I have to tell you that I am quite surprised by how long I have persevered with the whole regime. Sometimes I think it has been ‘overkill, ‘ but my use of several therapies in combination is a deliberate strategy. As I stated, I tend to use several treatments in moderation, rather than relying on frequent use of a single therapy. For example, this means that I limit NB UVB to 1-2x per week, rather than every second day, and piperine 1-2x per week rather than daily. The only thing I do daily is to pop a normal B-group multivitamin and a herbal (ayurvedic) pill that contains psoralens.
Anyway, I don’t want people to get any idea that this is a quick miracle cure, because it isn’t. On the other hand, there has been undoubted and considerable improvement in my condition, so it’s probably worth sharing the experience.
As a final note, the improvement I have achieved is still only partial, but good enough that cosmetic covers work much more effectively – i.e. it is quite easy to cover the vitiligo for a temporary period (as required) whereas it was almost impossible before.
Happy to continue sharing experiences here.
Thanks for your email. Regards, Jason Kaminski.
feb 8, 2009
Hi all,
I promised to send an update on my trial of vitiligo treatment using NB UVB light followed by application of piperine suspended in a vegetable oil. I have been using this treatment 1 – 2x per week, not every second day as is normally recommended. I started doing this around 6 months ago.
So that all the facts are ‘on the table,’ I should add that I occasionally take the recommended vitamin/herbal supplements (Vitamin B + psoralen-containing herbs) as well as applying mineral salts directly to the skin from time to time – e.g. dead sea mud.
I can best describe progress as ‘satisfactory.’ The improvement is definitive, but gradual. I estimate that I have achieved complete repigmentation (between the thighs) in 40-50% of the skin area. I have achieved moderate repigmentation (including freckling) over an additional 20-30% of the skin area. About 20-30% of the skin has not repigmented back to normal skin tone, though it has become a little darker.
From a cosmetic perspective, the result is pleasing, but not ideal. The general pattern of progress is for brown spots to appear, then for the spots to merge into an even area of normally pigmented skin. The spottiness is not appealing from a cosmetic perspective. On the other hand, the reduction in the size of the affected area is pleasing, and the general darkening of the skin means that the vitiligo is not really visible in dim light – e.g. in reduced light inside a room. Prior to trying this treatment, the skin was so white that it was visible even in very dim light.
Overall, I think this treatment is worth pursuing if the vitiligo occurs on an area of the body that is limited and if it is in a convenient position for light exposure. The progress is gradual, so patience and perseverance is definitely required.
I am going to continue to treat myself in this way for another 6 months to see if the repigmentation continues to 100% of the skin area. I am only using UVB once or twice a week so it’s not too onerous. I limit exposure to 3.5 minutes for each patch of vitiligo and only apply the piperine on every second day.
In summary, I think that:
– Using several treatment strategies in moderation (as I have done) has not had any apparent side effects, but the risk of doing so is NOT KNOWN – i.e. although my research indicates that the treatment I describe here is relatively safe, each person chooses what risk they are prepared to take in trialling different therapies
– NB UVB is undoubtedly the most important factor in getting good results: there was little improvement before I started using NB UVB
– Piperine MAY play a part in speeding up repigmentation: I have no way of telling if progress would have been slower with UVB treatment alone
– Taking vitamins and psoralen-containing herbs DOES seem to support repigmentation: I have noticed improvement around the eyes where I do NOT use UVB light or piperine for obvious reasons
– Using mineral salts MAY be useful – I have had encouraging signs using mineral-rich skin treatments such as dead sea mud and other salts as a ‘pseudo-catalase’ (look this term up on Google for further explanation).
I hope this information is useful. I will provide another update in the near future.
:-) Jason K……
Hello I have some bad news regarding the product (vitilvenze) I have just came back from caracas venezuela and acording to the head dr for dermatolagy at (hospital de clinicas caracas) what if you dont allready no is the best hospital in venezuela… The product (vitilvenze) is not prescribed by venezuelen drs nor do you buy it at venezuelen pharmacys the person who inventid it is not from venezuele at all…
It is a lie and a scam and it dos not work…..
so when people tell you they get it from drs in venezuela they are just sales men or promoters for vitelvenze dont be fooled!!!!!
if you need real information about vitilvenze dont serch the web because most of it is not true…..get hold of a real dr in venezueler they will tell you the same…….
Hi All,
To Lara:
Congrats on repigmenting. I hope it continues and keeps improving. I also live in the UK and will be starting my treatment soon.
Just have few questions re. your treatment and would like to get in touch with you if possible at all.
Did you change your diet at all? I have been reading a lot and apparently diet also has some influence on possible repigmentation.
Looking forward to hearing from you.
Hi Sunny,
I had similar results to NB UVB treatment over an 18 month period, and once treatment stopped some of the newly pigmented areas faded completely- my hands and face. But my elbows and a spot on my leg have stayed mostly repigmented. I would say continue with the treatments. The NB UVB isn’t a permanent solution, but it can work.
Hi RA
Really appreciate your response as I was getting concerned that something has gone wrong somewhere or the treatment was not suitable for me. I think I got more concerned as some of the patches changed to completely dark colour within 2 & half weeks from commencing the treatment but around 10 days ago I stopped the treatment, and although the patches around my eyes have not fully pigmented but just wanted to see if they would blend in with my normal colour and last night I could actually tell a slight difference, as the re-pigmented colour has started to fade, which means that the re-pigmented areas will blend in with my normal colour within few weeks.
Anyway just wanted to know that once the re-pigmented (hyper pigmentation) blends in with the normal colour, then is it likely to fade away further / will those patches lose their pigmentation again, if that is possible then is there anything we can do to stabilise the patches? Perhaps regular use of NB UVB treatment even when your skin has fully blended in or possibly take vitamins etc? Any suggestions ?
Best Regards
Hi Sunny,
I have been treating using UVB as well. I had a vit. mark on my arm that is completely gone. Originally it was a lot darker than my normal skin tone but it blended in about a month later. It is still slightly darker but not as visible. Also, when I have treated the area around my eyes in the past, the vit. patches filled in really dark. They completely blended in AFTER the whole vitiligo area was gone. and now it is a little bit lighter than my normal skin. So from my personal experience, they blend into the normal skin but it takes some time. I never really tried anything to speed up the process. I would be interested to know though, if anyone else knows…
My last few posts have been removed for some reason – just wanted an answer that after using the NB UVB and Piperine treatment, my skin had gone very dark (hyper pigmentation) and wanted to know if that was normal and approximately how long it can take to blend in with my normal colour and if there is anything I can do to quicken the process.
Regards
Hi Nathalie,
The lotion did not work for my daughter I think because she is olive skinned and probably needs more applications each time. Anyway, I had some doubts like Sunny has about repigmentation signs. My daughter is getting her light treatment about 3 times a week and some spots, specially her chin, are slowly repigmenting, but the freckles are really dark and she has now three colours on her face olive, darker olive and white! I am hoping they will all blend in with time. Also, another question I have is once the area repigments, is there a chance that it might depigment again? Her knees and feet are not responding to the light at all. I will be more than happy if her face clears up. Thanks for your ongoing support, Nathalie. Warm Wishes and Happy Holidays!
Sue
Many thanks Nathalie Pelletier, so this means that although the pigments which are returning are very, very dark compared to my normal skin colour, so the darker pigments will eventually change to my normal skin colour? As I was fairly concerned to see the pigments return very, very dark but am hoping they will revert to my normal colour…..
Any idea after how long the darker patches will return to my normal colour?
Hi sunny,
that was my experience too. this is what you want; to see pigment coming back to the white patches :)
Hi Everyone,
I just have a quick question; I started the NB UVB light and Piperine treatment 3 weeks ago and after week or so I noticed few dark brown/black spots started to grow on the white vitiligo patches, also on the edge of the patches, can someone please tell me if this is something normal as the dark patches have started to grow just on the white patches and am slightly worried if this is something normal?
Many thanks for everyone’s help.
Sunny
Hi Everyone,
I just have a quick question; I started the NB UVB light and Piperine treatment 3 weeks ago and after week or so I noticed few dark brown/black spots started to grow on the white vitiligo patches, also on the edge of the patches, can someone please tell me if this is something normal as the dark patches have started to grow just on the white patches and am slightly worried if this is something normal?
Many thanks for everyone’s help.
Sunny
Hi Jason
Any updates? Is your vitiligo stable at the mo?
Please keep up the good work, I really like what you’re doing (most derms are useless when it comes to vitiligo in IMO) and thanks for sharing.
jojoba oil is quite good on acneic skin, i use it do dissolve hardened sebum~`*
Hi All,
how you guys treated vitiligo on eye lid with narrow uvb? I have uvb at home but scare it going to use around the eyes area.
Thanks SV, that is great to hear that you’re having some success with the protopic already. Good luck!
Hi Mary,
I have localised vitiligo (upper legs) so it was easy to use a small NB UVB light tube at home. It cost me around $1500 but it was worth it to save hundreds of trips to the dermatologists if it is suitable for you. If you have many patches, it could take quite a long time to expose them. The main thing is to be patient and not over-expose your skin- just enough for it to turn slightly pink each time. Good luck! j
wonderful Jason,
I wouldn’t care if takes 5 years, as long as it is improving and not getting worse.
One question though, you are doing the NB UVB yourself?
I’m going to start this in September at a hospital for dermatology.
Any suggestions for me would be greatly appreciated.
Thanks so much for sharing your journey!
Hi again – long time since I updated this; so here goes.
The good news:The areas of vitiligo that I originally had are almost gone.
The bad news: it has taken about 2 years to acheive this.
The main factor in the improvement seems to be the NB UVB light treatment. I do this very infrequently now (about once a month).
It is difficult to know which of the other treatments I have tried has contributed to the healing process (see all my previous posts).
