experimenting with food colouring again and this time I found the perfect shade. It blends my vit. so well that my dad and brother can’t even tell where I have it on compared to my “normal” skin. I add rubbing alcohol to it as well. I have experienced with its longevity yet but I will today. I am South Asian so I have farely dark olive skin tone. If you want the ratio of colours I use let me know although I am pretty sure you will have to find your own by experimenting as we probably have different undertones. Hope this helps!
Some people have seen their vit. spread after using hair colouring. Im not sure which ingredient causes it but ever since I found out, I am too scared to colour my hair. But then again with vit. you never know what may make it spread, what is bad for one person may be fine for another. My uncle uses mascara to cover the gray hair (from aging) in his beard. Good look!
Have you thought about, or tried using hair coloring to cover the gray patches? You will want to check with your doctor first to be sure that it’s safe; it may not be a cure for vitiligo, but it sure would be a boost to your self-esteem :)
Hello, im 15, male and unhappy. Ever since I was 12-13 when I began to grow pubic hair I noticed that patches in and around my pubic/abdominal area had patches of grey hair growing and under those patches were abnormally white skin tones and pinkness.
I am funny European, and have no other allergies. But it is realling getting me worried that the rash/pigmentation might be spreading. There is currently a patch of grey hair growing arounf the base of my penis, and small patch in the middle area of my pubic hair. Just at the top of my pubic hair about 5cm below my belly button there is a 4-5 cm patch of pigmented skin. It is really white and around the centre is pink with small grey hair sprouting.
This really gets me emotionally. It dosent look right having grey hair down there,
I have told my dad he said im normal, and no one is perfect. I am ok now im just making sure and aware it does not spread, as soon as it does I will bash through the doctors wall and demand immediate skin grafting :)
But please anyone got any advice,
is my pigmentation heredity, cause I dotn remember it always being there,
its also going to stay out of the sun due to me not wanting to show my little incher
Hi Everybody,
I was just diagnosed with Vitiligo yesterday and was so happy to find this site this morning. The minute that I was my dermatologist said that I had Vitiligo, I automatically had a feeling that it had to do with my allergy to sulfa based drugs, since sulfa inhibits your body from absorbing vitamin B and folic acid. It started to notice my white splotches around the same time that I had an awful reaction to the sulfa drug that I was prescribed. I will continue to research sulfa drugs and post anything that I find. Although I have not read everybody’s postings yet, I did notice that about 3 people on here also thought that an allergy to sulfa drugs may be correlated with having this condition. Is there anyone else out there with this allergy?
Ashley
Hi Kash,
Can you post his e-mail, I can send him an e-mail, I speak spanish…
I have been reading about the relationship between the flu shot and vitiligo, my son had the flu shot (nasal) last winter and in the early summer the dr told me he had vitiligo, have anyone had this experience???
does anyone in here live in the uk and know any good dermatologits and does anyone know what types of cream work best for the vitiligo which u can get from england..
Hi Joe,
There is no “cure” but there are treatments. You can stablize it by eating healthy and vitamin therapy. Mine was spreading rapidly and within a few weeks of my regular vitamin intake, it stopped. I use UVB and have started seeing repigmentation. It is a difficult treatment and takes alot of time and dedication but I think its worth it. Good luck!
has anyone in this forum cured from this problem? because i see alo of solutions but no one here can tell it totaly disapeard am i right?
i checked out about the doctor from Guatemala on you tube and it looked pretty promising
I emailed him and i got a reply from him….in not too great english
to call him on 0050255023530 and 0050249871494
i tried the latter and woman answered phone who could not speak english
i will try again but if there are any spanish speaking vitiligo sufferers out there who want to try and call then please do and let us all know what its about etc
I will definitely pursue a treatment for two reasons: First, your vitiligo just started and it is easy to treat at the early stage. Second, areas such as face can be treated easier than hands and feet. So my conclusion is I will definitely see a good dermatologist. However, keep in mind, that vitiligo treatment takes a lot of dedication and persistence. If you are not going to be able to follow up with your treatment at least for two years, don’t even bother with it because it will irritate it.
On other notes, keep exercising, eat healthy, and stay away from greasy, spicy food. You also need to keep yourself stress free because there is some evidence that stress can trigger the expansion of the disorder. Finally, if it bothers you too much and you feel like low self-esteem, try to buy some make up to camouflage. I use dermo-blend (not sure for the correct spelling but you can ask anyone at Macy they would know) and you can get if from Macy.
Living Almost with it for 10 yrs.
Hi ZZ,
i would advise not to use any kind of treatment as it can worsen the condition. try eating healthy food(more vegetables and brocolli) and exercise and keep fit. I have noticed if I exercise till I sweat, I feel better and condition improves. Also, go under the sun but don’t get sun burned. Least but not least, don’t lose hope. Its all in the head.
has anyone heard about that skin transplant thing, it is really expensive to do, i have just had a few vitiliago on my face, what should i do and is it better to cheat it ealier cause it only been they for a few month and it is abit next to the eye and a big patch under the lip
Elizabeth, you can try Dermblend. Not sure about the correct spelling, but you can go to Macy and try different color till you find the closest match.
Hi does anyone know what can be used to camouflage vitiligo on the hands? I’m Latina so my skin is darker and is very noticiable … Thanks :)
hi all
i have read all the message on this site and is it ture that b12 and folic acid can help repigmentation on the skin, most people on this site seems to get so good result on taking b12 and folic acid..
hi all]#
Hello all,
Has anyone here ever used Vitiskin? It seems to have things like Zinc, Copper, B12 and anti-flammatory stuff, all of which is supposed to be really good for vitiligo. So it seems legit to me, however, I am very careful about ordering stuff online because based on my past experiences most of the stuff was just a waste of my money.
My son 23 has just shown me discoloration of his hands and tops of feet and elbow. He is not concerned, but he does not know he has vitiligo. My husband has a very very mild case, only his hands and genital area have lost pigmentation but he is fair skinned, rosy complexion and he is 71 now and hasn’t gotten worse, but probably better in the past 30 years. He has 4 children. 3 from prior marriage and one son had a mild case at age 11. We are not in contact with him so don’t know about progression. It never in my wildest thoughts entered my mind that my son would develop this. I am devastated, not knowing how far it will go. Since Saturday I have read hundreds if not thousands of ideas of how to treat vitiligo. I rememember 25 years ago taking my husbands son to University of Miami and there was nothing they could do. I can’t believe in this time that nothing has been found.
However, I have seen people here going to Cuba for treatment with meladinina. It is the same things as oxsoralens Read this I found on a website:
In some countries OXSORALEN may also be known as: Methoxsalen, Deltasoralen, Meladinina, Oxsoralen, Puvasoralen, Ultramop, Uvadex, Oxsoralen Ultra, Mopsoralen, Ultramop, Meladinine, Melaoline, Geroxalen, Vitspo
However psoralens are known to cause cancer and I don’t think that is the route I want to follow for my son. My only hope is that his follows the path of his father’s and is not noticeable. My husband used to use self tanner and it worked well to camouflage.
Best of luck to all. Karen
I just had a look at the you tube video on the doctor in Guatemala, who cured the girl of Vitiligo!
Does anyone know anything about this??
I plan on emailing this doctor to get more info.
I will pass on as much as I can.
Dear Sibssion
I am sorry to hear about your vitiligo. Yes, it is very difficult to deal with it. There is no cure so far, but there are various treatment offered which rarely help. I have been dealing with for almost 10yrs. Just be positive,hopeful, and always remember there are people don’t have limbs but still have hopes.
Hi my name is Sibusiso I’m from South Africa studying engineering. I’m a 22 year old black male and my white patches started last year around June. I can recall that they started on scars on my head and hand that I attained during a car accident June 2008. Now they are on my lips, underarms, most of my hands and arms and feet. I’m not sure what triggered the vitiligo but maybe the ongoing stress of my dad passing away triggured it. It has been extremely difficult to deal with this I’ve tried Novitil gel and their handheld UVB lamp and it didn’t work. What I’ve realised is that I might stop treatments to soon. Someone in my neighbour hood used Vitamin C at 500 mg and she regained all her pigment and another Indian friend of mine told me to try using fish oil Omega 3 it helped his cousin. I’m really stressed at times and sometimes dont even attend classes. I really want to finish this degree and will do my best. I’ve been taking folic acid, B12, elidel 1%, vitamin C and anothere cream prescribed by my dermatologist cant remember its name. Hope I eventually see results cauz I’m really struggling emotionally and with my confidence. Sorry for the long message….its my 1st post so its a bit emotional…and thanks 4ya blogs
i hope so,a genuine cure,with no side effects.
Has anyone heard of the doctor in Guatemala who claims to have found the cure for vitiligo? It can be seen on YouTube …
ok thanks
Hi Nina,
My personal experience has been that if any medication guarantees 100% results it is a scam because if it really was that effective no one would have vitiligo. Also, if there is an email add. or telephone number listed, try contacting them. If you get a response it might be genuine. Another clue is the language used on the website, if there seems to be a lot of errors, it might not be genuine. I think Natalie has posted an answer to this question somewhere on this website. you might have to look through some of things she has posted to find it. Hope this was helpful!
my sister said that if whatever it is,has paypal with it,then it should be genuine. anyone know if thats right?
does anyone know if pigmentum or anti-vitiligo oil are scams? is there anyone who knows how to tell which are scams and which aren’t?
Hi Laura,
I am really sorry to hear about your father and your nephew. And I agree with Nina, any treatment will require a few months before you can see any results. But once the first brown freckle comes, the others follow really rapidly. Good luck with everything!
sorry to hear that. no iv never tried it and vitiligo organics people said it can take up to a few months before seeing any visible re-pigmentation.
hi,
some update as promised.. using vitiligo organics..i think i have been using it for two weeks now…not sure… so far nothing ..not even a freckle..i am going through some bad stress however..my father just got diagnosed with leukemia..or cancer in the lymphnodes..sorry for d mistakes..they are not sure yet which one he has so far… more tests this week and by the end of this week we should know what type of cancer has found home in my dad s abdomen…
i have a question..has anyone ever done a test to see if he has a good amount of mercury in his blood? my bros kid has been poisoned by mercury… i always thought that these injections we take when we are kids played a role in triggering vitiligo… i will be asking my doctor for more info..my bros kid cannot speak..since the mercury affected his nervous system…
laura
hi has anyone tried the lotion from a woman who has it herself,its from something called wanakee hills. it should come up if you type that in google. apparently she’s been reasearching it for years and is bringing out a book about vitiligo. just thought id tell you all so you can have a look.
Hi,
I have had vitiligo for almost 40 years. It only spreads when I go through hormonal changes. Puberty, pregnancy etc.
I haven’t done anything lately to try to cure it but since I saw Dr. Li’s ad ( and there were no negative comments to be found anywhere), I ordered the capsules (3 bottles) and the oil. I have been using it for about 2 1/2 weeks now and have no result but I am not giving up. I also take folic acid and B12. I’d love to hear from some people about the response to Vitilax.
Thanks
Hi Willi,
I am using dermalight handheld wand (311 nb). It really doesn’t matter what brand you are using cos all the light bulbs are manufactured by phillips. I use it 3 times a week and the duration for each area is different because some areas seem to tolerate the light better than others. I have burned some areas in the past… ouch. I started at about 50 seconds and go up by 10 seconds each session. I have been using the light regularly for 4 months I think, before that I was very irregular with it. I have noticed several tiny spots on my legs and the areas on my chest are 60% repigmented. As for the vitamins, I take B12, folic acid, omega 3, flaxseed oil, CoQ10, Vitamin E and Vitamin D. My doctor has also prescribed me iron pills as I am deficient in it. I recently started taking milk thistle because of info. I found on vitiligosupport.org. I also drink green tea religiously. I eat veryyyy healthy. All of this has finally paid of; nothing makes me happier than finding a new brown freckle in the vitiligo patches :). Hope this was helpful. I want to add that I got blood work done before taking these vitamins and I seem to be very low on most of them. Good luck!
HI RA,
What UVB and vitamins r u using at the moment? What is the duration and frequency of each UVB segment/day and for how many weeks u have to use to see changes? thanxxx
Hi el86,
you seem to be on the right track. The most improvement I have ever seen is with a combination of UVB and vitamins. My grandmother saw me after a few months yesterday and she teared up to see how fast my chest has repigmented (chest and face seem to be the fastest to respond). I use coconut oil after each treatment and at night as well because moisturized skin absorbs light better than dry skin. I think any oil should be fine, I use coconust oil because it has a cooling effect on the treated and pink skin. Good luck!
hey guyz ! it’s really great to see all of u here,though i wish u hadn’t had it :((. i’m 24 years old,i live in Syria,i’ve had vitiligo since i was 14,it startes arounf my eyes and small spots in the sides of my mouth, then i don’t even remember how or when it got worse and i had it on my wrists,low stomach, fingers,toes..i’ve tried several meds and creams,bt to be honest i never kept on taking them for more than two or three months,i’ve had better days when they went away,my face especially, bt i got them back n each year they spread or i discover new spots.i’ve never met sm1 who has vitiligo so it’s really helpful to read all your comments,every summer i get all depressed cz they appear so sharp, i’m already getting UVB treatment,it’s been only two weeks,and i’ll try to get the vitamins and folic acid you’ve been talking about.i guess i’ll let u know about it when i get better, sorry i wrote too long while i have no helpful tips or treatments. if anyone has major tips to tell me pls do so,i’m trying to keep up and be hopeful,but as u all know it’s really hard.
gd luck to you all. peace :)
i would use make up as you could have a tatoo done and then your vitiligo could just spread and spread which would cost a lot to keep getting it tatooed. mine goes red but only when iv bin in the sun so maybe u should get it checked out by the doctors.
To: K
You need to get to a dermatologist and demand a skin biopsy to check if you have lupus. Sometimes lupus can be mistaken for vitiligo.
the test you should ask for is “Immunofluorescent Analysis”, make sure when they take the biopsy that they take it from one of your white/red spots.
Keep us all posted. Lupus is another autoimmune disease, of which vitiligo can be just one part. Good luck.
Hello everybody, a quick question, does your vitiligo turn red under the light (not sunlight but light like light bulb)? When I go to my class, or or library or even walk inside grocer stores, my color changes from white to red. I have carefully watched and the white patches really turns red under the light.
Has anyone else experienced or noticed this change? Last, question, I have small spots on the back of my hands, would you recommend tattoo or permanent make up? Thank you all
Hi Nina,
Protopic worked for a lot of people so it is worth a try. I know vitiligo is not the most attractive thing but it is not the worst thing you can get. When I had vit. on my face, I didn’t step out of the house without covering it because I felt so self conscious. The marks on my face are gone, the key to any treatment for vit. is PERSISTENCE. It can take a while for you to see results but in most cases vit. on the face is fairly easy to treat. Just try to not think too much about it because stress can posibly make it worse. Good luck!
he aid for 3 months i think. but i keep forgetting to put it on. i want that protopic that katie from florida used as she said it got rid of the ones on her face,which i have too. i dont know if the first cream he gave me was protopic but i kept forgetting to put that on aswell which annoys me. vitiligo is so ugly.
Thanks Laura!
Ra,
I use the dermotan No1 shade. I put some in a small container then i add some drops of water to it, so that the color wont be too much dark for me..that way i get a lighter shade ;) if i had a web cam i would have shown you how to apply on the hands on msn ;) but at the moment i dont have one.
yea, just to get in idea on what might work for someone else with vit
RA.. What? the self tannin lotion?
Laura… what brand is it?
Nina …never heard of it…i checked on the internet..looks like a kind of steriod cream… but not sure…for how long did he tell you to use it?
or is it spelt emovate? im not sure lol
has anyone ever been prescribed Emuvate? Is it a protopic? thats what the doctor gave me for my face and neck.
RA…btw… u will learn through trial and error..dont expect the first time u ll get it right… :) there are times when i still make a mess..like getting it darker… :0 this happens when i m in a hurry..however..when i suspect this is going to happen..i just put my hands under the water..only for a couple of seconds..then i dry my hands… not dry them really… just put the towel on my hands..and take it off… that way you wont take too much of the stain. :)
Ra
this does not turn orange..i have tried soooo much self tanning lotions in d past..and i was going to give up…and it was tiring..to have to wait for about 6 hrs to the color to develop..this one is much better…since i have a very much busy life..and i dont have time to wait the color to develop… and i can go out straight away :)
Laura,
which one do you use? most of the ones i have tried just turn me orange :( lol. maybe it’s because I am of Indian background.
RA…
for my hands i use self tanning lotion… i dont use make up… i ve learned to make it almost perfect…ppl dont realize i have spots on my hands.. ;)
and it never made my vit spread…
Hey Laura,
What makeup do you use? I tried dermabend but cannot find the right colour. I have olive skin and most of their makeup has pink undertones. I would really like to cover up the marks on my hands for summer.Thanks in advance!
the make up on my elbows then i seal it with a sealing spray, that way it wont get off to clothes…and it stays in place ;) no need to worry the make up will go off..it is water resistant as well… i by the sealing spray from colortration… however this cant be used on the face.
i cant afford a UV lamp unfortunately. where did you get yours? are they dangerous at all? i really want to try fake tans but cant because my vitiligo is even more obvious then.
hi katie, i have vitiligo around my mouth and by one of my eyes too. i was given a protopic too but it burned on my eye patch but was fine on the rest,i keep forgetting to put it on so it hasnt worked. Luckily though i dont have to buy mine so no money lost(im from the UK). Have you tried this new vitiligo organics cream on the internet that has just come out? they seem genuine so me and laura on here are trying it. I havent got it yet but i will as soon as i have the money.
HI Katie,
I was using elidel…nd it worked for some parts on my face… maybe i should try using protopic…
dont know how to post the pics here, i have no idea.
Hi everyone,
I am 27, white female living in Florida and I LOVE having a tan. I have had “spots” as I call them since adolescence. For the most part, my discoloration seems to be linked to skin trauma, ie- I skin my knee, it turns white.
About 2 years ago I developed a white ring of pigment loss all the way around my mouth, and by both eyes. At this point I went to a dermatologist in Miami, Dr. Heather Woolery-Lloyd. Her team at University of Miami is supposed to be some of the best in the world for Vitiligo treatment and research. She prescribed me Protopic (topical ointment). She said that hands and feet are least likely to regain pigment, but told me that she was confident I would regain ALL pigment lost on my face and about 80% of the rest of my body. She also told me to keep using it for 6 months AFTER the pigment reappears b/c it needs to repigment all the way to the base layers of your skin or it will just turn white again over time.
Well, I am happy to say she was RIGHT about my face! I have no remaining discoloration on my face. In my case, I didn’t see much progress except for my face right away so I basically quit using it on the rest of my body because it is NOT cheap so I wanted to conserve, content that the part I was worried about was better.
Then I found recently that, at least for me, Protopic seems to work MUCH more effectively when combined with UV light. I now have an unlimited monthly tanning membership and try to go 3-4 times a week for 1/2 the max time. I apply Protopic to the discolored skin 1-2 times a day. (Dr. Lloyd recommended 2x daily but sometimes I just forget…)
I have taken progressive photos of all my spots. Hands and feet have gotten worse over time but now that I’m tanning too even those are getting better. I’m happy to post pictures of the changes if someone will tell me how!
Best of luck to everyone! Katie
nina… i received the bottle y day…applied it on my elbows and knees…quite easy to apply… will be using it at night however..since in summer i d have to apply make up on my elbows…nd dont think it would be a great idea to use in the morning..esp since it s oily..and another thing its got psolaren in it…therefore u have to be extra cautious.. since u could get a bad sunburn with the sun… guess i ll have to wait and see…am not getting too much high hopes tho… cuz then if it wont work out i know i ll feel really bad… will try to start using the nb wand 3 times a week….but will use it only for a couple of min… when i used to use it i had to increase the time…and the treating all the spots would take me ages… an hour or so… which was very tiring… i ll only use it for a couple of min…and will only use it on my knee..nd elbows..nd maybe use it around my mouth..since i have a spot there that is getting bigger…for that particular spot i started applying elidel…even under my nose…i had got that color back with elidel and some sun… sooo ..apart from that i dont want to use this cream on my face yet..just in case it causes any kind of spreading… i ve already experienced that when using novitil…. soooo this time i ll be more carefull.
i have vitiligo for the past 30 years…when it went to my face, thats the time my self esteem was low and i was finding myself hiding my face when talking to people. my hands suddenly sprouted white and looks horrible. ididnt mind a spot here and there…but when almost half of my arms become white overnite…sort of scared me.
none of the meds worked..i was taking 1 cc B12 injections for the past seven years but i see the white spots have increased…i didnt know i had to take it with combination with ascorbic acid and folic acid. i have started ascorbic acid..and am going to start folic acid…i have a strong feeling that this will get better with the combination – i have enough patience and will wait even for six months..i just hope the spots on my face goes away..thanks everyone for your support
Nina,
Well, I have stopped eating certain food (all types of fried food, fish,beans products) and it has stopped the progress, but not yet cured the white spots.
are they things that someone has took that have worked on vitiligo?
Hi, every one is asking for dosage of vitamine pills, I have got some info online, here it is:
400 mg Milk Thistle
2000 mcg B12
2000 mcg folic acid
3 Allergy Caps by Twin labs..3 x daily (vitamins)
l000 vitamin C
DMAE-H3 (liquid Paba) mixed with Kiss My Face Calendula/honey lotion on my spots
l5 minutes to 30 minutes of natural sunlight a day after applying the liquid paba/lotion
———— OR ——————-
600mg St. John’s Wort Concentrate
2000mcg B-12
2000mcg Folic Acid
300mg Milk Thistle Concentrate
Length of time: 1-2 months
Sun exposure: None
hey guys tekk me how long have you been living with vitiligo and what you used so far and if it help? I would realy appriciate some advice from you guys cause when i discovered that i have vitiligo in my face it broke down my confidence.
nina…glad it made u laugh ;)
yeah i live in malta… i only ordered d small one … they had bigger..but i tought it would be more wise to start with a small one, try on some patches and see what happens… will start using it on my elbows… knee..behined my knee… should be enough for 2 months i guess…. ;) if i c that i have some kind of pigmentation..even just a tiny spot..then i ll order a bigger one…
yea it did lol i mean tell it like it is ha
u live in malta then? i cant order any yet as i cant afford it atm.
I am a 19 year old female.I have been suffering from vitiligo for 7years now, does anyone knows where i can find the anti-vitiligo oil?
nina…i checked the tracking no..it s on the way to malta…sooo guess will receive it soon ;)
will start with the new spots…like the one on my new…which is a new one… will get bk to you ..have a good day
nina,,,
i just saw yr reply now…lol..nd d arse part made u laugh… i am still waiting for the package..gonna e mail them today…since it was supposed to be deliverd by dhl…
will keep u updated
Hi K,
I had checked about that…by my vit is not that much stable…esp when i have a scar… the scar heals but leaves a white patch… :( and it would cost me too much i think… i have it on my hands..one hand half of it is with vit..the other one not as much… i dont see the vit since i use self tanning lotion..at times i dont realize how much the vit has grown… got it on my elbows..to be honest those are d ones that bug me most… nd on my feet… it started spreading there as well… so when i wear sandals i use sun block..to not make the contrast worser..i dont cover those ones up…and if ppl ask me bout it i tell them i use sunblock there..hehe…and so they are white… obviously not to my friends… or close ppl..but at times there are those kind of ppl..that ask..nd ask..nd keep on asking…
hi willi…
well..in my case when doing nb uvb and the spots turned pink was because of the treatment..like when staying a couple of min in d sun, i am still waiting for my order… sooo will be trying it out as well… did he take some sun? usually it turns pink after taking some sun..and later on..in my case..i see freckles coming back… small spots of pigmentation .
Hi K,
I havent tried it but have read several reviews, apparently it is not effective at all.
Has anybody tried homeopathy treatment from Dr.Shah in India?
Thanks
some vitiligo sufferers do go get pink patches rather than white as its the last bit of pigment left before it goes white,so maybe if they just appeared on a white patch then it could be the start of re-pigmentation. but im not an expert,so best to wait for a reply or ask a doctor. im waiting for an email from them to see if im eligable for it,the last time i emailed them they took about 5 days to reply.
