The meeting “Medicine & Me: Vitiligo”, organised jointly with the Vitiligo Society, will bring together patients, their families, caregivers, advocates, patient support groups, clinicians and researchers to discuss Vitiligo. This meeting will focus on initial experiences at diagnosis, psychological aspects of the disease with especial reference to issues of ethnicity, and issues around patient pathways within the NHS.
Medicine and Me: Vitiligo
Saturday 21 November 2009
Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE Map
Organised by the Royal Society of Medicine and The Vitiligo Society
The Royal Society of Medicine ‘Medicine and me’ conferences are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.
The audience at ‘Medicine and me’ meetings typically comprises patients, their families, carers and advocates, representing at least 70% of those present; and clinicians and researchers, representing not more than 30%. Clinicians will include doctors, specialist nurses and all other health professionals involved in the treatment and care of patients with Vitiligo.
This meeting has been organised jointly with the Vitiligo Society and will focus on initial experiences at diagnosis, psychological aspects of the disease with especial reference to issues of ethnicity, and issues around patient pathways within the NHS.
12.30 pm
Registration and coffee
1.10 pm Welcome address
Dr David Misselbrook, Dean
1.15 pm Introduction
Lord Bates of Langbaurgh
Session one: Primary and secondary care
Chair: Dr David Misselbrook, Dean, RSM
1.30 pm Patients’ viewpoints: the initial diagnosis
1.45 pm Medical viewpoint
Dr Stephen Kownacki, Chair, Primary Care Dermatology Service
2.00 pm Questions
2.05 pm Patients’ viewpoints: having got to see a dermatologist, what can I expect?
2.20 pm Medical viewpoint
Professor David Gawkrodger, Consultant Dermatologist and lead author of BAD Guidelines on Vitiligo
2.35 pm Questions
2.40 pm Patients’ viewpoints: research- when can we expect a cure?
2.55 pm Nursing viewpoint
Professor Steven Ersser, Chair, Nursing Development and Skin Care Research, Bournemouth University
3.10 pm Questions
3.15 pm Tea break
Session two: Psychological implications and future research
Chair: Mr Andrew Langford, Chief Executive, Skin Care Campaign
3.35 pm Patients’ viewpoints
3.50 pm Medical viewpoint
Dr Linda Papadopoulos, Counselling Psychologist
4.05 pm Questions
4.10 pm Patients’ viewpoints
4.25 pm Medical viewpoint
Dr Andrew Thompson, Senior Clinical Lecturer and Clinical Training Research Director, University of Sheffield
4.40 pm Questions
Session three: Ask the experts
4.50 pm Panel discussion
All speakers and Professor Dorothy Bennett, Ms Sally Crowe and Mrs Maxine Whitton
5.35 pm Closing remarks
Dr David Misselbrook, Dean, RSM and Ms Hillary Fassnidge, Chair, The Vitiligo Society
5.40 pm End of meeting