My main advice – be patient, don’t give up. I am pleased I kept fighting this because it is so much better now than it was.
There are a few small areas left that are not properly pigmented: I’m hoping to get rid of them as well – I’ll keep this forum posted if I find anything new.
J
I’ve been using protopic for the past month and a half or so and i have seen some re pigmentation on my hands appearing as freckles.. on some areas though it has spread but i wont loose hope.I don’t use is with a uvb lamp jst stay in the sun…hope that helps
Hi everyone,
I’ve just been prescribed protopic. I know some of you have also been using this – have any of you had any success, and if so how long did it take? Were you using it in combination with nb-uvb or on its own? Thanks!
HOLA, EN LA ACTUALIDAD, TENGO VITILIGO;LLEGUE A TENER EN EL ROSTRO
DE UN MOMENTO A OTRO , TENIA LOS GENITALES BLANCOS (SOY DE PIEL MORENA).
UN BUEN DIA, ALGUIEN ME DIJO QUE PREPARA:
PEPA-HUESO,O SEMILLA DEL M A N G O
ALCOHOL ANTISEPTICO
BOTELLA VACIA OSCURA
Y MUCHA FE
LA PEPA DE MANGO, EN LO POSIBLE RAIZ(QUE HAYA BROTADO UNA HOJA Y PORSUPUESTO LA RAIZ),SE TROZA Y SE ENVASA EN LA BOTALLA JUNTO CONEL ALCOHOL, SE BUSCA UN LUGAR FRESCO, O SE ENTIERRA(EN UN AGUJERO EN EL PATIO DE CASA O EN EL JARDIN)DURANTE 9 DIAS.
DESPUES DE ESTO, SE EMPIEZA A TOMAR EN NOVENAS ASI;
EN MEDIO VASO DE AGUA, 5 GOTAS DISUELTAS-10 GOTAS -15 GOTAS -20-25-30-35-40-45 SE DESCANSA UNA SEMANA Y RETROSEDE 45 GOTAS-40-35-30-25-20-15
Y ASI DURANTE UN BUEN PERIODO(DOS , TRES MESES)
SE DEBE TOMAR EN LAS NOCHES AL ACOSTARSE.
EN ESTOS MOMENTOS,SOLO TENGO UNA MANCHA ,NO MUY PEQUEÑA EN UN BRAZO
LOS GENITALES, LAS CANILLAS , ESTAN COGIENDO COLOR, PERO SUPONGO QUE TARDARAN MUCHO MAS, POR PERMANECER TAPADOS.
DE TODAS FORMAS, ESTO ES MUCHO LO QUE ME AYUDO.
Hi Janee,
It depends on the person. With vitiligo you never know what is good or bad. What works for one person may not work or another. I personally have a problem with vitamin C supplements but I do eat strawberries in moderation and don’t seem to have a problem with it. If you are intaking vit. C and don’t have an issue with it then you can just continue with it in moderation. hope thi helps
Is Vitamin C supplement good or bad for vitiligo?
Jojoba oil is also great for acne sufferers because it can penetrate oily pores.,~’
hello all. i have had white patches on my knees for as long as i can remember that seem to be filling in with pigment. i noticed more on my inner thigh when i was probly ten or eleven, but since then nothing has spread until now. im almost 29 and unfortunatly got a pretty bad sunburn a few weeks ago and now noticed a white spot on my back about a half inch by a quarter inch with complete pigment loss and white hairs, and a spot under my lip about the size of a small pea same loss of pigment. and there seems to be more fading under my lip. what would any of you suggest i do to take action and stop spreading for this situation? i was never diegnosed with vitiligo but i doubt theres anything else that i could have. i just started b12, folic acid, ginco biloba, and multi vitamin just because of what i have read. stopping the spread is MUCH more important to me right now than a cure! please help and thank you
Hi zz,
It seems to be going well, thanks. I’ve kept up the same routine I mentioned earlier and there is still a definite (but very gradual) darkening of the skin I’ve been treating. It’s slow progress but then again I didn’t expect to see any change at all yet (it’s only been 5 weeks) so I’m extremely pleased. The patches are mostly still obvious (although not in low light now) so I won’t stop until they are a lot closer to my proper skin colour. There are some patches I haven’t been treating (it would take too long if I did everywhere that’s affected), and there is a definite difference between those and the treated ones. The only exception is my hands/fingers, where I can’t really notice a change, but I’ve heard that’s common.
Is the protopic helping you at all? Are you combining it with uv?
i tried ayurvedic medicines and chinese medicines and both are great,*,
Hi RA,
Thanks for your message. The moisturiser I’ve been using is a brand called “Dead Sea Source” and it’s their body lotion I’ve been applying. It’s not an expensive one (£6 in Boots in England) and I have no idea what concentration of dead sea minerals it actually contains but I saw it and thought I’d give it a go – if nothing else it smells nice! There seem to be loads available and I’m sure mine is nothing special, but I read the same sort of things about you about people going to the Dead Sea so I thought with my limited finances it was worth a go!
How long have you been using uvb for? Would you say it is working overall? I really hope it works for you!
Hi Laura,
Congrads on your repig. I am so happy for you! You’re lucky your vit. spots just fade. I get dark brown freckling that get lighter to match my skin after a few weeks. It’s cosmetically unattractive but I guess something is better than nothing. I hhave been using uvb but not in conjunction with anything else with the exception of some oils like coconut, jojoba, vit. e. What dead sea moisturizer do you use? Apparently people have had great results by bathing in/near dead sea… I am not too sure about the details, I read this a while ago but ignored it as a potential treatment as I do not have the monetary funds at the moment. Good luck with farther repigging and hopefully you will be vit. free soon!!
Hi everyone,
I’ve been reading the previous posts with extreme interest as I have had vitiligo for 5 years and it just keeps on spreading. I would estimate it covers around 25-30% of my body and is particularly bad on my arms and armpits, chest, lower legs, hips and lower back. I thought I would post as in the last couple of weeks I have started seeing some improvement and am (cautiously) optimistic. Having read Jason’s earlier posts and the research on piperine, I decided to make myself a piperine oil (I used the powder in Bioperine capsules and sweet almond oil as the carrier oil). I also purchased a hand-held nb-uvb lamp (I bought the Dermfix 900) which I have been using in conjunction with the oil for about 2 and a half weeks now, 3 x per week. I started at 20 seconds and increased this by 20 seconds each time until I started to go a little bit pink (at 1 min 20 secs). I will stick at this level until it no longer makes me go pink. After my light treatment I apply the piperine oil. I have also been applying a dead sea moisturiser daily (not in the hours before I do the light treatment incase it makes me burn). Already I cannot believe the results, especially on parts of my arms where one large patch is now almost its normal colour (this is the under part of my forearm so normal colour is quite light). Most other patches are turning slightly darker, albeit gradually, as well. No freckling, just an even colour change.
There’s still a massive way to go before I will be anything approaching happy with my skin, but given that I can see improvements already I wanted to share my story so far incase it might help someone else who had given up hope like me. Like zz said above, the NHS is useless for vitiligo – I was refused ANY treatment by my local “specialist” as he said it shouldn’t bother me so have resorted to self-treatment.
ayurvedic medicines really work and it is cheaper than conventional medicines too.’.”
Hi Jason (or anyone else who might know),
After I use the UVB light, the skin on my legs started to peel after about 2 months of using it. I reduced the exposure time because I am afraid the peeling of the skin might reverse the rapid repigmentation. I know a lot of people have had vitiligo outbreak after a sunburn and I was wondering if this is similar to a sunburn and whether it will slow the progression of repigmentation or reverse it? I started using a combination of coconut oil, jojoba oil and avacado oil and the redness and itchiness is better but the peeling still continues. If anyone has any experiences with this please let me know cos im freaking out! Thanks
Jojoba oil is really great for acne because it helps balance facial oil
Great find, pcss. everyone, here is the original page which contains the full explanation for the above link.
https://www.biomedcentral.com/1471-5945/8/2/
See a comparison table of published clinical test results for improvement of Vitiligo here: https://www.biomedcentral.com/1471-5945/8/2/table/T2
Well . I have read all comments and theories given by all ,espicailly jason who started it . i am suffering with vitiligo for 8 years but only to less than 5 per cent on my body ,few spots on my hands and two -three on my face .i hav tried many treatment -allopathic ,ayurvedic and homeopathic…NUVBA threapy also. I also got cured by using NUVBA thearpy but after i left it ,white patches start coming agian .still i am searching and trying treatments.
I have noticed tthat nobody has mentioned about the diet during treatment,which i think is very very important what i have observed from my experience with the diease that if u stop taking citrus food it spreads very slow I.E food items like citrus friuts,colas. as i have stoped eating it has shown .
Further , i get improvment in my patches i will keep writing ,from tommorow i am goin to a new treatment .hope i get some positive for you Thanx Vishal from India.
Jason, did you ever try a product called novitil?
Jason, can you please post any before and after pictures to view your success in getting your pigment back. I know that some people are reluctant in posting pictures of themselves but if you can post a picture of for example you leg or stomach just to view your success I would greatly appreciate it. Thank you.
Hi Sara,
Thanks for your note. I am still using myself as a guinea-pig but (luckily I suppose) I am running out of white skin to try new things on. This has been a really slow process, but interesting. It has awakened quite an interest in natural medicine for one thing.
I am going to test out one other treatment option that I have not tried yet – i.e. if you search on the Web, there are alternate theories that relate to the involvement of the pineal gland in vitiligo. Some of the cicumstantial evidence ‘stacks up’ for me. So I might try taking recommended treatments that support healthy pineal function (Wood Betony, Lecithin).
I’ll keep any useful info posted to this forum.
J
Thanks so much Jason!
I agree with many things u’ve said, Keep experimenting :) who knows you might even find the real cure lol….
Good luck & all the best!