Hi Guys,
I ordered one bottle of vitiligo organics from australia few weeks back for my 11 years old son. Today is the 16th day of regular application and i saw white spots r now pink in color. I read on different websites about this change which sounds normal to me. I am going to double check with support, already sent them an email and waiting for the reply. Does any one know any thing about this kinda change??? If its positive how to speed up the healing process??? like UVB or supplements ??? i cant wait to see my boy in one color…. thnx
no i havent yet as i dont have the money. i have just emailed them to see what theyd say when i asked if they were genuine and if they were,how long would it take.
Hi Nina,
Looks like you have already ordered the cream. Let us know how it works.
hi K and thats ok,no i havent as my patches are big and its spreading so it wouldnt be enough for me. Im going to try the austrailian cream to see if it works. But they say it can take up to year on patches that have been there for 3-4 years but most of mine iv had since i was a child so it might not work for me.
Hi K,
I have read some really mixed reviews. You can check out vitiligosupport.org and search for micro-pigmentation, you will get several people’s experiences. I really want to try it for my hands but it’s kind of expensive and I am a starving university student lol so going to have to put that on hold. Good luck!
Dear Nina, Lura and RA
I have a quick question for you all, have any of you tried or know about micro-pigmentation or (permanent make up, tattoo)? I have a few spots on the back of my hands, and feet, and my vitiligo seems pretty much stable. I am thinking about this option.
Thanks for your all feed back. By the way I read all your posts and enjoyed you guys conversation. Keep it up
lol i havent got any on my ass atm but probably will soon unless a cure is found. Even if they do find one i dont know if i could use it as they test on animals to do it i think. i looked at a list of charities that use animal testing in their research and the vitiligo society was one of them. But im hoping that if a cure is found,that it wasnt found through animal testing. I want to be a dancer but obviously they wont have a dancer with white patches all over them go on stage and perform,and i wouldnt blame them as its so ugly looking.
NINA…not a problem at all… my dream is that one day i ll be able to go to the beach..with out vit… and swim like i used to do when i was a kid… nd enjoy the sun without thinking i ll get sunburnt… ;)
fingers crossed then..for this cream… wish u a good day ;) nd tc always… will keep u updated..so far have not yet received the cream…and since it said that it works better on new spots..i will use it on my knee…. got it after i fel..nd a scar..then it turned vit…nd behind my knee… nd might i try it on my arse? ;) yeah… will do that too..those are the freshest vit spots i have … soooo we ll see if it works on those… i will use it on my elbows as well… those i ve had for round 13 yrs… sooo guess it will be harder to get some pigmentation… we ll c how it goes ;)
bk to work now…hv a good day…
yea i have been through some hard times too due to other things such as my OCD. It makes life hard to live,and my medication has unpleasant sid-effects. Iv tried to not be bothered by my vitiligo but its no good,i still feel so ugly because of it. But thanks for trying to help anyway and for trying the cream.
nina…unfortunately atm their is no cure…like you i have been waiting for it since i was 13yrs old,that makes it 20 yrs…and what if it does not come? shall i live my life in darkness till i die? believe me…i know what you are feeling… when i was 18 i got stuck with depression, i lost count of the times i tried to take my life off!!! twice i ended up in hospital, and the last time i did it ..i was 24 yrs old..i could see the anger in my fathers eyes… they were no longer commpassionate…but anger…cuz i had given up on life!!!! i still suffer from times of depression..i release them in the poems i write nowadays… but you have to be strong… try to see something positive out of all this negative life… apart from vitiligo i suffered a great deal… lost my mother after years fightting cancer at the age of 14, wehn i was 19 my father was very sick..and they had to revive him..cuz his heart stopped beating..then my just married brother found he had a malignant tumour..at only the age of 24, if vitiligo did nothing good in my life..it sure made me stronger… i will try the cream, but it might take months to see…if..always it works out…and it is not a cure..but a treatment, which will take patience to see results… i will post any updates… and pictures..of before and after… i hope this will help at least… and if it works for me..then u can try it out as well.. but keep in mind this is not a cure…just a treatment.. bk to work now… wish u a good day
laura
no i havent tried it and i probably wont because its not enough for me. i apprieciate all your messages of encouragement but i need a cure now or thats it for me. I dont want to get married and for men only loving me for who i am,i want to have fun with men and for them to love the outside too but its no good even if they did because i dont due to my vitiligo. Iv tried creams from the dermatologist but they dont work,or at least dont work enough,after applying it for months,to be worth the bother.All i ever get is ‘you’ll just have to live with it’. I cant live a happy life with it. All i can do now is hope this austrailian cream is genuine and gets rid of it all.
RA…
yeah for example with me vitamin C makes d vit spread, you learn these things from trial and error, used to take ginko, many ppl reported spreading..me it did not effect me at all.
I agree with what you said as well, about having vit and still getting married, I am no beauty queen, but guys enjoy my company, later on they find they fall for me!!!! first the character… its important that you dont let yourself go, keeping in shape for me is a good feeling, i do 45min exercise almost every day, I take care of my hair,etc…etc..dress nicely…having vit does not mean that the world is over..yeah it is hard..esp in summer…in malta its almost always summer…. but life goes on, if ppl see you always said..than its more likely they will avoid you. There are times I feel like crying..and staying inside… and tell the world how much i hate my life… but instead i say..wht d hell…. nd i go out…i laugh…with a smile always plasterd on my face..that at times it hurts…then..i go home..nd cry… nd release my pain. But its what ppl like most in me… my smile…and my eyes…cuz when u smile..your eyes smile too….
Hi Nina,
The key for any treatment to work is persistence. I have been treating with nb UVB for 3 months now (or maybe more) and have noticed one tiny freckle in my knee patch. And that made my day! I know it can take up to 3 years for the treatment to repigment you completely. Also, the most important thing is to realize that vitiligo comes from within. It is important to take vitamins or try to see if you have any food allergies that may be causeing your vit. to spread. I have done alot of research and gotten a lot of blood work done. The vit. on my face is gone 100% but I STILL use medication on it to maintain pigment. This is a lifelong battle, mainly because there is no “cure”, everything available is simply a treatment, which means once you stop treating it will be back. As for not having guys look at you, two of my aunts have vitiligo and they are both happily married to men without vitiligo. It is simply skin pigment and good guys realize that. Email me and i will email you the list of vitamins I take :). Good luck!
nina..btw..did u ever try elidel? it worked fine for my face..esp for the ones around my mouth…did not get rid of them for good..but at least they are smaller now… nd i think it would work better for you since u dont use make up..u just apply in d morning…dont wash it off nd at night… nd if u have some time to spare..u can stay for a couple of min in d sun…it would help with the repigmintation progress…nd if u dont want d to be a contrast..with the tanned skin nd d vit patches use sunblock where the skin has color…that way u ll not have that much of a contrast…but..the few spots of color u ll get they will be a bit darker than your skin tone… by time they will get even… i started getting brown spots..untill they started joining toghether… be carefull with the eyes tho… dont over expose them to d sun..cuz d skin is very delicate there nd u ll end up with dry skin and wrinles… ;) okies…. check elidel on internet… dont know in what country u live… but if there is some sun…try to take advantage of it..always in small quanties..not too much sun..cuz u ll get a sunburn…after a couple of hours u ll start niticing your skin getting slightly pink… thats good..dont worry…make sure it does not go red tho..cuz it would mean u overdid it with the sun..
laura
i dont get any men look at me since i got fat and got vitiligo round my mouth and eye. I have it on my stomach,feet,wrist,underarm,private area,neck and thighs. I wont ever feel any different about my vitiligo. Im sick of it. I also have patches due to scarring and having a mole removed. Im on facebook but cant remember my name on there and there are no photos anyway because i dont want anymore people than i have to,seeing me like this. I want to try the austrailian cream but im too worried about what might be in it if its a scam. I dont want make up,its too time consuming and i dont wear normal make up either as i think it makes you look uglier when you take it off. But im glad for you if it doesnt bother you anymore.
Nina,
I know what you mean, I guess you r still very much young, I am 33 yrs old, I dont know how much of your body is covered in vitiligo, I have it on my hands, elbows, face, now a small dot on my knee …cuz i fell round christmans time…nd its a scar turning white, on my feet as well and on my ass nd private part, tho that ones dont really bother me so far, as for the boyfriend issue, well, I used to feel that way too, when younger…however guys still kept coming up for me ;) and still do… I conceal the ones on my hands with self tanning lotion, which i mix with water, and use camoflague cream on my elbows, which i seal it with a spray, and then some powder to make the skin look even..then brush it off lightly, for the face i use normal make up, tho to fill in the contrast i use colored water, then use a normal under eye concelear, nd with a cotton bud or what it is called i put some foundation near the corners of my mouth. I have learned with trial and error. I dont know if one can give personal details such as e mails here, cuz I would have given you mine or added you on facebook.
Laura
Hi Ra,
I never did a blood work, but I used to take vitamins every day, When I was 18 I started taking psolaren pills, the vitiligo spread more, or it was there and upon gaining color the vitiligo patches came visible, then the dermatologist gave me steriod pills, none helped, then I tried Novitil at the age of about 23 yrs old, had some more spread, then I gave up untill my GP told me to start using elidel, I did a research on the internet and found out that staying for some time in the sun would help, by then the vitiligo on my face was spreading, I had bit patches around my mouth, under my nose, corners of my nose, around my eyes, on my eyebrows, I used it as well on the elbows, starting staying for a couple of min in the sun, elidel helped me for my face, though I cannot say it cleared the vitiligo away, but at least I got some pigment back, my elbows started filling out, but the pigment did not last long, I bought a NB Uvb Handheld wand, but it was nothing special, did not work out that much well on me, though I managed to get some pigment back, then I stopped treating, I was tired …always thinking and thinking, I started living my life, at times I still check bout some other options, new treatments, but I dont want to get obsessed again, Y day I ordered this organic thing, I will try it and see what happens, will be the last time I ll do something bout it.
laura
Hi Nina and Laura,
I went on the Australian Organic cure website. From my personal experience, any vitiligo treatment or cure that guarantees 100% repigmentation is a scam. Have you guys gotten your blood work done to see what vitamins you may be deficient in? There are success stories on this website as well as others from a combination of nb UVB and vitamins. Hope this helps!
still have my youth,i meant.
i dont know,sorry that wasnt written well, i was just asking if anyone had tried either of them. i read you have to go to germany for the pseudocatalase cream which i cant do. i want a cure now so badly,iv never even bothered to have a boyfriend or go out as i know that i will never enjoy either of them unless my vitiligo goes now while i still hae my ypouth.
@ nina,…so the organics from australia is a pseudocatalase cream?
sorry i think thats spelled wrong,i meant pseudocatalase. I think thats right
I want to try vitiligo organics but know it could just be another scam. Has anyone here tried it? My vitiligo is spreading so would also like to know if anyone has tried the pseudolactoles cream?
hi dale..
me would like to know as well if anyone tried organic care australia cure… would like to buy it but still undecided whether it would be a waste of money or not. Apart from that i dont want to get my hopes up high. I have done the nb uvb.used elidel..v tar..etc etc… only got some of the pigment back on my face. would like to at least get the pigment of my elbows back. i would be happy gaining just that back.
Puspa:
Okay, I know a lot of people do not believe that there any link between food and vitiligo, but based on my personal experience, I have stayed out some foods ( advised by a nutritionist),and helped stop my vitiligo. Here is a list of food I don’t eat:
No fried food at all
No, Mango, banana, egg-plant, spices, beans.
Advised to eat:
cucumbers, lemon juice, vitamin C, vegetable, meat mostly white meat, limb is fine too just don’t eat too much beef.
I hope this helps. I know you said you have suspicious of beans, try to stay out of it and see what happens. Again, don’t let anything to stress you out at all. Stress is a major factor, Either mental or skin stress which can occur from too much sun as well. Try to exercise, I don’t know if you can. It really helps reducing your stress, increasing your concentration and your overall appearance. One last thing, it might sound a little stupid, but when I really take care of myself, and clean up, like get a nice hair cut, take shower regularly,clip my nails ( i have vitiligo on my hands) it really helps me overall appearance and it boosts my self-esteem.
thank you so much for your suggestion “K” and Nathalie as well. I think i agree with you k. i too guess that stress was one of the factor for the depigmentation. For a couple of months towards the ending months of 2009, i was in stress, did not exercise and was in room the whole day for months, and i noticed it at that time, but thought that it was a cold sour, so didnt give that much attention. But I always took healthy food. one food is under my suspension which is a bamboo tip which i consumed almost 3-4 bowls of its soup with beans. bamboo tip here is a preserved one in cans. i dont know if that chemicals affected me. hope of the best.
i want to say the the doctor was also not sure if it was vitiligo, but was saying that it was depigmentation, n he said that he was supposing it to be vitiligo. i dont want to say the name of the doctor. keep me informed “k” about your progress.
hi puspa,
it is very common, unfortunately, to be mistreated by a dermatologist or doctor when going for help with vitiligo. don’t take it personally, it was their own frustration at having nothing to offer you that causes this terrible bedside manner. we’re here for you!
Puspa
Sorry to hear about your bad experience, but you are not alone. I have been dealing with almost 10years. So here is my advice based on personal experience. The more i thought about my vitiligo, the faster it spreads. I also stay way from sun because whenever i get tan, I see more spots appearing. As everyone agree that stress can trigger vitiligo, so to keep my skin healthy, I avoid sun.
Here is the summery what I do, and believe it or not, it has stopped spreading.
I stopped eating friend food (It was recommended by nutritionist)
I exercise everyday at least for an hour, keeps my stress away and helps general health.
Don’t think about it too much. Don’t waste your money. Just pretend it doesn’t exist ( I know it is not easy) but that is your best bit.
hi all,
i had a checkup with a dermatologist……but it was a bad experience visiting a doctor. no counselling, no advise on food habit, just told that it was an auto- immune which i already knew, and told that if it starts spreading, no medication works. so much upset to hear from a specialist. but he has given me protopic, a tacrolimus ointment n told me to apply for a couple of months n told that else nothin can be done. I have started taking B complex with B12 and folic acid. started eating celery, eventhoug i didnt like it…….can anyone suggest if i need to take b complex with b12 n folic acid and if there is somebody who got cured with tacrolimus ointment.
thanks “S” for your suggestion.
@ puspa selsum blue is antifungal so if ur spots are vitiligo spots, ur wasting ur time, however, if u’ve lost ur pigmentation due to fungal infection then selsum blue will work. U should see a doc cos if it’s vitiligo then u need a ‘proper’ treatment
hi all,
i have lost pigmentation on my upper lip since two months. it has starting from the junction of upper and lower lips, but it is spreading only on the upper lip. now it has covered almsot 20% of upper lip. none of my family members have it. i am 31 and i am worried if it spreads to the whole body. need your suggestion to get rid of the loss of pigmentation. At present i am using selsum blue, which is a shampoo with 1% of selenium sulphide. can i get the pigmentation back??
@ K
try vitiligo support international forum cos there’s a discussion about micro-pigmentation. I don’t think many ppl were satisfied with it…have u tried dermablend?
Hello, has anyone tried micro-pigmentation? I am thinking about it. Please any advice?
Hello all,
has anyone used vichy’s dermablend leg and body cover cream?
Has anyone tried Vitiligo Organics from Australia?
Hello everyone.
I am 14 years old and i am very unhappy with my spots. Nearly 50% of my body is covered with vitiligo and i want it gone before high school starts. i was diagnosed with vitiligo when i was 6 years old. Since then, it has been growing around my body more and more each year. It is beginning to turn my hair white and i cant stand people making fun of me anymore. Since i was 6, people have been looking at me and saying ew or what a freak. They have laughed in my face and talked about me to their friends. I need help and i am running out of ideas.
When i was diagnosed, my mother and brother looked up everything possible to try and help me. But at the time, they found nothing. Now whenever i bring up the conversation, my mother dodges it and she doesnt want me going through any procedures. I know that i should listen to her, but she does not know what it is like to live my life. She does not know what it is like to have people laugh at you and to have to hide yourself until clothing. I came onto this sight asking for some one to help me. I cant stand the disease any longer. No matter what my mother says, i have to try something. i have saved up hundreds of dollars for a cure, but my family just thinks i am saving up for a laptop. Yes, i lied to them, but i had to do this for me.
I am begging who ever reads this to try and help me.
My life has been hell and i have cried to many times to count. Please, help me.
Maggie…
Just for your information. I will not recommend anybody to go to Dr. Pearl Grime office to anyone. I went there she charges 650 dollar and probably spend less than 3 minutes with me. She is just running a business. Although I wrote all my question to ask her but she was in and out checking 5 patents at a time, and I didn’t receive an answer. This was my experience.
Skin transplant offers hope to vitiligo patients.https://news.bbc.co.uk/2/hi/health/8557433.stm
Hey RA…
To be honest it stopped spreading as I got older. The only time it showed up again was when I was going through a stressful time in my life. But again when things calmed down it stopped.
I had chinese herbal medication throughout this time and homeopathetic medication so I think this helped too. Hope this helps.
hi Mandy, how did your vitiligo stop from spreading? did you use something to stop it?
Hi there…
Thank you so much for this forum, it is a real help. I have had vitiligo for 20 years and alothough it has stopped spreading and improved over the years I still hae patches. I have recently started using anti-vitiligo oil. Does anyone know if this actually works? Many Thanks
Mandy
Hello everyone.
I have had vitiligo for about 16 yrs. it started out on my hand and became worse over time. I have a few spots on my face, and am looking to treat them. I did go for the EXIMER LAZER TREATMENT(not sure of spelling) and it really helped. However,after a few years the spot came back (by my lip).
Also, I have heard some very EXCITING news. There seems to be a connection between GLUTEN and autoimmune diseses such as vitiligo.I have completely given up the gluten,for about 6 months, and have seen my olive complection return verses the palish look I had for the last few years. I believe that the gluten intolerence causes the malabsortion of nutrients in the body. FURTHER, I had read this entire blog, and read complaints where vitiligo got worse after drinking (beer is loaded with gluten). Additionally, that dairy may cause it beacuse of the pizza (look to the crust) again loaded with gluten. If you are a vitiligo sufferer and have alot of bloating or gastrolintestinal difficulties, you may be a celiac, or have a gluten intolerence. Lastly, I have read where juicing has arrested the spreading of the vitiligo. I too, have had the same result. I believe its beacuse of the potent dose of nutrients therefore causing the body get what it needs by over plenishing.
I was prescribed ELIDEL by my physician, and was wondering if anyone tried this cream.I would appreciate the input.
Good luck to all
The Cuba treatment is not a fraud…and it seems ridiculous you believe in a b vitamin+ acid folic treatment and not in the melagenina plus, the problem is the same with all vitiligo treatments, it will not work for everyone, Melagenina plus is not expensive, but you have to go to Cuba, and that is expensive :(
If you have recent Vitiligo try first Protopic, or Topical
Corticosteroids (ask to your doctor) none of them worked for me, but it worked for some people.
I have tried the Cuba treatment, it parcial worked (other people say it worked better for them), but only together with sun exposure (they say it’s not necessary, but they are wrong) no fotos to prove it, sorry but i don’t take fotos of myself to use on the web, ever.
I have been using it for some years, not as cure anymore, but to avoid vitiligo expansion. For that, and for some partial recovery, it may be a good option. But be aware, if you live in a country with poor sun exposure, forget about it, and if you are low on money, forget it also. Any treatment you will use, probably will have to be continued for the rest of your life, if you stop it, probably vitiligo will return sooner or later.
About the vitamins treatment, i never believe it, but recently i needed to take high doses of B vitamins and ginko biloba, some time later (months), i realized my vitiligo was lightly better, i didn’t associated it to the vitamins + ginkob biloba, but now that i think of it, it might be, i don’t know. The changes are very small. But well, what do you have to loose? Taking B vitamins + folic acid will not do you any warm, so i not give it a try?
The treatment that worked better for me was prior to the Cuba Melagenina treatment and it was the psolaren treatment, together with sun exposure. All the vitiligo i had in the face, was gone. The problem is, as soon as i stopped the treatment, it started all over again…and you can’t expect to do that for the rest of your life…
So, i decided to try again 2 treatments and then, use the Cuba treatment to maintain the results. I will take the vitamin B pills, and do a psolaren treatment (Heliocare + oxsolaren + sun exposure) for some months, and then use the Cuba treatment to maintain, to the rest of my life.
hi ash,
i’ve heard positive things about it, too. i’m a skeptic, though, when it comes to cures…i want to see proof. i’d be wonderful if we could get undoctored photos of success stories using cuba’s cure ;)
Hi all. I have had vitiligo for about 2.5 years now and its such a pain. i’m surprised they dont have something to regenerate melanin in skin yet. Have any of you guys heard about that treatment in Cuba using calcium chloride and placenta. I hear it works but im not about to throw out a couple of hundred dollars on snake oil.
hi Emma, I have never tried celery as a treatment, however, for about over a year i was on a very healthy diet of mostly vegetables, including a lot of celery and carrots, and my vitiligo wasn’t spreading. when i stopped eating healthy and exercising regularly i noticed my vitiligo spreading. I am back to eating healthy and working out and taking vitamins and have noticed not only stopping in depigmentation but also some brown spots in existing white areas.
hi hasan, i started this website over 6 years ago, and unfortunately, i don’t have an answer as to a cure for vitiligo…there just isn’t one yet. people have been exchanging ideas on this site, so i would read some of the things ppl have done and perhaps try ones that appeal to you.
kim, if you would like to share your photos with us, that would be great! contact me via the link at the bottom of the website for my email. i had good luck repigmenting by simply sun bathing, but the dosages of b12 and folic acid would depend on your body. perhaps a visit to your g.p. or a homeopathic doc would yield the answer.
Hi i have read through some of the information and some of the stories. I have been to Cuba and have gotten melanigna plus mediacation and it is working slowly. I have pictures where you can definatley see the improvement in my face!!! The thing is i have to leave from Canada to go and get the medication in Cuba every 6 months or so. It starts to get expensive. Could you write me the exact Treatment you have been using? something about b12 and folic acid and tanning. Can someone tell me what i have to buy and how many times a day is this necessary.
Thanks,
Hi Nathalie Pelletier looks like you been reading and posting on this site for quite a long time.
I have vitilgo since 1998. The patches are spread over my body.
I am not taking any medicine never did.
I am thinking about taking some medicine or anything that help cure vitilgo or stop it.
I would like to know your suggestion?
I am a sixty-five year old African-American man and I was diagnosed with vitiligo mere days ago, although I first saw a dime-sized white spot on my right wrist about a year ago. While everybody else says that the hair growing out of their spots is white, mine is black. I only have one white spot, the original spot on my wrist. The other spots, on my hands, adams apple, right ear, and below my left cheek, are pink. I have for years been a SERIOUS eater of fruits and vegetables, but not being a meat eater perhaps has given me a Vitamin B-12 deficiency. I live near Chinatown in New York City, and I have been into Chinese medicine for years with good results, and I recently purchased a product called Vitiligex for Vitiligo. I have increased my intake of A and D vitamins, and I now take B-12. I have also been advised to try the herbs Gotu Kola and Fo-Ti. I’ll see if I get good results.
hi emma, thanks for the link. i am always wary of advice for curing vitiligo…if there was a cure, the huge community of vitiligo organizations would be letting everyone know about it. there is no blanket cure yet, but since some people’s vitiligo may be triggered by food allergies or malabsorption, changing the diet may trigger re-pigmentation.
all the best,
nathalie
hi ali,
i’ve scoured the internet for medical info about vitilex and found nothing. naturally, the choice is yours, but i wouldn’t bother.
a friend of mine had aleopecia areata universalis and after a few years his hair grew back. it was patchy at first, but it eventually all came back.
check out this site, they may have some info for you:
https://en.wikipedia.org/wiki/Alopecia_universalis
cheers,
nathalie
hey does vitilex 150 help in curing aleopecia areata universalis?i am suffering from it since last 5 years.none of the medicines seem 2 work.have seen a lot of doctors so far.no cure for it.heard vitilex 150 might cure.shall i start taking them?
I live in Brisbane, Australia and I have had patches on my skin for the past 8 months.
I finally went along to visit a doctor last week regarding the condition and he referred me to a Dermatologist.
