Vitiligo Cures From Around The World
651 Comments
A couple of months ago I began searching the internet for vitiligo success stories when I came across one that showed me that I was on the right track with my experiment.
Ilana is from Sweden and has been dealing with vitiligo, alopecia, and psoriasis. Her site describes how she stuck with a regiment of taking B12, Folic Acid, and tanning her skin, to re-pigment her skin. What I appreciated most about finding this information was the fact that she showed before and after photo’s which clearly show a 90% success in re-pigmentation.
Ilana before
Ilana after
The Vitiligo Cures From Around The World by Nathalie Pelletier, unless otherwise expressly stated, is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Hi Everyone,
The above post was left as an advertisement link to a website in Russia.
You may have already noticed that there are no advertisements for vitiligo treatments on this site and there is a simple reason for this; I did not create this site to make money from advertising.
Vitiligo-ville is meant to deliver vitiligo news, vitiligo success stories, ideas that may cure vitiligo, and once the Support Forum is put to use, a place where visitors can discuss vitiligo issues together.
Dearest readers, rest assured that the only time I will promote a particular product on this site, is if I have used it and found the results beneficial. Likewise, if I come across a product meant to “cure vitiligo” but does not yield the desired results, I will blog about that, too.
i have read some of the e mails one of them said she took b12 and folic acid and tanning and got good results my question is how much of each and also she said tanning i do not tan can i get the same results without the sun please get back soon i need to get on something that i can get some results i have tried to many different things and nothing helps thanks
I just started my vitiligo treatment yesterday taking Vitilax capsules and supplementing with Vitilax oil. Vitamin B-12, Folic Acid and Vitamin C are definitely part of my healing regiment. Dr. Li, whom I personally met, recommended twice the dosage of Recoleur’s ingredients. Given that I have had vitiligo for so long, Dr. Li indicated that my healing process will be slower… possibly not seeing any visible changes until after three months. I will keep you posted of any progress I am making. Thanks for sharing your story.
Hi Marie,
I know the office of which you speak, The Merry Clinic; very nice people indeed! Please keep us up to date with your treatment. I am most anxious to hear about it.
Best of luck!
Nathalie
hi folks.from turkey i like to send all my best wishes to my vittie fellows.we have a local support group here in turkey as well.any progress i am going to let you all.
Hello everyone, I am from Western New York. The treatments I have been doing, seem to have had a positive change. I am taking folic acid, Vitamins E & C, as well as PABA two to three times a day. In doing this, I have started to get large patches of brown spots.
Good Luck to everyone on our individual searches!!
Hi Marie,
Did you see any improvement in the skin color by using Vitilax. My husband is planning to use Vitilax treatment. Did you change your diet ?
Thanks,
SG
Sarah,
What is PABA ?
SG
Hi sudharani
Here is a link to explain PABA. Hope it helps!
Nathalie
http://www.mothernature.com/Library/Ency/Index.cfm/Id/2894003
Hi, SG. Yes, the white patch on the left side of my nose/face is barely visible. My sister started the treatment a month ago (Dr. Li recommended using the Detox as well) and she said she doesn’t use Dermablend to cover the blemishes around her mouth anymore. She also has a big patch on her neck, which is now 50% repigmented. The one thing I took out of my diet is spicy foods. I work out 3 to 4 times a week (for at least 1 hour each time). It takes a lot of self-discipline taking the pills (Vitilax, B12, Folic & C) but it’s all worth it. For B12, get the one with methylcobalamin instead of the cyanocobalamin. Methyl form of B12 is much more effective. Best of luck to your husband. My sisters and I are looking forward to having our photos taken about a year from now free of Vitiligo
Cheers!
Marie and Nathalie,
Thanks a lot for sharing the informartion.
SG
i have tried the recouleur vitamins and vitilax and have had no results at all
Dear All:
I was recommended by Dr.Lee to take 12 Capsule of Vitlax, 1000mg Vitamin B12, 800mg Folic Acid and 500mg Vitamin C on daily basis since the beginning of Oct 07.As of now I don’t see any result, and I am not expecting anything because She told that I won’t see the improvement until four months.
The fourth month is due at the end of January 2008. I will let you know by than.
I have a quick question. How does the vitiligo happen to every one?
In my case it is so wired. We don’t have any one in our family history, but one day I got a few spot like 10 years ago, six years ago my two more brother got affected and a year and half years ago my 6 years old niece was effected.
Thanks for every one’s input, Let’s keep the good work and I am sure we will find the cure for it soon.
Love you all,
Your Brother,
~K
Ops one more question, I saw a doctor today and he told me let’s see if it is fungus. What is fungus
Hi Khoshhal,
It was good that your doctor will test the white patches for fungus. If that is all it is, he will be able to prescribe some medicine to clear it up. Here is a link to a definition of fungus disguised as vitiligo… http://www.medicinenet.com/tinea_versicolor/article.htm
As far as what causes vitiligo, no one really knows. That’s part of the problem in finding a cure for everyone. I have a story on this site about a gene that scientists have linked to vitiligo, but what role it plays and how it is activated, has yet to be revealed.
The regimen that Dr. Lee has prescribed seems on par with what other people have taken and have spontaneously re-pigmented. We definitely look forward to hearing back on your results! why don’t you send us some before pictures and we can watch the progress?
All the best,
Nathalie
Hey im from Australia and i have the white patches of skin too. Im 16 and have had it since i was about 6 years old. I have been using a UV light to cure my skin. It is like a big half circle machine with the UV lights in it. I have been using it for a few months and have seen some small improvment. My only concerne is i may get skin cancer from it. Does anyone have a suggestion of something else i could use that will work? Thanx
hello tayla
im 19 and
i live in Australia also and ive been using the UV lights
for a very long time.
it has helpped with my patches on my face and on my neck
ive been told the machine is like the sun
but the lights only send out the good uv
i rather not risk getting cancer, so i use sun screen
on my arms, face and legs since
ive only got spots on my hands that i want gone
Hello everyone
My 6 year old daughter was just diagnosed with Vitiligo last summer. We are using some Protopic on her affected areas 2 times a day, and I was wondering if anyone knew where I could get information on taking natural approaches (possibly vitamins) to help treat her.
go to http://www.vitiligosupport.org
its a forum type website with lots of users that leave information posts on treatments
its free to sign up with
i hope you find what your looking for
I’ll check it out. Thanks Carlos
Hi Charity,
Here is a great site from a family who changed their daughters diet and, consequently, cured her vitiligo.
http://vitiligo.50webs.com/
all the best,
nathalie
Thanks Nathalie! I appreciate the info!
Marie,
Did your skin color change to red with Vitilax ?
Thanks,
SG
Can anybody recommend me any treatment in UK for VITILIGO please.
my mobile number is 07809686089 or alternately, can send emails.
would appreciate and goodluck to all of us.
Kashif
Kashif,
My husband is trying Vitilax for last two weeks. Seems to be working.
SG
Hi SG,
That’s wonderful news! Could you forward some photo’s so we can see the results?
all the best,
nathalie
Hi Kashif,
I’m sorry but i not in london, so i can’t make a recommendation. i found these in your area…
http://www.londonlaser.com/vitiligo.html
http://www.skinlaserdirectory.org.uk/London.htm
best wishes,
nathalie
I have been using the Vitilax for since begining of Sep 07. I have not seen any improvement yet. I contacted Dr.Lee who prescirbed me the Vitlilax along with Vitiman C,D and folic acide, She told me I should get some good result soon. I still have a bottle and half left which will last till Feb20th. But so far No result and the most sad part is my vitiligo is still growing.
Thanks SG, Nathalie and everyone contributing to this forum.
Let me explain my condition a bit. I have a strange condition, it keeps on coming and going . I am copying and pasting the email I sent to one of the clinic THE DERMATOLOGY CENTRE in london.
I had same problem few years ago. A big white spot appeared on my
forehead nearly 5 or 6 years ago. But at that time, I didn’t give attention
and then it faded away completely like it was never there. And about 10
years ago, I had white spot appear on the joint of my right hand index
finger and it went away itself as well.
I have a permanent white spot on my right foot for about 8 years
now and it is dry sometimes and it is like a you have to remove scalp out of
it sometimes but it has never increased infact it has been decreasing but
really really slowly.
Nobody else in my family has this problem.
I can send you the pictures if you want and I want to know if
there is any treatment for this as I have been researching around on the
internet and there are many products which claim for the cure of vitiligo
like oils, laser machines etc but I am afraid to try those products.
I was told by some doctor in Pakistan(when I was there) that try to
stay under the SUN so that those white spots go away but as far as I have
researched, it said AVOID SUN. I am 24 years old.”
I personally think that I need SUN shine. I have been reading about EMILY’s vitiligo and what her parents did in order to cure her.
Ideas, suggestions.
by the way SG or anyone, what is that VITILAX treatment. To be honest, i don’t want to try any kind of MEDICINE (tablets, syrups) right now.
comments are suggestions are most welcome and appreciated.
Kashif
I everyone just want to say thank you for sharing your honesty and your thoughts wiith us.