HI everyone. Sorry for the long delay in submitting anything to this forum. I got quite tired of thinking about vitiligo, treating it etc and just stopped for quite a while. I had achieved reasonably positive results, so lost some motivation for continuing. The patches are basically invisible in low light now, but still patchy/spotty in bright light, so this is the reason why I have re-started. My vitiligo was limited to two large symmetrical patches (inner thigh) so not too difficult to apply repeated treatment. These were totally white to begin with – i.e. apparent 100% loss of pigmentation.
I just wanted to summarise what I found so people don’t have to repeat all the experiments I did. Here is my OPINION on different treatments, and how they worked for me when i tried them (obviously everyone is different, and willingness to take risk, be persistent etc varies). I have listed them in order of effectivness for me.
1. NB UVB light: this was by far the most important factor in repigmentation for me. Without it, there were only minor improvements. I used a NB UVB light tube at home (look on Web for distributors) reasonably cautiously – i.e. only 1 – 2x per week for short periods (about 3-4 minutes). I did this to achieve mild pinkness, NEVER redness.
2. Anti-oxidants & vitamins – Vitamin B, Folic Acid, Carotenes, Xanthophylls and other anti-oxidants: these do seem to support repigmentation, though you have to be careful not to eat 1000 pills a day! Choosing healthy food rich in anti-oxidants (beetroot, carrots etc) also works.
3. Emollients: I discovered that the areas of vitiligo seemed very very dry – i.e. there was almost no skin oil. I have found very rich emollients quite helpful. I only used plants oils – NEVER use creams with Dimethicone, petrochemicals etc. This seems to make things worse.
4. Mineral salts: there is quite a lot of evidence that a product called Pseudocatalase (look on Web), which works in combination with NB UVB to remove hydrogen peroxide from the skin, is effective. I did find that mineral salts (including those in Pseudocatalase) seemed to speed up repigmentation – especially, causing small brown dots or freckles to appear.
5. Kalawalla (polypodium leucotomos): I think this is useful. It is supposed to balance the immune system – but in my experience, it also reduces skin sensitivity when using NB UVB. This allows slightly longer exposure without burning.
6. VitilVenz (oils – see earlier posts): this showed some really strong signs initially, but was not sustained. I got some really fast repigmentation, but then it just stopped. I discontinued this, but would not rule it out as a useful remedy.
7. Natural Psoralens (e.g. Vitiligo-Tab, celery etc). I did not find that this approach was very useful. It tended to make the skin yellow-ish (like a fake tan) in colour, and too sensitive to NB UVB light. The effect was general though, so the white patches tended to remain lighter than the rest of the skin. In the end, only moderately helpful.
8. Piperine: despite the promising research, and some early positive signs using homemade creams containing pure piperine obtained via the Internet, I didn’t find that this helped much. I discontinued this.
9. Pharmaceuticals – note that I have not used anything like steroids or immuno-modulatory drugs (tacrolimus etc). Even though these may have worked faster, I had some personal safety concerns about these. However, these may be fine for other people. The risks associated with my approach are unknown, though I have not had any short or medium term side-effects at all.
In general, I have found that Vitiligo is definitely treatable, but you need a lot of patience. I have taken a pretty experimental and cautious approach, but it has taken me more than 2 years to achieve around 90% improvement – i.e. I have not found a ‘miracle cure’ yet!
That’s it for now. I’ll update later on any new discoveries!
Good luck.
Jason.
Hi VEN,
The B12 was prescribed by my doctor. As for Folic Acid and other vitamins, my uncle is a pharmacist and I asked him if it was ok to take them and he didn’t seem to think it was a problem. The vitamins have really helped. The vitiligo on my hands was spreading very rapidly and I think within 2 weeks of taking these vitamins regularly, it stopped spreading. So speak to your doctor about the dosage appropriate for you. I got a quite a bit of blood work done before starting the vitamins though. Hope this helps!
RA,
Did you discuss the taking B12 with Folic acid with your doctor or any other health professional?
Regards,
V
Hi VEN,
SYNALAR (fluocinolone acetonide) Cream 0.025% – This is the cream I used on my face. However, the doctors in Canada don’t want you to use it on your face because it can thin your skin. I made the choice of using it anyway. It’s safe to use it on your body but not on your face. So I still use it on my body and its working great. As for the vitamins, I take B12, Folic Acid, Calcium Magnesium, Omega 3, Vitamin D, Vitamin E
RA,
What oil did you apply?
What Vitamins are you taking and what dosage?
V
Hi Julian,
I think you’re right! Different things work for different people, depending on the cause of their vitiligo, the severity, the amount of time you have had it for. The only problem is it may come back. My vitiligo started on my eye when i was 7. The one on the eye disappeared with this ointment I was given by my doctor. Another one appeared when I was around 16. This time on both my eyes and it surrounded my eye, like an island. And now that is gone :). I am 22 by the way. My vitiligo also stopped spreading after i started eating healthy and taking vitamins regularly just within a month! Good luck with your daughter!
I keep hearing that vitiligo has no cure, which I think means there’s no 100% proven treatment that works for all. However a given treatment might be very successful for Person A but not Person B. I’ve seen live testimonies with my own eyes from people who suffered the condition and were able to eradicate it completely. I guess it depends on the stage and severity of the condition and how well your body and skin respond to the specific treatments. Am I wrong? I hope not because I don’t want to see my daughter suffering from this for the rest of her life.
hi nabil,
at present, there is no cure for vitiligo; however, there are many techniques you can use to live more comfortably in your own skin.
can you cure my vitiligo?
how many pills do you use in the formula?
This is the best website I’ve found!! I developed vitiligo in November 09 and just felt traumatized. I’m definitely going to try the home made remedy of vitilven. I too have it on my lips and it is getting worse. Protopic does not seem to be slowing it down. I do know it a long slow process but I didn’t it should be spreading more while being treated. Thanks to all of you for writing. it’s very encouraging.
Hi Jason
Can u pls let us know whether ur still doing ur experimet? If so, any updates?
Tnx
i got mine on ebay. its called dermalight 80. just search that on ebay and there is a provider from germany that comes up. i am satisfied with the product and their warranty.
hi lisa,
have you checked online? if you decide to go this route, be sure to check the company out thoroughly and look at the returns policy to be sure that it is acceptable to you. Also, check the yellow pages online to see if their is a dealer in your area.
cheers,
nathalie
Does someone know where I can get a portable UVB lamp (new or used) for a good price? Thanks,
Lisa
Hi Dario,
Please see TN’s posting dated 20 July 2009 at 3:06 pm for oil proportion.
Thanks,
Shekar
Hello everyone,
im trying to work out the quantities of the formula for vitilvenz
a) Extract of Pimiemta racemosa 1:1
b) Extract of Cucumis melo 1:2
c) Extract of Citrus aurantifolia 100 ml
d) Coenzyme Q-10 100 mg
e) Pyridoxine Chlorhydrate 100 mg
i dont understand how much is 1:1, what is unit to mesure it?
i got that 1:2 is half but of what? 100ml?
is there anyone that has a general idea please
thanks
Hi Rick,
Thanks for sharing information regarding Meladinina cream. It has been very difficult to isolate and identify what has helped in the slow repigmentation. My son is undergoing Homeopathy treatment (for last 1 year), taking strong doses of b-12/folic/biotin tablet mentioned in this blog (minus coq10 capsules) for the last 6 months and has been on a strict vegetarian diet. He wouldn’t let us apply this oil around his eyes. So we have been applying this oil on his hands and legs for the last 4 months. We have been giving him avacados,pumpkin seeds (pepitas) regularly for the last 2 months.
I try to put him on and off on wheatgrass juice to detoxify his body (He was -ve for any food allergy).
We try to expose the spots to sun for 15 mins but I guess that hasn’t helped much.
We started noticing little repigmention about a month after putting him on b-12 supplments (So I can tell this certainly helped him).
I can understand your anxiety but, like I said, it is very slow and could be very discouraging if we expect immediate results.
Thanks Again,
Shekar
Shekar
Did your son repigment using the oils mentioned above? If so, how long were you applying them? I started my son on the oil treatment and it did not work on him. I guess that people ask for pictures so that we can some how see that there is hope for vitiligo. I had been using Meladinina cream on my son before the oils and it was working on him but the repigmentation was slowing down. I came upon this blog and decided to try the oils to see if they would work on him. Since the oils did not work I have now started using the Meladinina cream again. I created a blog to show the progress of the Meladinina cream, if you are interested in viewing before and after pictures just google “vitiligo invaded my son’s body” to find it.
Guys,
I understand we are using this site to share “reliable” information since there are so many vendors in the market who claim to have a cure for vitiligo. By now, we also understand that several factors are involved in pigmenting (i.e. what works for one may or may not work for others). If you notice this blog, Jason and TN are the ones who have reported maximum success. If you analyze the details further, both of them were undergoing UVB treatment, which could have helped them attain better success. Also one of them identified the cause for their condition (hair dye) and avoided using it, which could have helped in repigmentation.
Please don’t discourage people from reporting their success. At the same time, please post your experience / results so that we all know what works and what doesn’t.
My 7 year old son is repigmenting on his hands & legs but I don’t see any improvement on his face (I suspect that the colortration concealer he is using is preventing re-pigmentation). And we are not in the business of taking before and after pictures.
So please focus on all the factors that impact pigmentation.
I put the oils on my 9 year old son for almost one month and he did not get any color back. I feel bad that I had to subject him to this remedy because I feel that it may not have worked on Jason. If I would have read the last comments before I started putting on the oils, I would not have done it. The smell from the bay rum itself is very strong, and it does not make sense that Jason was putting it on him twice a day (morning and night) and still go to work smelling like that. I had to wake up my son earlier every morning before school so that he could take a shower, because the smell was that strong. When I put on the oils, I had to put a blanket on the sofa so that he could sit down and watch tv or else the sofa would get penetrated with the smell. This went on for almost one month. If someone else has had success with this remedy please comment on how long it took you to get your color back and also please post any before and after pictures.