The diagnosis is that I have vitiligo and have been prescribed a cream called Diprosone which is to be applied to the infected areas twice a day (morning & evening). Has anyone else had experience with using the Diprosone cream?
Would certainly appreciate any feedback..by the way I am in my early 50’s.
I have only just purchased the cream from the chemist and therefore cannot let you know the results – however I will keep you posted.
Cheers!!!
Yes RA thats what i was reading, so i wondered if anyone has tried celery and been successful. Because it is suppose to increase the skins natural reaction to sunlight and yes it has Psoralen in it which is suppose to be really good.
My daughter , 14 years old has had vitiligo since the age of 7. She has tried various creams and even the UV treatment. The UV treatment worked well but when she stopped it the vitiligo reappeared with a vengeance. Although she hates it she has come to accept it and Ithink this is the only cure- ACCEPTANCE
Thank you for this positive post about vilitigo. Many people would be very happy to know your stuff. Keep bringing up the good news!
Celery is a natural source of Psoralen, which is supposed to be helpful with repigmentation. Try researching Psoralen and you will come across how this helps vitiligo and what other vegetables are high in Psoralen
Hi, I live in Toronto, Canada and I’ve had vitiligo for a few years now. I have small patches on my hands and lip. I’ve tried using Protopic and Elidel for a short period of time but get discouraged because results take up to four months. It’s difficult to try any other treatment when the research says the cause is UNKNOWN. How do you cure a condition when you don’t know the cause? As you can see, I’m frustrated and starting to lose hope. Now, the patch on my lip is getting worse. I found some of the information provided by people on this blog helpful and supportive to try to take control and do something about it.
I’m starting to believe that this is a curse or some form of evil eye. Sorry but I’ve been thinking about it too much lately. My intention is not to offend anyone.
Thanks!
hi emma,
it would be great if celery were the key, but i’ve not heard that it is. if you forward a few of the sites where you read this, i will take a look at them. ;)
Nathalie,
I took UNANI medicine when i was 7 years old and continued for 4-5 years. This was one of my early treatments and it did control my vitiligo ( it stopped spreading), the problem was the diet which was really tough on me. I am not sure if it is the same case with diet. But without seeing any pictures I can vouch that this treatment did contol the spread of Vitiligo.
V
Hello, I have had vitiligo for a couple of years, i went to my dermatologist and they said there was no cure for it , which made me very upset. But i was searching up on the internet and i found out that celery is a good cure for vitiligo is this true ?
bob, i’ve spent some time this morning researching the Unani medicine from the Hyderabad unani hospital, unfortunately i did not come across any published results of treatment or photographs to show re-pigmentation. We would love to see photo’s of your results from taking this medicine.
nathalie
Unani treatment from India is best way to stop spreading the disease without side effects, steroid works too but it will be controlled as long as you use medicines and you cannot use steroids for ever as they have serious side effects.
Unani medicine is available for free in Hyderabad unani hospital.
I went there and got 1 year of supplies by paying few dollars(just 15$).
every day few hundred people come to this hospital for vitiligo treatment.
has anyone tried Vitiligo Organics from Australia
I’ve had vitiligo for a while. This site is awesome, it helps me realize that I am not alone. Thank you Nathalie for this website. Thank you everyone for sharing valuable informations. I hope they find a cure for this condition soon. I’m wonderting how much research is done on this condition. Probably lesser than study being done on HIVs and cancers I guess… anyway I won’t lose hope. Thank you all again
Hi Jayne and Lynn,
I, too, am allergic to sulfa drugs. Hypothyroidism is common in ppl who have vitiligo; i wonder if sulfa allergy is too? i will take a poll on this site so we can get an idea of the occurrences.
nathalie
Hi Jayne, yes I am allergic to sulfa-drugs, but I noticed my vitiligo at age 14. That was about 12 years before I ever used sulfa drugs and ended up in the emergency room with a bad case of HIVES!
I have had vitaligo since I was 8. It showed up after a severe sunburn. I am fair skinned. I am in my forties. I am allergic to sulfa and apparently gone in to a coma as a kid from a reaction. Then I was on other sites looking up Sulfa allergies because I am allergic to sulfa.. gluten allergies kept coming up and somehow i ended up here. Paba kept also kept coming up. Then I ended up here…there must be some kind of connection… B12, folic acid..not sure what to think yet. Anyone allergic to sulfa…
Ken,
I had this discussion earlier with few dermatologist’s and they said tatoo is not an option as they can’t match with the skin colour.
Regarding surgery which is very much similar to plastic surgery your vitiligo need to be very stable and very expensive as well depending on how much portion of your body has vitiligo. If you have very few spots and if it is stable it is a good option.
I recently tried applying piperine and consuming Ginko tablets but I didn’t do it on a daily basis but surprisingly I noticed two spots on my hand where the colour came back. I want to try this again… actually I think few of us should form a group and try it. This way even if we are busy in our life we come back and apply it. I will keep you posted ..
Regards.
Ken,
I’m not sure if surgery for transplanting melanocytes will work or not. Is your vitiligo stable? I think that’s one of the parameters they’re looking at.
Is anyone find an answer for my question?
Hi, Ken please let me know if you find any positive news about tattoing or surgery on your vitiligo because I am also considering these options.
Thanks
Hi!
many people are asking about excimer laser works!?Well today was my 20 treatment at 115$ every time(once a week)and nothing at all..Its not working for me at all..the doctor actually suggested that i stop for a few weeks!!nothing seems to work..i alson used protopic while doing the laser..tried uva and melagenina in the past and nothing seems to work!!Im at the point that im consedering suggery and tatto..Does any body have a idea if surgery is possible?oe if tattoing works?
thank you
Does anyone know if Anti-Vitiligo™ Oil really works? I want to try and use it.
Although there is no known cure, you can cover the white patches so at least you can get on with your day. Women have many options for facial vitiligo as there are tons of cover ups. But for men the cover ups look obvious and can be even more embarassing than the vitiligo itself when people ask why you’re wearing makeup.
I have discovered a product called colortration. It is simply so much better than the other options such as dermablend. It does not look like makeup and is really easy to apply.
Hope this helps some of you guys out there.
hi tarana,
sometimes ppl don’t respond because they don’t have a definitive answer. b12 and folic acid supplements may help your vitiligo, but i haven’t heard from anyone who has been ‘cured’ by taking them. i promise that when i hear of an indisputable cure for vitiligo, it will be all that shows on my homepage ;) happy thanksgiving!! nathalie
HEY TARANA,
I HEARD THAT VITAMIN B12 & FOLIC ACID WORKS. i HEAR ALL DIFFERENT KINDS OF THINGS, BUT THEY SAY THAT VITIGILIO IS CAUSED BC OF THE UNBALANCED OF THE BODY, & B12 DEFIENCENY. I DON’T SEEM TO GET ANY ANSWER ON THIS SITE, ITS KIND OF SAD. BUT I HOPE THIS HELPS! GOOD LUCK
Hey guys My name is Julia i’m from texas, i’m 21 years old and have vitiglio for about 5 years. Its mainly on my hands, legs, and i have a small spot on my face. So i’m planning on doing folic acid, b12, and exercising..i’m not sure what else to do!! someone help please!! THANks!!!
Hi guys! A while ago I read at this blog someone saying medication against stomach worms helps with vitiligo. I got Albendazole in Russia, and thinking taking it. Anyone has any suggestions. I am desperate, so I thought I would give it a try.
Hi
This is to Plasticwindow I also read about Prof.Schallreuter remedy about the black pepper. Does it work? If so where can we get this from. I think my mums pigment cells are dead.
Hi
My name is Angi and I am writing this on behalf of my mother who has had vitiligo for 20 years. She has tried almost everything UVB, vitaman tablets, she keeps fit and eats healthy. She has tried many products on the market even herbal remedies from China,Thailand but still no results as it just got worse.
We are now planning on trying vitilax, B12 and folic acid. After reading your website I am a bit hesitant could you please advise.
Hi All,
Thanks for all your information.
Let me tell you my condition, I have small white patch on bottom lip and big white patches on Arms and Feet. My mother told me she noticed the patches almost a decade ago. I never bothered about this before. But now I am getting married, and I am feeling depressed about my codition. I met one dermotologist, he prescribed trinorp forte tablets, whitcare lotion, and tacrolimus oitment. Can anyone suggest me, will it be cured?
I hope it can be cured.
I wish every one should get better skin conditon.
Thanks!
hi, thanks for visiting this site and taking the time to read through the comments. i’ve searched comments and posts, but found nothing negative about Professor Schallreuter and her work with vitiligo. could you point me to where you found a post decrying her work.
cheers,
nathalie
I was shocked to read a post earlier decrying the work of Professor Schallreuter. There are a lot of scams in this area but the Professor has made the study of vitiligo and the development of her pseudo-catalase treatment her life’s work. She is a professor of dermatology at two Universities, the University of Bradford in the UK and Greiswald in Germany. She has never claimed that the treatment works for everyone and has said there are a small percentage of people it will not work for, usually because the pigmentary cells are dead rather than dormant. My daughter has been under the Prof for 8 years and when she uses the treatment it works. Unfortunately she is in the small group of people for whom the conditon recurs as soon as she stops treatment. She is currently in Cape Town, South Africa and away from her nUVB machine in the UK and has lost all the re-pigmentation she gained on a trip to Jordan with the Professor’s group this summer. I found this forum by accident and was really looking for someone in Cape Town who might have an nUVB machine but when I saw the comments about Prof Schallreuter I had to respond. But if anyone does have any ideas about how to get nUVB in Cape Town that would be great she has her cream with her. Incidentally she has found other things which help are Olive leaf extract and St John’s Wort combined with sun but you can’t take the latter when on the pill. Also black pepper concentrate.
missy,
i was lucky to snag the info when i did a few years ago. the page has vanished.
Hey Nathalie,
Can you post the link to Iilana’s blog, mentioned in the original post ?
Thnaks
I meant funds,not fubds lol
Hi im 21 and have had vitiligo since not long after i was born. I have a patch on my right eye, all around my mouth,my entire groin area,lots of patches on my inner thighs and patches on my neck,wrists,stomach,feet,arm,breast and a new one growing on my chest. I remember that a few years back,i suddenly had a burst of loads of new patches when i spent a few weeks eating almost nothing but sugary junk food. I have a bad diet as i hate the taste of most healthy food so i dont have a choice but to eat them. I am still developing new ones. I tried chinease herbal medicine for a year but it did nothing. I have recently read about a cream that a doctor/professor has made at bradford university that they say has a 90% success. It has a picture of a woman that tried it and its is all gone now. But its costs over £1000 including consultations etc. Its at the http://www.vitiligosociety.org Hope this helps. I want to try but i cant afford it. Im looking to see if i can get fubds from the NHS for it,although its doubtfull.
Question for everyone regarding the H1N1 flu vaccine.
Does anyone with Vitiligo have any concernes about having the flu shot??
Hi I have had vitiligo for a year and a half now. It started above and around my lips in tiny not completely white spots. I started using elidel and elocon which returned some of the pigment back. However I also eventually developed more spots on my stomach and chest. This summer I started using the Excimer laser which is AMAZING. It returned pigment to my face, my stomach and my neck and has worked fairly quickly. It is very effective if you continue to laser spots when they are fairly new. This is a fairly new treatment but it works!!! Also for cover up Dermablend concealer is great and pretty much sits on top of the skin to cover spots. Hope this helps!
I have developed a white patch above my jaw line since July of 2009. I have seen 3 doctors so far. Two of the doctors told me that they are not sure if it is vitilligo they told me to use Protopic. One of them suggested that it is not vitilligo and it is hypopigmentation (lightness of skin) and there is nothing that he can do about it. I just stopped using Protopic because I was braking out in that area and it didn’t change anything. Anybody here has ever been diagnosed with hypopigmentation? I was also reading the posting regarding the food allergies. I want to go and be tested.
Chris, try Nair hair remover. Idk if it will be good for your skin though. Heck, maybe its the cure!
hello everyone, I have vitiligo on my chin and goes down my neck. White hairs come out of my effected spots. Having thick facial hair, I shave reularly so that its less noticable. There is still always that 5 o clock shadow differation that is noticable to me, even though my friends say they don’t recognize it. Any one deal with the same thing? Any tips on making it less noticable? thankksss
Great site & many useful comments. I’ll try to be brief: 1st noticed small patches of Vitiligo on my hands during my 1st bout of cancer treatment after they gave me meds to increase my blood count (anti-bodies). No-one made a connection at the time.
Had cancer again in 2004, this time worse. Blood count very low, a few treatments were even cancelled. They gave me regular blood-count raising injections between cancer treatments. This time my Vitiligo went beserk & spread to about 50% of my body! I also developed hypothyroid & need to take 100mcg thyroxine.
Tried various treatments, creams, pills, since without any great success, the best being UV light, which gave me partial re-pigmentation after 6 months.
A few weeks ago, despite being well under 60 years of age, my doctors recommended a Pneumovax injection to increase my anti-bodies against pneumonia. They said I may be vulnerable due to 2 bouts of previous lymphatic cancer affecting my immunity system.
I expressed concerns prior to accepting this injection, but was told it shouldn’t make the Vitiligo worse. Had the Pneumovax injection over a week ago &… you guessed it! Have since experienced intense itching on various parts of my skin, developed new small patches of Vitiligo & alopecia in those places. Really symptoms of classic auto-immune disorder, anti-bodies attacking my own body, etc.. So much for listening to idiot doctors!
I’ve read some people here are using herbs like Astragalus for Viitiligo. Hmm. As Astragalus raises anti-bodies & strengthens your immunity system, you need to be sure your Vitiligo isn’t made worse by increasing anti-bodies in your system. Leastways, that’s exactly what caused Vitiligo in my case.
Good luck to all, try to stay strong & let’s hope for a PROPER cure within a few years!
I’ve had the Vit for about 5 years now. It came in really slowly around one of my eyes. My friends and I had no clue what was going on, at first i thought they were tan lines from my hair shading me face. Then as the circle developed it began around my other eye. Within 6-12 months the white circle’s around my eyes stoped growing. They are almost symetrical. People always asked me questions about the tan lines around my eyes and I always made up crazy stories. It was amusing. But yeah, I was watching “becker” a t.v. show one day and some dude had a hyper pigmentation disease… I then figure maybe i had some sort of skin disease and went up on google. I eventually self-diagnosed myself with vitilogo. I told my mom about it and she schedueled me an apointment with a doctor. He had no idea what it was and i told him about vitilogo and he looked it up in his med book. He then refered me to a dermatologist who finally diagnosed me with vitilogo. He gave me some kind of steroid cream and told me that I should use it twice a day for six months. I only used it once a day for about 1-2 months. I didnt see a need to re-apply it because my skin was still very much oily from the first does. I stoped using it because the oil skin was making me break out with really bad acne and it was really disconforting. I can normaly deal with my vitilogo… every now and then i get depressed and decide to do something about it so ill try the ointment again for awhile. Then eventually i start to feel good about my self-asteem and stop using it. I probably did this about 4 times. The total treatment that i have done on my skin was prob 2-3 months. I never noticed an improvement but everynow and then when i had the oil on my skin would have a burning sensation and turn pink. I always figured this was a good thing. I read some of the other people’s comments and they said it was. But a couple of them contridicted it. It seems everything about treatments for vitilogo contridicts one another. I guess im going to buy some b-12 and take one of those a day along with the folic acid… idk even know what that is but i hope walmart has it. Im also going to try buying black pepper and puting it on everything i eat. I read somewhere that drinking water out of a copper utinsil after it has been siting in it for a night can help. No clue why but ill give it a shot if i come accross something copper that i can put at least a glass of water in. Vitilogo hasn’t really effected my life to much… alot of people dont ask questions. I hate it when people do but w/e. It seems if i act like its not there… its not there. I have the disease on other parts of my body but its so small its not even a deal to me. But yeah, ill be checking on the site every now and then to see if anyone came up with a cure or great treatment. as for now im going to live like a vampire. Fun fact dracula had vitilogo =)… he had a couple of other skin disease’s too but its still neat. Hence not going into the sun. Question: Has anyone else developed an exceptionally well ability to read body laungauge? I’m pretty sure this is from the low self-asteem and being so use to peoples tells when they first see you. Its amusing.
Theory’s on the cause of Vitilogo
Prednisone-took it for a rash around the time i got vitilogo
Emotional stress- i was 15 and i was moving, i had a Girl friend at the time and all my friends were left behind AND my parents just got a divorce. great stuff
Wish- when i was a kid i always wished i could be a vampire(i use to pray to the higher power), wish granted.
Insulation- we went up in my friends atic and it was insulated with this fluffy meterial. we were trying to make a hang out place up there and we would push this stuff around till our nose’s bleed from what i beleived to be fiber glass.
Drugs- Started experimenting with drugs, (weed) (keyboard cleaner (huffing)) and random pills that i didnt even know what they were
But yeah, i fealt like ive said more than necessary haha.
Hi Steve,
Facinated with what you are saying.
After getting tested, what if we just eliminate those foods from our diet? is that enough do you think?
Merry clinic offers the “Detox” solution as well. It contains Milk Thistle,which I have read, helps to remove toxins from our liver.
I’ve read somewhere that Vitiligo may have a connection to the liver.
Please let us know how your son is doing?
I will look for Dr. Ellen Cutler’s book.
great idea! thanks steve ;)
thank you for the kind words mary…much appreciated. big hugs, nathalie
Please, everyone with Vitiligo, go get tested for a food allergy. More than likely Gluten, but not always. My son was diagnosed with Vit a few months back and I researched, and from what everyone says that has Vit they notice that when they eat certain foods their vit spreads or they also have digestive troubles. Well after reading all of the posts, I had my son checked for food allergies, and he’s allergic to the spice Tumeric as well as Wheat and Gluten. We have eliminated the allergies within the past few weeks using the BIOSET treatment, similar to NAET. I can’t stress enough to all of you who suffer with Vit to give this a try.
Hi Kate.
It was nice to read your response. It made me feel better–thank you.
How long have you been using the Merry clinic pills?
I have been using them for 2 weeks, just ordered another 2 months.
Are you using the Detox as well? I too think they are working, may be too early for me as well.
A positive outlook definately makes a difference in order to fight this disease.
I’m sure like me, you’ve been all over the internet, trying to read everything you can about it.
I’m very inspired by Steve’s blog about the allergies. I intend on getting tested very soon.
Also, Dr Spritz’s research is very hopefull, about the genetic testing that will be done in the next 3 years.
I think we should all participate!:
We need to stay strong and hopefull that in our lifetime there will be a cure!! maybe 2012 :)
Hi Mary,
I also was diagnosed with vitiligo this past summer, and I also have a husband and two boys. I think, if you don’t dwell on it and continue to be a positive loving Mom and wife, they won’t care that you have some new patches on your skin. At least, mine don’t. So their life is not affected, and I intend to keep it that way.
Besides, if you, like me, have just been diagnosed, you, probably, have very few spots, and they are fresh. It’s supposed to be easier to treat. I personally am using merry clinic pills and oil. Looks like it’s working, or maybe it just seems to me, it’s too early to tell. But I’m not giving up. I intend to stay healthy and get even healthier for me, for my husband and sons. And I intend to be happy, with them. Life is too precious to waste on obsessing over your looks. I’ll use cover-up cosmetics when/if I have to (so far it’s not that visible) and the life will go on.
Everything will be ok :^)
Hi Everyone,
I was just diagnosed with Vitiligo in July. I still feel like it is a dream and I will wake up soon…but it’s not.
My cousin has had it for 10 years (from age 41 to 51). She is my inspiration. She is always so bubbly and happy, laughing all the time and saying things like; “it won’t kill me” it’s just my skin. She has had good days and bad, but overall she has accepted it now, and to tell you the truth, I don’t even notice it now on her anymore. I think if she didn’t have it now, it wouldn’t be her. Anyway, with out her, I don’t think I coud have gotten through this.
One thing I have discovered though is that it’s not just about me and my skin..it’s about my two boys who deserve a good life and a husband who deserves a good marriage. I’m still the same person looking out of my eyes. The people who can see past the skin and like me for me, are my connections in life.
Natalie; you are an angel for creating this site!!I hope I can inspire others like you have.
Mary
Hi everyone,
I have had vitiligo since I was a baby and I am 22 now. from the ages 1 through 6 I was in cuba and was being treated with this medecine called melagenina and UV light, but since I came over here I never found it again, that medecine worked a lil for me, but it is said that works better and faster for others. If anyone has any info on this medecine please share. I think it is made from a womens placenta liquid or something like that. good luck to you all.
God bless you
Hello Everyone, Don’t give up hope, I’ve been researching this steady for some time now and believe I’m on the right track for my son. He was diagnosed with Vitiligo, he has it on his legs and stomache. Shortly after being diagnosed I came across a number of scientific studies that are linking auto immune disorders to Celiac Disease(Glutten intolerant)(leaky gut) and/or Food allergies. I immediately took my son to get tested for food allergies, low and behold he was allergic to wheat and a spice tumeric as well as being glutten intolerant. I also came across a blog from a digestive DR. in Seattle who wrote about a patient of his who came to see him claiming to have stomache troubles, the Dr. noticed he had quite a bit of Vit. He then diagnosed him with allergies to Milk and Cane Sugar. One year later the same man came back for his 1 year follow up visit and after obstaining from Milk and Cane sugar he had repiggmented quite a bit over the year. This Dr. said that he always thought Vitiligo was relative to food allergies/digestive system but never could find any medical literature. Folks, please get yourself tested for food allergies and glutten intolerance. I really think there’s a link and obstaining from these could end the spread of your Vit. at the very least. If you want to eliminate the allergy, make an appt. with a Bioset or NAET practitioner.
Steve
Aloha you guys!
What’s so bad about topical steroid creams? Do they help? I’m trying it from my doctor now.
Betsy from Hawaii
Hello,
I have vitiligo. I also have low thyroid and low blood-sugar. I
was just wondering if low blood-sugar had any thing to do with vitiligo because I take thyroid hormone and that corrects my thyroid but I still have low blood-sugar. I know because I just had my annual blood test. What do you guys think. ? By the way, my blood-sugar, ‘fasting’ numbers was 69.
Please let me know what you think. bye
Anybody tried Anti-Vitiligo Oil? Positive, Negative results? Thanx
People,
Has anybody heard of transfer factor? 4 Life (www.4life.com)is claiming that transfer factor can cure Vitiligo. Please give out your opinion.People, I do not sell the stuff. They are claiming that vitiligo is a neurological problem. Any Comments????????
hi
the simplest way to maneuver the website to find info is to use the tag cloud in the right column. for example, if you click on ‘excimer’, you’ll find a july 11th post describing my repigmentation along with some current and past photos for comparison.
cheers!!
?????????????? How did the laser treament/consultation go? I notice most people are posting questions and there arent many answers. I’m trying Dermabest’s Novitil (two weeks)…nothing yet! Excimer Laser experiences??????????????
Stop taking alchohol such as whisky or beer, this will spread faster, trust me, i have stop and my patches are healing slowing.
Hi Jane,
I have vitiligo and hashimoto’s (autoimmune thryoid condition). And my Anti bodies level is also high. Are you taking Vitamin D ?And what is DHEA ? What medicines are you taking for vitiligo ?
Thx
A common thread with autoimmune disease is low vitamin D. With vitiligo, the dermatologist tells me that it is now standard to do a thyroid work up because the thyroid is usually involved. I have also read that DHEA helps with some autoimmune issues.
In my case, I have vitiligo and hashimoto’s (autoimmune thryoid condition). The doctor must test for antibodies to find autoimmune thyroid disease.
With vitamin d, the test is 25 hydroxy not the 1,25 hydroxy to get the most accurate results. I can’t remember the reasoning but one can do a search on Mercola.com (and other places I’m sure) to get the information.
With thyroid you may still fall in the test range and still have the autoimmune thyroid disease. Check out the thyroid sites for a list of symptoms.
This information is from my personal experiences and information I’ve gathered and gotten from doctors. I am not a doctor nor am I recommending any type of treatment.
Best of luck to everyone.
Hello. About 6 months ago I got a very white spot on my leg — about the size of two peas. I didn’t think much of it. Then in the past few months, and even moreso in the past few weeks, I developed white spots all over my legs and arms. I have counted approximatley 170 of them now. Some are as small as freckles and others are as big as two peas put togethter. They are mostly on my arms but also on my calves and shoulders.
