Today’s post does not include sage advice about how to live with vitiligo, nor is it an idea for a new vitiligo treatment; I simply want to tell you that you are not alone.
You are not alone in dealing with the ugly emotional complexities of vitiligo. You are not alone in feeling less than your most beautiful self at times. And you are not alone in feeling helpless. I am here for you and so is everyone else who has ever commented on this site and/or is a member of our vitiligo community. Just reach out and there will be a hand waiting to hold yours.
I’m 19, and I have vitiligo too. 2yrs back, when I first got to know about it, I was devastated. I thought god had punished me beacuse of my narcissisism! Lol. I had planned, that if it spreads all over, I would just sit at home and live on my parents money! But now I’m better. It hasn’t spread to my face but at times I think, what if it does? I have so many important things to do in my life! I won’t let my dreams fade away! I won’t let this thing stop me. And I’ve seen some people who have vitiligo, who look really pretty! And also, beauty is just temporary, what matters is what’s inside of you! :)
Hi Lovely, I understand completely how you feel and here are a few things you can try:
1. cover/blend the white patches with makeup or cover lotion
2. take folic acid, b12, and CoQ10 supplements daily
3. gluten free diet
4. cut red meat and dairy from your diet
these are a few ideas that ppl have said worked for them, and they may be worth a try.
all the best,
nathalie
i hate living with vitaligo.im in high schools and its very hard to live with vitaligo.people stare at me.i hate wearing shorts.yeah its true with this ugly skin its hard to tell ur self ur not ugly.im so jealous os people who have normal skin
Im 17 in highschool and its definitly hard living with vitiligo. I get odd looks everyday and I see how beautiful and flawless everyone elses skin looks. Especially in the summer. Its hard to tell yourself how beautiful you really are everyday. And I really appreciate that Im not the only one who feels this way.
ya…we not walk alone..iam husband and my wife with vitiligo…at one time a feel so bad but now i must strong and make my wife happy.now i call that condition is not disease, just condition different with other. just like tall or short, black or white, or etc…and now we are happy…i think this is a reallity,
Ya im constantly frustatred and angry with the why me question..half my friends smoke, live off fast food and drink there ** off (im in college) and i am vegetarian living off ** tasting salads and spending half my money on vitamins and supplements and i work out 4-5 days a week and yet i have the ugly skin with white spots all over my hands. it ** infuriates me sometimes
I can appreciate words of encouragement. Its not easy to feel like your not alone when everyone around you isnt suffering from the disease. Its disheartening to wonder always “why me?”. Why is it that all of the people around me have such beautiful skin color and mine makes me feel so unattractive? I know its a lifelong struggle, but as my condition progresses, its more depressing. I have found the spray tan in a can does help tremendously. And after visiting a different dermatologist last week, he told me some great things that will begin in stem cell research to re-pigment skin. I am excited, but it doesnt seem soon enough. Best wishes to all of you out there. No your not alone, but its something people in my life just dont understand. Take care.
Dawn