The power of coming together
I never really thought about how vitiligo has been viewed throughout history, until I came across a website that was a cornucopia of historical information. Here is an excerpt from the site: ** note: I haven’t verified the information but, nevertheless, it’s a good read. Putting our bodies on display For more than 200 years … Read more
I’ve been living with vitiligo for over 15 years and though it’s progressed slowly, it has been a huge part of my life. Vitiligo has given me purpose in life. That may sound strange, but it has. It has given me opportunities that I don’t think would have entered my life without it.
When I started this website 10 years ago, I did so because
I’m always amazed at the lack of tactfulness shown by strangers.
Yesterday my daughter and I were enjoying some time together at a local café. We were talking and laughing for about 30 minutes when a woman walked over to our table, turned to me with a forlorn expression on her face, and said as she pointed at my hand, “I just want you to know that I have a friend who has that, too (and yes, she scrunched her nose up a bit). And you don’t need to feel ugly because of it.”
I don’t need to feel ugly because I have vitiligo? Seriously?
It’s only natural that we go through periods where we feel more self-conscious about our white patches of vitiligo; after all, our self-image has been completely altered by the changes to the color of our skin.
httpsv://www.youtube.com/watch?v=kZJ_V00Fs8o
Can you believe that headline? Worst of all, it actually happened. Lucky for this university they aren’t located in the United States…the ACLU would be all over this! “Student with vitiligo asked to leave varsity” was the first in a series of 3 updates. I’ve copied them here in order.
He had secured admission for six-year integrated B. Tech course for speech and hearing impaired
I received this story via email, and though it can also be found in the “Vitiligo Stories” section above, it’s worth highlighting here. Enjoy! Hi, this is a wonderful site and im glad to read ur story. Im from India and my wife has vitiligo, but u know what, she is the most beautiful woman … Read more
httpsv://www.youtube.com/watch?v=n_HzusM96ZI Woohoo, Day 15 and finally a little progress may be showing! Amazon.com Widgets
Imagine something very personal and precious being taken away from you a little at a time. You’re not in control of when it goes and you can’t argue about the amount removed. This is the predicament faced by people with vitiligo – a common skin disease that causes areas of the body to progressively lose colour, leaving white, sunburn-vulnerable patches. The condition is indiscriminate and affects up to 4 per cent of the population worldwide.
Oftentimes there are great ‘conversations’ that go on over on our Vitiligo Friends facebook page. Today, was an especially good one that I wanted to share with you.
Friend wrote: I have to ask how you all have coped with having vitiligo. I have had it for about 9 years now. It just keeps getting worse and worse…
A few days ago Kam left a comment here about her success with protopic repigmenting vitiligo. It’s wonderful and hopeful news…
I had quite a lot of pigmentation around the eyes mainly. First my GP told me there was nothing that could help me.