I would like to know what is the best treatment for vitiligo! as I have just discover small spots on my lips
I whent to my doctor and they say I should get sun.
I am really stress out about it being I take my little ones to school every morning.
Its not a good sight for any of us to deal with.
I know everyone is diffrent when it comes to taking drugs
Nathalie,
You have wonderful idea to support this team by creating the web site. I will try to get pictures soon.
Kashif,
You can get Vitilax information from google. You also try to eat lot of fresh vegetables. It takes lot of time to cut and cook but every minute is well spent. I spend saturday and sunday in Vegetable project.
SG
Hi Melly,
the first thing you need to do is to STAY CALM and don’t PANIC as it won’t help. Secondly, consult a dermatologist in your area if any and do not just start using any kind of medicine as it might be temporarily. Also, think positive as I believe nothing in this world is NOT CURABLE. everything has a cure.Remember, it is not a disease, it is a CONDITION which will go away.
As far as i know, cut meat, burgers from your diet. eat fruits and vegetables and it will make difference.
last but not least, never loose HOPE.
good luck,
Kashif
hello melly,
from what ive read, UV lights seems like the best treatment for vitiligo. ive used it with great success, i filled in the spots on my neck, knees, elbows, face, and some spots on my hands. the spots were not big but they were still spots none the less and it worked. im not sure if its a good idea using UV lights on the lips as they may burn. talk to a dermatologist about it
hello kashif
vitiliax information can be found on http://www.merryclinic.com/vitiligo/treatment.htm
some people say it works some say its a scam.
DO NOT BUY ANYTHING ONLINE THAT SAYS ITS A 100% CURE FOR VITILIGO they are all scams!
and yes you need sun shine to help you
hello Khoshhal,
you may want to look into using another treatment such has oxsoralen, protopic/elidel or uv lights
the vitilax website says it should take 4 months to see results and since you have not and your spots are spreading, then you should go talk to a dermatologist. i highly recommend the UV lights, it stopped my spots from spreading and i recovered some color back
just a helpful hint: if your on any treatments and your spots go pink, thats a good sign but make sure it only goes pink not red. if it goes red that means you have burned the skin
(sorry for the long comment)
=]
Hi carlos
Thanks a lot for feedback! it really help.
Hi Carlos
What treaatment did you use with the vu light.
thank alot!
Thank you kasif!
at first i just used the uv lights
then i found out that the hands are the hardest parts to regain color back so i started to use meladinina (oxsoralen) which worked great, i only had 1 tablet of oxsoralen and 2 hours later i would go outside under the sun for 10 mins every day and i got alot of my color back on my hands even on the finger tips
im still doing the UV lights 3 times a week and im sitll using oxsoralen every day
Thanks carlos!
apreciate alot. I am going to see my dermatologist and hopfully start on something, I will keep updating my story.
thanks for help and advice guys. this is the first website with so much response about vitiligo. better than those forums where nobody replies.
i will keep in touch.
Kashif
I would love to get all the info possible on Vitiligo. I have some and starting to get more and worried.
Thanks, Lisa
Can I do something to stop or reduce instead of getting more?
I have been doing extensive research and all it says is it has no cure but i don’t believe anyone as I am sure I will be fine. I have got some pictures taken which I will post soon when I get time.
Lisa, there is nothing much you can do to stop it. Most of people who gets this have vitamin b12 deficiency and many other things. I would say go to dermatologist and seek advice. also get sunshine (don’t burn yourself in sun), if your spots go PINK then it is a good sign that they will be repigment to its original color.
last but not least, don’t loose hope.
Kashif
HOLA MI NOMBRE ES RONALY VIVO EN ESTADOS UNIDOS HACE UN ANO FUI DETECTADA CON VITILIGO. PARA LA JENTE QUE CREE QUE ESTO NO TIENE CURA ESTA EKIBOKADA. ESTOY BIENDO UN DOCTOR MUY EFECTIVO QUE ME CURA CON UNA CREMA CASERA QUE EL PROPIO INBENTO .. E VISTO MUCHA MEJORIA EN MI PIEL.. SI GUTAS SABER MAS DE EL DOCTOR .. MANDAME UN MSJ
Has anyone else use B12 + folic acid = tanning? what was there any good result.
I used folic acide, B12, vitamine c and other herbal medicine prescribed by merry clincs for four months, no imporvement so far my medicine is finished
Hi K,
I don’t know if things from merry clinic work or not as I never tried that. Infact, everyone recommends different medicines as the truth is nobody knows a proper cure for it.
Go to your dermatologist and if he/she knows it well then he/she will of assistance. Don’t just try different things.
I would advice all of those here to join 2 channels on FACEBOOK for VITILLIGO. Just search for groups with Vitiligo and you will see 2 with loads of members.
It will help you realise the reality a lot guys.
Regards,
Kashif
Hello everybody..im am a 21 yrs old male from batyam,Israel..i have vitiligo for 5-6 yrs..
thanks..Amir
im using dr Shah’s hydrocotyle treatment for about 6 months..lately ive been taking it a bit irregularly..from certain reasons..anyway at the begining of the treatment about a month in i saw good results..meaning that something in the homeopathic treatment is definatly working..didnt noticed real devolpement of any new spots since..but..the treatment’s speed has declined..and right now im working on my food habbits..and i want to get VitiLax..that sounds realy good..combined with vitamins c+b12 and folic acid..sounds good..~!
anyway..i heard that black pepper helps..and other suggest not to eat spicy foods..my question is : what sort of menu did you guys eat while in treatment..?obviously by those whom the treatment worked for..
sorry for writing too much..Vitiligo is my curse..i absouloutly hate it and will love to get ot off my skin sooner
Hi Amir,
Its been quite a while somebody posted any comment. You would be amazed to know that I am using Hydrocotyl cream as well but it is not recommended to me by any doctor but uncle of mine who runs homeopathic store in Pakistan. I just started it using a month ago and it seems to work. I asked my uncle how long would it take to heal it, the answer was use it regularly and it will take its time (6 months +) for treatment to work which I am not bothered as long as it works.
My suggestions would be to keep using it and never bother using any other cream at all. Regarding food, just avoid spices and red meat. I mean cut it to once a week. Fish is healthy food and so as vegetables and fruits.
I am also taking homeopathic tablets with cream as well.
Good luck to us all.
Kashif
Hi I’m Lisa from Canada and my vitiligo started when I had finished taking antibiotics and had taken sun. I came in the house and looked like I had a mask on my face…certain spots were not tanned…then I saw some white patches under my eyes and my two thumbs..also I had pain in my neck so at night I would massage my neck really hard and noticed a big white patch…now I noticed a patch on top of my head and more grey hair located in one area….I hate it….I heard we have to hide from the sun….and then I hear to need to take sun….which one is it???? I’m going to see an MD next month and I know he has laser treatments as well so will let u posted if I find anything ………..Lisa
Hi Kashief I am living in Cape Town ,South Africa I have cantacted several pharmacys for Vililax do you know how I can get this product here in South Africa?
Russell I took for past six months Vilitax Herbal Pills along with other vitamins prescribed by Merry Clinc. I have not seen any improvement at all.
If you still want the Vilitax contact merryclinic.com, I am sure they will ship to you whereever you are.
Good Luck
Hi Lisa,
the same thing actually happened to me. i was on a sulfur-based drug when i was 9, the doctor did not tell me to stay out of the sun while i was on the medication; i was on vacation in Florida. i noticed the spots on my feet, face, knees and elbows after i came home. i am now 21.
As for the sun exposure, it is recommended that you get about 30 minutes of sun exposure for the vitamins, but not much more than that without sun-block. Over the summer i actually got a bad sun burn & its been re-pigmenting ever since, but i had been taking my vitamins daily before the burn.
talk to your doctor and see what they say about it, but as for me, it is really an experimental thing. you have to take into consideration what people tell you & then tweak it to suit you individually.
GOOD LUCK!
Hello there,
Does any one know what treatment options are avialble for Vitiligo? I heard about some Laser Treatment, Tattoo, Does any one know about this please?
thanks,
Hi K,
I have had a couple of people tell me that a combination of b12, folic acid, and regular sun exposure, has triggered repigmentation, and i am having great success with the excimer uvb laser treatments.
all the best
nathalie
Hi Lisa and Sarah,
I’m allergic to sulfa based antibiotics, too, and i wish i could remember when it was that i discovered this so i might be able to link it to the beginning stages of my vitiligo.
Thank you for bringing this to light. I’m going to research it a bit.
Hi there ,can anyboby tell me if stress can worsen vitiligo and if alcohol and smoking is a trigger to vitiligo spreading more.Please tell me what foods to avoid and what is good.
Hi Russel,
Stress can be a factor. Also, spicy and hot food can affect the vitilligo. No idea about Alcohot and smoking but they still are bad mate.