I agree. How hard is sharing a photo?
i’ve read comments from some people who have said certain oils work, but i’d be apprehensive since no evidence was forthcoming. having access to a digital camera is fairly common these days, so i find it hard to excuse not supplying them to show others how a product worked for them. jason is someone who has been kind enough to share his experiments, but he is not affiliated with this site. ;)
I want to thank you Nathalie Pelletier for posting a reply. I some how thought that Jason was the author of this blog. Can you please tell me if the oils that are mentioned here have been used by someone and have helped them to re-pigment their skin. Since you are the creator of this blog, who is Jason? There is a Jason who gives out the ingredients for the oils, is this someone who is related to this blog or someone just like me posting his experience with certain treatments (in this case the oils)? Thank you in advance.
hi name,
thanks for bringing up these points, it gives me an opportunity to explain in case others have the same concerns.
my name is nathalie, and i am the sole moderator of this site. if i don’t answer questions left in comments, it’s because i don’t have an answer. i’m not a doctor, scientist, or researcher. i am a woman with vitiligo searching for answers, like you. the comments area is set-up to moderate all comments that include links. you would not believe the amount of comments submitted that are disguised as a person with vitiligo who has had success with a product, which in fact, turns out to be a company using this site as a sales platform. this is why i frequently remind people that if they have had success with a treatment, to include before and after photos for verification.
don’t feel ignored. if neither i, nor any of the other readers, respond to your questions, it is because we just don’t have an answer for you yet.
all the best,
nathalie
I noticed that you guys (moderators) of this blog will not answer the questions that people are asking but you will delete posts of anyone who posts a website or any other remedy that may help vitiligo sufferers if it has nothing to do with the oils that you mention here. If you have time to actually read and delete these posts why can’t you just answer the question that are being asked. I have been asking questions since September and you guys have not even answered one. Come one, people that come here are here because they want to find a cure.
hi everybody,,,
read emilys vitilgo…..and i hv had the experience personally…when once i was taking ayurvedic medicine and was on a strict no no to diary products my vitilgo did slow down…but smhow carelessly i stopped that treatment and took milk and milk products…my skin began to etch at arms and bloches started forming there…was kind of weired…n then even wen i took cold drinks or flavoured drinks the same thing happened…did not understand at that time..but maybe there is a corelation…
I finally got all the ingredients and have been putting it on my son for one week already. Can someone please tell me how I can tell that it is working on him. So far I do not see any color coming back. Is he supposed to get sunlight? Also, the smell from the bay rum is very strong, is it supposed to smell this strong or did I put too much? Thank you in advance.
For the last seven years I suffered from vitiligo. I now have it on my face, hand, chest, feet and elbow. I used Novitil and had a measure of success with it. It brought back a lot of freckles on my face. You do need the sun whatever time of the day does not matter. It is slow but it did work. I used it in summer since I like outdoors sport but it is less effective in winter. I also tried the exemer lase and found that my skin was so sensitive to it I could not tolerate the burning sensation and my face looked as if I had deep fried it in oil for a while. Consequently I would swell, had a lot of breakout and be out of work for 3 to 4 day but I would get frekkles. Not worth the pain or the money. Vitamin seems to improve my skin tone, b12, folic acid, vitamin c. I do UBV treatment at home. It also help. Recently I have tried Sesderma vitises a gel regulator that you apply to your skin twice a day. The skin tangles and get pink and pigments are showing on my face. What is interesting is the fact that the main ingredients are 2% melon extract, 1% Ginkgo Biloba and .5%calcium Chloride. You can find it easily just google the name. With all the talk about Vitilvenz I saw a connection with some of the ingredient most specifically melon extract. Thank you to all and everyone for the testemony. It always keep my spirit up when vitiligo brings me down. Cheers:)
VJ,
I live in the U.S. I was able to get the cucumis melo oil from the uk version of the popular online auction site.(e to the bay)
Jason and All,
Anyone know how to get Cucumis melo (musk melon) in USA. I have searching for it in prepared (extracted) form but no luck.
Thinking if I can get musk melon (cantalaupe) and dry its seeds and then grind and use it the essential oil solution? Any other ways?
Thanks,
VJ
Can you please tell me which part of the melon do I use for the cucumis melo and do I grind it and then mix it. Also, I bought avocado oil that is used for cooking, is this the avocado oil that is used or is there another type of avocado oil. Thank you in advance.
Hi Lisa
I have trid the excimeer on my son. Seemed to work on the area around the eye. tried it for about 3 months once a week. Didn’y notice any real results. Work on some people I guess. But I have learnt that the skin on the face repigments quicker than elswhere so…… The hands feet elbows and knees are the hardest.
Hello and thanks for all the tips published here.
Our 7 yr daughter developed vitiligo when she was just 5. It began shortly after she started pre-K. Now she has noticeable white patches around her mouth, eyes, hands, feet, and knees. We don’t think she carries a stressful life at all. On the contrary she’s a very joyful outgoing little girl who enjoys friends and school. There’s no previous history of vitiligo on either family either.
During the first year we tried conventional dermatology to no avail. Now we’ve been trying Avitil (morning), Vitilvenz (night), and daily L-Phenylalanine capsules since 3 months ago. We haven’t really experienced any of the repigmentation improvements most people report though. On the contrary her hands and feet have developed new patches, although we don’t think this is attributed to the oilments. Her face continues to depigment slowly, especially on her eyes now. We don’t know what else to do.
Should we try NB-UVB in addition to the Vitilvenz oilment? If so can someone recommend a cost effective solution to try NB-UVB at home?
Also, has anyone tried a canadian product called Novitil who could please share their experience with the group? I’m a bit skeptic since they say it must be combined with direct sunlight for about 30 minutes a day, not sure if they specify what time of day. This contradicts the advice of most dermatologists who strongly recommend avoding sun exposure on vitiligo patients except for the early morning or late afternoon sun, which can actually stimulate repigmentation due to the infrared radiation.
Also, has anyone used or heard about the excimer laser treatment who can share their experience? At least one dermatologist told us that it essentially turns your face red. As you can see we don’t know what else to do to contain and reverse this skin condition. It looks like these oilments might work for some people, work very slowly on others, or not work at all. Any help, guidance, or moral support is appreciated. Thanks,
Lisa
I suffer from this since from 6-7 years (from first pregnancy). It is about 25% of my body now. Nearly 2 years of Vit B12, Folic acid intake didn’t help.I stopped using Protopic once we learnt it can lead to cancer.I started NB UVB about an year back with bakuchi powder but no luck.
I learnt from your posts that combination therapy is the way to go. I started consuming Welch’s Purple Grape Juice (3-4 cups a day)and grapeseed exctract 100mg\day.At the same time I added Chickpeas to my diet and started applying chickpeas paste every other day. Reduced NB UVB to 1 per week. Not sure which one worked I got excellent pigmentaion behind my ears. This vit patch (around 3 inches behind both ears) is atleast 2 years old and is now 75% repigmented. Other patch behind other ear has also started repigmenting but considerably slow. No other spots on the legs,back and private area have responded yet.
I have recently started the essential oil therapy. I am applying the oil every alternative day no result yet. I do not feel any itching or any kind of sensation after applying it. I am thinking should I increase the concentration.
Last week I was diagnozied with Hypothyroidism with high blood cholestrol (looks like Hoshimoto’s desease).I have started taking synthroid. Learnt from the internet that this is also a autoimmune desease and will stick forever.I am thinking to start Glutene diet. My current diet has lot of wheat in it and I am thinking I may have Gluten allergy.
Jason,
Is it advisable to do NB UVB with these oil solution applied on the patches. Do you see any risk?
I posted that my wife began using this back in June after we got 3 jars from Venezuela. The initial 3 weeks looked promising, repigmentation began around the hair folicules and expanded so that some reasonable sized areas of her larger spots completely repigmented.
For some reason, she stopped using it reguarly and we never saw better results.
She is back on it now and again after a couple weeks, the repigmentation has begun again. Lets hope she sticks with it this time.
It is a pain though, takes a while to apply to all the spots, and its a little greasy. She has also started taking the sun with it on.
Will try to report back in a month or so, assuming she sticks with it this time.
P.S. being in Miami, knowing lots of people from latin america, its not hard to find someone who has a friend coming to visit from Venezuela. Ask around.
Its me again anyone know about the treatment offered in Cuba. Any positive results.
Please let me know
Thanks
Roshnie
Thank you Jason
Strangely no doctor has informed me any of these findings as you have stated. I am definately going to take control of this situation and try these mixtures I am feeling very positive of the piperine. Please keep us updated everyone…. your findings. Once I all the ingredients required i will start trying it out. \
Thank you all you sweet people
Roshnie
Hi all
I have been reading all your comments an feel very positive. My son, 13 has Vitiligo. I hv been feeling so helpless. I just want to cry all the time. He has had it for about 5 years but over the last year has spread quite a bit. Initially strted as 1 spot now has many many mostly on hands and feet, lips knees and elbows and few scattered spots. I have tried many many remedies i searched on the net and from the dermatologist. Oils creams tablets. I WILL not give up like all you people ot there and really appreciate all the advise and help given. I have always relied on the doctors to show us the treatment options but now like all of you i am willing to try tese oils.
Thank you
please keep updating us on all your trials.
Roshnie
Hi Jason,
You said you contacted the vitilvenz people in venezula, do you have their website or email? i tried searching on venezula’s google but i couldnt find any info.
Im hoping that they might have relaxed trade agreements with Australia rather than American but i doubt that.
So pissed off that countries arent allowed to export things like this because of politics, something that clearly has natural agreements and trials behind it should be allowed to be exported anywhere….