I saw my primary care doc yesterday. He said he might have thought it was a fungus, but because some of the spots have absolutely no color at all (pure white, no melatonin showing), he is concerned about Vitiligo. He referred me to a dermatologist.
I was unable to get a dermatologist appointment until August 20th. Today is August 5th.
I have been extremely anxious, because besides this, I have several other serious medical conditions that I have been dealing with in recent years, and I just don’t think I can handle another thing.
I see in the above posts that for each treatment, some people say it is working for them and some say it is not. Also, some say to go in the sun and some say to stay out of the sun. I live in LA where it is sunny all year round.
I do not know what, if anything, I should be doing at this point. Should I take Vitamin B12, folic acid, and vitamin C — as others are doing? Should I avoid sun? How do I know how much worse this will get?
Thank you.
Susan
Hi Nathalie,
Your pictures from a couple of years ago look promising? Did you stay repigminted? And what exact doses did you use?
Hi baba,
can you tell me more about this treatment? I have never heard about it. I come from germany and i have vitiligo for 26 years and nothing has helped me until now.
Thanks!
Chris
i have vitligo on my hand and i cured them with. is called bal meladen from germany
Hi. I am 37 male and have had vitiligo (I am self diagnosing) since i was 24 or 25. Started as small blotches on both cheeks, it spread to large areas of cheeks rapidly and slowed down. About 5 years later, it spread fast up my nose and to all of forehead and left me with normal pigment around eyes, stripe down cheeks and down to jaw line with five ‘o’clock shadow effect. Only has affected my face which is not easy to conceal. I am white, however stay olive colored in winter and tan brown in summer. The patches are white/pink/red most of the time and do contrast greatly with the normal colored skin in summer and even quite a bit in winter.
I noticed a quarter size spot on my cheek start become smaller and smaller repigmenting. I havent seen any repigmentation in 13 years. It gave me a little hope and decided I would try a product that I did research on that at least some reliable people had positive results with. I have started using novitil with sunlight starting July 2, about 3 weeks into it now. I have not seen any one’s experience with this on this site. I noticed minor freckling ( a dozen or so on the sides) on forehead area, but nothing to get excited about except that it is some form of change in the right direction (probably only noticeable to me). Of course it is a large area, and just want it to completely repigment, but not expecting it. It seems it would possibly be good or worth a shot for people with small depigmented spots if freckles could appear within the spots, however i have large areas of unpigmented patches. I normally do not freckle, and it is regular colored spots of my pigment, but look like freckles or even age spots on pink depigmented skin. I am hoping with time the pigmented spots grow and expand into each other.
If anyone would like to know more, i will share, but definately not trying to sell it. I like how we can all help each other rule out the products that DEFINATELY do not work for anyone (SCAMS). I also have some tips to help camouflage or at least help reduce the contrast of the white skin from the regular skin for men. I do not have experience with or like the make-ups (cosmetics) as a man, i would be just as self conscience wondering if people are staring at the vitiligo or the fact they would realize i was wearing make up. I will tell what products i have experimented with and share, if other men would like to share what they have found also to help conceal that may be helpful. I will post more later so this does not become to long.
Ruben,
There is no tolerable upper intake level for vitamin B12, since if you take it in pills, your body does not use much of it.
That means if you take large amounts of vitamin B12 (1000mcg), then your body will get rid of alot of it, without any harm.
I’m 16 years old, is it safe to take the massive doses of b12 and the others? I recently moved to the USA from Mexico. I was being treated in mexico with a special tropical formula, but it is not available here in the USA. thanks.
i still keep on searching how to cure my vitiligo, until now i can’t
find the solution. please if there’s any one who could help me find the good one or even how to hide it well just post it here it helps a lot to
the people who has it, thank you!!!
Hallo there!
Could anybody please tell me where in Europe I can buy VITILIX (skin oil and pills) ?
many thanks for your help!
Hans
my vitiligo is spreading rapidly after i was diagnosed wth hypo thyroid iand started eletroxyn in 2008.i have vitligo since 15 years but stopped spreading or very slow spreading since 1998 to 2008.
should i ask my doc to give me T3/T4 compounded medication for thyroid?
BODY & MIND
Nano-particles in Camels’ urine may help treat cancer
By Farah Mustafa Wadi
Dr. Faten Abdel-Rahman Khorshid is responsible for one of the Kingdom’s greatest national achievements in the field of science for her work which began with the urine of camels and concluded in a potential cure for cancer. After spending more than five years in lab research, this Saudi scientist and faculty member from King Abdul Aziz University (KAAU) and President of the Tissues Culture Unit at King Fahd Center for Medical Research, has discovered that nano-particles in the urine of camels can attack cancer cells with success. Her work began with experiments involving camel urine, cancer cells found in patients’ lungs and culminated in injecting mice with leukemic cancel cells and camel urine to test the results.
Speaking to the Saudi Gazette, Dr. Khorshid claimed that she was inspired by Prophet Muhammad’s (pbuh) medical advice and that camel urine consists of natural substances that work to eradicate malignant cells and maintain the number of healthy cells in a cancer patient.
“This treatment is not an invention, but rather, taken from our Prophet’s legacy,” she remarked. A Hadith narrated by Al-Bukhari (2855) and Muslim (1671) claims that some people came to Madina and fell ill with bloated abdomens. The Prophet (pbuh) told them to combine the milk and urine of a camel and drink that, after which they recovered. A swollen abdomen may indicate edema, liver disease or cancer. Dr. Khorshid added that she is not a medial doctor but a scientist and her job involves the preparation and testing of a drug in the lab and supervising the manufacture, testing and application of the drug.
“We have researched and studied (camel urine) for seven years, during which we have tested the effectiveness of camel urine in fighting cancer to prerequisites set by the International Cancer Institute,” she explained. According to her published study on the subject, the clinical trial her team conducted on patients indicated that the medicine (capsules and syrup) did not entail any harmful side effects.
In the case of a volunteer patient with lung cancer, the medicine helped in halving the size of the tumor after only one month. The patient, and others like him, are still undergoing treatment. Heeding the advice found in the Hadith, Dr. Khorshid is combining specific amounts of camel milk and urine to develop her medicine and focuses on particular types of cancer, including lung cancer, blood cancer, stomach cancer, colon cancer, brain tumors and breast cancer.
She added that she advises all of her volunteer patients to use fresh camel milk and urine with the two components given individually for a period of time and then combined together later. Other illnesses, including vitiligo (depigmentation in certain areas of the skin), eczema and psoriasis (an autoimmune disease which affects the skin and joints). However, Dr. Khorshid adds that she will only dispense this medicine to patients on a non-voluntary basis when pharmaceutical companies obtain a license to do so. Currently, the medication is still undergoing tests.
“We will provide ointments, capsules, syrup, shampoo, soap and gels to combat a number of the illnesses mentioned, but only after they have been licensed by the Ministry of Health and mass-manufactured by the pharmaceutical company,” she explained.
Her study has obtained the formal approval of the Ethics Committee of Scientific Research at KAAU. Meanwhile, her research has earned her team the gold medal for innovation in the Kingdom in 2008, and the medicine was also chosen as one of the six best innovations out of 600 entrants at the International Innovation and Technology Exhibition (ITEX) 2009, held in Malaysia in May. – SG
Oh one last thing, what is a good cosmetic way to cover vitiligo patches?
Hello All, Has anyone ever gone to dead sea for Vitiligo treatment? There is significant information about this treatment option on some reputable websites. Any thought or advise? Also I have my appointment with Dr.Pearl Grime in Los Angels with in two weeks? What should I ask her? Thanks a lot,
Ryan, I have had vitiligo for over 10 years, I have tried very many so called natural cures including Vitiligo Tabs and Vitiligo oil. My experience with these two products was not positive. Four days into using the oil my skin was thoroughly blistered, I called the vendors who advised me to stop using the oil but to continue taking the tabs, which I did, for six months. Needless to say, I was very disappointed with the results of those 6 months. Instead of seeing some improvements, I noticed the vitiligo spreading so fast and new spots developing in areas of my body that never had any marks. The tabs must have trigered something coz now I am more depigmented than I was before I started taking the tabs.I have seen more spots develop in the last year than I ever saw in the 9+ yrs I had had the vitiligo. I thought I would share my experience with you. If someone out there has had a better experience, I hope they will share it.
Hi there
Ive had vitiligo for many years since i was 10 and im 25 now, Ive just decided to look for a cure or some treatment because my nose and checks keep gettig burnt in the sun =[ I am very sceptical about using chemicals or fake light to cure illness or deseases and have been looking for a natural cure. ive come across very potent herbs that are used in india and china that are made to perfect mixes, however im not sure where you can buy these, also have you heard of vilitigo tab, i found a website selling these pills which they claim will cure most peoples vilitigo in 4 months and clear ur face in 3 months.
Elle, Thank you for your sharing your experience. I will call my Doc on Mon to talk about it. And I will definitely let you know outcome of parasites. Sincerely, DW
Desiree,
Have your TPO tested. That will test the thyroid antibodies. I was taking Armour for several months and my vitiligo was expanding while my thyroid levels were not improving sufficiently enough. After taking a TPO test, it was discovered that I was having an increased autoimmune response to the desiccated thyroid, and as you might know, vitiligo is also an autoimmune response. I was then switched to a T3/T4 compounded medication. My vitiligo has stopped spreading,and I feel better, although it has taken several months of dose adjustments to get my dose right. good luck with the tests, I am interested to hear about the potential parasite connection….and what can be done about it!
Vitiligo Biography- As of July 4, 2009
Am 52, female
Noticed about May 2008.
Began light treatments July 08 –Jan 09.
Stopped cuz causing brown spots and having no effect on vit.
Began Protopic approx May 2009
No effect yet.
Appears on parts of body that have been over exposed
to sun (although have worn sunscreen for 30 years)
– mainly forearms, chest, groin, front of lower legs and forehead.
But – also appears on back of head turning hair bright white.
Also on upper back and back of neck.
So, 80% vit on overexposed parts of body, 20% vit on unexposed.
Have somewhat low thyroid, am on Armour Thyroid – (natural form)
Have been low on all B Vitamins.
Have suffered with Adrenal burnout for entire life.
May have parasites in intensine.
Am going to do very expensive stool sample around the time of the
Full moon as bacteria and parasites multiply at full moon and will
Achieve better results from testing.
Parasites absorb B vitamins causing deficiency.
My body has been in state of fight or flight entire life, over producing cortisol
which drains adrenals.
Have been in particular acute stress these last years which may have lead to my
Body saying enough is enough and I’m going to let you know by showing up in the
Form of vitiligo.
As of now, nothing has helped. My vit is expanding. Practicing acceptance and wearing short sleeves and shorts anyway and going about my business.
Only feel shy around my coworkers who I’ve known for 24 years and family.
Have told no one and will wear make up sometimes around them, makeup helps so that it doesn’t look so bright white against other tanned skin which I can’t help cuz love the outdoors so much.
Does anyone know what dose of B vitamins, B-12 in particular and how much sun without sunscreen we should have everyday?
Thanks for any feed back and I will update you with the results of the stool test that my doctor is almost certain will show that I have parasites which can further account for the B-12 deficiency as well as stress being a factor in B vitamin deficiency.
Karmel,
According to my doctor caucasians have high-chance of getting cancer from UV. Actually Caucasians have high chance of getting cancer even when they are exposed to Sun.
But applying Protopic also has this risk I beleive. Check with your doctor regarding this..
Regards
how exactly is there a chance of someone getting cancer from UV??
someone tell me since i am going to do it.
thank you xx
Hi Guys,
One week ago my sister noticed that there is a white patch close to the corner of my mouth, on the right side. I looked in the mirror and she was right. I remember that spot was not there a week ago. Then I remembered that four weeks ago I had used acne medication for weeks (it contained sicylic acid). I also did light chemical peel and I am controlling my blackheads by using home based micro dermabrasion daily. I have done it for years. I am assuming because of combination of medication and the treatments I have developed this white patch on that particular area. I was so worried and sick to my stomach that I went and seen a dermatologist. She told me if I wouldn’t have told her what I did to my skin she will rule out that this is a Vitiligo. She said she is not sure. She prescribed Dovonex at nights and Protopic 0.1% at night. Has anybody use this creams? Has anyone had their problem started after using, acne medication and chemical peeling? Please let me know I am desperate.
Thanks
Dear Senad L:
What kind of laser treatment did you have that work within a week? Can you provide some more details. I went to a dermatologist in Los Angels who are equipped with the new laser (excimer), but they told me that my chances are 50-50. I have to talk somewhere 30 session treatments and each session costs 125$.
My question is, what kind of laser treatment did you have? Also do you have vitiligo on your face only or you hands and feet too? I heard there is very little chance that the laser will work on hands and feet. Lastly i if you don’t mind how much did it cost? And did the doctors promised you that will work or you just took your chances.
Thanks for your update
AND WHAT EVER YOU DO USE SPF 50+ IF YOU DO GO ON THE SUN AND DONT STAY OUT THERE FOR LONGER THAN YOU SHOULDN’T….
hi there everyone…i know how much it sucks to have VITILIGO…i had many doubts that there is anything that will cure this…i thought about hmmm..we have these scientists and these idiots that dont do crap all day and they know how to clone things but dont have a cure for vitiligo….i was amazed…i still am…these doctors aint sh*t…anyways…thought i’d let yall know…so my vitiligo started back in 2003-so 6years now….i have tried MERRY CLINIC and that crap is a waste of money and time…waiting just to keep your confidence going…that dr.li is a rip off i took that medication along with folic acid and b12 also vitamin c….12 capsules of vitilax felt like my liver is going to explode…i called her and told her that this medication is crappy and i want my refund back she said she can’t wait till 4 months and see if i see improvements…so i did…nothing it was the same….i think i will never ever ever buy anything from that lady she is such a b***H….there is a place where this will help you cure your vitiligo but u have to pay alot of money…most of the insurances will cover and that is berman skin institute….even dough it took a whole week for my face to clear because the doctor burnt my face off…with the laser….i can see the pigmentation is back and im really happy..but some spots i have to go back and get them treated….but this really worked…she gave me 2 creams apply once daily….anyways…dr.li i really hate and that sh1t will not help you at all….
First of all thank you for creating this site, I really appreciate all of the information that are being shared among all of the Vitiligo sufferer. I too just found out recently that I developed Vitiligo. So like most people have done, I turned to the internet to find the cause and the cure. Hidden within this thread, this is what I’ve found:
” JJ said:
Nobody here is talking about vitiligo causes.
I have vitiligo and found the cause — it was from black dye I used for my hair. I researched a lot and found phenylendiamine and ammonia cause vitiligo. So, once I stopped it, my vitiligo stopped spreading. Then I started taking Hydrocotyle, B12 and folic acid. Vast improvements since.”
So I did some research and found that almost all hair coloring products whether its is the over the counter/comsumer variety or the professional version. they all contain an cancer/vitiligo causing ingredient/chemical called phenylendiamine. My Vitligo started to happen when I used these hair products in excess to cover my grey hair. The more I used the more my Vitiligo spread. Thanks to JJ, I think I might have found the cause of my condition and will find a way to reverse it but first I will switch to a natural hair coloring products.
If you are coloring your hair and are experiencing Vitligo, you may want to stop using any products that contains phenylendiamine.
hi guys i read here that Divya Kayakalp Oil cures vitilgo or makes it better. I want to know if anyone have tried it beside “kush”. I went to the website and they have other medicine for vitilgo. Anyone here tried their medicine if anyone did try did it work or not. Respond please.
Thank You
Aamir
Hi Guys Just a Hopeful Update
Gingko can help Jacko skin diease
Pop star Michael Jackson is said to suffer from vitiligo: a whitening of the skin
Ginkgo biloba, a traditional Chinese remedy, could help patients with vitiligo – a condition characterised by pale white patches on the skin, and from which Michael Jackson is said to suffer.
Previous research has found that ginkgo stops the condition getting worse, and can even makes the white patches disappear.
This is being tested in a clinical trial. Around 100,000 Britons have vitiligo, which can appear on the face and neck.
These areas have little or no melanin, a substance that gives skin its colour.
Although the exact cause is unknown, it is thought ‘oxidative stress’ – damage to the cells caused by oxygen atoms – plays a role.
Ginkgo biloba has been shown to have antioxidant effects.
In the new trial at the University of Toronto, patients will take a pill based on the extract twice a day for two weeks.
Nathalie,
I think there is a link between what we eat and the spread of vitiligo.
If you look at traditional medicines like Unani or Ayurveda they give
importance to diet control.
I have used both type of medicines, I used Unani medicine for atleast 5 years and I can confirm that the spread of vitiligo was contained
(basically I didn’t eat any fish/milk/vitimin C based products).
I think this diet is not really beneficial because it restricts crucial vitamins in a person’s growth. When I stopped taking Unani and continued with regular diet my vitiligo did spread.
I am currently using UVB and I checked with my Doctor he asked me to not too restrict my diet.
Regards
Hi Aamir,
There is no proven relationship between vitiligo and any food item. In India it is a common belief that mixing milk and fish can cause this problem, however there is no documented evidence, on the contrary there are many fish recipes which use milk and apparently there is no evidence to show increased rates of vitiligo in communities who have these foods combined.
hi there, I have Vitigilo on my penis and around my testicles are there any good treatments, im 29 years old and have had it for about 3 years, it covers about 25% of my genitals
Hi all, i have vitilgo for past 11 years. My question is that is it possible that drinking milk or anything white increases your vitilgo or is it just a myth. respond please
Ven, thanks a lot for your reply. Yeah my first option is that I am going to talk to this doctor that I have made an appointment. Her name is Dr. Pearl Grime and she seems to be a great dermatologist. So yes definitely I will consult with the doctor and see what she thinks. The treatment usually takes forever and most of the time it is not either cost wise and time wise convenient for many of us. That is why I thought about doing some tattoo artwork on my spots or ask the artist to tattoo the spots to closely mach my skin tone which should not be a problem.
thanks anyhwo
Hello guys, has anyone been to Dr. Pearl Grime office? I have done some research and she seems to be one of the top dermatologist in the country. I have made an appointment with her in regards to my vitiligo. Any thought or idea what should I ask or what you guys know about her please? I will keep you update.
Peace,
K,
I dont think tatoo is a good idea… skin grafting is a better option (only if it is not spreading and if you dont have lot of spots)
Check the UVB treatment as well it might help…
V
Hello, I have some small spots on my hands and feet. I am thinking about to tattoo above my vitiligo? Any thoughts or idea please? Has anyone tried tattooing their vitiligo?
Thanks
Hi,
I was thinking of taking vitamin b12, c and folic acid on a daily basis. What dosages are good to start with? Should i add some other vitamins as well or is that sufficient?
I will try and combine this with sun exposure.
Guys – I’ve tried “Divya Kayakalp Oil” from Ramdev, and its very effective, i’m using since last year, and have seen great improvements, and also his yoga called “Pranayam” is known to cure completely, but i’ve just started to do the yoga… keep your thoughts posted
Thanks –
Kush
Hello everybody
Has anyone every tried the laser excimer or any other surgery please? I am planning to do either one, I have a kind of stable vitiligo on my hands and feet.
Any advise or help please
Good Day
I have vitiligo in my face, it started about 6 years ago on my chin which has spread around my mouth and to my nose. i have tried light treatment but there were no visable results and think it’s very expensive. I stay in Cape Town.
Dear all,
I would like to ask if any of you is, or if you know anyone, on depigmentation therapy.
I have vitiligo spead all over my body, my skin is (was) light mediterranean type. I only tried UVA and protopic on my face last year. On the face seems to work although the color just fades when UVA treatment is discontinued.
The large (I mean,very large) areas of vitiligo on my body are not white paper style but are very good looking skin.
Now a depigmentation therapy is the option, using a compound with hidroquinone. I´m a bit scared. Don´t know what to expect.
Any stories you might know or any advice?
Thank you so much.
Joao
My son was recently diagnosed with Vitilego….I am already tired of reading all the bull crap about pills with cures…..Here is what I can say so far…Western medicine has no idea of a cure for this… They are mostly idiots..I took my son 7 1/2 yrs. old to NYU and it cost me $ 450 for this IDIOT doctor to say …. it could stay the same — it could get better – or it could get worse…. He suggested we give him Ginco Biloba and Helio care pills…
I have been doing research for this. I have read that black pepper extract could work… I am looking into Vitilax from the merry clinic in California… but I am a bit skeptical as of yet… I am looking into and starting Petey on natural herbs which must be cooked… I dont care what it takes … I will get rid of this friggin thing…
Dont forget…. this is an autoimmune deficiency and/or disease … This is internal… these creams being used are like saying …MY ENGINE IN MY CAR IS BROKEN… SO LETS POLISH THE PAINT JOB…sounds pretty foolish if you look at it in those terms !!!!! bullshit…you must fix this issue in your bodies system…Thats my belief ….. please email me with any comments or issues at… rockmard @ aol.com ……. I am new at this … but I will be damned if I will let my son not have every opportunity in the world to correct this CONDITION !!!!!!!!!!!!!!!!!!!!!!!!!!
Gene
Hi does anyone know about Excimer lasers please? I read many news articles about this new treatment and it seems one of the best treatment. Any thoughts or ideas please? I have actually appointment with a doctor in Los Angels tomorrow and will discuss the possibility of this treatment.
hello to all!
this is sundeep. and i have vitiligo since 7-8 years iam taking homeopathy since then, before it was working fine but now last few months i’ve got more patches on my hands and on other part of my body iam taking B12 AND FOLIC ACID 400MG with my medicine i dont know but i didnt see any good result at all my patches are increasing day by day idont know what to do.
CAN ANYNE HELP ME IN THIS? ONE MORE QUESTION IS VITAMIN C WORKS ON IT BECAUSE I’VE HEARD YOU CAN NOT EAT FOOD CONTAINS VITAMIN C IDONT KNOW PLEASE HELP ME OUT ON THIS.
THANK YOU
SUNDEEP
To everyone,
I have had vititligo for the past 3 years and I cannot stand it. I hate this disease and I hate all of you for being so gullible. Let’s face it; we will never find a solution if we keep giving away money to these M.Fs. who claim that their lotion works, or these POS foundations that do not do anything. There should be a simple solution or no solution at all. I rather live with no solution at all. But, do you know what the problem is? We do not have anybody famous with vitiligo. Even Michael Jackson does not acknowledge it, or a 48 hour television program once a year like Jerry Lewis. We do not even have a scientist with vitiligo.
Dear Nathalie Pelletier :
Have you or anyone else heard about the Lazier treatment for vitiligo? I made an appointment to see a doctor in Los Angels about this treatment. When I talked to to them they give me almost a great assurance and stated that they never had any patients to complain everyone was satisfied with the result. It is 150$ per session, two sessions per week and total number of sessions required varies from person to person but it ranges between 20-30 sessions.
any thoughts or idea please
thank you all
i too hv dealt with the same type of problem recently..n my arms…it was etchy n dry n flaky n then fading…..what to do about this condition????gtn screwed up…my doc has gvn me sysyemic steroids….presently doing peprine n chickpea for a month..no result till now..
Sherry,
I can completely relate to your experiences with the spreading of vitiligo. Alot of times I experience a slight burning sensation (along with slight itching) when my vitiligo is spreading. I think that this reaffirms the autoimmune hypothesis of vitiligo. I think that these burning and itching sensations are produced by the mast cells in our skin, which can cause inflammation (burning) and release histamines (cause for itching).
I have some spots that are blotchy and some that are well defined, but it always seems that the older a spot gets, the whiter it becomes. I think that the definition of the spots that appear on our skin just depends on how sparsely our melanocytes are being killed. If it is a few killed over a larger amount of space, then it will visually be seen as fading, but if its a whole bunch being killed in just one area, it will be a defined spot.
Vitiligo is a hard disorder to deal with, especially if you have darker skin. I have had it for five years on my hands and a little bit on my face. I try not to think about this disease much and just carry on with my life.