Cheers
Hi it`s Lisa thanks for answering…what I do is put 60 for sunscreen not to get any sun…isn’t true that we need to avoid the sun completely or should I take some to re pigment my skin???? I believe stress is not good in any situation but hard not to stress when you see these spots coming out… I like panic…so from what I hear to need to take B12 suppl, folic acid, the sun, not spicy food, and try to find out about the excimer uvb laser ….in Canada………..
you need to take either, vitamins, protopic, oxsoralen, meladinina, etc PLUS sun to recover some skin color back.
if you are after a narrowband UVB light
try ebay and type in dermalight 80, they tend to be cheaper on ebay then other sites.
i drink socially and i use to smoke socially and i still saw some color return to my fingers (hardest part to regain color) so i dont think smoking or drinking affect vitiligo but for general health they are not so good
i dont avoid any foods, i dont want my vitiligo to control my life so i eat what ever i want. but i did cut back on my milk and alcohol (people say milk and egg are bad for us but who knows)
i dont think tattoo is a great for a cover up, over years, tattoos seem to fade away. thats why when you see young people who get tattoo and in the future when there 30, 40 or 50 the tattoo seems messy, not as sharp and they seem to turn green. but im not an expert so i dont know for sure.
merry clinic (vitilax pills) seems like a scam to me, i used it for a while and didnt see any improvments at all. ive only read about 1 person who has had success but they could be working for the company. but its up to you if you want to try. different people react to different treatments. what works for you might not work for others.
you need to stay on a treatment for atleast 6 months to see if its working.
with what ever treatment your doing, your spots must turn pink not red. if red that means your burnt that area. so becareful
(sorry for the long post, i just wanted to answer as many questions as i could)
ps: protopic or elidel and sun light seem like the best treatment to recover color in the face
take care and good luck all
heys pals,
good to read long posts. I personally think that SUN is good for vit. My vit was spreading really fast as where I live in UK, no sunshine at all. Went to my home country for 20 days and all I did was sit under the sun (15-20 degrees) and I personally saw the repigment.
I am taking homeo medicine as if it won’t work it won’t leave side effects. I can see repigment but as I said in earlier post, it takes time, it is a slow process but works.
I would suggest anyone with vit to go under the sun. Be warned, if you get sun burn then you have to make a timetable or plan on how long you gonna be under the sun. I personally don’t get sunburn even at temperature like 50 degrees as I belong to a HOT country.
As in UK we don’t get sunshine, my plan this summer is to get most of sunshine. I am going to beaches or place with good amount of sunshine all this summer and enjoy life as well.
good luck guys. speak to you lata.
Hi Kashif,thanks for your advice,how did your friends and family deal with vitiligo?My friends are not use to this new development of mine some ask if I am going to die or do you have cancer,all these sorts of remarks and I am starting to avoid all contact with peolpe I used to know becuase I am very consince of my appearince.How do you deal with the trauma of people always looking at you like you from a nother planet.I wish there can be a cure for this monster desease.
I wish somebody out there finds a cure for our children and there children.
Thanks
Hi Russel,
I can truly understand your feelings. Right, first of all, you need to understand and let other people understand that this is not a disease, this is just a skin condition where skin loses color. It is basically where skin loses melanocytes. Remember, just like the skin loses it, it can regain it back. Do not believe people who say it cannot regain color (pigment) back. They bullshit, it will come back.
Secondly, learn about it more and more. Go to youtube.com and type “lee thomas” and you will come up several videos about vitiligo, it will help you understand it in more depth.
Thirdly, whoever asks you stupid questions to you, is basically an idiot who is trying to embarrass you but listen, do not get embarrassed as this is not you doing it to yourself, it is just automatic.
For me as a muslim, I think, it is a test from GOD as the GOD tests his creation by giving happiness as well as sadness and when we don’t complain in happiness, we have no right to complain in sadness.
Last but not least, whatever happens, happens for the best my friend.
And don’t lose hope and you will be fine.
I personally try to eat lots of vegetables and fruits and do not avoid any food at all as it has nothing to do with that. Enjoy your life.
Keep track of improvement or spread of vitiligo by taking photographs so you are aware of its progress.
Do not use Steroids as they are dangerous even if a dermatologist tells you to use it, tell him/her to bugger off as it is not good to use them.
Good luck mate,
Kashif
Hi Kashif, thank you I needed that I am seeing a Dermatologist on the 4th of April.I am using Lavender for my spots and folic Acid.When I was at home during the holidays I noticed inprovement this is the result of spending time in the sun.Now that I am back at work it did get a little worse reason I am not in the sun so often.So sunlight plays a inportant role aswell.The white spots on the one side of my mouth is totaly gone is just the other side and a small patch by my right eye.I will give you the proper info on what I use tomorrow,I did see results.
Thanks…Russell
Hi anybody that live in the UK,I need to know if I can get Anti-Vitiligo in the UK it is a herbal product.I cant get it here in Cape Town ,South Africa.It will cost me a lot of money if I get it from the United States.My friend is leaving for the UK soon,if I can find it then he can get it for me there.I have tryed the customer care but the never returned my mail.
Thanks
hey russel, I am in UK.
I did use antivitilligo but it is fake. It worsens the condition. Don’t use it mate.
I can post you the bottle I have got, its only used 4-5 times.
cheers,
Kashif
I like your words, Kashif. cheers!
nathalie
thanks nathalie, the best thing we all can do is to help other, for me, it gives me satisfaction and happiness.
Hi Kashif,I was actually hoping that that product will work, why does people advertise such things?I am using Lavender and Bergamotessens and also Lavender & Chamamomile Aqueous cream.It helps but its very very slow.My adress is 7 Perderberg Tafelsig Mitchells Plain Cape Town South Africa.We have a public holiday tomorrow and on Monday I will try to get as much sunlight as possible.I think I will go fishing I am 15 min walk from the beach and the weather is nice.Tell me is sea water good or bad for vitiligo because I swim regulary?
Thanks…Russell
Russel,
Its life, people try to make money either way they can. specially, for vitiligo, as there is no proper cure available so people (who is affected) , considers it as a hope and goes for it.
My advice would be to read about it as much as you can so you know what it is. In my opinion, dermatologist also try to just give you steroid but if you know about it you can tell them not to and when they know that you know about it then they will not try to bugger you off like other people.
The other thing is, in case of vitiligo, when something works for someone does not really mean that it will work for someone else so it is just a matter of trying.
I personally don’t try different things specially medicines but I might consider trying herbal remedies as they are safe and don’t contain strong chemicals with massive side effects.
Regarding swimming and sunshine, go for it. You are lucky that you have sunshine over there in cape town and also sea nearby. It won’t make any difference so have a good swim.
I read somewhere on the internet regarding DEAD SEA, because the salt level is too high in dead sea, if you go and have a bath/swim in dead sea, it would cure the vitiligo and I know, people in india do practice this thing and they go to dead sea in groups (people with vitiligo) as it is quite common in india. That is why you must have read and heard about skin clinics with indian doctors and researchers working on this condition.
People, indian, if any, reading this, please do not take this as a racist comment as It is not, I am just telling the reality.
Cheers,
Kashif
Nobody here is talking about vitiligo causes.
I have vitiligo and found the cause — it was from black dye I used for my hair. I researched a lot and found phenylendiamine and ammonia cause vitiligo. So, once I stopped it, my vitiligo stopped spreading. Then I started taking Hydrocotyle, B12 and folic acid. Vast improvements since.
Hi everyone, I am from Maryland in the United States. I have had vitiligo since I was a teenager and I’m 31 now. I have mostly used the UVB treatment but even that is not permanent, once you stop treatment the spots change right back to white. I have spots on my hands, feet, face and arms. The UVB treatment works well if I have time to get to the Doctors for treatment 2-3 times a week but it has never completely changed my skin back. I have started experimenting with treatment I have found on the internet, which different people here have tried, Anti-vitiligo and Merry Clinic Vitilax, which did nothing for me. I have found vitamins to be helpful vitamin A, E, & B-12 with womens one a day, they are more effective on spots on my face. I am starting to get concern because it seems to be spreading rapidly. I hate to continue to use the UVB treatment because of the risk of cancer and I have been doing it off and on for the past 12+ years. I even purchased a hand held UVB light from ebay.
I just started using a product called vitilex. It probably won’t work but thought I would try something before I have to go back to the UVB box. Has anyone tried Dr. Shah’s, Life Force product?
Tanika
Hello!!! I was just diagnosed with vialigo last week and I am going to another dermatologist today.. I was given protopic. I am curious does this spread quickly or is it safe to say I may have this one spot for a while. For me i think this spot is expanding everyday even though others say it isnt.. It just appeared a month ago. do u think the earlier you receive treatment the better. I bought a bunch of vitamins as well like folic acid, Vitamin C, B-12, and Stresstablets,.. Any other advice. I was thinkin gabout taking Vitalax but after reading this blog it sounds like a scam
Hi Kenis,
Why don’t you take a picture of the vitiligo areas, then when you look back at it a month from now, you will have a better grasp of how quickly the vitiligo is appearing.
keep us updated.
nathalie
Hello all, Kenis– I was just diagnosed in the last month too. My brother has had it severely for over 5 years. He has been using Protopic, and he said it does help repigment on face, but is too greasy to stay on hands properly. I went to a dermatologist to whom I will not return, as they very dismissively gave me Protopic without even a biopsy to be sure, and on my own research found out that Protopic can cause Lymphoma, among other things, so I did not fill the prescription.