Thanks,
Shane
Hi, Irene –
I agree with the acupuncturist: research indicates that many vitiligo sufferers are simply not absorbing the nutrients that they ingest. I *definitely* have digestive tract issues. I started a course of pro-biotics (acidophilus etc) a while ago and that helped my digestion immensely.
I believe that my digestion was affected by a course of strong antibiotics that I took just before I noticed the onset of vitiligo (maybe a coincidence, maybe not). I would strongly recommend that people with vitiligo ensure that their digestion is working well – e.g. there is research suggesting that some vitiligo suffers have reduced stomach acidity (taking small doses of cider vinegar or prescription HCL acid with food is recommended to help digestion in these cases).
Vitiligo is sometimes called ‘multi-etiological’ – meaning that there may be several combined causes for it (immunological, genetic, neurological, environmental etc). Since this is the case, my approach to treating it has also been multi-facetted – i.e. improve digestion, change diet (increase intake of anti-oxidants) and use topical ointment with UVB light. This has worked to a satisfactory extent, even though it has taken quite a long period of time to get results.
One thing I can say is that nothing much seems to work unless NB UVB is part of the treatment regime. I stopped UVB when the vitilvenz oils seemed to show strong promise. That’s when the improvement slowed to a stop, so I have started occasional UVB again.
I am hoping the results of my various tests can help others in future -i.e. so they don’t have to waste time on things that don’t seem to work.
I will keep posting to this site.
Jason.
PS anyone got any signs of re-pigmentation using the vitilvenz oils?
Hi Everyone,
Jason, TN & everyone,
Thank you for sharing all the above, My grand mother has vitiligo, very recently i have started noticing my skin is going light arround the cornor of my lips, the skin is not while, not pinkish , but just light in colour. I have ordered all the oils plus the vitamins pills you have mentioned in your previous posts and soon will start to make the cream and apply it. apart from that i have also ordered Vitamin B complex which includes B12 (50 MCG) and Folic( 50 mcg), what i am concerned is, is the quantity enough to make any difference ?
I would highly appreciate it if someone could shed more light
Hi Jason!
Glad to see you back, and to see you keep searching. My experience with vitilvenz on my son is still disappointing, no change at all. Makes me worry his vitiligo might be a lot harder to fight than yours for example. Very interested in hearing about that new option whenever you are ready for it. I was also given a new recipe, apparently by an american chaman for a cream which includes key lime (also an ingredient of vitilvenz) and Aloe ferox, but both fresh. As it is simple I will cook it myself and will let you know.
And I keep wondering what the causes are: if it is lack of nutrients as my acupuncturist says, WHY are they not properly absorbed if eating healthy food and even given supplements?
Good luck to you all,
Irene
Hiya,
How is everyone going using the ‘vitilvenz’ oils?
I found that i had really promising/fast improvement at first, but that the rate of improvement has slowed considerably. Nevetheless, I am now quite pleased with the results, though I am still waiting for the last stubborn areas to repigment.
As I noted before, my vitiligo is symmetrical (both legs). One side has now repigmented excellently – i.e. 95%, with the remaning 5% semi-pigmented with small spots. The other side has only improved slightly since my last post – around 80% of the area has repigmented, with the remaining 20% covered in spots.
I am investigating another quite promising natural option right now. I have decided to try it on the area that is not responding well to the vitilvenz. I won’t post anything on this until i get evidence that it works. I don’t want to come across as a quack, even though I am trying everything known to man to get rid of this!
I’ll keep posting to this site.
Jason.
PS some people have asked about using the vitilvenz oils on sensitive areas – I have found the oil quite irritating on sensitive skin, so would suggest a lower concentration/dilution.
I wanted to thank you for creating this site and sharing all the this information with us. My 9 year old son has vitiligo. Can these oils be used on him and what do I need to look out for when applying them. thank you in advance.
Irene,
In order to make Vitilvenz it’s easy to find all the ingredients in Spain, excepting cucumis melo. But I think that products based in Extramel (melon extract) can be useful. Look for Extramel in Google.
So long!
LAST QUESTION
How much black pepper oil to carrier oil do you use?
I have prepared 2 batches.
1 oil as per Jason’s instructions (using lime, b6, co-enzyme 10, bay oil, carrier)
1 oil which is 10ml black pepper / 100ml carrier
I am putting one preparation on each arm for one month and monitoring the results. Whichever yields the most re-pigmentation (if any) will be the solution I use going forward. I will also put up a blog if anyone is interested, to track weekly results.
Does anyone think that black pepper preparation may be a bit strong? Please advise if you think so. It’s appreciated greatly.
I’m combining the whole routine with 50mcg b12 under the tongue (daily) 10mg folic acid (daily) and 1/2 st johns wort (daily)
Anything I’ve missed?
PS
One more thing, I can source these items but only in 10ml quantities in NZ. That will do for the time being but Jason (or anyone else) can you please supply a web address where I can buy online in the 100ml quantities?
Thanks friends, will update you on my progress, starting today.
Also, noticeably the Vitilvenz site has gone down. What does that mean?
I hate vitiligo. It has ruined my body. I look hideous. I hate people trying to rip us off! They are despicable.
Question – can you use this mixture on the genital area? Have heard mention of discomfort and burning. However I have severe and unpleasant looking vit. on this area that I would greatly like to see improved.
I would really like to speak to someone directly who’s had positive results or see photographs on a weblog or something. Just some evidence of people’s success?
I have been taking huge doses of folic acid and b12 daily for the past 6 months and can say that this has halted the spread of my vitiligo. It has not reversed anything it is merely stable.
Hi PM,
I have no idea – you might ask her yourself as she seems very communicative in general when you contact her by email: “janeth rojas” . I found her mail on the internet so feel free to write to her.
Did you get your ingredients in Spain or from the internet?
Still no significant changes here after a month now. I am starting to doubt about the whole thing but well, will carry on at least for a few months.
Has anyone of you tried Ginkgo biloba?
All the best,
Irene
hi jason or anybody else,
you wrote: Vitamin B + psoralen-containing herbs
any suggestion? tried to find it, but was not lucky. thanks.
hi frnzz
for those who prepare it at home..do u prepare it in bulk or everyday..??? like 100 gms as gvn by irene..
Irene,
I’m also Spanish. I’m going to try homemade Vitilvenz, but I have a question: do you think that I can make-up my spots after applying Vitilvenz (maybe 20 minuts after) or not? Did Janeth Rojas tell you something with regards to this subject?
Kind regards,
PM
Ann,
I do use peperine in mine and If you like to add the peperine oil to this mix then you can get it here: aroma-pure.com I added about 20-25 drops.
Tom
Irene,
Thanks for your response. Thanks to Jason and TN for the Vitilvenz receipe. My son has been applying it for little more than 2 weeks now. I don’t see any change so far. Hopefully, I will see some change in the next couple of weeks.
Thanks,
Shekar
Hi Lucas,
A breakdown of the cream was already given by JAson, a few months ago;
I will translate what it on the tar:
100 grammes contain:
Aq. Ext. of Pimenta Racemosa (bayrum leaves) 1:1 27,2 ml, Aq. Ext. of Cucumis Melo (melon peel) 1:2 18,3 ml, Aq. Extract of Citrus Aurantifolia (Lemon peel) 1:2 15,0 ml, Coenzyme Q-10 0,1 gramme, Vit. B6 (Pyrodoxine Clorhidrate) 0,1 gramme, Essential Oil of Eucalypt (Eucalyptol 0,03 ml, Excipients c.s.p. 100,0 g. (??? I don’t know what c.s.p. means)
The Epivital I don’t have, but on their site (www.jerico.com.ve) you can find it contains Aloe Vera, Vitis Viniferas (grape seeds I suppose), Vitamine C, Betacarotene, Vitamine E. I don’t know whether this description is complete, suppose not.
Hi Shekar,
I got vitilvenz through the boyfriend of a friend of a workmate of… it is not sold here in Spain, I think only in some latin american countries, Cuba has it I think. But what people do here is an excellent idea I think, exchange recipes and inform. In fact, I just bought one jar but if it works I will make more myself, a lot cheaper I am sure.
By the way, no change on my son’s skin, have been using for three weeks now…
Cheers,
Irene
Tom-
Thank you very much for your reply. Despite the strong smell (yuck!)-I will keep using it. One more question for you: Do you use peperine in yours? If so, where’d you find it?
Thanks again!
Ann
Ann, My b6 didn’t dissolve completely either but it works just fine. I might pour the whole mixture into a clean new pesto and crush/mix it again to get it to dissolve. But at this point I probably don’t need to.
You won’t see anything significant for at least 10 days to 2 weeks. Just keep using it once in the morning and once at night before bed. I was very skeptical at first but my face is 80% better after a couple of months. Good luck to ya.
Tom
hi,iam from venezuela ,but i live here in new jersey,i got two jar of 100 ml, fr my older sister,the version from the institution ,social security hospital,VITILVENZ, is not providin the ingredient of bayrum leafs,the one i got has it ,bayrum leaf extract, my cousin is using the other version, i am tring to get info fr him .who recommsnded vitilven to me .he got vitiligo for years ,he use the old version of melanina fr cuba .he said vitilvenz is better and faster,pls understand ,faster in vitiligo is slow motion,i stared using for coples weeks iam surprised,i am frecklin,in my hand,pls use the home made formula or see how we can get together and order so my cousin or my sister thru Caracas,Guayaqil ,usa , 2 week but is a litter cheap,guayaquil post office is usa post office,since years so we can relay onit,any intres contact me,jose,thankws
Hi guys,
Im so happy to have found you all on this site. I feel hopeful. Anyway, I was determined to make this mixture because I didnt feel there was any way I could go to Venezuela and pick up the Vitilvenz and then it hit me….my grandmother married a man from Venezuela a couple of years back. Duh! Anyway, I spoke with him this morning and he’s having his son who lives there, send me some of that cream. I really believe its just a matter of time before we can get it here without having to go through all this hassle. Has anyone else contacted the company that produces it to see when they will be able to send it to the US and other countries? Im still very hesitant but it seems that all you that have made the vitilvenz home made version have had success with it.