All the best
Hi,
I was wondering if anyone knows the different types of vitiligo. I am 51 and have been diagnosed almost 3 years. As I wrote earlier the really white spot was under my arm, but it seems that I have extreme fading over large areas of my arms and other parts of my body. (Not white as with under my arm, but much lighter. I am very splotchy. Last week my job was very stressful and I felt my arms burning. ( Something I had never experience before) I noticed that I could feel it as my arms were losing color. They are not really white like under my arm but much lighter. I thank God that noone looks at me as having a disease yet.
Can anyone relate to the burning sensation when their vitiligo is active? Also does anyone experience the fading before turning completly white? Is there any chance it will just stay faded and not turn milky white?
Thanks for being here, no one in my world begins to understand the fear that this disease brings into your life.
hi everyone and this question to LIZ
Do not purchase any VITILIGO TAB and PIGMENTUM from Pakistan,which is SCAM and fake .otherwise we all be victims.
I did mention this before.
all the best to all vitiligo patient.
hey everyone! I am 27 and I first got my first patch or spot when i was 16 when I went to a tannning bed for the first time, since then I would get spots on my back or arm occasionally but very small and you could barely see, but I just had my baby 7 months ago and I’m not sure if the hormones influenced it but I just got the worst spread after going o the the tanning bed for a few days. I hadn’t gone to the tanning beds in years!! Now I got it all over my chest and tummy area, and my upper thighs!! I feel so horriable:( My self esteem is so low!! i have always been so skinny and gained 75 pounds during pregnancy, I have lost 55 pounds and was starting to feel sexy again and now this happened. I have seen the vitalax with merry clinic page, and now pigmentum-inc.com, any one tried the pigmentum? I am thinking about bying some, but want to know if it works!! Please help i need some success stories, and advice:(
Hi everyone how are you all doing. I was searching online for forums with vitiligo patient and this came across. sorry my english is not so good.
I have vitiligo and my mother have got it too. My mother got vitiligo in 1990 and i just got it in 1999. At the begining i was very dishearted and didn’t know what to do and used to cry. I am very thankful to might Allah that it is not on my face. I have got it on the right side on my stomach upper part and on the back too and on my butt as well.
after reading posts on this site i came to know that folic acid and vitamin a and c are helping people.
i would like to get advice from you guys to what should i use to get rid of vitilgo. anyone who wants to talk please feel free to add me on msn >
i will be coming here very often now since i have this bookmarked.
best of luck to all the patient with vitilgo. do not give up.
Bye
VITAMINE C for VITILIGO?!
How come then on a lot of web site it states, MIND CHILLY / SPICY & SOURE FOOD.. such as Citamine C *LEMON* shoud be avoided!?
Hi Said,
I have heard of Vitalix but haven’t actual used it, so wouldn’t beable to comment on that but what I do want to say is that I started taking the simple method, as described much earlier on on this thread, Vit B12 Complex, Folic Acid and vitamin C. And one day when the sun was shining last year I sat outside for a short well, 20mins, and the next few days I noticed small cirlces of pigment appear on my arm. That to me was the best thing I saw!
Though living in the UK we are not as privileged to have the sun shining as much as a month but now I am excited to try again this summer.
So for you all I can recommend is try the B12, Folic Acid and Vita C. Do some research on the recommended dosages though and they do need to be taken together.
I have a question for you: I have Vitiligo on my face as well, around my eyes. What do you use to cover it up on your face?
Heya,
I from Belfast in Northern Ireland. I have vitilago now for 6 years. At the start I used hoemopathic medicines and it worked well it stopped but then it didn’t improve anymore and stayed like this, so I stopped it. At the moment I’m 18 years old and I want to treat it again.
I found merryclinics and thought about taking the Vitalix tabs and the oil. I’ve got vitiligo at the hands, face and feets. I heard as well black pepper is helping against Vitiligo and drinking a lot of water.
Does anyone recommend to take the Vitalix tabs and oil. As I’m a professional model and it is able to destroy my carrer.
My Vitiligo is as well not that noticeable because I have a light brown skin as I’m a mixed race.
Can anyone help me please.
Kind Regards
Said
I completely agree, Tarana! I will do a post on breathing to reduce stress ;)
So true, sooo true! When you are stressed out, you are holding your breath, your blood vessels constrict, which leads to oxygen deprivation, decreased perfusion of organs, skin, everything. I do recommend to all of us affected with vitiligo, deep breathing exercises–very beneficial in relieving stress. I personally believe my vitiligo is stress related, five years ago when I noticed my first white spot, I was going through a lot in my life, and was very stressed out.
Hi guys, I personally believe through my own experience that when you start treatment and it doesn’t work it is going to deteraiot your. Yeah, I agree that sometime when I used to lay in sun, I would notice more spots on my skin. The best thing you can do is just take it and don’t worry about it. It is highly correlated with the stress level. vitiligo
DID ANYONE TRY VITIX GEL OR NOT!?
PLEASE HELP ………
Hi Julie,
The good news is that your daughter has a strong, resourceful, mother who is already searching for ways to help her. The best thing you can do is continue to help your daughter build a strong self-esteem/ confidence…this is all anyone needs to triumph in life ;)
big hugs to you both,
nathalie
Hi Sherry,
I have heard some people link their use of PABA with the onset of vitiligo, so there may be a connection. I usually don’t notice a new vitiligo area until the patch is all white; however, I have noticed that the skin turns a light pink and itches before it re-pigments.
Looking forward to hearing from you again soon,
nathalie
Hi Delta
Wonderful news about wanting to be an airline pilot. Simply do an online search for the company you’d like to work for, and the pilot requirements should be listed.
all the very best wishes,
nathalie
Hello everyone,
I am a mother who just heard her daughter receive the diagnosis of vitiligo. I feel as if my life had come to a hault. Luckily, I am seeing a great perdiatri e
Did anyone try Vitix Gel yet?!
If so, did you see any results?!
I been having vitiligo for like about 4 years now and trying ELIDEL CREAM 1% at moment…. hope that will help :*( if some1 got any real advice, please reply.
thanks
WARNING!!! to ALL Vitiligo peoples.
Do not purchase any VITILIGO TAB and PIGMENTUM from Pakistan,which is SCAM and is there any way authorities in pakistan to block the websites. if any one can help otherwise we all be victims.
please help!
Kind Regards to all vitiligo surfars.
ENGLAND LON
I am a 51 year old female who was diagnosed with Vitiligo about three years ago after finding a white spot about the size of a nickle in my left arm pit. After reading the comments on this site, I realize that everyone with vitiligo has the same fears, concerns and questions. My questions is, does anyone seem to fade before they turn white or do they just show up milky white? Does anyone have any tingling in the site they are losing their pigmentation? Also I would like to note that I had begun taking PABA for my graying hair around February and it was about August that I found the Vitiligo under my arm and received the diagnosis. Does anyone have any thoughts on a possible connection between the two?
Praying for a cure.
Hi EVERONE WHO HAVE VITILIGO, I want to thank ANN for tell use that Pigmentum is scam, you have save us money, i don’t know why these scam think there is cure for vitiligo if there was this PIGMENTUM WOULD HAVE MILLIONS OF DOLLAS OR POUNDS.Once again ANN you have been world to me i was about to order and send $150.00.
I also like to say big thanks to DylanM who said VitaligoTab was SCAM as will. I like to everyone do not by any medicine from pakistan india,or any part of asia but i do not know about CUBA , PLEASE LET ME KNOW ANY CURE FROM CUBA HAVANA.
I am going to try XTRAC laser treatment becasue I seen proof of photo that there is a cure using laser treatment. I had vitiligo since i was 10 years in june 1985, 68% of my body is white,I am 31 years old.i going use Vitiligo lotion i have order 5 day ago thanks to NATHALIE yo are star,without you i would’nt know what vitiliogo people around the world doing to combat vitiligo. I hope there is some cure soon for vitiligo because i don’t want have vitiligo all my life.
My last question if any one can help. I want to an Airline Pilot and will be start my training in Jan 2010, if have Vitiligo will be any problem when i go for my medical and is there any restriction. are any one who has vitiligo who is Airline Pilot flying for major Airline.i trying to will airline company will hire who has Vitiligo.
Please rply question. FROM ENGLAND UK
Those of you who have seen good results with protopic, was it because you used uvb lights? I’m thinking of going to a sunbed and seeing if the healing will work better with artificial lighting. However it says not to use with sunlight or sunbed…so I’m confused. Any help?
Hi everyone I am just letting you know I ordered “VitaligoTab” from Pakistan and it is a 150 dollar SCAM. They taste like sugar pills and when I break them open it looks like they just filled a pill with dirt. It says full refund but what they don’t tell you is the warranty runs out before you’re even supposed to see results. I just wanted to share that because that was one of the first things I tried I was diagnosed at 20 and buying this product just made me more depressed than ever. I’ve been much happier with my own vitamin and sun treatment. Hopefully one of the recipes of vitamins I read here today will be even more helpful. Much love to all thank you Nathalie for making this support net if I ever find the perfect cure I promise to shout it from the rooftop!
im using meladinina i belive on it cause the person who told me about it had vitiligo and now she is clean every time i use it i spend ten minutes a day on the sun and all my white patches or where ever i put the liquid looks like a sunburn the patches become pink and the rest of my skin which is brown becomes browner i know if i go over the ten minutes i could end at he hospital with second degree burns
i just orderd the vitlax pills should get them soon hope they work ill keep u guys updated see how it goes
hi i noticed this patches in my genital area and also in my face very small but i am so scare and afraid it wont stop or it will spread all over my body i have another one in my finger and its getting bigger and whiter i noticed this 5 onths ago dont know what to do please please some body help me i dont fell like seing any body specially my partner i am so emv=barrase what i am going to do…………………….:(
Thanks a lot ANNE! You saved my time and money. Don’t blame yourself. When you have something shortage you will start to believe everything. I am another person just like you. I always dreamed of this as a girl. In my whole life, I thought something like a miracle is gonna happen; I will be a normal person just like others.Thank you.
please help me anyone I am so afraid that this is getting worse almost two years ago I notice these patches and they are spreading please help I have vitiligo I’ve tried oinment and it does not work, I have on my elbows, below my nose, and my knuckles.
I ordered the Pigmentum, and it die arrive, but I am sorry to say, that after seeing it was shipped from Pakistan, not New Zealand, I know that I was totally ripped off. I also Google Mapped the address in New Zealand and it is a country road, with a nursery across the street, not anything that looked like a real company. Now I have $195 of who knows what from Lahore, and no way am I going to try it. I just hope that my credit card number won’t be sold somewhere.
Another thing, if the ingredients are not listed, BEWARE. Don’t get ripped off like stupid me. There has to be something else.
Hello Nathalic,
Right now when I start to search the vitiligo herbal medicine called pigmenthum-inc.com. I found you and all other folks who are suffering like me. I am suffering vitiligo around 27years.I Am 40 now. From 2007 to 2008 I took NUVB. It works for new attacking place such as my forehead, neck and shoulder. I took 100 NUVB and my doctor said I couldn’t take any more because it can cause skin cancer. When I stopped NUVB then I start loosing my pigment again. Yesterday I found Marry Clinic and pigmentum-inc.com. That website has graph and the medicine come from New Zealand.I don’t know what to do. If any one know about the pigmentum pill please let me know.
I was 10 when I was first diagnosed with Vitiligo, this was over 20 years ago – I consulted Dr. Lakshman Ranasinghe a Sri Lankan dermatologist, an expert in the area (who is still practicing), and I am happy to say that the condition has not recurred. I recently had a baby however, and went on to be diagnosed with celiac disease and hypothyroidism.
First of all, this is a hell big topic, and loads to read… loads of suggestions/ideas but I am still confused and dont know an answer.
I am 26 and live in UK since 8 years.
First time I realised the white patches on my forhead, was just after taking a 6 minute SunBed … which I never ever did in my life, never did use the sunbed before, and despite the fact, in UK there is not really much SUN at all.
However, thats the time when I was shocked and didnt know what happened and got diagnosed that I have vitiigo (about 4 years ago).
As usual, the UK’ doctors (GPs) as dump as they are, they said NO YOU CANT DO NOTHING ABOUT IT, JUST LIVE UR LIFE…. well i would say for those who aint effected of vitiligo, its an easy saying.
Anyway… I had search on internet and Ordered AntiVitligo Oil from (www. antivitiligo .com) I was suspicious when it says PAKISTAN lol well I still had a go and orered 2 pack of the oil… been applying them for few months and nothing has improved.
Did ever anyone else try it?! for longer as me, and did they have any kind of results or is it just a bloody SCAM!?
Now, I been reading about the MerryClinic – Vitilax capsules & Vitilax Skin Oil – and wanting to try but 1st they cost a lot of money and 2ndly is it REAL or just another money maker!?
By the way:
I been taking the following chinese tablets:
+ BAI SHI WAN
+ BAI DIAN FENG JIAO NANG
Anyone else tried those before!?
========
Oh yeh… I do not have only on my forhead, but as well as:
+ round my both eyes/eyebrowns
+ finger tips
+ “man’s area”
+ on my arse
at moment, they are not that visible cos my skin is still white (always was white :( *not tarnned* but now planning to go to my country and being afraid of SUN, as then they would be more visible…
==============
Thank You very much
B
To sonia:i have not tried the oil i think the one from merry clinics dont work at all i bought these medication its called “tintura de meladinina” and you can also find it in tablets or cream(ointment) you can only find this in mexico or in some countries by southamerica but i have been told that this medicament its going out of the market because its use its too delicate and people is not using it correctly and they are getting second degree burns today its my first day of using it i waited untill the sun almost went down to put it on my patches i only used a little bit on one of my knees to test it and i exposed it to the sun like for 5 minutes after i put it on my skin i felt like a warm sensation but that was it i hope it works if any of you guys wanna try it get it but make sure you read the instructions on the internet just write tintura de meladinina and press search web and it will show you all the indications..good luck
I have two small vitiligo spots on the testicules, due to a medication that was too strong on my skin, and it kind of burnt me. I’ve been putting Dovonex for 6 months now, with the only result that the white spots were only more red, so kind of pink. Now, I’m starting to have brown spots. I have them more and more, and they are browner than the rest of the testicules. I don’t know if this is the healing part or if I’m gonna be stuck with white spots AND frikles…
peux-tu me dire ce qui se passe?
merci beaucoup Nathalie
I just got my order of Vitilax oil in today. Will see how it goes, as it goes don’t knock it if you haven’t tried it – and I’m going to see what happens – despite not being diagnosed with vitiligo.
My daughter is 7 year old & she is having Vitiligo from past 1 year. We tried lots of creams, but nothing went right, we even treated her with Homeopathy for 6 months but nothing cured.
Now we are treating her with Vitix gel cream & Phototherapy Treatment from 2 months and it is doing wonders, most of her patches are gaining original skin colour.
Abel I’m wondering how long you were on the Merry Clinic medication. I don’t know it it works or not but I know that new spots are in the deeper layers of skin not visible (unless examined by a wood lamp) It takes 6 months for them to reach the surface.
Have you tried anti-vitiligo oil? By all accounts it’s very good. I’m waiting for my order to arrive.
i have used vitiligo treatment from merry clinics but i finished my medicine and i didnt see any inprovement…now i have more white patches by my neck an the one by my eyelashes is growing im getting one more on my left eye too;im thinking of using meladinina but im afraid cause it says if you use too much sun light you could get second degree burns im still thinking about it if anybody knows something please let me know..thank you
Hi clare,
I liked your story…it wasn’t too long at all. You’re right to try the re-pigmentation; afterall, it was only one dermatologists opinion. It’s always a good move to confer with a few doctors before making a decision.
Keep me updated.
all the best
nathalie
Hello
I started to get vitiligo on my face when I was 35. It started when I reduced my breastfeeds with my 1st child, just a small white patch, I didn’t pay much attention to it.Then when I had my 2nd child, again when I reduced by breastfeeding I got more white patches on my face. I am now 41 and have no pigmentation from the top of my forhead to my jaw line. We have no history of this in the family and I have tested negative to auto-immune disease. I do have slight b12 deficiency. Dermatologist said there was no point in trying to repigment as there is so much gone on my face. Has anyone had success with such a large area involved? What is the daily amount for b12 and folic acid. I had given up hope but after reading all your messages, think I should give something a go.
Thanks for reading my long message
RE: Worms
I found out last year that I had hookworms. I live in the US and probably contracted them by walking around barefoot in Florida, 4 years ago (!)
The doctor gave me a short course of a drug called Mebendazole, and it really worked. I won’t disgust you to tell you how I Know it worked. The drug had no side effects on me.
Since then, my anemia has almost gone away completely, I do feel stronger. I am also doing PUVA with good results and no new spots since November.
The doctor told me that in patients with vitiligo, the immune system is always involved, and that worms (hook, pin, pig, whip, etc.) compromise your immune system that much more, so best to be rid of them.
Good luck.
Hi Rene,
Dr Richard A. Spritz, M.D was one of the scientist who conducted the studies last year which found the gene linked to vitiligo. has a new study been announced?
This is my progress so far. Please note I have NOT been officially diagnosed with Vitiligo. I am waiting on my dermatologist appointment, but it can take to 12 weeks and I am not waiting until they tell me. So I have started my own self-treatment.
1. I take multi vitamins, PABA capsules and Folic acid (with B-12).
2. I have been doing the ‘black pepper experiment’ and I first bought piperine tablets and black ground pepper and made my own paste, by crushing the tablets and mixing some black pepper powder. Sometimes I added water, other times my steroid cream, and once even olive oil. However the pepper burned my face too much (I have VERY sensitive skin) so I decided to stop for a bit.
3. So I bought PURE ESSENTIAL BLACK PEPPER OIL. For the last few days, I have been applying it once a day at night. It tingles slightly but the burning sensation is not there. I have seen my white spot turn a tannish colour in the center of my spot. The one on my chin is a bit bigger, and has taken to the oil quite a bit. The one on my left upper cheek takes on a redish colour – but that one has been there for YEARS compared to the one on my chin.
4. I also bought JOJOBA OIL, and it has definitely healed my right cheek considerably. The one I bought is ORGANIC and is 50mls. But this oil you can buy anywhere. But it’s great and gives your skin and lovely feel.
I have two small spots on my lower back. However I have only focused on my face right now. But tonight I shall start using the BLACK PEPPER OIL on my back.
I have set up a BLOG that I shall post post pictures on my progress. If you’d like to read it please let me know. I’m cautious myself when reading self-cure stories, so I hope the pictures will bring some peace of mind. I’ve only posted the once. But I won’t be posting regularly because I need to see change to do so.
I’m from the U.K. and I bought all my products online from UK stores.
Hope this helped someone.
Good luck all.
-Shaz
Hi Marco,
Have you seen any response to the new meds yet?
Nathalie
Hi Sonia,
I had never heard of treating illnesses by expelling worms until I read your comment. It sounded just strange enough to make me do a search online, and to my surprise, i found loads of information.
Frankly, the thought of expelling (much less having) worms sounds horrid, but apparently there may be something to it.
If you try it, or if anyone else has, comment back here to let us know the results.
Nathalie
To Kashif,
No I am ok, I do not require herbal medicines. I am feelings content at the moment with the vitiligo on my skin but I will still continue using the homeopath pills and Vits. I still haven’t had any new spots which is amazing and for me I think it because I started taking the vitamins (B12, Folic and Vitamin C).
P.S Has everyone read about or sent their details to Dr Richard A. Spritz, M.D. who is conducting the huge research they have been funded for in the US?? It sounds very promising and I hope that this can be a break through… :)
To soo,
I’ve heard that vitiligo can be treated by expelling worms. Do you know specifically what medication she took or the name of the practitioner who gave it to her? Any help is much appreciated.
Hi All,
My sun (2 years) and daughter ( 5 Years ) got Vitigo, this bad present comes from my Father. The protopic was very efficient on my daughters but the white patches came back this years .
Rigth now I m looking for Aryuvedique cure ( My wife comes from India ) . I know that someone from wife‘s family has been cured by “ Pigmento “pills and ointment ( Ayurvedique ) …
and I also found this very interesting article about the causes of the Vitiligo and not how can we cure the Vitiligo. I m gonna buy the Book of this doc ( Dr Sr Wadia )
I will purchase pills from Dr Shash .
I m gonna try these 3 treaments
I keep you posted ,
Marco
my little couse has white spots on her face when she was 8 years old and after taking worm medicine for several months,her white spotes dissapeared
hola es es mi messenger tu-papi13@hotmail.com
hi Shaz,
Please don’t start applying steroid creams as they’ll worsen your condition. Infact, go to your doc and tell him to properly diagnose the issue. Eat fruits and vegetables and avoid eating too much red meat. Last but not least, don’t give no notice to your skin, its just the skin, won’t make any difference.
live happy n prosper everyone.
Cheers
Hello all, it’s been a wonder to read all your comments. I don’t know if I have Vitiligo. I have a white spot on my face (cheek/near chin) and have developed two tiny spots on my lower back. I was given a steroid cream, but I feel it is making my condition worse.
My doctor said to use the ointment for 3 weeks, and come back. But I’m going to be going back this week (only been using the ointment for a week). He said it may be a fungus. But I’d rather know for sure.
I’ve been using Head & shoulders shampoo, just in case it is a fungus – and do see my spot redding at times.
I think I’ll start taking b-12 and folic acid vitamins. No one in my family has vitiligo, so hopefully I’m not unlucky enough to just get it. (It’s been over a month since this started).
I live in the U.K. and as you know no sun here. I’m Asian too, so my white spot(s) are highly visible. I just hope to God they disappear. However I have faith they will. If you can lose pigment – you can surely get it back.
I am not seeking tablets especially not from Merry Clinic or other places. Though I was giving DermaBest a look. However unless I am diagnosed with this disorder (and I hope I’m not). I shall wait and see what my dermatologist says.
Everything is gonna be alright!
Just remove “Inferiority complex” k? Good!!!!
Just getting started dont know where to begin .My vitiligo is getting worse.Very deppressing .Any comments
hi Hasnain,
I would say if you don’t get sun burn then go under the sun as long as you can hope (providing there’s lots of sunshine in US where you live), should be arite then.
Also, fruits, vegetables are good source of repigmentation.
Thanks,
Kashif
Hi,
I live in the US, and i have had vitiligo for over 10 years and ive tried UV light but not really effective. Is there something else that has shown positive effects. please let me know.
Thank You,
Husnain Safdar
YOU ALL ARE WONDERFUL PEOPLE.!!!
KEEP UP THE GOOD WORK OF ELIGHTENMENT AND INFORMATION.:)
Hi Rene,
I live in UK but I never get a sunshine here, whereabouts do you live :D
I am using B12 which I ordered off justvitamins.co.uk and they are quite effective. Also, I am using a herbal cream HYDROCOTYL and herbal tablets that have been quite effective for me and I have seen good results.
Let me know if you require herbal medicines, the good thing about them is there’s no side effect if unfortunately there’s no improvement.
thanks
when I read all these posts I then started to try the simple method of B12 and Folic acid and some sunshine here in London. I am currently on homeopath pills from Dr Shah, I’ve been on them a year now and I started taking B12 and folic and ‘sun’ since 6 months ago. Since then I haven’t noticed a new spot anywhere which is amazing because I normally have a new one show itself once – twice a year. Also the other good news is that I have seen some repigmentation in some areas, they come out as little frickles and grown bigger. However, a little bit of sun is needed for the repigmentation from my exeprience because I only noticed repigment spots after I spent time in the sun. Now that we are in winter season, there is no warm sun but all I can do is keep on taking the B12 and folic and hopefully it stays the way it is – no news white spots!
I am on the hunt for the B12 with methylcobalamin but cannot seem to find it anywhere, would anyone know where in the UK I can get this one?