Now a vent/question for everyone else: My vitiligo started and is spreading very quickly. I have been udner the care of a homeo/naturopathic MD for over 6 months. I have a lot of other auto-imunity problems, and I’ve been eating a diet free of glutens, eggs, soy, diary with lots and lots of vegies and fruits. I used to not eat red meat, but was told to eat a little organic red meat now and again to boost my blood minerals, so I have been. I do like spicy foods but have avoided them because I also have rosacea, same with alcohol. I live in a place where I can get sun in the summer, but not every day. It’s humid and cloudy here and in the winter it’s cold and not so sunny. Also, I take my vitamins and remedies in the most natural form possible (food-derived) for better absorption.
And every morning I wake up and cry because therea re more and bigger white spots.
Sorry to go on so long. This is just very frustrating and scary because i already had been doing so much to help my body, and it is just turning against me more.
P.S. – I know this won’t kill me, but it will end my career-I work as an actress and even the heavy makeup does not cover the vitiligo well.
Hello!! Nathalie that was a good idea to take pictures and compare it. I have been looking in the mirror almost every hour to see if I see any change. I do see it turning a pink color and there is a vein or something visible. Laura you are so right I asked about that yesterday how come they wont do a biospy to make sure and I was told since it was on my face it would leave a scar and it is something that can be diagnosed by just looking at it. I was prescribed protopic as well. I have started using it and also taking vitamins.I am not sure about all of that. I want to see if I can find a specialist that can give me some more imput. I hate how they really cant tell you anything about it.. Did the spots come rather rapidly b/c right now I only have 1 and I am just curious if anyone saw more than 1 right away and within a short time. Thanks for all the feedback
Kenis-I had one spot initially, I noticed it on christmas day, and every day since then that spot has apread a little and more spots are coming, too. I woke up this morning with 4 new spots on my right wrist area–they are about 2 inches diameter each, sot his is spreading rapidly IMHO.
Have you tried any treatments yet to hopefully slow it down or repigment your skin. I have not noiced any other spots yet.. I know my grandmother had it but she had just like 3 small spots on her face and 2 on her wrist. This is so annoying..
Do these spots just come overnight or does the skin lighten up gradually
I’m not sure–sometimes I swear they just appear, but it cold be that they are gradual to a point and then suddenly I notice the difference in color. I am olive skinned of italian heritage. My brother developed his case about 6 years ago, triggered by a viral infection we think. My grandfather also had this, very severely, he lost all his pigmentation by the time he was 60, even to his eyes, he had retina damage.
I have been taking gingko and rehmannia for 2 months, as recommended by my holistic MD. I didn’t expect repigmentation yet, however I had hoped these would halt the spread. I also take tons of other vitamins and herbs for all my other conditions, I won’t bore you with the full list, but it already includes B complexes, astragalus, eleuthero, st. johns wort, vitamin D (10,000 units per day!), and I was on all of these BEFORE the first spot, so I don’t know what’s going on. I meet with my Dr. again in about an hour to see if we can find a better plan, since this one is not working. I think we will probably agree to start B12 shots. I will keep everyone here posted.
Hey Laura,Kenis and everyone,
Shocking stories everyday.
http://www.youtube.com/watch?v=vcNRyfZoWPM
Follow the link above and see how to live guys. Vitiligo is a part of life(those who have it and it is a test) and you have to pass it and to pass – patience is what you need.
Live the life.
Cheers
OK, went to my holistic MD today. We are going to do B12 shots, but she’s going to have some formulated without preservatives for me. Also, I’m to go on the Specific Carbohydrate Diet. It seemed restrictive at first, but in looking at it it’s almost like South Beach diet. Anyone else interested can read up at http://www.breakingtheviciouscycle.com. Apparently this diet is also effective for many other things, like autism, fibromyalgia and Crohn’s. She also added Turbulus to the Rehmannia and Gingko I’m already taking. She is going to research the psoralens and the piperines for me. Anyone else have any experience with the above?
Thanks!
I just ordered my vitilax pills. I’ve been reading positive reviews from many different forums. Is anyone on this site familiar with Piebaldism? That’s what I have, it’s the same as vitiligo only your born with the white patches.
Hello,
I´m from Mexico, and hope you can read my bad english.
I have vitiligo since 92, I was 22. I allready try everithing (almost), melagenina in Cuba, neovitil in Canada, I was vegetarian, etc, etc… I bacame worst after my babies borned. After reading about your experiences I will start today whith the vits… Hope to be better.
I will order the vitilax tonight.
Cheers
Vivi
hey everyone,
I would suggest you read the book Turning White : A memoir of change by LEE THOMAS.
Please do so, you will be satisfied.
thumbs up.
Hi Vivi,
Nice to hear from you…your english was great! Before you order the vitilax, do a bit more research on the product. i have heard more negative than positive comments form people who have purchased it.
all the best
nathalie
Hi Vivi and everyone,
please don’t jus go buyin stuff without doin full research as it can brin negative effects and adverse conditions. one of the docs i went to gave me a cream and said there are no steroids in it, i researched the ingredients and it was so please careful about that.
also, even if you try herbal or homeopathic creams, b sure to research on them first.
regards,
Kashif
TKS Kashif
Hi Nathalie,
Nice name…
You know, I,m sooooooo confused, I´m always tring new stuff… now I read about the Xtrac laser. Do you know it?? I will read more about vitilax before take any desicion TKS. I has being taking Recoleur, with dermabest, I had some good results. But now I´m on a hard emotional situation, and I´m getting worst…
Cheers to everybody.
Vivi
Has anyone tried Pigmentum?
Hello Sandy,
I did, 15 years ago and was good. If it is the same pigmentum ¡t was made with a base of bergamota and lime oil, and I remember that conbined with sun, I had good results. But I got desesperarted to be in the sun 2 times for 20 minutes a day and smelling and having so many showers…
Do anyone knows if I can find Xtrac in Mexico, or where in USA?
Thanks
Vivi
The Pigmentum I am talking about is a homeopathic remedy and is a pill. There are different medicines past on your race–caucausian or dark. The web site is http://www.pigmentum.com
TKS Sandy, I will take a look.
Hello, I’ve been dealing with vitiligo since I was a child. I’m 43 now. When I was a child it was all over my knees. Fortuneatly, by the time I went into high school it had all gone away. This was wonderful because I can’t imagine going through those years with white spots all over my legs. The fact that it went away did wonders for my self esteem and I was a cheerleader, swimmer, loved going to the beach and hanging out in my bikini. Now, at 43, after having 2 children it is back with a vengance. All over my knees, arms, hands, face, feet. It has stopped me dead in my tracks. I don’t enjoy wearing jewelry, makeup, skirts, shorts. My self esteem has really crashed. When this started to affect me again about 5 years ago (my youngest son is 7) I was doing some research. I came across a gentlemen who told me that salt somehow plays a role in repigmenting. That hit my like a brick. I remembered how the summer between my jr. high and high school years, I camped at the Colorado River for 2 months. We took salt tablets, to keep for getting dehydrated. We were in our baithing suits all day long in the sun. That was the summer I remember my white spots started to get a red bumpy rash and then it just tanned right up. So my question is does anyone have a story like this? Does anyone know what kind of role salt plays in the repigmentation process? Thank you. I love this site and plan on visiting often for support and information. Thanks so much.
It’s me again, can anyone recommend a good diet for vitiligo? Also, what kind of core vitimens should I be taking to fight this thing and how much? Are there foods I should stay away from? There is just soo much information to go through, and I really feel like I’m all alone in this. All the Dermatologists I’ve been to are all dismissive and unkind and that makes it even worse. I need some good advice. Thanks. I really, really appreciate it. : )
Lisa,
I don’t think diet is gonna make any difference so don’t bother with any diet. Just try to eat less red meat, more vegetables and fish would be healthy. I personally believe, tanning in sun would greatly help anyone with vitiligo.
Most important thing is, do not be negative and approach it positively towards dermatologists replies. They are dumb because they don’t even know what they are treating, all they know are the white spots, they don’t know the cause but in some instances, they know that it can be healed by so and so things.
be positive and hopeful.
cheers,
Kashif
Hi all,
There’s a lot going on here, so I will tell you what I am doing for my vitiligo, which just started a few months ago, which is spreading rapidly. My brother has had this for about 7 years, all over hands, arms, feet, face. He uses Protopic with some success, but says new white spots keep appearing. I went to a dermatologist too, also unkind and dismissive, who gave me Protopic without even looking at my medical history well. I’m not a good candidate for it because i have so many auto-immune issues, vitiligo is just the latest.