I will let you all know how it goes. Wish me luck as I wish all of you luck as well.
Hi Irene,
Please let me know, how you purchased the vitilvenz cream ? Can it be ordered online ?
Thanks,
Shekar
hi everyone
my name is lucas. like most i am very sceptical when it comes to new so called cure for vitiligo, because i have also like most been duped by the snake oil salesmen that seem to be all over any site that has anything to do with vitiligo.
i have had this condition now for seven years and it started in my early twenties, i have a number of patches more over the right than the left, and it still although slow, spreading!! recently it spread to to my face on my chin about the size of a five pence/cents coin.
i have spent a fortune tryingto find a ‘cure’ but noting has worked, although spending a year doing nb uvb treatment at the hospital did seem to slow it and re pigment some areas, but it has come back.
i am currently taking gingko supplements which i was assured by my dermatologist would slow the spread, six months on and nothing.
As i’m sure everyone is aware this is an emotionaly draining condition and sites like these do give a glimmer of hope in our ever raging battle against vitiligo.
thanks to all who take participation in this site especially natalie and jason who seem to be going the extra mile for all of us.
p.s. could anyone give me a straight forward ABC breakdown of the vitilvenz cream and these pills that go with it so that i can try and source them, there always seems to be different variations with everyone. thanks again.
Thanks for your help Irene. I think using a warm towel to open the pores is an excellent idea! One of my children had horrible eczema as a toddler and I’d forgotten, but using a warm compress was something the dermataologist had us do before applying medicine. Since I read your post, I’ve been doing this before applying medicine.
I tried making my own ‘vitilvenz’ using the recipes above. The CoQ10 mixed with the oils okay because I used a soft gel tablet, but despite crushing the b6, it didn’t dissolve into the oils. It can still be seen floating in the mixture. For those who made their own mixture, how did you get the b6 to mix well? Do you think my mixture will still be effective although the b6 is not completely dissolved? I’ve used it for 2 days and haven’t noticed anything. I’m not even noticing a “tingling” when I apply. Of course, I know 2 days is not enough time to see any difference. But,I wonder if I should try to make the mixture again. I would hate to waste the oils, however I’d hate to be wasting time using something that’s not effective because the b6 didn’t dissolve. Also, I didn’t add peperine oil. So many questions . . .
Hi Ann,
I got the cream from Venezuela (EXPENSIVE!!! 60 euros for just 100 grams) and also indications from Janeth Rojas, the “author” of the cream. Here is a translation for you:
“Must be applied during the day and at night. After washing the affected area, apply lukewarm towel, in order for the pores to open and to guarantee the cream will be absorbed because of the warmth. Take a small amount with a small stick, so as not to contaminate the cream and apply with your fingers rubbing softly untill the cream is absorbed completely.
You must make sure the cream is present 24 hours a day, if you wash or bathe, or if you sweat, you must apply it again, after washing the area even if you do not apply warmth a second time.
Used together with oral anti-oxidants (Epivital), and phenylalanine, these are efficient complements for fighting vitiligo.”
Good luck and let us know how it goes. I will also keep you posted on my experience. By the way, the cream also has Eucalyptol it says on the jar.
Irene
One more question: those of you who are using the Vitivenz formula how many times a day are you applying it? Once or twice?
Okay, I’ve just reread everything again and I think I have a better understanding of it now. I saw TN’s post above where she really does spell everything out. I’m going to order all my supplies and give this Vitivenz/Jason formula (as another poster called it) a try. Thanks to Jason, TN and all who have contributed for giving me hope.
I recently found out I have vitiligo and have been desperately trying to find other options besides the Protopic my dermatologist prescribed. I’ve read through the responses here, but I’m still lost. Does anyone have a step by step description of how to make this Venezuela cream? What website are you guys ordering the oils from? I’ve read lots of talk about anti oxidants. Which anti oxidants and how much is recommend to take?
Thank you very much for any help.
Hi Irene,
These oils (especially lime) are very irritating if used in an undiluted form, so do take care. Some people are diluting it with oils. I have never been sure whether the ‘aqueous’ extract is a water-extracted oil, or a true aqueous extract. I have started to use aloe vera gel to dilute the oils (to about 1:4 dilution – i.e. 25% oil, 75% gel). I am not sure, but this seems to aid absorption and speed up recovery. I am still finding that there are positive signs from using this. Good luck. Jason.
today started chickpea flour and 5mgs piperine in water each hand for ten minutes
will try to do it for 30 days to see if any results
Thank you ahmed. I will ask that with my dermatologist just to be sure.
Carlo,
If you are trying to figure out if you have tinea versicolor (fungus) or vitiligo, you should be able to find out quite easily by using a wood’s lamp, which you find in a dermatologist’s office.
If your dermatologist already diagnosed you that way, then you should start using proper medication immediately, since the sooner you start treating the vitiligo spot, the more likelihood, the spot will go away.
Hi to everyone!
I went to two dermatologist because of the white spot that appeard on my skin near my right eye. The first derma told me it was just fungi, she gave me some topical creams to cure it but the size went double so i decide to seek second opinion and the second derma told me it was vitiligo. I was devastated. The doctor gave me sterocort and meladenine cream for treatment.
My friend told me to rub a small piece of garlic on the infected skin, if it will burn my skin that means its fungi. I tried it and it burnt my skin but when it healed the white spot is still there.
Can anyone give me comment on this? I would greatly appreciate it.
Thank you so much,
Carlo
Hi,
Thank you all for your generous information, my son (11) has vitiligo and I am currently trying to get the original vitilvenz from Venezuela (I am Spanish and have contacts here with relatives there) but are also considering the possibility of producing it myself. One question: JAson, TN, you use essential oils of lime and bay rum but the recipe says “water extract” – does this difference does not matter do you think? I would think essential oils must be a lot stronger than extracts? I worry about this because I don’t want to spoil my son’s skin, if it were me I guess I would worry less.
Further: have you read about the product “Epivital”? Anti-oxidant pills used in Venezuela together with the vitilvenz. What do you think about it?
Also: if you need any translation from spanish sites please let me know, I will be glad to be of some help.
Irene
Jason,
Thank you for testing this out originally and posting it hear for us to try. What you did helped atleast one person.
TN
TN – good to hear you are getting some results.
Keep us posted.
Jason.
Lola,
I got it from SilkyScents and here is what I bought:
Item Number: 803X4 Avocado
Item Name: 4 oz Carrier Oil : AVOCADO
Item Number: EO157- 1 oz
Item Name: 1 oz Essential Oil : BAY RUM (Leaf)
Item Number: EO30- 1oz
Item Name: 1 oz Essential Oil : LIME
I only have vit on my face so I don’t use very much, this order should last me a long long time. You should mix the lime and bayrum with the vitamins (coQ10, vitamin B6 I used an emptied small pocket size bottle of mouth wash to shake everything together) first to dissolve everything before adding the avocado oil. almost like making a salad dressing but for your face lol ….
Here is how I mixed mine: add 1/2 oz of lime extract to 1/4 oz of bayrum plus 100 mg of coq10, 100 mg of B6, and then mix this whole thing with 2oz of avocado oil. if you like to add peperine then start with 10-20 drops. This mixture will burn a little but the burn is only temporary and should go away within minutes. I’ve found that if I use a moisturizer right after putting this on, the burn will come back, this tells me that a good moisturizer also acts as a carrier to help penetrate deeper so it is good to use in addition, this will also mask out the weird aroma that these oils put out.
If you like to add the peperine oil to this mix then you can get it here: aroma-pure.com
My face is is getting better and better so this stuff does work. Good luck.
TN.
where did you get lime water extract and all other ingredients from?
thanks in advance
I’ve been using the Vitivenz/Jason formula about 10 days now. Too early to see a difference. I’ve also been taking a lot of supplements: resveratrol, krill oil, Centrum, b-complex, turmeric, and ginko biloba. I think I’m going to stop the turmeric, because I read about a study (https://www.vitiligo.eu.com/turmeric%20influence1.htm) that suggested that turmeric can impede repigmentation, though I’ve also read that turmeric/mustard applied topically is an old, old holistic remedy. I’m not quite desperate enough to give up meat, but those of you who are doing so, let me know how that works out for you.
Cito,
Have a look – I answered you above.
Not sure – do you think trying the antioxidant approach is worth a shot?
Also, try diet. I have read heaps on diet – e.g. stop eating meat for a start, and include black chick peas (Kala Channa or Chickpeas Tyson) in your diet. Some recommend including whey powder in your diet too.
You can also try taking phenylalanine, which is a protein that helps melanin synthesis. Also, make sure you take a good multivitamin supplement.
I agree with Nathalie that tattoo could be an option – I looked into it and it can work if there’s no other way that works for you.
Sorry to hear it is affecting your relationship – when I first got vitiligo, same happened to me. I felt very weird about it. Thing is, your partner should accept and love you and support you through this.
Keep in touch, and try to keep relaxed. Don’t forget you are not alone. There are soooo many people in the same boat. Jason.
is there any alternatives to returning pigment to my lips other than permanent make up or uvb..like any naturals herbs or medicine or foods like chickpeas…i desperately need to bring the pigmentation back to my lips…its affecting not only my life but relationship..someone anyone help..and has anyone on here heard of or know of anyone getting the pigment back on there lips..the pigment on the spots on my chest have started to return on there own..with no treatment..someone let me know something
Hi Cito,
Have you thought about permanent makeup? i know ppl use it for lashes, eye liner, lip color…etc. i found a lot of info on the internet about it. here is an example: https://www.auraofbeauty.info/lipshapes.html
so if i take those anti oxidants than the pigment on my lips should return?