Thanks in advance :)
Hi I am from the west indies. I am reading all the comments and am wondering which one i should use. I burn easily in the sun sothat is not going to work for me. It would be nice if we could have the dosage of the different vitamins. I have had vitiligo since 1992 and it has spread to almost all over my body . the most that I worry about is on my face and neck. Fort people of the West Indies what can you recommend. I have spent so much money and something less expensive would be nice
I have been reading and reading.Whatever you are doing is just wasting money and your efforts all I feel after tryng to get rid of vitiligo and spending a lot on it, cehated by doctors too with UV light treatments. The only PUVA ( whole body light and psorolen pills) gave me major coverage and meladinina tinture. I met a guy who completely covered his hands just using meladinina tinture and sun shine every second day for a year but be so careful as meladinina makes that areas sensitive to the light, begin with 5 minutes and increase 2 minutes each day you do or 1 min. I really got tired of it like all of you and just begin to think to depigment all my normal color. I live in St. Croix USVI so all year aorund sun shine, it is very distracting having tanned skin rest of vitiligo, wet and hot weather doesn’t go with self tanners or wth the other type of coverages.Besides thinking depgmentation, I see some good news about biological drugs, but it will take time and also piperine compand. Knowing millions lived with vitiligo all along their lives for centries must be the way i feel now and they all hoped one day one day and it did never come for them, who can say it will come to us. Maybe it will maybe not, so this is the breaking point of waiting for the biological drugs or piperine, on the other hand depigmentation is permanent and makes us sensitive to sun so how it will make me feel living with it. I would be pretty good looking with light complex just not sure how sensitive i would be with depigmentation and how long it will take or if much place stay with a normal color it means i would have more viti areas. All those in my mind, I think i will first try meladinina tintura with sun shine for a while more so I can wait for the new drugs those I mentioned above, if nothing I will defintely degigment all my normal nice color. I just want to add, I did recover nearly all my spots several time with long and tiredness efforts but they all and even much worse came back at the following months. This is hard part..I wish best luck for all of us and I do believe if there is someone consider this condition seriously for along time may find a way to get rid off it, but definitely none of those we were doing work enough…
I have vitiligo for 40 years. Any help? I tried every thing
Hi, Suki I don’t know where you live, but If I were you I would leave him. It is sad in most undeveloped nations and mostly Muslim they consider vitiligo “God Curse” but actually it is nothing more than pagment disorder. Believe it or not, I am sure we would soon find cure but in the meantime no one is perfect. When I look to my vitiligo it makes me sad and depressed but I do’nt let it bother me too much because I always look at people who are in worst circumastance than us. Your Husband is stupid damn. Why is he so sick-minded. I have vitiligo, but my wife loves even more.
My advise best on my vitiligo experience, as every individual is unique, do’nt let it bother you, the more you are stressed the more your vitiligo will irritate. There is a correlation between stress and vitiligo. Also, I am not trying any medicin at all, I believe most of the time when I try something it spreads my vitiligo even more. I tried Marry Clinc’s Vitilax not only didn’t work but spear even more patches on my hands. Bottomline, be positive, keep excersis and remember we do’t judge books by its cover but by its contenents.
Hi, Suki. I agree with Elizabeth. A person should not stop loving you just because you have skin imperfection (that’s TOO SHALLOW!!!). I have vitiligo (runs in my family) since I was three years old. You should not be scared or frantic about your condition…it actually defines your uniqueness as a person (at least that’s how I feel about myself). I’ve taken Dr. Li’s Vitilax and they somewhat worked; I did not do a refill since it’s quite expensive and not covered by health insurance, but continued on taking vitamins (B-12, folic and C). I take the methyl form of B-12 v. the more common cyano form. It’s a bit pricey but it seems to be more effective in my progress (I take 3,000 mcg daily). About 50% of my face was covered with vitiligo (I am Asian, so my V’s are more transparent) before I started the regimen. I use DermaBlend for cover-up since I was 15; I also read about DY-O-Derm but never tried it. Elizabeth says it all, you will find wonderful people who will truly love you and will look beyond your appearance. If I were you, I’ll tell your husband to look in the mirror and check if he thinks he has a perfect image before he even criticizes you…he should be ASHAME of himself for acting so ignorant! You stay positive and be true to yourself about who you are, not how you look like…because then, people will see you how you see yourself :) Take care!
Hi Suki, I can totally understand where you are coming from. I know it is horrible to be going through a situationat a young age. I am 21 years old and I am very aware of my appearance and for a while I was very scared that no one would come to ever “love” me but I have met wonderful people who look beyond your appearance and make you feel like nothing is wrong with your skin. If your husband cannot see what he has infront of him and he says he doesn’t love you anymore than I would say that he is not worth you stressing. There is no cure yet unfortunately but you should seek into phototherapy treatment…a small patch of pigmentation is a lot better than nothing at all….good luck and stay positive.
Hey K sorry for the late response. Well I go in for uv treatments 3 times a week. I have been under treatment for about 8 months now. The uv she has me under is for my whole body. I have seen some results but not much. She said she was going to see next month if she would use the other type of treatment for my hands.
Elizabeth
Thanks for you input. I have also an appointment with Dr. Pearl in next month. Can you tell me how long have been under her treatment and how often do you have to go under the uv light. I am far away from her clinc. Also, do you use the uv for you hands, I heard hands and feet are the most difficult part but she also have another machine called lazer treatment which I heard is more effective and fast. especially in places like hand and feet. Why don’t you want to ask her if she would recommend you the lazer treatment? Anyhow thanks for your information and looking forward to you input in future
Hi Elizabeth. I’m seeing Dr. Crutchfield in Eagan, MN. I’ve been getting the nUVB treatments for 14 months now. I can tell you that the spot I had on my face stopped spreading but I’ve only recovered about 10% of the pigment I lost in that spot. I can also tell you that the minute I stop taking my vitamins and my Herbalife protein shakes, whatever little pigment I start gaining back comes to a halt. I truly believe that stress and nutrition are the main factors to vitiligo. Try to start from the “inside” and don’t worry so much about topicals. I don’t get them. I have insurance but it doesn’t cover the protopic, dovonex, or the one Dr. Crutchfield himself prescribed (one made by him). I bought them once but I didn’t think they were effective. Just those 3 are about $700 alone and frankly, that’s too much.
But again, my advice to anyone with vitiligo is start from the inside. Try to work out, try to stay healthy, try not to drink, and get on a very nutritious diet.
Good luck everyone!
Hey eveyone I am currently a patient of Dr. Pearl Grimes…I am curently having uv treatments and using tropicals…it helped what I had on my face but now i feel like im getting more spots….i have not seen any improvement in my hands I actualy feel like its getting worst but she is great and will help as much as she can……get insurance because i dont have insurance i spend close to $1000 a month
Hi all, Good news and bad news here. The Xtrac laser treatments are giving me somelittle freckles back, but only in the areas of my body that are least visible–underside of wrists. It’s good that I am responding to it at all, although I’ve had more than 20 treatments with less than 4mm of repigmentation on 1 wrist. I’m finding that despite continuing my regimen of herbs, vitamins (I can send the list to anyone who wants it, but it includes B12, folic, PABA and about 20more), and despite getting Synthroid to treat my hypothyroidism, I continue to see an increase in the number of new white spots, especially on my face, and a spreading of spots on my hand that are not yet responding to the laser. Anyone else have a similar experience? This is very frustrating. I’m spending $150 per week for laser treatments!
Has anyone heard about Dr. Pearl Grimes in Los Angles Please? Any adivse
Hello Tarana, I just read your comments about Dr. Pearl Grimes in LA. I don’t know if you have visited her but I head alot about her. I was wondering if you have already started the treatment yet and would be nice to share your storty with us . I will be visiting her some time in December this year and will update you all.
Thanks
I had vitiligo since 2001. I tried to take whitening pills and voila…2 weeks after, i noticed white patches. it spread so quickly. Now it has been 8 years and i am stuck on O’Leary covering cream. I had UVB treatment and Protopic .01% and it is doing good. Very hard though on my knuckles and elbows.
Hi K, interested in your black pepper news. Where can we get the medicine derived from black pepper.
same here. I have said it many times here that do not rely on those scams like merry clinic and vitiliax. It is just a waste of money and time. You can spend a quality time somewhere else.
Sun has worked for me like a charm.
I used some herbs and I am still using them.
You must have seen the pics I sent. I will take some more pics and send them through as well.
Good luck everyone. don’t lose hope.
Kashif
People,please stop spending your hard earn money on the pills from the Merry Clinic,it’s a ripp off. When I first went to my doctor for the extrac treatments,I told him that I had just started using the vitalix pills and he said,return them and get your money back. I call them the next day and told them I wanted a refund back and they gave it to me. Now,I’m a guy that lives in New Jersey and persuing an acting career. An as an actor you have to be very real,and that means no makeup. It’s very hard to show up for auditions and not have my spots covered up. That’s why I’m liking the XTRAC. It does work,but it’s expensive. I don’t have medical coverage,so everytime I go for a vist it’s $100.00 All I’m saying to you guys is do your research. The real treatment I believe is 1)XTRAC2)PROTOPIC and the Sun,as much as you can stand. And of course a positive attitude. One more thing, I wish they had a site for people with our skin condition looking to date other people with vitiligo. Wouldn’t that be kool.
OOps–I forgot one more:
Gingko
I wanted to let everyone know what my regimen is now, because while I have not yet had any repigmentation, I have noticed the vitiligo has stopped spreading. So here is my list, I suggest interested parties discuss dosages and treatments with their own doctors, as everyone responds differently/has different needs:
Xtrac laser treatments – twice weekly
Natural sunshine OR UVB tanning booth – 10 minutes daily
B12 shots (Methylcobalamin) – twice weekly
sub-Lingual B12 – on non shot days
Rhemannia
Tribulus
Eleuthero
Amino Acids (includes Tyrosine & Phenylaline)
Astragalus
St. Johns Wort (a natural psoralen!)
Vitamin D
MSM
Calcium
Magnesium
Zinc
Iron
Mutivitamin
Cod Liver Oil
Probiotics
Milk Thistle seed extract
I am working with a holistic MD, and now dermatologist #5, who turned out to be the right one for me!
Good luck to all, hope this helps!
Sandy, I got Merry Clinc’s herbal medicine. It did not work only but made my vitiligo worse. Beside that, once I purchased the Vitilex pill from them and they got their money, they didnt’ help or answer any of my question that later on I had. I called and sent emails to them but they weren’t any helpful at all.
Nathalie,
you mentioned that Ibana had a web site. Could you give it to us? Also, has anyone had success from the Merry Clinic? I am also interested in learning more about the vitilago cover lotion. Has anyone used it? Does it cover well? Does it last several days and can it be used on the face?
Thanks,
Sandy
Natalie,
I just want to say I respect you and everything your doing for us people with vitiligo. I’ve had about 14 sessions of the extract and starting to see some results. My doctor also tells me it would be great to sit in the sun as this would also help my condition. My question to you is do you know anything about vitamine b-shots,does it help and were can I go to get it enjected. Also,did your doctor tell you that you might go into remission once the skin repigments. Also,how did you get the color back on your eyelids,because my dotor gives me tape to put on so the light doesn’t go into my eyes. Is their a way I can work around that?
Thank You,
Rickey
Hi cheryl–I also ahve spots mostly on my hands, some on my face. Be careful with the Vitilax, I did not try it, but others here have said that it doesn’t work at all, and some have said that it made their vitiligo worse. the UVB treatment is good, I have been trying to find a dermatologist to do that or laser for me, and have been to 4 so far, all of whom were not interested really in treating this disease. Next week I’m going to #5, he comes well recommended because he also works in an actual hospital, and is able to do laser and other light based treatments. I’m also doing a lot of herbal medications (doctor prescribed) and vitamins too. Let me know if you want the list.
I started seeing white patches appearing on my hands about 9 month ago, when I visited the doctor’s office he told me it was vitiligo, I almost died I started to cry, he assured me that everything would be alright, he prescribe clobetasol propionate cream for me and to me we will be starting the narrow band uvb treatment within a month, I also ordered the Vitilax package from Dr. Li it should arrive within a few days. I am praying it works. I will keep you updated on the progress.
Natalie, I have questions about the vitiligo cover lotion. I am caucasian, but can tan fairly dark, so in the summer my spots become very obvious. Does VCL cover fairly dark? Does it last for several days to a week? Does it turn orange if applied several times? Can it be used on the face without clogging pores?
Also what is Ilana’s site? Her vitiligo looks like mine.
Thanks, Sandy
Hi everyone! Twelve years ago I moved from Azerbaijan to US, got married, had a baby, and two years later I noticed a tiny white spot on my right hand. I didn’t go to doctor right away, didn’t have any idea about vitiligo. 3 years later the spot got bigger, I started worrying, went to doctor: it was vitiligo. I was so devastated, and still am. Now I have spots on my both hands, under my chin, and on my right elbow. My doctor prescribed Tacrolimus, Vit, B12, and Folic acid. Nothing helps me. I read sun exposure helps, but I have been avoiding the sun, because without tan my vitiligo is unnoticeable, once summer comes, I get a tan, wow, I see all the spots: Summer is very depressing for me. I used to love to go to the beach back in my country, and would get a beautiful tan. Now, I still do it, but I don’t know how long it will be before it spreads further, and then I can’t do that anymore.
My doctor mentioned to me about stem cell research for vitiligo. She said that will be the only one cure. Of course the president didn’t sign the stem cell research. My doctor gave me the doctor’s name. Dr. Grimes is the one who was working on stem cell research. You can check out her site. But I haven’t found much on stem cell deal.
In the mean time I am interested in doing excimer laser treatment. Does anyone know about it, or tried it? I was wondering if you can go under sun after being treated with excimer laser tx? Any info would be appreciated very much.
My heart goes to yall!!! Thank you all for sharing your thought and experiences with vitiligo! Vitiligo is like evil, and I pray every day to God to help us to find a cure!
very well said benjamin i agree with u on that
To all the people, especially women, who worry about your looks: I want to say a smile and wink is 10 times more potent than you think. Good converation goes a long way. If any man is stupid enough to turn down a good women because of vitiligo, he deserves his lonely fate.
I am a guy with vitiligo. Started on my face, I am 52! Yeah, I am worried I will spend my life alone (recently divorced). So, I started smiling, acting confident, making jokes, just being a friendly person. You know what? The vitiligo doesn’t matter that much.
The lotions seem to be working, slowly. Has anyone tried the dermalight 80? Please tell me results.
And remember: Desirability comes from the way you act. A woman can devastate a guy by acting sexy, winking, trying just a little bit. Yeah, you may have to try a litle harder. So what! Have fun with it.
If a man is a real man, he will be impressed you are a “gamer.”
K,
i think people with vit including me should be careful when using different new medicines. I never try anything new on my spots and I have been mentioning and reading articles which say never ever try anything because its not real. they are trying to make MONEY and you GOT TO BE REALY CAREFUL WHEN USING NEW MEDICINES.
good luck
Just to let you know guys again that Vitlix from merry clinics instead of helping my vitiligo it worsen. New spots of vitiligos are appearing too soon now than before the treatment. I heard from some one that Vitilgo has a rest period where it doesn’t spread, but if you try to use some medication it will trigger. So I think based on my experience wihtthe Vitlix pills, it just trigger my vitiligo.
P.S: The only way to fight vitiligo stress is to just exercise. sometime my vitiligo bothers me too much but when I got to gym and see my muscles it is easy to overcome the stress.
english please :)
A mi tambien me gustaria tener la informacion sobre la crema, por favor.
hola ronaly robe serias tan amable de darme la informacion de la crema que estas usando te lo agradeceria mucho.
good question regarding posting pics mate, i would like to know that as well.
Hello everyone,
I can honestly say this is by far the best forum I’ve found since I was diagnosed with vitiligo (2 years ago). Let me start off with when I first noticed it…
Oct 2005 – Right around this time I was drinking quite heavily. I had just turned 21 a few months before and decided that it was my time to party and go crazy, although I’d been drinking moderately since the age of 17. I should also mention that my mom had surgery the summer of 2005 and she was in the hospital for 27 days very sick. I would wake up at the hospital with her, go home and shower, then go to school, then go to work and this was my life for 27 days, non stop. I’m a big mommy’s girl and this took an emotional and mental toll on me, more than a physical one. I first noticed a reddish spot, almost like a bruise or a hickey under my lip one morning (this was sometime around October). I won’t lie, I had drank quite a lot the night before so I thought maybe it was just a weird effect from a hangover. About a week later, that same reddish spot started losing pigment and from there it progressed.
I went to a general doctor about a month into it and he diagnosed it as a fungus (which I read from previous posts) was the initial diagnosis for a lot of us. So he told me to use an over the counter cream, which I did but it had no effect.
April 2006 – I went to a dermatologist and he told me I had vitiligo. By then, the 1/2 inch spot had grown to about 1 – 2 inches still under my lip, progressing to MY LEFT side of the chin. He was quite dismissive and told me it had no cure.
I should mention I’m from southwest Texas and it’s a desert landscape. We get about 300 days of sunshine a year.
Oct 2006 – I moved to Denver in August 2006 for education purposes and by this time my 2 inch spot had progressed to the left side of my chin but had not progressed further. I should mention however that it did progress quite slowly, compared to others. I found out about a dermatologist in Minnesota right around Oct 2006 so I made an appointment but he’s quite renowned and was booked until June 2008.
I left school and I left my job in Denver and moved to Minnesota just last summer. I have been doing the NUVB treatments 3 times a week since. He saw me 6 weeks after treatment and progress was minimal, almost none, but we kept hope because we saw 2 or 3 tiny grains of pigment on the small spot I had developed of MY LEFT side of my neck. I had also already developed a small white streak by MY LEFT ear. So it seems to stay to the same side and I’m lucky it hasn’t progressed as rapidly.
12 weeks into my treatment, the spot on my neck was 90-95% gone. I’ll be more than happy to post a before and after picture of it.
It’s now been about 9 months since I started my NUVB treatments and the spot on my chin is still there. I’ve had some repigmentation on it but nothing major. My neck is still 90-95% repigmented and the streak by my left ear is almost gone.
I believe my consumption of alcohol played a big role but I also believe it was stress. There is no history in my family of vitiligo, from my dad’s side nor my mom’s. I also believe nutrition plays a big role. I’m of Mexican descent so I consume spicy foods, I don’t enjoy a meal unless I’m drinking a soda, and I eat lots of red meat. It’s horrible I know but I hope to hear from someone and find out what you think.
I am doing the following:
NUVB treatments (3 times a week)
Ginkgo Biloba (120mg daily)
L-Phenylalanine (1000 mg daily)
Elidel
Dovonex
Herbalife Products – Nutritional Shake, Herbal Tea Concentrate w/ Herbal Aloe (herbal tea) , Schizandra Plus ( 2 tablets daily), Cell Activator (1 capsule a day), Multivitamin (2 tablets daily).
***I started taking Herbalife products because some family members of mine started taking them in hopes to lose weight. My aunt, being one of them, was talking to a couple who sells the products and they told her about a man in California who had vitiligo and had seen MAJOR improvements just by taking these products. I don’t want to say I’m pessimistic but I don’t make a lot of money and everything can be costly so I always do my research before spending my hard earned money. I was given this man’s number and I personally called him (and yes I checked the area code to make sure I was calling a California area code). He was quite honest with me. He said he’s been using the products for 5+ years now and is about 85-90% recovered. He tells me his case was very severe, throughout his entire body and that by the time he started taking Herbalife products he’d had vitiligo for 15+ years.
Just to make things clear, I started using Herbalife products a year ago this month. Right around this time I had noticed a faint dime-sized spot on my RIGHT arm that went away within a month of taking the product, but honestly I never fully lost my pigment in that area.
I stopped taking Herbalife products right around October 2007 and after about two months ago, I stopped seeing results (keep in mind that by then I was in my 4th month of NUVB treatments). I just went back to Herbalife products in late February of this year and I’m starting to see SOME small traces of pigment come back. I’m still doing NUVB treatments 3 times a week but I believe I may be headed in the right direction. Progress is quite slow to say the least, but at least it hasn’t spread.
Oh a quick note (I know this is probably going to take the cake as the longest message) but my aunt started selling the Herbalife products earlier this year. She actually went to a Herbalife convention late last year (or maybe early this year) in Denver and she saw the before and after pics of that man who’s used the products for 5+ years. Unfortunately I have no pictures to show you guys of him, and I would have really liked to have been there but again, I’m now in Minnesota.
Any questions, comments, or concerns, PLEASE reply! I’m eager to hear from someone regarding my case.
Oh and quick question? How do we go about posting pictures or seeing pictures posted?
Hey, there is a link from this page that sells vitiligo cover cream. Does this product produce the same result as claimed in the before and after photographs?
thank you very much Kashif. :)
Joey: Yes, sunshine greatly helps my condition.
Let me start from the beginning. I had a big vitiligo spot which spread like crazy on my right hand in 1997, right on the top of index finger. I never took any medicine that time and I did not know that it was vitiligo. It just went away itself.
Then, in 2000, I had a big spot on my forehead and it was quite big one, its like you have made it like round big white.
Went to dermatologist, he gave me some sweet pills and advised me to go in sun as long as I can bear it. I never took the pills but I went under the sun. (we usually get 40 degrees in our country in summer). I don’t get sunburn so I used to spend quite a lot of time in the sun.
That spot took 3 months to come I think and It went in about 6 months, completely gone, repigmented.
I was fine when I was in my country,Pakistan. I moved to the UK in 2005. No good sunshine here.
Spot started appearing in late 2006 and now I have got a spot on my face next to the nose on the left side. It was getting bigger and bigger.
I went to Pakistan for 20 days on holidays, sunshine is about 15-20 degrees. I used to spend a bit of time under the sun everyday while I was there and I can see the repigmentation. The spot is half repigmented now but there is no sunshine in this country so it is really slow repigmentation here.
I am not taking any vitamins. All I am taking is a herbal seed known as BABCHI as it helps me and I am applying a homeopathic cream on the spot called HYDROCOTYL which one of homeopathic doctor gave me. It has no steroids in it like other creams.
I am regularly taking snaps of the progress but I am lazy enough to post them.
I personally think sunshine would help me and that steroids mess your skin up so I totally avoid them.
Cheers
Kashif, has sunshine helped your condition? If so, do you take any supporting vitamins?
guys, those vitilax pills and all other crap are just waste of money, they are just fooling you so don’t waste your time and money.
the only thing that will work is sunshine without getting sunburn and a never ending hope.
cheers
NO only what she told me that eat brocoli a lot and do’t eat to much spicy that is all she told me. Oh yeah Ia m not using anythings now. I went to demetalogy here in Cali, they told me that only thing they can do is to start UV treatment for me and that is it. They are not sure that even UV will work or not but I am going to take it. I am just waiting to find an insurance company to take vitiligo.
thanks a lot
wow, I wonder if thats the story for the majority of those who have used the product? Did you change your diet for those 6 months?
Joey: I used for six months vitilix 12 pills a day 6 in morning and 6 pills at night. Along Vitilix, i got 800mg of folic acide, 1000mg Vitimine B and 1000mg Vitimine C. That is all I did but nothing happen I mean no improvement at all. It didnt even stop spreading my vitiligo.
Thanks
K, how long did you use the treatment? Did you use everything I listed? I’ll do a before and after photo once this is treatment is nearing two months. What are you using now? Good talking to you. :)
Joey: Thanks a lot for sharing. See if you can get some pictures now and after treatment. I used Vitlix from Dr.Lee along with other vitimins but I saw no improvement.
thanks
GOOD NEWS
Pepper Compound Could Aid Millions With Vitiligo
ScienceDaily (Apr. 13, 2008) Oregon Health & Science University has licensed a family of compounds derived from black pepper extract on which it owns the patents to AdPharma, Inc. for potential pharmaceutical development. The compounds have shown potential in animal studies to be effective in treating vitiligo, a skin pigmentation disorder.
——————————————————————————–
Vitiligo, which afflicts an estimated 100 million people worldwide, is characterized by the loss of pigment in affected areas of skin. It is the disease pop star Michael Jackson has publicly disclosed that he has. It is neither life-threatening nor contagious. But the sometimes unsightly white patches it causes produce emotional distress for many and often lead to social ostracism because of a widespread misperception that the condition is infectious.
An estimated 1 percent to 2 percent of the worlds population suffers from the malady. Current treatments, which rely on immunosuppression or ultraviolet radiation to stimulate repigmentation, are only partially effective, often producing a mottled appearance. Excessive ultraviolet (UV) radiation also poses the risk of skin cancer.
Based on the animal studies we have done, these compounds, if proved safe in humans, promise far superior results in the treatment of vitiligo than current approaches,said Amala Soumyanath, Ph.D., an associate professor of neurology, OHSU School of Medicine. Vitiligo is a highly visible disease that can greatly affect patients psychologically and emotionally, even driving some to consider suicide. Any breakthrough in treating it would benefit a huge number of people around the world.