I decided to follow a course of treatment with my primary MD, who is also a naturopath/holistic dr. I am on a VERY restrictive diet–called the Specific Carbohydrate Diet. http://www.breakingtheviciouscycle.info for those interested. What this diet is supposed to do is to heal your immune system by healing your gut/intestines. Bottom line is the elimination of ALL grains, lactose and sugar. BUT you can have meats, fish and plenty of fruits and veggies, all herbs and spices, so it’s still very well balanced. And you can have yogurt and hard cheeses.
Also, the herbs given me by my doctor are: rehmannia, gingko and tribulus 3x/day. I am also taking calcium, zinc, eleuthero, astragalus, st. johns wort, magnesium, iron, multi, C and more. All supplements are food-based and natural (Mega Foods brand or Planetary or Medi-Herb). AND I am getting small shots of B12 daily for a week, then twice a week after that. Also I am either sitting in midday sun, or if no sun, going to the tanning salong just for 10 minutes a day (UVB only in the tanning salon). Also we’re trying the calcipotriol creme.
So far no improvements, but I’m only doing this for a couple of weeks so far, so I will keep everyone posted, it just seemed a better idea to take the more holistic approach to heal the whole immune system and hope the skin will follow. But if it doesn;t work, I will be looking into the excimer laser treatments–anyone who has already done this??
going through all the posts, its good to hear from so many people.
In fact, every person’s case is different from others but the symptoms are same, vitiligo. someone finds it difficult to express, someone stresses oneself for appearence, which is pretty much normal in people with vitiligo and I do understand that being one of them.
I personally think, food is one of the part of process which affects vitiligo. too much spices and hot food, meat specially red meat and processed meat is hazardous, in fact, i am against processed ones and i strictly avoid them.
i like fruits so I eat them a lot, apple, orange, banana name it and i will eat it and nowadays, more and more. and vegetables, well, i ain’t a big fan but nowadays , I am eating as much as I can, i try to avoid lunch with fruits and potato wedges but if I feeling hungry at lunch, the other choice is fish n chips which is way better than burgers and red meat.
I personally get really good results in sun but unfortunately, cannot get any sun in UK, back in my country, there used to be a lot and i just love it. in fact, i believe, i get well in the sun.
as a remedy, I am using herbs. I use one herb we call it BABCHEE in our language, i will try to find the english name for it. my mom grinded it for me and what I do is , i take a half spoon of it and mix it in water and leave it next to my table overnight and when i wake it, drink it, its ridiculously bitter and my face goes crap with its taste but positive thing is, it works for me and I get results.
I am also using HYDROCOTYL cream which is NOT a steroid and homeopathic cream.
for the purpose of progress, I am taking pictures on affected areas and will compare them when I get free time from work.
I will keep you updated guys.
don’t lose hope.
Hey Kashif-
I have heard of bakchee I think–it is also called bakuchi? Because if it is, you might be able to find it an an Oriental Medicine office–the chinese call that same herb BUGUZHI. I am in the US, and my doctor is looking into the buguzhi for me also. Your description of the horrible taste sounds like it is the same! Let me know if you find it, OK?
Kashif–I found a link–see if this herb looks familiar:
http://www.herbasin.com/database/buguzhi.htm
Hi Laura,
Name: Babchi
Biological Name: Psoralea corylifolia : that is the herbal name for that seed.
Its really easy to find this seed in my country. I have got loads on me. I can post it to you the seeds if you want but I won’t post the grinded ones as I am using them.
All you will then have to do is to use grinder, grind them and have them daily and then I would suggest a sun tan for about half an hour, only if, you don’t get sun burn. I mean I don’t get sun burn even at 30-40 degrees as I am used to it as I am from hot continent.
Let me know your thoughts.
http://www.holisticonline.com/Herbal-Med/_Herbs/h128.htm
you can find more info about herb there.
Hi Kashif,
Don’t post the seeds, it’s OK–I am in the US and know I can find them.
I am going to the tanning salon here on cloudy days. I also do not get sunburn, my heritage is southern mediterranean–probably some ancestors were arabic
I stay on the tanning bed just 10-15 minutes. I’m getting a nice tan on the rest of my skin, so far on the vit, nothing.
you will be fine Laura. it will take its time.
i have had vitiligo since i was 6, now i am 19, it is on my legs a lil bit on my hands, stomach, back and other areas, what could help me?
thas the one Laura
James,
Look back up through the postings–there are many good things to try, and of course you may need to find a doctor who is sympathetic and also good at what they do. If you have more than 60% vitiligo, and are very fair-skinned, you should talk to the doctor a bout de-pigmentation. This might be a good option for you if you are a person who can’t be in the sun much anyway. If you are more olive or dark skinned, you will have to read up on all your options and decide with your doctor what’s best for you.
I know Kashif and I are trying to do things more naturally with herbs, sunshine, etc. You have to do some research to see what’s right for you.
Here’s a link to a scientific article that lays some of the options out clearly:
http://www.emedicine.com/DERM/topic453.htm
good luck and keep us posted!
Hello, Hope you all r ok
I tried for cover the Air stoking spray, is great! and also have spf.
If you (girls) want to cover it, just try it! I said girls, because it seems to look a lil bit maked up. But I’m feeling very much better.
Cheers
Vivi
Pseudocatalase is a scam. Went to Germany and spent $2,000 on the cream which I used over a 1 year period to no effect. Dr. Schaullreuter just want’s to seperate your money from you.
My vitiligo started about 8 months ago…first it started in my eyelid and i had gone to the doctor and he gave me a cream assuring me it would go away…of course it didnt but it spread on my hands my nose and cheeks..its horrible i didnt know how to react to this…i started going to a specialist in vitiligo in los angeles after seeing 5 different doctors. She has been working with vitiligo patients for over 20 yrs. She gave me protopic and clobesol cream. After a month the spots on my cheek were completely gone I can see my nose repigmenting but not my eyelid yet…The spots on my hand have had no change i still have them…So i decided to work out 4 days a week and it has helped my to overcome vitiligo a lot! Now i am sstill using clobesol cream and protopic ointment plus multivitamins, vitamin c, vitamin b12 and E. If anyone knows of somehting that can help repigment the color on hands please help!!
Hi Elizabeth, hands are the most difficult part to repigment and might take time so be patient and keep up with your treatment. There is no miracle cure for vitiligo, you gotta be patient and keep consistent with treatment.
good luck.
Hi all , I have had Vit since I was 20 , I am now 44. I have tried a few things, and convinced now that the cure is in the Diet, so now Im trying a Juice of Celery and Carrot which is rumoured to help. I notice that a lot of people have good success with B12 and folic , so I am off to try these. I spend every other month in Spain, and Tan easily, I personally think the Sun is benificial, but this time have noticed more patches on the back of my hands. Does anyone now if juicing oranges is good, people have said this is not good fot Vit???
Many help or comment would be appreciated.
Thanks Kashif, its really diffucult to adjust to this when you are 21 and suddenly your life changes completely!..Has anyone tried meladinina before?
hey Elizabeth, I am 24 as well so I can truly understand your emotions. Please don’t use different treatments without first knowing them completely specially steroids.
Tim, regarding vegies, they are good and so is fruit but a homeopathic doctor told me to avoid sour fruits like orange, grapes etc but to be honest, i don’t avoid any of the fruits but i do not really like too much chillies and meat red meat specially.
The safest way I think is B12,folic acid and vitamim c and some good sun.
Because everyone is diffrent you should find out if low stomach acid is the cause as well.
Somtimes its just the enviornment like the Uk where we don’t get sun at all.
It is wise that you know what is the cause of your vitiligo before you start taking all these steroids and internet pills.
as somtimes its just a little sun your body needs.
what should be the dosage of the b12 and folic acid?
Elizabeth, I am taking 1000mg b12 and 800mg folic acid on daily basis.
Dear all:
1-It is just for your information that for the past six months I used Viltex Tablets along with folic acide, vitimine C, and B12, Prescribed by Dr.Le, from Merry Clinc in San FransicoDoes. I have not seen anyresult even worse I can see some new patches appering on my body.
2-A few days ago I went to a dermatalogis in California, he told me there is no specific cure unless you try things. The doctor prescibed me to take two time UVB. Does anyone in the State know any insurance company that take vitiligo treatment please?
3-Also anyone try drawing tattos on the Vitiligo spots? I am wondering if someone with limited vitiligo spots can tatto those spots. Any Idea Please?
4- Does anyone ever used medicine called Trisoleren? One day a man approached me and told that he had vitiliog on his entire body almost. He used some medicine called Trisoleren which is only avialbe in the United States. Does anyone know about this medicine?
Thanks a lot for sharing things with the group
Hello, everyone. It’s been awhile since I posted something but I am following everyone’s blog very closely.
Vitiligo runs in my family (inherited it from my dad’s side). I have had vitiligo before I even started school and am now 37 years old.
I’ve read from someone that each case is different; I believe it’s definitely true. I also use Vitilax, which is from Merry Clinic, for about six months now. Fortunately, I’m seeing progress particularly on my face. I “HAD” a huge mark on the left side of my nose, which is now almost invisible. I really follow Dr. Li’s instructions to the “T”…no alcohol, no spicy food, take the b12, folic acid and vitamin c. Also, exercise seems to help a lot.