Ahmed, thanks for the info on the musk melon oil! Jason. PS so many posts now, it’s getting hard to follow and answer them all. J :-)
Sorry, I have not answered everyone – Michael asked what proportions of each oil: You have to use a carrier oil (e.g. avocado) with the ‘active’ oils (Bay, Lime) to achieve AT LEAST a 50/50 dilution because the active oils are quite astringent/irritating.
Just adjust it until it tingles but doesn’t sting and it should be OK. Then again, don’t dilute too much as it seems to slow the improvement process down.
I add a small amount of the other ingredients (vitamin, co-enzyme q-10) to the oil, e.g. one standard-sized pill of each to 100-200 mls.
In short, I don’t have a definitive answer, just trial and error!
Jason.
Cito,
I have some vitiligo under the eyes, which has improved without using the more ‘irritant’ treatments I have tried (essential oils, piperine, NB UVB). I can only guess that this is because I also take quite strong anti-oxidants each day.
So, maybe try taking quite a potent mix of anti-oxidants – e.g. things like krill oil, astaxanthin, vitamin B complex, resveratrol, Acai or Goji berry each day. These are available at most health food shops. They are quite pricey though.
It’s probably best to take these spread out through the day. I have found that anti-oxidants tend to give you a bit too much energy, so best not taken at night or they can interfere with sleep.
That’s all I can think of. Good luck!
Jason.
Hi all – sorry for the long post (below) but it has been over a month since my last one.
——————————–
Wow, cool to see others having some sort of positive experience with the ‘vitilvenz’ mix of oils. Well, initially I had such fast and dramatic improvement I was *really* excited. The good news is that I am still getting improvement; the bad news is that the rate of improvement has slowed considerably. Still, I have tried SO many different things over the past year, and I think this oil has been the most promising. What I notice is that you don’t get freckles or spots using these oils – but reasonably even repigmentation.
Interestingly, one side (my vitiligo appeared as a symmetrical pattern on both legs) has now re-pigmented very well – it is not that noticeable any more. The other side is not responding as well but is definitely getting slowly better. A little bit of simple cosmetic cover is now quite effective for the remaining patches, whereas this was simply not an option before – I had large very white patches of skin that resisted any form of simple cosmetic cover.
I still use NB UVB, but only once a week. I also continue taking anti-oxidants (there’s a whole range of them on the market, including carotenes, Acai berries, resveratrol, krill oil etc) since I also have some vitiligo under the eyes where I cannot use irritating oils, piperine or UVB light. My eyes are quite a bit better too.
I have recently wondered whether or not alternating treatment regimes from time to time might be a good idea. I might try alternating piperine (which I have not used for since I started using the oils a few months ago) with the oil treatment on a ‘week on week off’ basis just to see if this speeds things up.
So, I am reasonably happy; but I won’t be totally satisfied unless the vitiligo goes completely, and am now confident this can actually be achieved with some patience.
It is all a bit of a mystery, but it has become an interesting ‘mission’ for me to try to treat this with natural products. I (like others) was a bit worried about Protopic/Tacrolimus because of the possible risks. Sometimes I wonder if I have taken more risk with all these experiments, but there have been no noticeable side effects as yet. Lets hope that using myself as a guinea pig has been a wise move!
I’ll continue to post updates from time to time.
:-) Jason.
ps – i tried a tar product ages ago and I don’t think it helped.
pps – any Narrow Band UVB home light kit will do the trick – just look on the Net for a supplier.
what treatments should i use to regain the pigment back in my lips..thats is my main concern..somone helpppp pleasee
Hi everyone,
I became very excited about this vitilvenz treatment after reading comments from Jason and the scientific study cited in Patricia’s comment. I was able to obtain all of the ingredients for the vitilvenz recipe. However, it was indeed very hard to find the cucumis melo extract. I did some research and found out that cucumis melo is the latin name for musk melons. While cantaloupe and honey dew come from the same family of melons. I found it very hard to get essential oils made from these plants.
I was finally able to find musk melon oil on the very popular online auction site (united kingdom version). I bought the musk melon carrier oil.
Think everyone
can benefit from reading
the article in Patricia’s comment
Thank You
Judah,
According to the recipe that Jason posted, q-10 + b6 + lime oil + bay rum oil + Avocado oil are used topically. and then take 100mg q10 and 1000 mcg b12 orally. I have discontinued the use of Protopic since I found out that it caused cancer.
I added peperine oil to my mix so now my recipe is: q-10 + b6 + lime oil + bay rum oil + Avocado oil + black pepper essential oil. This mixture burns a little bit more though. So far half of my vitiligo on my cheek, chin and sides of my face have faded and blended to my normal skin so you can barely see it. My eye brow vitiligo has freckled and darkened leaving only about 20% of the vitiligo left so I am very happy with the result.
Yeah, I broke out with vitiligo right after using a black hair dye myself. But I also had some emotional trauma, got a sunburn, and worked night shifts, all of which also allegedly cause vitiligo sometimes.
So are you actually supposed to apply the coenzyme q-10 and b-12 topically? I’ve been taking them orally, and putting the lime and bay oil on my skin, because I wasn’t sure. I guess it wouldn’t hurt to do both.
Hi everyone with vitiligo,
My dermatologist has mentioned using a tar treatment. Has anyone had any success with this method? I am currently using protopic clobetasol propionate ointments. Have not had much success with these creams. I am very interested in checking out Vitilvenz and will ask my dermatologist about it.
Sharon,
You can make that stuff, its pretty easy, I bought all of the oil from an online essential oil company and mixed it my self. I basically used 1 CoQ10 100mg pill, 1 vitamin B6 pill 100mg, crushed them and mixed with the lime water extract 100ml, bay oil water extract 50ml, blend it all together and then add the avocado oil about 200ml and voila … you can add more avocado oil if you can’t handle the burning sensation … lol. I started using this for two weeks rubbing it onto my face twi a day, wait for it to dry and then apply Protopic on top of it. I also take vitamin b12 sublingual 1000mcg, folic adcid, and b6. I also go out into the sun and tan every day for 10-15 minutes. So far I am starting to see freckles and some part are turning darker so am keeping my fingers crossed.
The reason that I got Vitiligo is probably because am using a hair coloring product that has amonia and other chemicals that causes my skin to react to and looses its pigmentation … Just for men even has the vitiligo warning right on the label. So now am switching to a natural hair coloring product by light mountain.
Anyway, I hope this helps and good luck
Vinnie,
I am getting light therapy from my doctor.
V
yep…me too want that suff…anybody clold help me over purchasing the venzuala stuff…need it desperately…
Hey Jason or Ven,
I’ve been thinking about purchasing a NB UVB lamp and I was just wondering which type you guys bought and where you found them. Thanks in advance for your help.
I gotta get my hands on some of that stuff!!! Anyone have suggestions or a reliable source from Venezuela???
I recently got a hold of 3 jars of Vitilvenz from a friend of a friend coming up from Venezuela. Approx $36/jar if you pay in american dollars (more like $100 a jar if you pay in venezuelan currency , so dont).
I got this for my wife who has had Vitiligo for 10+ years, she has tried everything you can possibly imagine (Indian, chinese, Cuban, Mexican etc ).
She has been using Vitilvenz for just 2 weeks now and already has seen better results than pretty much anything else, especially in this 2 week time frame. Some areas have freckled dramatically, other areas are completely browing over in larger patches.
She hasnt been taking any krill oil + resveratrol, and will wait until the 6 week mark before we do.
But this looks oh so promising. Strange how so many people seemed to have tried it years ago and failed, did the formula change ?
She is very excited about this, and we both have our fingers crossed that this keeps working as it seems to be.
Hi! I’m brazilian, so please dont laugh about my english, ok?
About Vitilvenz, the treatment is free in Venezuela, offer by they government,including for the foreigns.
They are searching a new cream that they call Melanoverd, it have most effects than Vitilvenz, but i dont know the formula.
But I know that vitilvenz, have (i dont know why) three formulas, the 3 are registred on patents sites,but the only that appears on the science study, with a pills is this formula.
Aqueous Extract of Vitillium 1:1/100ml,Aqueous Extract of cucumis melo 1:2/100ml,Pirodoxine Chloridrate 100mg,Coenzime Q-10 100mg,Base Cream 100g.
And the pills are:
Phenilalanine 500mg-One pill in each 12 hours
Vit a 20.000UI/Vit C 1.000g/Vit E 400UI/Zinc 15mg/selenium 50mcg/manganes 2mg/coenzime q10 75mcg/pycnogenol 1mg-1 pill a day
I hope that it will be useally for you, please if someone need a info about it look the research at:
THEY HAVE INFO IN ENGLISH
Hi all,
Sorry for the long delay between posts.
I am interested in reading about the Vitilvenz “debate” mentioned by Thomas. Thomas, I couldn’t find much discussion on it – could you send URLs / references?
I contacted the Vitilvenz people in Venezuela and got an email saying that they were applying for an export licence and that the only way to purchase it right now is over-the-counter at pharmacists in Venezuela! The cream is used in conjunction with oral anti-oxidants. The cost is pretty reasonable – I think around $US20 a jar.
I have no way to fly to Venezuela or get someone to buy if for me, so am persisting with the essential oils (note that I have not been able to source the melon extract, but that doesn’t seem to matter).
I started applying the oils (mentioned in previous posts) a couple of months ago to vitiligo patches that had not responded well to UVB etc, and have had very promising results. There is no doubt that the oils have helped repigment some of the remaining areas. Since I discovered that the cream is normally used in conjunction with anti-oxidants, I have started taking some krill oil + resveratrol. This may be playing a part in the improvement.