Soumyanath and her collaborators reported on the effects of their compounds in animals in a paper just published in the British Journal of Dermatology. But development of the concept dates back more than a decade. Soumyanath discovered “ in research on vitiligo that she initiated at Kings College London “ that piperine, the alkaloid in black pepper responsible for its pungency, stimulated the proliferation of melanocytes in cell cultures. Melanocytes are the cells that produce pigmentation in the skin. The researchers then designed and tested many synthetic piperine analogs and identified a number that produced the same result.
The group subsequently found that piperine and two of its analogs “ tetrahydropiperine (THP) and a cyclohexyl derivative (RCHP) produced light, even pigmentation when applied to the skin of a poorly pigmented mouse model. When combined with UV radiation, the skin grew significantly darker and showed none of the patchiness caused by UV treatment alone. Moreover, skin pre-treated with a piperine compound required fewer UV exposures, thus lowering the cancer risk, and it took longer for the pigmentation to fade again than when UV alone was used.
Since coming to OHSU in 2002, Soumyanath has established new collaborations with scientific and clinical researchers to continue work on this project. Dr. Soumyanath’s recent discoveries open up completely new and exciting treatment possibilities for those individuals affected by vitiligo, said Andrew Blauvelt, M.D., professor of dermatology at OHSU and one of Soumyanaths recent collaborators. There is a huge unmet need for this disease because we have very few treatments to offer patients right now,he noted.
OHSU acquired the patents to Soumyanaths piperine compounds from Kings College London and BTG International Ltd. in 2006 and succeeded in finding a commercial partner, AdPharma, to advance the compounds through pharmaceutical development. Soumyanath has a financial interest in AdPharma. This potential conflict has been disclosed to the OHSU Conflict of Interest in Research committee for management.
AdPharma, a diverse pharmaceutical company headquartered in Arlington Heights, Ill., licenses promising compounds from scientists, universities and biotech companies and advances them through the clinical testing stage. Our key strength is being able to identify, through our computer models and past experience, promising drugs which we can then drive through our strong development structure, said Anil Sunkara, the companys chief executive officer.
The next step before clinical trials can be undertaken, said Soumyanath, is to determine in animal models whether the repigmentation effects of piperine compounds is associated in any way with melanoma or other skin cancers. From our mouse studies so far, it doesnt appear that is the case, she said, and we are hopeful that more detailed research will bear this out. OHSU has ideal facilities and expertise for further preclinical and clinical studies, and we are excited to have the support of AdPharma as we move toward testing these compounds in human vitiligo.
Adapted from materials provided by Oregon Health & Science University.
I started the Vitilax pills, vitilax skin oil, and Skin detox formula a little over 3 weeks ago. However, now that I’ve read more disappointing experiences with the treatment than pleasing ones, I’m really second guessing. I will let everyone know how it goes on a three week basis. All my confidence resides in Dr. Li, the distributer of the treatment, someone I have never met. I hope through the end of my treatment, i will give hope to many.
my folic acid vitamins say 400mcg whats is the difference between mcg and mg
Re: Spices, shampoos, creams–I was told to avoid all of the above that have ingredients called PARABEN in them. I find that at the health food stoer there are plenty of options for organic based stuff. Some good US brands are: Dr. Bronner’s castile soaps, Kiss My Face creams, also Dr. Hauschka creams, Avalon organics soaps, creams, shampoos. Vaseline is not the best idea, as it is petrol based. Olive oil is much better.
As for spices, I have heard that from other people, but I have found no research to support that, with two exception: Fenugreek and Licorice. Don’t know why.
a quick one guys, is it normal for a patient with vit to have stomach disorders. I used to have stomach disorders the moment I eat spices so I have cut on spices but as I live with my relatives here in UK so I have to eat whatever they cook and they eat loads of spices. I try to make myself one but cannot because I work full time and don’t get time to cook.
also, I have cut on using creams and I only use VASELINE for everything, on hands , on face arms etc as I do believe using different types of creams can cause problems.
Also, I am trying to avoid shampoos and trying to use herbal shampoos for hair and shower.
will keep you updated and I would love to read your thoughts about SPICES, SHAMPOOS and CREAMS.
remember Vitiligo is an autoimune disarder!
Aneimia, low stomach acid, stress B12 defeciency and I guess more! we should all find out what is the cause of it.
You could be treating it and it is not geting any better but worse. and again always remember that each and everyone of us are diffrent. what works for you may not work me!
Taking one a day of B12 1000, Folic acid 400 and vitamin c everyday at the same time.
I also read that ginkgo is also good for slow spreading Vitiligo along with B12 Folic acid Vitamin c and of course
sun!
Marie: Thanks for your information. I was wondering if you could post before and after treatment pictures so we can all see how Vitlix work.
Thanks
Hello, everyone. It’s been awhile since I posted something but I am following everyone’s blog very closely.
Vitiligo runs in my family (inherited it from my dad’s side). I have had vitiligo before I even started school and am now 37 years old.
I’ve read from someone that each case is different; I believe it’s definitely true. I also use Vitilax, which is from Merry Clinic, for about six months now. Fortunately, I’m seeing progress particularly on my face. I “HAD” a huge mark on the left side of my nose, which is now almost invisible. I really follow Dr. Li’s instructions to the “T”…no alcohol, no spicy food, take the b12, folic acid and vitamin c. Also, exercise seems to help a lot.
I also take the methyl form of B12, not the cyano. I read a lot of research information that methylcobalamin B12 may be retained by the body better than the cyanocobalamin B12. Cyano is the more common form of B12. The methyl form is a little more expensive and 1 tablet is 5,000 mcg instead of Dr. Li’s 1,000 mcg recommendation :)
For the younger generation who are having inferiority complex about the condition, hang in there. There is cover up like Dermablend while trying to find the “real” cure.
Cheers to all! Please keep blogging; it’s nice to hear other forms of treatments out there.
Dear all:
1-It is just for your information that for the past six months I used Viltex Tablets along with folic acide, vitimine C, and B12, Prescribed by Dr.Le, from Merry Clinc in San FransicoDoes. I have not seen anyresult even worse I can see some new patches appering on my body.
2-A few days ago I went to a dermatalogis in California, he told me there is no specific cure unless you try things. The doctor prescibed me to take two time UVB. Does anyone in the State know any insurance company that take vitiligo treatment please?
3-Also anyone try drawing tattos on the Vitiligo spots? I am wondering if someone with limited vitiligo spots can tatto those spots. Any Idea Please?
4- Does anyone ever used medicine called Trisoleren? One day a man approached me and told that he had vitiliog on his entire body almost. He used some medicine called Trisoleren which is only avialbe in the United States. Does anyone know about this medicine?
Thanks a lot for sharing things with the group
Elizabeth, I am taking 1000mg b12 and 800mg folic acid on daily basis.
what should be the dosage of the b12 and folic acid?
The safest way I think is B12,folic acid and vitamim c and some good sun.
Because everyone is diffrent you should find out if low stomach acid is the cause as well.
Somtimes its just the enviornment like the Uk where we don’t get sun at all.
It is wise that you know what is the cause of your vitiligo before you start taking all these steroids and internet pills.
as somtimes its just a little sun your body needs.
hey Elizabeth, I am 24 as well so I can truly understand your emotions. Please don’t use different treatments without first knowing them completely specially steroids.
Tim, regarding vegies, they are good and so is fruit but a homeopathic doctor told me to avoid sour fruits like orange, grapes etc but to be honest, i don’t avoid any of the fruits but i do not really like too much chillies and meat red meat specially.
Thanks Kashif, its really diffucult to adjust to this when you are 21 and suddenly your life changes completely!..Has anyone tried meladinina before?
Hi all , I have had Vit since I was 20 , I am now 44. I have tried a few things, and convinced now that the cure is in the Diet, so now Im trying a Juice of Celery and Carrot which is rumoured to help. I notice that a lot of people have good success with B12 and folic , so I am off to try these. I spend every other month in Spain, and Tan easily, I personally think the Sun is benificial, but this time have noticed more patches on the back of my hands. Does anyone now if juicing oranges is good, people have said this is not good fot Vit???
Many help or comment would be appreciated.
Hi Elizabeth, hands are the most difficult part to repigment and might take time so be patient and keep up with your treatment. There is no miracle cure for vitiligo, you gotta be patient and keep consistent with treatment.
good luck.
My vitiligo started about 8 months ago…first it started in my eyelid and i had gone to the doctor and he gave me a cream assuring me it would go away…of course it didnt but it spread on my hands my nose and cheeks..its horrible i didnt know how to react to this…i started going to a specialist in vitiligo in los angeles after seeing 5 different doctors. She has been working with vitiligo patients for over 20 yrs. She gave me protopic and clobesol cream. After a month the spots on my cheek were completely gone I can see my nose repigmenting but not my eyelid yet…The spots on my hand have had no change i still have them…So i decided to work out 4 days a week and it has helped my to overcome vitiligo a lot! Now i am sstill using clobesol cream and protopic ointment plus multivitamins, vitamin c, vitamin b12 and E. If anyone knows of somehting that can help repigment the color on hands please help!!
Pseudocatalase is a scam. Went to Germany and spent $2,000 on the cream which I used over a 1 year period to no effect. Dr. Schaullreuter just want’s to seperate your money from you.
Hello, Hope you all r ok
I tried for cover the Air stoking spray, is great! and also have spf.
If you (girls) want to cover it, just try it! I said girls, because it seems to look a lil bit maked up. But I’m feeling very much better.
Cheers
Vivi
James,
Look back up through the postings–there are many good things to try, and of course you may need to find a doctor who is sympathetic and also good at what they do. If you have more than 60% vitiligo, and are very fair-skinned, you should talk to the doctor a bout de-pigmentation. This might be a good option for you if you are a person who can’t be in the sun much anyway. If you are more olive or dark skinned, you will have to read up on all your options and decide with your doctor what’s best for you.
I know Kashif and I are trying to do things more naturally with herbs, sunshine, etc. You have to do some research to see what’s right for you.
Here’s a link to a scientific article that lays some of the options out clearly:
https://www.emedicine.com/DERM/topic453.htm
good luck and keep us posted!
thas the one Laura
i have had vitiligo since i was 6, now i am 19, it is on my legs a lil bit on my hands, stomach, back and other areas, what could help me?
you will be fine Laura. it will take its time.
Hi Kashif,
Don’t post the seeds, it’s OK–I am in the US and know I can find them.
I am going to the tanning salon here on cloudy days. I also do not get sunburn, my heritage is southern mediterranean–probably some ancestors were arabic ;)
I stay on the tanning bed just 10-15 minutes. I’m getting a nice tan on the rest of my skin, so far on the vit, nothing.
https://www.holisticonline.com/Herbal-Med/_Herbs/h128.htm
you can find more info about herb there.
Hi Laura,
Name: Babchi
Biological Name: Psoralea corylifolia : that is the herbal name for that seed.
Its really easy to find this seed in my country. I have got loads on me. I can post it to you the seeds if you want but I won’t post the grinded ones as I am using them.
All you will then have to do is to use grinder, grind them and have them daily and then I would suggest a sun tan for about half an hour, only if, you don’t get sun burn. I mean I don’t get sun burn even at 30-40 degrees as I am used to it as I am from hot continent.
Let me know your thoughts.
Kashif–I found a link–see if this herb looks familiar:
Hey Kashif-
I have heard of bakchee I think–it is also called bakuchi? Because if it is, you might be able to find it an an Oriental Medicine office–the chinese call that same herb BUGUZHI. I am in the US, and my doctor is looking into the buguzhi for me also. Your description of the horrible taste sounds like it is the same! Let me know if you find it, OK?
going through all the posts, its good to hear from so many people.
In fact, every person’s case is different from others but the symptoms are same, vitiligo. someone finds it difficult to express, someone stresses oneself for appearence, which is pretty much normal in people with vitiligo and I do understand that being one of them.
I personally think, food is one of the part of process which affects vitiligo. too much spices and hot food, meat specially red meat and processed meat is hazardous, in fact, i am against processed ones and i strictly avoid them.
i like fruits so I eat them a lot, apple, orange, banana name it and i will eat it and nowadays, more and more. and vegetables, well, i ain’t a big fan but nowadays , I am eating as much as I can, i try to avoid lunch with fruits and potato wedges but if I feeling hungry at lunch, the other choice is fish n chips which is way better than burgers and red meat.
I personally get really good results in sun but unfortunately, cannot get any sun in UK, back in my country, there used to be a lot and i just love it. in fact, i believe, i get well in the sun.
as a remedy, I am using herbs. I use one herb we call it BABCHEE in our language, i will try to find the english name for it. my mom grinded it for me and what I do is , i take a half spoon of it and mix it in water and leave it next to my table overnight and when i wake it, drink it, its ridiculously bitter and my face goes crap with its taste but positive thing is, it works for me and I get results.
I am also using HYDROCOTYL cream which is NOT a steroid and homeopathic cream.
for the purpose of progress, I am taking pictures on affected areas and will compare them when I get free time from work.
I will keep you updated guys.
don’t lose hope.
Hi all,
There’s a lot going on here, so I will tell you what I am doing for my vitiligo, which just started a few months ago, which is spreading rapidly. My brother has had this for about 7 years, all over hands, arms, feet, face. He uses Protopic with some success, but says new white spots keep appearing. I went to a dermatologist too, also unkind and dismissive, who gave me Protopic without even looking at my medical history well. I’m not a good candidate for it because i have so many auto-immune issues, vitiligo is just the latest.
I decided to follow a course of treatment with my primary MD, who is also a naturopath/holistic dr. I am on a VERY restrictive diet–called the Specific Carbohydrate Diet. http://www.breakingtheviciouscycle.info for those interested. What this diet is supposed to do is to heal your immune system by healing your gut/intestines. Bottom line is the elimination of ALL grains, lactose and sugar. BUT you can have meats, fish and plenty of fruits and veggies, all herbs and spices, so it’s still very well balanced. And you can have yogurt and hard cheeses.
Also, the herbs given me by my doctor are: rehmannia, gingko and tribulus 3x/day. I am also taking calcium, zinc, eleuthero, astragalus, st. johns wort, magnesium, iron, multi, C and more. All supplements are food-based and natural (Mega Foods brand or Planetary or Medi-Herb). AND I am getting small shots of B12 daily for a week, then twice a week after that. Also I am either sitting in midday sun, or if no sun, going to the tanning salong just for 10 minutes a day (UVB only in the tanning salon). Also we’re trying the calcipotriol creme.
So far no improvements, but I’m only doing this for a couple of weeks so far, so I will keep everyone posted, it just seemed a better idea to take the more holistic approach to heal the whole immune system and hope the skin will follow. But if it doesn;t work, I will be looking into the excimer laser treatments–anyone who has already done this??
Lisa,
I don’t think diet is gonna make any difference so don’t bother with any diet. Just try to eat less red meat, more vegetables and fish would be healthy. I personally believe, tanning in sun would greatly help anyone with vitiligo.
Most important thing is, do not be negative and approach it positively towards dermatologists replies. They are dumb because they don’t even know what they are treating, all they know are the white spots, they don’t know the cause but in some instances, they know that it can be healed by so and so things.
be positive and hopeful.
cheers,
Kashif
It’s me again, can anyone recommend a good diet for vitiligo? Also, what kind of core vitimens should I be taking to fight this thing and how much? Are there foods I should stay away from? There is just soo much information to go through, and I really feel like I’m all alone in this. All the Dermatologists I’ve been to are all dismissive and unkind and that makes it even worse. I need some good advice. Thanks. I really, really appreciate it. : )
Hello, I’ve been dealing with vitiligo since I was a child. I’m 43 now. When I was a child it was all over my knees. Fortuneatly, by the time I went into high school it had all gone away. This was wonderful because I can’t imagine going through those years with white spots all over my legs. The fact that it went away did wonders for my self esteem and I was a cheerleader, swimmer, loved going to the beach and hanging out in my bikini. Now, at 43, after having 2 children it is back with a vengance. All over my knees, arms, hands, face, feet. It has stopped me dead in my tracks. I don’t enjoy wearing jewelry, makeup, skirts, shorts. My self esteem has really crashed. When this started to affect me again about 5 years ago (my youngest son is 7) I was doing some research. I came across a gentlemen who told me that salt somehow plays a role in repigmenting. That hit my like a brick. I remembered how the summer between my jr. high and high school years, I camped at the Colorado River for 2 months. We took salt tablets, to keep for getting dehydrated. We were in our baithing suits all day long in the sun. That was the summer I remember my white spots started to get a red bumpy rash and then it just tanned right up. So my question is does anyone have a story like this? Does anyone know what kind of role salt plays in the repigmentation process? Thank you. I love this site and plan on visiting often for support and information. Thanks so much.
TKS Sandy, I will take a look.
The Pigmentum I am talking about is a homeopathic remedy and is a pill. There are different medicines past on your race–caucausian or dark. The web site is http://www.pigmentum.com
Hello Sandy,
I did, 15 years ago and was good. If it is the same pigmentum ¡t was made with a base of bergamota and lime oil, and I remember that conbined with sun, I had good results. But I got desesperarted to be in the sun 2 times for 20 minutes a day and smelling and having so many showers…
Do anyone knows if I can find Xtrac in Mexico, or where in USA?
Thanks
Vivi
Has anyone tried Pigmentum?
Hi Nathalie,
Nice name…
You know, I,m sooooooo confused, I´m always tring new stuff… now I read about the Xtrac laser. Do you know it?? I will read more about vitilax before take any desicion TKS. I has being taking Recoleur, with dermabest, I had some good results. But now I´m on a hard emotional situation, and I´m getting worst…
Cheers to everybody.
Vivi
TKS Kashif
Hi Vivi and everyone,
please don’t jus go buyin stuff without doin full research as it can brin negative effects and adverse conditions. one of the docs i went to gave me a cream and said there are no steroids in it, i researched the ingredients and it was so please careful about that.
also, even if you try herbal or homeopathic creams, b sure to research on them first.
regards,
Kashif
Hi Vivi,
Nice to hear from you…your english was great! Before you order the vitilax, do a bit more research on the product. i have heard more negative than positive comments form people who have purchased it.
all the best
nathalie
hey everyone,
I would suggest you read the book Turning White : A memoir of change by LEE THOMAS.
Please do so, you will be satisfied.
thumbs up.
Hello,
I´m from Mexico, and hope you can read my bad english.
I have vitiligo since 92, I was 22. I allready try everithing (almost), melagenina in Cuba, neovitil in Canada, I was vegetarian, etc, etc… I bacame worst after my babies borned. After reading about your experiences I will start today whith the vits… Hope to be better.
I will order the vitilax tonight.
Cheers
Vivi
I just ordered my vitilax pills. I’ve been reading positive reviews from many different forums. Is anyone on this site familiar with Piebaldism? That’s what I have, it’s the same as vitiligo only your born with the white patches.
OK, went to my holistic MD today. We are going to do B12 shots, but she’s going to have some formulated without preservatives for me. Also, I’m to go on the Specific Carbohydrate Diet. It seemed restrictive at first, but in looking at it it’s almost like South Beach diet. Anyone else interested can read up at http://www.breakingtheviciouscycle.com. Apparently this diet is also effective for many other things, like autism, fibromyalgia and Crohn’s. She also added Turbulus to the Rehmannia and Gingko I’m already taking. She is going to research the psoralens and the piperines for me. Anyone else have any experience with the above?
Thanks!
Hey Laura,Kenis and everyone,
Shocking stories everyday.
Follow the link above and see how to live guys. Vitiligo is a part of life(those who have it and it is a test) and you have to pass it and to pass – patience is what you need.
Live the life.
Cheers
I’m not sure–sometimes I swear they just appear, but it cold be that they are gradual to a point and then suddenly I notice the difference in color. I am olive skinned of italian heritage. My brother developed his case about 6 years ago, triggered by a viral infection we think. My grandfather also had this, very severely, he lost all his pigmentation by the time he was 60, even to his eyes, he had retina damage.
I have been taking gingko and rehmannia for 2 months, as recommended by my holistic MD. I didn’t expect repigmentation yet, however I had hoped these would halt the spread. I also take tons of other vitamins and herbs for all my other conditions, I won’t bore you with the full list, but it already includes B complexes, astragalus, eleuthero, st. johns wort, vitamin D (10,000 units per day!), and I was on all of these BEFORE the first spot, so I don’t know what’s going on. I meet with my Dr. again in about an hour to see if we can find a better plan, since this one is not working. I think we will probably agree to start B12 shots. I will keep everyone here posted.
Do these spots just come overnight or does the skin lighten up gradually
Have you tried any treatments yet to hopefully slow it down or repigment your skin. I have not noiced any other spots yet.. I know my grandmother had it but she had just like 3 small spots on her face and 2 on her wrist. This is so annoying..
Kenis-I had one spot initially, I noticed it on christmas day, and every day since then that spot has apread a little and more spots are coming, too. I woke up this morning with 4 new spots on my right wrist area–they are about 2 inches diameter each, sot his is spreading rapidly IMHO.
Hello!! Nathalie that was a good idea to take pictures and compare it. I have been looking in the mirror almost every hour to see if I see any change. I do see it turning a pink color and there is a vein or something visible. Laura you are so right I asked about that yesterday how come they wont do a biospy to make sure and I was told since it was on my face it would leave a scar and it is something that can be diagnosed by just looking at it. I was prescribed protopic as well. I have started using it and also taking vitamins.I am not sure about all of that. I want to see if I can find a specialist that can give me some more imput. I hate how they really cant tell you anything about it.. Did the spots come rather rapidly b/c right now I only have 1 and I am just curious if anyone saw more than 1 right away and within a short time. Thanks for all the feedback
P.S. – I know this won’t kill me, but it will end my career-I work as an actress and even the heavy makeup does not cover the vitiligo well.
Hello all, Kenis– I was just diagnosed in the last month too. My brother has had it severely for over 5 years. He has been using Protopic, and he said it does help repigment on face, but is too greasy to stay on hands properly. I went to a dermatologist to whom I will not return, as they very dismissively gave me Protopic without even a biopsy to be sure, and on my own research found out that Protopic can cause Lymphoma, among other things, so I did not fill the prescription.
Now a vent/question for everyone else: My vitiligo started and is spreading very quickly. I have been udner the care of a homeo/naturopathic MD for over 6 months. I have a lot of other auto-imunity problems, and I’ve been eating a diet free of glutens, eggs, soy, diary with lots and lots of vegies and fruits. I used to not eat red meat, but was told to eat a little organic red meat now and again to boost my blood minerals, so I have been. I do like spicy foods but have avoided them because I also have rosacea, same with alcohol. I live in a place where I can get sun in the summer, but not every day. It’s humid and cloudy here and in the winter it’s cold and not so sunny. Also, I take my vitamins and remedies in the most natural form possible (food-derived) for better absorption.
And every morning I wake up and cry because therea re more and bigger white spots.
Sorry to go on so long. This is just very frustrating and scary because i already had been doing so much to help my body, and it is just turning against me more.
Hi Kenis,
Why don’t you take a picture of the vitiligo areas, then when you look back at it a month from now, you will have a better grasp of how quickly the vitiligo is appearing.
keep us updated.
nathalie
Hello!!! I was just diagnosed with vialigo last week and I am going to another dermatologist today.. I was given protopic. I am curious does this spread quickly or is it safe to say I may have this one spot for a while. For me i think this spot is expanding everyday even though others say it isnt.. It just appeared a month ago. do u think the earlier you receive treatment the better. I bought a bunch of vitamins as well like folic acid, Vitamin C, B-12, and Stresstablets,.. Any other advice. I was thinkin gabout taking Vitalax but after reading this blog it sounds like a scam
Hi everyone, I am from Maryland in the United States. I have had vitiligo since I was a teenager and I’m 31 now. I have mostly used the UVB treatment but even that is not permanent, once you stop treatment the spots change right back to white. I have spots on my hands, feet, face and arms. The UVB treatment works well if I have time to get to the Doctors for treatment 2-3 times a week but it has never completely changed my skin back. I have started experimenting with treatment I have found on the internet, which different people here have tried, Anti-vitiligo and Merry Clinic Vitilax, which did nothing for me. I have found vitamins to be helpful vitamin A, E, & B-12 with womens one a day, they are more effective on spots on my face. I am starting to get concern because it seems to be spreading rapidly. I hate to continue to use the UVB treatment because of the risk of cancer and I have been doing it off and on for the past 12+ years. I even purchased a hand held UVB light from ebay.