I also take the methyl form of B12, not the cyano. I read a lot of research information that methylcobalamin B12 may be retained by the body better than the cyanocobalamin B12. Cyano is the more common form of B12. The methyl form is a little more expensive and 1 tablet is 5,000 mcg instead of Dr. Li’s 1,000 mcg recommendation
For the younger generation who are having inferiority complex about the condition, hang in there. There is cover up like Dermablend while trying to find the “real” cure.
Cheers to all! Please keep blogging; it’s nice to hear other forms of treatments out there.
Marie: Thanks for your information. I was wondering if you could post before and after treatment pictures so we can all see how Vitlix work.
Thanks
I also read that ginkgo is also good for slow spreading Vitiligo along with B12 Folic acid Vitamin c and of course
sun!
Taking one a day of B12 1000, Folic acid 400 and vitamin c everyday at the same time.
remember Vitiligo is an autoimune disarder!
Aneimia, low stomach acid, stress B12 defeciency and I guess more! we should all find out what is the cause of it.
You could be treating it and it is not geting any better but worse. and again always remember that each and everyone of us are diffrent. what works for you may not work me!
a quick one guys, is it normal for a patient with vit to have stomach disorders. I used to have stomach disorders the moment I eat spices so I have cut on spices but as I live with my relatives here in UK so I have to eat whatever they cook and they eat loads of spices. I try to make myself one but cannot because I work full time and don’t get time to cook.
also, I have cut on using creams and I only use VASELINE for everything, on hands , on face arms etc as I do believe using different types of creams can cause problems.
Also, I am trying to avoid shampoos and trying to use herbal shampoos for hair and shower.
will keep you updated and I would love to read your thoughts about SPICES, SHAMPOOS and CREAMS.
Re: Spices, shampoos, creams–I was told to avoid all of the above that have ingredients called PARABEN in them. I find that at the health food stoer there are plenty of options for organic based stuff. Some good US brands are: Dr. Bronner’s castile soaps, Kiss My Face creams, also Dr. Hauschka creams, Avalon organics soaps, creams, shampoos. Vaseline is not the best idea, as it is petrol based. Olive oil is much better.
As for spices, I have heard that from other people, but I have found no research to support that, with two exception: Fenugreek and Licorice. Don’t know why.
my folic acid vitamins say 400mcg whats is the difference between mcg and mg
I started the Vitilax pills, vitilax skin oil, and Skin detox formula a little over 3 weeks ago. However, now that I’ve read more disappointing experiences with the treatment than pleasing ones, I’m really second guessing. I will let everyone know how it goes on a three week basis. All my confidence resides in Dr. Li, the distributer of the treatment, someone I have never met. I hope through the end of my treatment, i will give hope to many.
GOOD NEWS
Pepper Compound Could Aid Millions With Vitiligo
ScienceDaily (Apr. 13, 2008) Oregon Health & Science University has licensed a family of compounds derived from black pepper extract on which it owns the patents to AdPharma, Inc. for potential pharmaceutical development. The compounds have shown potential in animal studies to be effective in treating vitiligo, a skin pigmentation disorder.
——————————————————————————–
Vitiligo, which afflicts an estimated 100 million people worldwide, is characterized by the loss of pigment in affected areas of skin. It is the disease pop star Michael Jackson has publicly disclosed that he has. It is neither life-threatening nor contagious. But the sometimes unsightly white patches it causes produce emotional distress for many and often lead to social ostracism because of a widespread misperception that the condition is infectious.
An estimated 1 percent to 2 percent of the worlds population suffers from the malady. Current treatments, which rely on immunosuppression or ultraviolet radiation to stimulate repigmentation, are only partially effective, often producing a mottled appearance. Excessive ultraviolet (UV) radiation also poses the risk of skin cancer.
Based on the animal studies we have done, these compounds, if proved safe in humans, promise far superior results in the treatment of vitiligo than current approaches,said Amala Soumyanath, Ph.D., an associate professor of neurology, OHSU School of Medicine. Vitiligo is a highly visible disease that can greatly affect patients psychologically and emotionally, even driving some to consider suicide. Any breakthrough in treating it would benefit a huge number of people around the world.
Soumyanath and her collaborators reported on the effects of their compounds in animals in a paper just published in the British Journal of Dermatology. But development of the concept dates back more than a decade. Soumyanath discovered “ in research on vitiligo that she initiated at Kings College London “ that piperine, the alkaloid in black pepper responsible for its pungency, stimulated the proliferation of melanocytes in cell cultures. Melanocytes are the cells that produce pigmentation in the skin. The researchers then designed and tested many synthetic piperine analogs and identified a number that produced the same result.
The group subsequently found that piperine and two of its analogs “ tetrahydropiperine (THP) and a cyclohexyl derivative (RCHP) produced light, even pigmentation when applied to the skin of a poorly pigmented mouse model. When combined with UV radiation, the skin grew significantly darker and showed none of the patchiness caused by UV treatment alone. Moreover, skin pre-treated with a piperine compound required fewer UV exposures, thus lowering the cancer risk, and it took longer for the pigmentation to fade again than when UV alone was used.
Since coming to OHSU in 2002, Soumyanath has established new collaborations with scientific and clinical researchers to continue work on this project. Dr. Soumyanath’s recent discoveries open up completely new and exciting treatment possibilities for those individuals affected by vitiligo, said Andrew Blauvelt, M.D., professor of dermatology at OHSU and one of Soumyanaths recent collaborators. There is a huge unmet need for this disease because we have very few treatments to offer patients right now,he noted.
OHSU acquired the patents to Soumyanaths piperine compounds from Kings College London and BTG International Ltd. in 2006 and succeeded in finding a commercial partner, AdPharma, to advance the compounds through pharmaceutical development. Soumyanath has a financial interest in AdPharma. This potential conflict has been disclosed to the OHSU Conflict of Interest in Research committee for management.
AdPharma, a diverse pharmaceutical company headquartered in Arlington Heights, Ill., licenses promising compounds from scientists, universities and biotech companies and advances them through the clinical testing stage. Our key strength is being able to identify, through our computer models and past experience, promising drugs which we can then drive through our strong development structure, said Anil Sunkara, the companys chief executive officer.
The next step before clinical trials can be undertaken, said Soumyanath, is to determine in animal models whether the repigmentation effects of piperine compounds is associated in any way with melanoma or other skin cancers. From our mouse studies so far, it doesnt appear that is the case, she said, and we are hopeful that more detailed research will bear this out. OHSU has ideal facilities and expertise for further preclinical and clinical studies, and we are excited to have the support of AdPharma as we move toward testing these compounds in human vitiligo.
Adapted from materials provided by Oregon Health & Science University.
Joey: Thanks a lot for sharing. See if you can get some pictures now and after treatment. I used Vitlix from Dr.Lee along with other vitimins but I saw no improvement.
thanks
K, how long did you use the treatment? Did you use everything I listed? I’ll do a before and after photo once this is treatment is nearing two months. What are you using now? Good talking to you.
Joey: I used for six months vitilix 12 pills a day 6 in morning and 6 pills at night. Along Vitilix, i got 800mg of folic acide, 1000mg Vitimine B and 1000mg Vitimine C. That is all I did but nothing happen I mean no improvement at all. It didnt even stop spreading my vitiligo.
Thanks
wow, I wonder if thats the story for the majority of those who have used the product? Did you change your diet for those 6 months?
NO only what she told me that eat brocoli a lot and do’t eat to much spicy that is all she told me. Oh yeah Ia m not using anythings now. I went to demetalogy here in Cali, they told me that only thing they can do is to start UV treatment for me and that is it. They are not sure that even UV will work or not but I am going to take it. I am just waiting to find an insurance company to take vitiligo.
thanks a lot
guys, those vitilax pills and all other crap are just waste of money, they are just fooling you so don’t waste your time and money.
the only thing that will work is sunshine without getting sunburn and a never ending hope.
cheers
Kashif, has sunshine helped your condition? If so, do you take any supporting vitamins?
Joey: Yes, sunshine greatly helps my condition.
Let me start from the beginning. I had a big vitiligo spot which spread like crazy on my right hand in 1997, right on the top of index finger. I never took any medicine that time and I did not know that it was vitiligo. It just went away itself.
Then, in 2000, I had a big spot on my forehead and it was quite big one, its like you have made it like round big white.
Went to dermatologist, he gave me some sweet pills and advised me to go in sun as long as I can bear it. I never took the pills but I went under the sun. (we usually get 40 degrees in our country in summer). I don’t get sunburn so I used to spend quite a lot of time in the sun.
That spot took 3 months to come I think and It went in about 6 months, completely gone, repigmented.
I was fine when I was in my country,Pakistan. I moved to the UK in 2005. No good sunshine here.
Spot started appearing in late 2006 and now I have got a spot on my face next to the nose on the left side. It was getting bigger and bigger.