One small area repigmented amazingly quickly – i.e. in about a week, though this is not typical. The general pattern has been for the darker skin to ‘advance’ into the lighter areas. This is different from other treatments I have tried, where you get the ‘freckling’ effect, especially around the hair follicles.
Anyway, I am definitely going to continue with this, and will keep you posted.
I would certainly like to hear if this is working for anyone else. I am quite pleased with the results so far.
Jason.
hi jason….
ny updates regarding ur treatment??? hope thngs r gng fine?? n ur having good results (fingers crossed)
Rich, where did you read this?
I read blueberries have a depigmentation effect
Hi,
I have started my experiment after getting some inspiration from all the blogs about vitiligo.
I have vitiligo for the past 27 years… and I have tried every type of treatment with little success. I started UVB for the past 4 months and I am seeing some improvement especially near my chin and stomach areas ( especially places where I have hair).
Apart from UVB I am trying the following…
1) 120 mg of ginko daily or 60mg of Gingko with 2 nuts of ginko which I cooked or the weekend and frozed them.
2)50-60 Green chickpeas daily ( soaked in water overnight).
3) Applying black pepper oil on few patches ( only hands actually where there are hair focllicle and also where there is no hair) before UVB treatment.
4) I am also planning to drink BEET or wild blueberry juice
I am taking pictures of my hands from last week. If possible I will try to post them.
I will replace black pepper oil with Bioperine paste by the end of this month. I actually tried preparing black pepper oil over the weekend by steam distillation but was not successfull. If any one over there knows how to prepare black pepper oil let me know.
I will keep you posted on how my experiment goes.
Regards,
Jason,
I read a few posts back that you have prepared the oil mixture in a base of Avocado oil. Upon cross researching the nutrient value of this oil I notice that it has a high concentration of sterol/plant sterolins which when taken internally have been shown to be a useful immune modulator. Is it possible that that the topical application of these beneficial elements be useful for vitiligo? I am no MD, just another person with a insatiable desire to find a solution to this problem….
thanks!
and also how do you prepare the mixture containing all the oils and vit b6 and q10? do you crush the pills?/dissolve etc.
will appreciate further info.
hi all,
where did you get the cucumis melo oil from? i live in the uk, 99% sure have v. want to try the essential oil treatment. started taking all vitamins. will keep you informed.
Jason, do you have any before and after pictures we can view on an external website?
Kind regards,
Jessie, NZ 30% of body with vitiligo, 32 years old.
hi
this is fr micheal….did u see ny results with the new treatment u started????,,,with viveltenz…
Hi!
The spreading stopped after I bagan to take Gingko (2 years on and off).
And I have taken Piperine (9 months) orally with capsules on a regular basis and mixed the content of these with a vitamin-A based skin lotion and applied it topically at irregular basis. But up until now this had produced very little result, the skin had become less white, but it still stood out from my healthy skin in a big and noticable way (I am Northern European in origin).
The reason for not using the topical piperine everyday is that it produces a pretty severe tingling in my legs after it hits the bloodstream..
The freckles appeared about a month after I stopped drinking colas on a daily basis, so it could be both attributed to less acid, less caffine or less sugar, or it could have nothing to do with fact.
Also I started taking vitamin B12 sublingually a couple of days before discovered the freckles, so I do not know that had anything to do with it, as the freckles may have appeared before this regiment started.
hi john
good luck…wish its freckles for u……wat r threatments ur dng?? n for hw longg??
I see that some of you describe something called “the freckling effect”.
When I look at my lesion which is covered by clothes (thus seldom receives any UV), I see that some freckling has occured.
The freckles seem to occur around the hair follicles. At the present time there is only 4-5 freckles at an area of the size a matchbox.
Is this a good sign? The Lesion has been stable for years, what can I expect now? Is this the first step to full repigementation? Any experiences with freckling?
Tom,
Bioperine doesn’t contain 100% of piperine I think. I am not sure when they did their research at King’s college if they used 100% piperine.
I am more intrested to follow along those lines if not I will try Bio-perine.
Hei,
Google Bioperine
Jason,
Can you tell me where I can get Piperine from. I live in USA and I was wondering where I can buy this from.
V
Hi Jason!
Are you still eating black chickpeas? If so, could it be that the repigentation is from this source and not the oil? Have you tried to not treat some parts of affected skin to see if it really is the oil that is the key here.
Im asking because I see that the Venuzuelaen mix has been debated on the internet for about 4 years and very few have had any results and I have found no research to support its claim.
I have not heard alot about black chickpeas either, but at least there is some published research that it works with a pretty good repigementation rate.
It is inspiring to hear about your progress with the new “Vitilvenz” compound. I am having a devil of a time finding the ingredients here in the US. Have you considered making your own version of the cream and selling it?
hey, where did you guys get the cucumis melo oil? I was able to find the rest, just not that one.
Hi everyone,
The good news is that the ‘Vitilvenz’ compound (see above posts about various plant extracts) is working really well on the remaining stubborn areas of Vitiligo that I have. The areas of my skin that are freckled are becoming very evenly pigmented, and relatively quickly too. The remaining non-pigmented areas are darkening without the usual freckling effect, which can be a little unsightly.
I’d recommend it, but be careful not to use too strong a mixture: it does seem to make the skin mildly itchy and can make the skin a bit irritated if you use too much. I don’t think it matters what you use as a carrier oil, but I use avocado about 50/50 dilution to the main essential oils. I only use about 5mls of this diluted oil once a day(in the morning after shower).
This is, in my opinion, the most hopeful treatment I have trialled. I have even stopped using NB UVB. I still take some antioxidants etc tho’ – they seem to be good for my energy and health in general, so why not!?
I’ll keep you posted.
Jason.
Jason,
Thanks for posting the info on Vitalvenz. I have obtained Pimiemta Racemosa (East Indian Bay) and Citrus aurantifolia (Lime) essential oils and the Coenzyme Q-10 and Vitamin B6 pills locally (Berkeley, CA, USA). I couldn’t find avocado oil so I will try Jojoba oil as a carrier instead. What ratios are you using in your mixture and how often are you applying it? Thanks.
Michael
Jason S – sorry, Pyridoxine Chlorhydrate is Vitamin B6 (not Vitamin B12) . Jason.
Jason S,
Hi….
Yep – not alot of info on this in English. I think everyone expects all info on the Web to be in English, but this discovery was made relatively recently in Venezuela, so it stands to reason that most info is still in Spanish.
I found that some of the ingredients in this topical ointment can be found relatively easily in the form of essential oils:
‘Pimiemta Racemosa’ is otherwise known as ‘Bay Rum’ or ‘Bay’ oil
‘Citrus aurantifolia’ is just ‘Lime’ oil
‘Coenzyme Q-10’ and ‘Pyridoxine Chlorhydrate’ (Vitamin B12) are available in health food shops, usually in a pill form.
I bought 500mls of each essential oil in Sydney (I live in Australia) for about $100 each.
If you like, you could wait and see if this works for me and then try it. I will certainly keep you posted.
Jason.
Bobby,
There are quite a few products our there that contain herbal psoralens. I use ‘Pigmentum Pro’ – it’s available only on the Web as far as I can tell. But I ordered it and it arrived no problems.
Just so you know, I think it works OK if you use it with NB UVB, but if you use it alone, it tends to turn ALL you skin darker, so the contrast between vitiligo and non-vitiligo skin tends to remain. Also, it does make your skin more photo-sensitive in general, so you have to be careful with sun exposure etc if you use it.
Jason.
Jason:
What are some of the psoralen-containing herbs that you are taking and where are the available?
Thanks, Bobby
Hi again, everyone.
Well, I re-read this, and have to say that I did get some further improvement. I would say that I have re-pigmentation over about 60-70% of the area now. Of the remaining 30-40% of the area, about half is very well freckled and about half is still only lightly freckled. So, there is about 15-20% of the original area that still has only slight repigmentation.
Nonetheless, I am reasonably happy with the results.
I have (perhaps temporarily) just changed my strategy to something quite different, partly because there have been a few new options that have come to light, and partly because I feel slightly nervous about using NB UVB, even at low does, for too long. Also, progress has been very gradual, so I am getting bored!
Some people on this site might have noticed the information on black chickpeas. I managed to find these quite easily in my local Indian grocery store (I live in Melbourne). I am eating these, and they are quite yummy actually, but no idea if they will help or not yet.
More interestingly, however, I am applying some essential oils + vitamins that have been indicated to improve vitiligo. As I posted on the ‘black pepper/piperine’ forum, this contains:
a) Extract of Pimiemta racemosa 1:1
b) Extract of Cucumis melo 1:2
c) Extract of Citrus aurantifolia 100 ml
d) Coenzyme Q-10 100 mg
e) Pyridoxine Chlorhydrate 100 mg
If you search for these, you’ll find they are surprisingly easy to source: I got oils corresponding to ingredient a) & c) from an essential oil company, and ingredients d) & e) from a healthfood shop! I have not found any good source of ingredient c). You have to dilute these in a carrier oil (I used avocado) as the essential oils are quite powerful and astringent.
Most of the info on this combination of substances is in Spanish – it is called ‘Vitilvenz’ and was discovered in Venezuela. While there is not much information about it out there, I think this is because the internet world is so anglo-centric; so while this has been known since 2005, little commentary exists on it in English.
There are some early signs that this might actually work quite well – I had some improvement in the evenness of my pigmentation very quickly – i.e. within a couple of weeks.
Anyway, too early to be sure, but this does seem promising, so I’ll keep you all posted.
Anyone else having any luck with any of these alternate therapies?
Until soon.
Jason K (there’s a Jason S out there now too – hi!)
Thanks Jason, Keep us posted!
Thanks for posting this Jason, it gives us all hope
Thanks jason all this information is very helpful and much appreciated :)
Thanks a lot for taking the time to write this it is very helpful