I just started using a product called vitilex. It probably won’t work but thought I would try something before I have to go back to the UVB box. Has anyone tried Dr. Shah’s, Life Force product?
Tanika
Nobody here is talking about vitiligo causes.
I have vitiligo and found the cause — it was from black dye I used for my hair. I researched a lot and found phenylendiamine and ammonia cause vitiligo. So, once I stopped it, my vitiligo stopped spreading. Then I started taking Hydrocotyle, B12 and folic acid. Vast improvements since.
Russel,
Its life, people try to make money either way they can. specially, for vitiligo, as there is no proper cure available so people (who is affected) , considers it as a hope and goes for it.
My advice would be to read about it as much as you can so you know what it is. In my opinion, dermatologist also try to just give you steroid but if you know about it you can tell them not to and when they know that you know about it then they will not try to bugger you off like other people.
The other thing is, in case of vitiligo, when something works for someone does not really mean that it will work for someone else so it is just a matter of trying.
I personally don’t try different things specially medicines but I might consider trying herbal remedies as they are safe and don’t contain strong chemicals with massive side effects.
Regarding swimming and sunshine, go for it. You are lucky that you have sunshine over there in cape town and also sea nearby. It won’t make any difference so have a good swim.
I read somewhere on the internet regarding DEAD SEA, because the salt level is too high in dead sea, if you go and have a bath/swim in dead sea, it would cure the vitiligo and I know, people in india do practice this thing and they go to dead sea in groups (people with vitiligo) as it is quite common in india. That is why you must have read and heard about skin clinics with indian doctors and researchers working on this condition.
People, indian, if any, reading this, please do not take this as a racist comment as It is not, I am just telling the reality.
Cheers,
Kashif
Hi Kashif,I was actually hoping that that product will work, why does people advertise such things?I am using Lavender and Bergamotessens and also Lavender & Chamamomile Aqueous cream.It helps but its very very slow.My adress is 7 Perderberg Tafelsig Mitchells Plain Cape Town South Africa.We have a public holiday tomorrow and on Monday I will try to get as much sunlight as possible.I think I will go fishing I am 15 min walk from the beach and the weather is nice.Tell me is sea water good or bad for vitiligo because I swim regulary?
Thanks…Russell
thanks nathalie, the best thing we all can do is to help other, for me, it gives me satisfaction and happiness.
I like your words, Kashif. cheers!
nathalie
hey russel, I am in UK.
I did use antivitilligo but it is fake. It worsens the condition. Don’t use it mate.
I can post you the bottle I have got, its only used 4-5 times.
cheers,
Kashif
Hi anybody that live in the UK,I need to know if I can get Anti-Vitiligo in the UK it is a herbal product.I cant get it here in Cape Town ,South Africa.It will cost me a lot of money if I get it from the United States.My friend is leaving for the UK soon,if I can find it then he can get it for me there.I have tryed the customer care but the never returned my mail.
Thanks
Hi Kashif, thank you I needed that I am seeing a Dermatologist on the 4th of April.I am using Lavender for my spots and folic Acid.When I was at home during the holidays I noticed inprovement this is the result of spending time in the sun.Now that I am back at work it did get a little worse reason I am not in the sun so often.So sunlight plays a inportant role aswell.The white spots on the one side of my mouth is totaly gone is just the other side and a small patch by my right eye.I will give you the proper info on what I use tomorrow,I did see results.
Thanks…Russell
Hi Russel,
I can truly understand your feelings. Right, first of all, you need to understand and let other people understand that this is not a disease, this is just a skin condition where skin loses color. It is basically where skin loses melanocytes. Remember, just like the skin loses it, it can regain it back. Do not believe people who say it cannot regain color (pigment) back. They bullshit, it will come back.
Secondly, learn about it more and more. Go to youtube.com and type “lee thomas” and you will come up several videos about vitiligo, it will help you understand it in more depth.
Thirdly, whoever asks you stupid questions to you, is basically an idiot who is trying to embarrass you but listen, do not get embarrassed as this is not you doing it to yourself, it is just automatic.
For me as a muslim, I think, it is a test from GOD as the GOD tests his creation by giving happiness as well as sadness and when we don’t complain in happiness, we have no right to complain in sadness.
Last but not least, whatever happens, happens for the best my friend.
And don’t lose hope and you will be fine.
I personally try to eat lots of vegetables and fruits and do not avoid any food at all as it has nothing to do with that. Enjoy your life.
Keep track of improvement or spread of vitiligo by taking photographs so you are aware of its progress.
Do not use Steroids as they are dangerous even if a dermatologist tells you to use it, tell him/her to bugger off as it is not good to use them.
Good luck mate,
Kashif
Hi Kashif,thanks for your advice,how did your friends and family deal with vitiligo?My friends are not use to this new development of mine some ask if I am going to die or do you have cancer,all these sorts of remarks and I am starting to avoid all contact with peolpe I used to know becuase I am very consince of my appearince.How do you deal with the trauma of people always looking at you like you from a nother planet.I wish there can be a cure for this monster desease.
I wish somebody out there finds a cure for our children and there children.
Thanks
heys pals,
good to read long posts. I personally think that SUN is good for vit. My vit was spreading really fast as where I live in UK, no sunshine at all. Went to my home country for 20 days and all I did was sit under the sun (15-20 degrees) and I personally saw the repigment.
I am taking homeo medicine as if it won’t work it won’t leave side effects. I can see repigment but as I said in earlier post, it takes time, it is a slow process but works.
I would suggest anyone with vit to go under the sun. Be warned, if you get sun burn then you have to make a timetable or plan on how long you gonna be under the sun. I personally don’t get sunburn even at temperature like 50 degrees as I belong to a HOT country.
As in UK we don’t get sunshine, my plan this summer is to get most of sunshine. I am going to beaches or place with good amount of sunshine all this summer and enjoy life as well.
good luck guys. speak to you lata.
you need to take either, vitamins, protopic, oxsoralen, meladinina, etc PLUS sun to recover some skin color back.
if you are after a narrowband UVB light
try ebay and type in dermalight 80, they tend to be cheaper on ebay then other sites.
i drink socially and i use to smoke socially and i still saw some color return to my fingers (hardest part to regain color) so i dont think smoking or drinking affect vitiligo but for general health they are not so good
i dont avoid any foods, i dont want my vitiligo to control my life so i eat what ever i want. but i did cut back on my milk and alcohol (people say milk and egg are bad for us but who knows)
i dont think tattoo is a great for a cover up, over years, tattoos seem to fade away. thats why when you see young people who get tattoo and in the future when there 30, 40 or 50 the tattoo seems messy, not as sharp and they seem to turn green. but im not an expert so i dont know for sure.
merry clinic (vitilax pills) seems like a scam to me, i used it for a while and didnt see any improvments at all. ive only read about 1 person who has had success but they could be working for the company. but its up to you if you want to try. different people react to different treatments. what works for you might not work for others.
you need to stay on a treatment for atleast 6 months to see if its working.
with what ever treatment your doing, your spots must turn pink not red. if red that means your burnt that area. so becareful
(sorry for the long post, i just wanted to answer as many questions as i could)
ps: protopic or elidel and sun light seem like the best treatment to recover color in the face
take care and good luck all
Hi it`s Lisa thanks for answering…what I do is put 60 for sunscreen not to get any sun…isn’t true that we need to avoid the sun completely or should I take some to re pigment my skin???? I believe stress is not good in any situation but hard not to stress when you see these spots coming out… I like panic…so from what I hear to need to take B12 suppl, folic acid, the sun, not spicy food, and try to find out about the excimer uvb laser ….in Canada………..
Hi Russel,
Stress can be a factor. Also, spicy and hot food can affect the vitilligo. No idea about Alcohot and smoking but they still are bad mate.
Cheers
Hi there ,can anyboby tell me if stress can worsen vitiligo and if alcohol and smoking is a trigger to vitiligo spreading more.Please tell me what foods to avoid and what is good.
Hi Lisa and Sarah,
I’m allergic to sulfa based antibiotics, too, and i wish i could remember when it was that i discovered this so i might be able to link it to the beginning stages of my vitiligo.
Thank you for bringing this to light. I’m going to research it a bit.
Hi K,
I have had a couple of people tell me that a combination of b12, folic acid, and regular sun exposure, has triggered repigmentation, and i am having great success with the excimer uvb laser treatments.
all the best
nathalie
Hello there,
Does any one know what treatment options are avialble for Vitiligo? I heard about some Laser Treatment, Tattoo, Does any one know about this please?
thanks,
Hi Lisa,
the same thing actually happened to me. i was on a sulfur-based drug when i was 9, the doctor did not tell me to stay out of the sun while i was on the medication; i was on vacation in Florida. i noticed the spots on my feet, face, knees and elbows after i came home. i am now 21.
As for the sun exposure, it is recommended that you get about 30 minutes of sun exposure for the vitamins, but not much more than that without sun-block. Over the summer i actually got a bad sun burn & its been re-pigmenting ever since, but i had been taking my vitamins daily before the burn.
talk to your doctor and see what they say about it, but as for me, it is really an experimental thing. you have to take into consideration what people tell you & then tweak it to suit you individually.
GOOD LUCK!
Russell I took for past six months Vilitax Herbal Pills along with other vitamins prescribed by Merry Clinc. I have not seen any improvement at all.
If you still want the Vilitax contact merryclinic.com, I am sure they will ship to you whereever you are.
Good Luck
Hi Kashief I am living in Cape Town ,South Africa I have cantacted several pharmacys for Vililax do you know how I can get this product here in South Africa?
Hi I’m Lisa from Canada and my vitiligo started when I had finished taking antibiotics and had taken sun. I came in the house and looked like I had a mask on my face…certain spots were not tanned…then I saw some white patches under my eyes and my two thumbs..also I had pain in my neck so at night I would massage my neck really hard and noticed a big white patch…now I noticed a patch on top of my head and more grey hair located in one area….I hate it….I heard we have to hide from the sun….and then I hear to need to take sun….which one is it???? I’m going to see an MD next month and I know he has laser treatments as well so will let u posted if I find anything ………..Lisa
Hi Amir,
Its been quite a while somebody posted any comment. You would be amazed to know that I am using Hydrocotyl cream as well but it is not recommended to me by any doctor but uncle of mine who runs homeopathic store in Pakistan. I just started it using a month ago and it seems to work. I asked my uncle how long would it take to heal it, the answer was use it regularly and it will take its time (6 months +) for treatment to work which I am not bothered as long as it works.
My suggestions would be to keep using it and never bother using any other cream at all. Regarding food, just avoid spices and red meat. I mean cut it to once a week. Fish is healthy food and so as vegetables and fruits.
I am also taking homeopathic tablets with cream as well.
Good luck to us all.
Kashif
Hello everybody..im am a 21 yrs old male from batyam,Israel..i have vitiligo for 5-6 yrs..
im using dr Shah’s hydrocotyle treatment for about 6 months..lately ive been taking it a bit irregularly..from certain reasons..anyway at the begining of the treatment about a month in i saw good results..meaning that something in the homeopathic treatment is definatly working..didnt noticed real devolpement of any new spots since..but..the treatment’s speed has declined..and right now im working on my food habbits..and i want to get VitiLax..that sounds realy good..combined with vitamins c+b12 and folic acid..sounds good..~!
anyway..i heard that black pepper helps..and other suggest not to eat spicy foods..my question is : what sort of menu did you guys eat while in treatment..?obviously by those whom the treatment worked for..
sorry for writing too much..Vitiligo is my curse..i absouloutly hate it and will love to get ot off my skin sooner :) thanks..Amir
Hi K,
I don’t know if things from merry clinic work or not as I never tried that. Infact, everyone recommends different medicines as the truth is nobody knows a proper cure for it.
Go to your dermatologist and if he/she knows it well then he/she will of assistance. Don’t just try different things.
I would advice all of those here to join 2 channels on FACEBOOK for VITILLIGO. Just search for groups with Vitiligo and you will see 2 with loads of members.
It will help you realise the reality a lot guys.
Regards,
Kashif
I used folic acide, B12, vitamine c and other herbal medicine prescribed by merry clincs for four months, no imporvement so far my medicine is finished
Has anyone else use B12 + folic acid = tanning? what was there any good result.
HOLA MI NOMBRE ES RONALY VIVO EN ESTADOS UNIDOS HACE UN ANO FUI DETECTADA CON VITILIGO. PARA LA JENTE QUE CREE QUE ESTO NO TIENE CURA ESTA EKIBOKADA. ESTOY BIENDO UN DOCTOR MUY EFECTIVO QUE ME CURA CON UNA CREMA CASERA QUE EL PROPIO INBENTO .. E VISTO MUCHA MEJORIA EN MI PIEL.. SI GUTAS SABER MAS DE EL DOCTOR .. MANDAME UN MSJ
I have been doing extensive research and all it says is it has no cure but i don’t believe anyone as I am sure I will be fine. I have got some pictures taken which I will post soon when I get time.
Lisa, there is nothing much you can do to stop it. Most of people who gets this have vitamin b12 deficiency and many other things. I would say go to dermatologist and seek advice. also get sunshine (don’t burn yourself in sun), if your spots go PINK then it is a good sign that they will be repigment to its original color.
last but not least, don’t loose hope.
Kashif
I would love to get all the info possible on Vitiligo. I have some and starting to get more and worried.
Thanks, Lisa
Can I do something to stop or reduce instead of getting more?
thanks for help and advice guys. this is the first website with so much response about vitiligo. better than those forums where nobody replies.
i will keep in touch.
Kashif
Thanks carlos!
apreciate alot. I am going to see my dermatologist and hopfully start on something, I will keep updating my story.
at first i just used the uv lights
then i found out that the hands are the hardest parts to regain color back so i started to use meladinina (oxsoralen) which worked great, i only had 1 tablet of oxsoralen and 2 hours later i would go outside under the sun for 10 mins every day and i got alot of my color back on my hands even on the finger tips
im still doing the UV lights 3 times a week and im sitll using oxsoralen every day
Thank you kasif!
Hi Carlos
What treaatment did you use with the vu light.
thank alot!
Hi carlos
Thanks a lot for feedback! it really help.
hello melly,
from what ive read, UV lights seems like the best treatment for vitiligo. ive used it with great success, i filled in the spots on my neck, knees, elbows, face, and some spots on my hands. the spots were not big but they were still spots none the less and it worked. im not sure if its a good idea using UV lights on the lips as they may burn. talk to a dermatologist about it
hello kashif
vitiliax information can be found on
some people say it works some say its a scam.
DO NOT BUY ANYTHING ONLINE THAT SAYS ITS A 100% CURE FOR VITILIGO they are all scams!
and yes you need sun shine to help you
hello Khoshhal,
you may want to look into using another treatment such has oxsoralen, protopic/elidel or uv lights
the vitilax website says it should take 4 months to see results and since you have not and your spots are spreading, then you should go talk to a dermatologist. i highly recommend the UV lights, it stopped my spots from spreading and i recovered some color back
just a helpful hint: if your on any treatments and your spots go pink, thats a good sign but make sure it only goes pink not red. if it goes red that means you have burned the skin
(sorry for the long comment)
=]
Hi Melly,
the first thing you need to do is to STAY CALM and don’t PANIC as it won’t help. Secondly, consult a dermatologist in your area if any and do not just start using any kind of medicine as it might be temporarily. Also, think positive as I believe nothing in this world is NOT CURABLE. everything has a cure.Remember, it is not a disease, it is a CONDITION which will go away.
As far as i know, cut meat, burgers from your diet. eat fruits and vegetables and it will make difference.
last but not least, never loose HOPE.
good luck,
Kashif
Nathalie,
You have wonderful idea to support this team by creating the web site. I will try to get pictures soon.
Kashif,
You can get Vitilax information from google. You also try to eat lot of fresh vegetables. It takes lot of time to cut and cook but every minute is well spent. I spend saturday and sunday in Vegetable project.
SG
I everyone just want to say thank you for sharing your honesty and your thoughts wiith us.
I would like to know what is the best treatment for vitiligo! as I have just discover small spots on my lips
I whent to my doctor and they say I should get sun.
I am really stress out about it being I take my little ones to school every morning.
Its not a good sight for any of us to deal with.
I know everyone is diffrent when it comes to taking drugs
by the way SG or anyone, what is that VITILAX treatment. To be honest, i don’t want to try any kind of MEDICINE (tablets, syrups) right now.
comments are suggestions are most welcome and appreciated.
Kashif
Thanks SG, Nathalie and everyone contributing to this forum.
Let me explain my condition a bit. I have a strange condition, it keeps on coming and going . I am copying and pasting the email I sent to one of the clinic THE DERMATOLOGY CENTRE in london.
I had same problem few years ago. A big white spot appeared on my
forehead nearly 5 or 6 years ago. But at that time, I didn’t give attention
and then it faded away completely like it was never there. And about 10
years ago, I had white spot appear on the joint of my right hand index
finger and it went away itself as well.
I have a permanent white spot on my right foot for about 8 years
now and it is dry sometimes and it is like a you have to remove scalp out of
it sometimes but it has never increased infact it has been decreasing but
really really slowly.
Nobody else in my family has this problem.
I can send you the pictures if you want and I want to know if
there is any treatment for this as I have been researching around on the
internet and there are many products which claim for the cure of vitiligo
like oils, laser machines etc but I am afraid to try those products.
I was told by some doctor in Pakistan(when I was there) that try to
stay under the SUN so that those white spots go away but as far as I have
researched, it said AVOID SUN. I am 24 years old.”
I personally think that I need SUN shine. I have been reading about EMILY’s vitiligo and what her parents did in order to cure her.
Ideas, suggestions.
I have been using the Vitilax for since begining of Sep 07. I have not seen any improvement yet. I contacted Dr.Lee who prescirbed me the Vitlilax along with Vitiman C,D and folic acide, She told me I should get some good result soon. I still have a bottle and half left which will last till Feb20th. But so far No result and the most sad part is my vitiligo is still growing.
Hi Kashif,
I’m sorry but i not in london, so i can’t make a recommendation. i found these in your area…
best wishes,
nathalie
Hi SG,
That’s wonderful news! Could you forward some photo’s so we can see the results?
all the best,
nathalie
Kashif,
My husband is trying Vitilax for last two weeks. Seems to be working.
SG
Can anybody recommend me any treatment in UK for VITILIGO please.
my mobile number is 07809686089 or alternately, can send emails.
would appreciate and goodluck to all of us.
Kashif
Marie,
Did your skin color change to red with Vitilax ?
Thanks,
SG
Thanks Nathalie! I appreciate the info!
Hi Charity,
Here is a great site from a family who changed their daughters diet and, consequently, cured her vitiligo.
all the best,
nathalie
I’ll check it out. Thanks Carlos :)
go to http://www.vitiligosupport.org
its a forum type website with lots of users that leave information posts on treatments
its free to sign up with
i hope you find what your looking for
Hello everyone :) My 6 year old daughter was just diagnosed with Vitiligo last summer. We are using some Protopic on her affected areas 2 times a day, and I was wondering if anyone knew where I could get information on taking natural approaches (possibly vitamins) to help treat her.
hello tayla
im 19 and
i live in Australia also and ive been using the UV lights
for a very long time.
it has helpped with my patches on my face and on my neck
ive been told the machine is like the sun
but the lights only send out the good uv
i rather not risk getting cancer, so i use sun screen
on my arms, face and legs since
ive only got spots on my hands that i want gone
Hey im from Australia and i have the white patches of skin too. Im 16 and have had it since i was about 6 years old. I have been using a UV light to cure my skin. It is like a big half circle machine with the UV lights in it. I have been using it for a few months and have seen some small improvment. My only concerne is i may get skin cancer from it. Does anyone have a suggestion of something else i could use that will work? Thanx
Hi Khoshhal,
It was good that your doctor will test the white patches for fungus. If that is all it is, he will be able to prescribe some medicine to clear it up. Here is a link to a definition of fungus disguised as vitiligo…
As far as what causes vitiligo, no one really knows. That’s part of the problem in finding a cure for everyone. I have a story on this site about a gene that scientists have linked to vitiligo, but what role it plays and how it is activated, has yet to be revealed.
The regimen that Dr. Lee has prescribed seems on par with what other people have taken and have spontaneously re-pigmented. We definitely look forward to hearing back on your results! why don’t you send us some before pictures and we can watch the progress?
All the best,
Nathalie
Ops one more question, I saw a doctor today and he told me let’s see if it is fungus. What is fungus
Dear All:
I was recommended by Dr.Lee to take 12 Capsule of Vitlax, 1000mg Vitamin B12, 800mg Folic Acid and 500mg Vitamin C on daily basis since the beginning of Oct 07.As of now I don’t see any result, and I am not expecting anything because She told that I won’t see the improvement until four months.
The fourth month is due at the end of January 2008. I will let you know by than.
I have a quick question. How does the vitiligo happen to every one?
In my case it is so wired. We don’t have any one in our family history, but one day I got a few spot like 10 years ago, six years ago my two more brother got affected and a year and half years ago my 6 years old niece was effected.
Thanks for every one’s input, Let’s keep the good work and I am sure we will find the cure for it soon.
Love you all,
Your Brother,
~K
Marie and Nathalie,
Thanks a lot for sharing the informartion.
SG
Hi, SG. Yes, the white patch on the left side of my nose/face is barely visible. My sister started the treatment a month ago (Dr. Li recommended using the Detox as well) and she said she doesn’t use Dermablend to cover the blemishes around her mouth anymore. She also has a big patch on her neck, which is now 50% repigmented. The one thing I took out of my diet is spicy foods. I work out 3 to 4 times a week (for at least 1 hour each time). It takes a lot of self-discipline taking the pills (Vitilax, B12, Folic & C) but it’s all worth it. For B12, get the one with methylcobalamin instead of the cyanocobalamin. Methyl form of B12 is much more effective. Best of luck to your husband. My sisters and I are looking forward to having our photos taken about a year from now free of Vitiligo :-)
Cheers!
Hi sudharani
Here is a link to explain PABA. Hope it helps!
Nathalie
Sarah,
What is PABA ?
SG
Hi Marie,
Did you see any improvement in the skin color by using Vitilax. My husband is planning to use Vitilax treatment. Did you change your diet ?
Thanks,
SG
Hello everyone, I am from Western New York. The treatments I have been doing, seem to have had a positive change. I am taking folic acid, Vitamins E & C, as well as PABA two to three times a day. In doing this, I have started to get large patches of brown spots.
Good Luck to everyone on our individual searches!!
hi folks.from turkey i like to send all my best wishes to my vittie fellows.we have a local support group here in turkey as well.any progress i am going to let you all.
Hi Marie,
I know the office of which you speak, The Merry Clinic; very nice people indeed! Please keep us up to date with your treatment. I am most anxious to hear about it.
Best of luck!
Nathalie
I just started my vitiligo treatment yesterday taking Vitilax capsules and supplementing with Vitilax oil. Vitamin B-12, Folic Acid and Vitamin C are definitely part of my healing regiment. Dr. Li, whom I personally met, recommended twice the dosage of Recoleur’s ingredients. Given that I have had vitiligo for so long, Dr. Li indicated that my healing process will be slower… possibly not seeing any visible changes until after three months. I will keep you posted of any progress I am making. Thanks for sharing your story.
i have read some of the e mails one of them said she took b12 and folic acid and tanning and got good results my question is how much of each and also she said tanning i do not tan can i get the same results without the sun please get back soon i need to get on something that i can get some results i have tried to many different things and nothing helps thanks
Hi Everyone,
The above post was left as an advertisement link to a website in Russia.
You may have already noticed that there are no advertisements for vitiligo treatments on this site and there is a simple reason for this; I did not create this site to make money from advertising.
Vitiligo-ville is meant to deliver vitiligo news, vitiligo success stories, ideas that may cure vitiligo, and once the Support Forum is put to use, a place where visitors can discuss vitiligo issues together.
Dearest readers, rest assured that the only time I will promote a particular product on this site, is if I have used it and found the results beneficial. Likewise, if I come across a product meant to “cure vitiligo” but does not yield the desired results, I will blog about that, too.