I went to Pakistan for 20 days on holidays, sunshine is about 15-20 degrees. I used to spend a bit of time under the sun everyday while I was there and I can see the repigmentation. The spot is half repigmented now but there is no sunshine in this country so it is really slow repigmentation here.
I am not taking any vitamins. All I am taking is a herbal seed known as BABCHI as it helps me and I am applying a homeopathic cream on the spot called HYDROCOTYL which one of homeopathic doctor gave me. It has no steroids in it like other creams.
I am regularly taking snaps of the progress but I am lazy enough to post them.
I personally think sunshine would help me and that steroids mess your skin up so I totally avoid them.
Cheers
thank you very much Kashif.
Hey, there is a link from this page that sells vitiligo cover cream. Does this product produce the same result as claimed in the before and after photographs?
http://vitiligocover.com/lotion/
Hello everyone,
I can honestly say this is by far the best forum I’ve found since I was diagnosed with vitiligo (2 years ago). Let me start off with when I first noticed it…
Oct 2005 – Right around this time I was drinking quite heavily. I had just turned 21 a few months before and decided that it was my time to party and go crazy, although I’d been drinking moderately since the age of 17. I should also mention that my mom had surgery the summer of 2005 and she was in the hospital for 27 days very sick. I would wake up at the hospital with her, go home and shower, then go to school, then go to work and this was my life for 27 days, non stop. I’m a big mommy’s girl and this took an emotional and mental toll on me, more than a physical one. I first noticed a reddish spot, almost like a bruise or a hickey under my lip one morning (this was sometime around October). I won’t lie, I had drank quite a lot the night before so I thought maybe it was just a weird effect from a hangover. About a week later, that same reddish spot started losing pigment and from there it progressed.
I went to a general doctor about a month into it and he diagnosed it as a fungus (which I read from previous posts) was the initial diagnosis for a lot of us. So he told me to use an over the counter cream, which I did but it had no effect.
April 2006 – I went to a dermatologist and he told me I had vitiligo. By then, the 1/2 inch spot had grown to about 1 – 2 inches still under my lip, progressing to MY LEFT side of the chin. He was quite dismissive and told me it had no cure.
I should mention I’m from southwest Texas and it’s a desert landscape. We get about 300 days of sunshine a year.
Oct 2006 – I moved to Denver in August 2006 for education purposes and by this time my 2 inch spot had progressed to the left side of my chin but had not progressed further. I should mention however that it did progress quite slowly, compared to others. I found out about a dermatologist in Minnesota right around Oct 2006 so I made an appointment but he’s quite renowned and was booked until June 2008.
I left school and I left my job in Denver and moved to Minnesota just last summer. I have been doing the NUVB treatments 3 times a week since. He saw me 6 weeks after treatment and progress was minimal, almost none, but we kept hope because we saw 2 or 3 tiny grains of pigment on the small spot I had developed of MY LEFT side of my neck. I had also already developed a small white streak by MY LEFT ear. So it seems to stay to the same side and I’m lucky it hasn’t progressed as rapidly.
12 weeks into my treatment, the spot on my neck was 90-95% gone. I’ll be more than happy to post a before and after picture of it.
It’s now been about 9 months since I started my NUVB treatments and the spot on my chin is still there. I’ve had some repigmentation on it but nothing major. My neck is still 90-95% repigmented and the streak by my left ear is almost gone.
I believe my consumption of alcohol played a big role but I also believe it was stress. There is no history in my family of vitiligo, from my dad’s side nor my mom’s. I also believe nutrition plays a big role. I’m of Mexican descent so I consume spicy foods, I don’t enjoy a meal unless I’m drinking a soda, and I eat lots of red meat. It’s horrible I know but I hope to hear from someone and find out what you think.
I am doing the following:
NUVB treatments (3 times a week)
Ginkgo Biloba (120mg daily)
L-Phenylalanine (1000 mg daily)
Elidel
Dovonex
Herbalife Products – Nutritional Shake, Herbal Tea Concentrate w/ Herbal Aloe (herbal tea) , Schizandra Plus ( 2 tablets daily), Cell Activator (1 capsule a day), Multivitamin (2 tablets daily).
***I started taking Herbalife products because some family members of mine started taking them in hopes to lose weight. My aunt, being one of them, was talking to a couple who sells the products and they told her about a man in California who had vitiligo and had seen MAJOR improvements just by taking these products. I don’t want to say I’m pessimistic but I don’t make a lot of money and everything can be costly so I always do my research before spending my hard earned money. I was given this man’s number and I personally called him (and yes I checked the area code to make sure I was calling a California area code). He was quite honest with me. He said he’s been using the products for 5+ years now and is about 85-90% recovered. He tells me his case was very severe, throughout his entire body and that by the time he started taking Herbalife products he’d had vitiligo for 15+ years.
Just to make things clear, I started using Herbalife products a year ago this month. Right around this time I had noticed a faint dime-sized spot on my RIGHT arm that went away within a month of taking the product, but honestly I never fully lost my pigment in that area.
I stopped taking Herbalife products right around October 2007 and after about two months ago, I stopped seeing results (keep in mind that by then I was in my 4th month of NUVB treatments). I just went back to Herbalife products in late February of this year and I’m starting to see SOME small traces of pigment come back. I’m still doing NUVB treatments 3 times a week but I believe I may be headed in the right direction. Progress is quite slow to say the least, but at least it hasn’t spread.
Oh a quick note (I know this is probably going to take the cake as the longest message) but my aunt started selling the Herbalife products earlier this year. She actually went to a Herbalife convention late last year (or maybe early this year) in Denver and she saw the before and after pics of that man who’s used the products for 5+ years. Unfortunately I have no pictures to show you guys of him, and I would have really liked to have been there but again, I’m now in Minnesota.
Any questions, comments, or concerns, PLEASE reply! I’m eager to hear from someone regarding my case.
Oh and quick question? How do we go about posting pictures or seeing pictures posted?
good question regarding posting pics mate, i would like to know that as well.
hola ronaly robe serias tan amable de darme la informacion de la crema que estas usando te lo agradeceria mucho.
A mi tambien me gustaria tener la informacion sobre la crema, por favor.
english please
Just to let you know guys again that Vitlix from merry clinics instead of helping my vitiligo it worsen. New spots of vitiligos are appearing too soon now than before the treatment. I heard from some one that Vitilgo has a rest period where it doesn’t spread, but if you try to use some medication it will trigger. So I think based on my experience wihtthe Vitlix pills, it just trigger my vitiligo.
P.S: The only way to fight vitiligo stress is to just exercise. sometime my vitiligo bothers me too much but when I got to gym and see my muscles it is easy to overcome the stress.
K,
i think people with vit including me should be careful when using different new medicines. I never try anything new on my spots and I have been mentioning and reading articles which say never ever try anything because its not real. they are trying to make MONEY and you GOT TO BE REALY CAREFUL WHEN USING NEW MEDICINES.
good luck
To all the people, especially women, who worry about your looks: I want to say a smile and wink is 10 times more potent than you think. Good converation goes a long way. If any man is stupid enough to turn down a good women because of vitiligo, he deserves his lonely fate.
I am a guy with vitiligo. Started on my face, I am 52! Yeah, I am worried I will spend my life alone (recently divorced). So, I started smiling, acting confident, making jokes, just being a friendly person. You know what? The vitiligo doesn’t matter that much.
The lotions seem to be working, slowly. Has anyone tried the dermalight 80? Please tell me results.
And remember: Desirability comes from the way you act. A woman can devastate a guy by acting sexy, winking, trying just a little bit. Yeah, you may have to try a litle harder. So what! Have fun with it.
If a man is a real man, he will be impressed you are a “gamer.”
very well said benjamin i agree with u on that
Hi everyone! Twelve years ago I moved from Azerbaijan to US, got married, had a baby, and two years later I noticed a tiny white spot on my right hand. I didn’t go to doctor right away, didn’t have any idea about vitiligo. 3 years later the spot got bigger, I started worrying, went to doctor: it was vitiligo. I was so devastated, and still am. Now I have spots on my both hands, under my chin, and on my right elbow. My doctor prescribed Tacrolimus, Vit, B12, and Folic acid. Nothing helps me. I read sun exposure helps, but I have been avoiding the sun, because without tan my vitiligo is unnoticeable, once summer comes, I get a tan, wow, I see all the spots: Summer is very depressing for me. I used to love to go to the beach back in my country, and would get a beautiful tan. Now, I still do it, but I don’t know how long it will be before it spreads further, and then I can’t do that anymore.
My doctor mentioned to me about stem cell research for vitiligo. She said that will be the only one cure. Of course the president didn’t sign the stem cell research. My doctor gave me the doctor’s name. Dr. Grimes is the one who was working on stem cell research. You can check out her site. But I haven’t found much on stem cell deal.
In the mean time I am interested in doing excimer laser treatment. Does anyone know about it, or tried it? I was wondering if you can go under sun after being treated with excimer laser tx? Any info would be appreciated very much.
My heart goes to yall!!! Thank you all for sharing your thought and experiences with vitiligo! Vitiligo is like evil, and I pray every day to God to help us to find a cure!
Natalie, I have questions about the vitiligo cover lotion. I am caucasian, but can tan fairly dark, so in the summer my spots become very obvious. Does VCL cover fairly dark? Does it last for several days to a week? Does it turn orange if applied several times? Can it be used on the face without clogging pores?
Also what is Ilana’s site? Her vitiligo looks like mine.
Thanks, Sandy
I started seeing white patches appearing on my hands about 9 month ago, when I visited the doctor’s office he told me it was vitiligo, I almost died I started to cry, he assured me that everything would be alright, he prescribe clobetasol propionate cream for me and to me we will be starting the narrow band uvb treatment within a month, I also ordered the Vitilax package from Dr. Li it should arrive within a few days. I am praying it works. I will keep you updated on the progress.
Hi cheryl–I also ahve spots mostly on my hands, some on my face. Be careful with the Vitilax, I did not try it, but others here have said that it doesn’t work at all, and some have said that it made their vitiligo worse. the UVB treatment is good, I have been trying to find a dermatologist to do that or laser for me, and have been to 4 so far, all of whom were not interested really in treating this disease. Next week I’m going to #5, he comes well recommended because he also works in an actual hospital, and is able to do laser and other light based treatments. I’m also doing a lot of herbal medications (doctor prescribed) and vitamins too. Let me know if you want the list.
Natalie,
I just want to say I respect you and everything your doing for us people with vitiligo. I’ve had about 14 sessions of the extract and starting to see some results. My doctor also tells me it would be great to sit in the sun as this would also help my condition. My question to you is do you know anything about vitamine b-shots,does it help and were can I go to get it enjected. Also,did your doctor tell you that you might go into remission once the skin repigments. Also,how did you get the color back on your eyelids,because my dotor gives me tape to put on so the light doesn’t go into my eyes. Is their a way I can work around that?
Thank You,
Rickey
Nathalie,
you mentioned that Ibana had a web site. Could you give it to us? Also, has anyone had success from the Merry Clinic? I am also interested in learning more about the vitilago cover lotion. Has anyone used it? Does it cover well? Does it last several days and can it be used on the face?
Thanks,
Sandy
Sandy, I got Merry Clinc’s herbal medicine. It did not work only but made my vitiligo worse. Beside that, once I purchased the Vitilex pill from them and they got their money, they didnt’ help or answer any of my question that later on I had. I called and sent emails to them but they weren’t any helpful at all.
I wanted to let everyone know what my regimen is now, because while I have not yet had any repigmentation, I have noticed the vitiligo has stopped spreading. So here is my list, I suggest interested parties discuss dosages and treatments with their own doctors, as everyone responds differently/has different needs:
Xtrac laser treatments – twice weekly
Natural sunshine OR UVB tanning booth – 10 minutes daily
B12 shots (Methylcobalamin) – twice weekly
sub-Lingual B12 – on non shot days
Rhemannia
Tribulus
Eleuthero
Amino Acids (includes Tyrosine & Phenylaline)
Astragalus
St. Johns Wort (a natural psoralen!)
Vitamin D
MSM
Calcium
Magnesium
Zinc
Iron
Mutivitamin
Cod Liver Oil
Probiotics
Milk Thistle seed extract
I am working with a holistic MD, and now dermatologist #5, who turned out to be the right one for me!
Good luck to all, hope this helps!
OOps–I forgot one more:
Gingko
People,please stop spending your hard earn money on the pills from the Merry Clinic,it’s a ripp off. When I first went to my doctor for the extrac treatments,I told him that I had just started using the vitalix pills and he said,return them and get your money back. I call them the next day and told them I wanted a refund back and they gave it to me. Now,I’m a guy that lives in New Jersey and persuing an acting career. An as an actor you have to be very real,and that means no makeup. It’s very hard to show up for auditions and not have my spots covered up. That’s why I’m liking the XTRAC. It does work,but it’s expensive. I don’t have medical coverage,so everytime I go for a vist it’s $100.00 All I’m saying to you guys is do your research. The real treatment I believe is 1)XTRAC2)PROTOPIC and the Sun,as much as you can stand. And of course a positive attitude. One more thing, I wish they had a site for people with our skin condition looking to date other people with vitiligo. Wouldn’t that be kool.
same here. I have said it many times here that do not rely on those scams like merry clinic and vitiliax. It is just a waste of money and time. You can spend a quality time somewhere else.
Sun has worked for me like a charm.
I used some herbs and I am still using them.
You must have seen the pics I sent. I will take some more pics and send them through as well.
Good luck everyone. don’t lose hope.
Kashif
I had vitiligo since 2001. I tried to take whitening pills and voila…2 weeks after, i noticed white patches. it spread so quickly. Now it has been 8 years and i am stuck on O’Leary covering cream. I had UVB treatment and Protopic .01% and it is doing good. Very hard though on my knuckles and elbows.
Hi K, interested in your black pepper news. Where can we get the medicine derived from black pepper.
Hello Tarana, I just read your comments about Dr. Pearl Grimes in LA. I don’t know if you have visited her but I head alot about her. I was wondering if you have already started the treatment yet and would be nice to share your storty with us . I will be visiting her some time in December this year and will update you all.
Thanks
Has anyone heard about Dr. Pearl Grimes in Los Angles Please? Any adivse
Hi all, Good news and bad news here. The Xtrac laser treatments are giving me somelittle freckles back, but only in the areas of my body that are least visible–underside of wrists. It’s good that I am responding to it at all, although I’ve had more than 20 treatments with less than 4mm of repigmentation on 1 wrist. I’m finding that despite continuing my regimen of herbs, vitamins (I can send the list to anyone who wants it, but it includes B12, folic, PABA and about 20more), and despite getting Synthroid to treat my hypothyroidism, I continue to see an increase in the number of new white spots, especially on my face, and a spreading of spots on my hand that are not yet responding to the laser. Anyone else have a similar experience? This is very frustrating. I’m spending $150 per week for laser treatments!
Hey eveyone I am currently a patient of Dr. Pearl Grimes…I am curently having uv treatments and using tropicals…it helped what I had on my face but now i feel like im getting more spots….i have not seen any improvement in my hands I actualy feel like its getting worst but she is great and will help as much as she can……get insurance because i dont have insurance i spend close to $1000 a month
Hi Elizabeth. I’m seeing Dr. Crutchfield in Eagan, MN. I’ve been getting the nUVB treatments for 14 months now. I can tell you that the spot I had on my face stopped spreading but I’ve only recovered about 10% of the pigment I lost in that spot. I can also tell you that the minute I stop taking my vitamins and my Herbalife protein shakes, whatever little pigment I start gaining back comes to a halt. I truly believe that stress and nutrition are the main factors to vitiligo. Try to start from the “inside” and don’t worry so much about topicals. I don’t get them. I have insurance but it doesn’t cover the protopic, dovonex, or the one Dr. Crutchfield himself prescribed (one made by him). I bought them once but I didn’t think they were effective. Just those 3 are about $700 alone and frankly, that’s too much.
But again, my advice to anyone with vitiligo is start from the inside. Try to work out, try to stay healthy, try not to drink, and get on a very nutritious diet.
Good luck everyone!
Elizabeth
Thanks for you input. I have also an appointment with Dr. Pearl in next month. Can you tell me how long have been under her treatment and how often do you have to go under the uv light. I am far away from her clinc. Also, do you use the uv for you hands, I heard hands and feet are the most difficult part but she also have another machine called lazer treatment which I heard is more effective and fast. especially in places like hand and feet. Why don’t you want to ask her if she would recommend you the lazer treatment? Anyhow thanks for your information and looking forward to you input in future
Hey K sorry for the late response. Well I go in for uv treatments 3 times a week. I have been under treatment for about 8 months now. The uv she has me under is for my whole body. I have seen some results but not much. She said she was going to see next month if she would use the other type of treatment for my hands.
i have vitiligo for 3 year,and i use RECOULEUR,KALAWALA,VITIX byt nothing.i whant too order VITILAX PILL,VITILAX OIL AND SKIN DETOX FORMULA ,byt im afraid of you what you say for vitilax.please tellme what too use .in the same patches i have psoriasis,for 13 year.im 35 ,and i have 3 children.my husben is very psicopat men.for my seek skin he dont love me any more.please iwhant to cure.
Hi Suki, I can totally understand where you are coming from. I know it is horrible to be going through a situationat a young age. I am 21 years old and I am very aware of my appearance and for a while I was very scared that no one would come to ever “love” me but I have met wonderful people who look beyond your appearance and make you feel like nothing is wrong with your skin. If your husband cannot see what he has infront of him and he says he doesn’t love you anymore than I would say that he is not worth you stressing. There is no cure yet unfortunately but you should seek into phototherapy treatment…a small patch of pigmentation is a lot better than nothing at all….good luck and stay positive.
Hi, Suki. I agree with Elizabeth. A person should not stop loving you just because you have skin imperfection (that’s TOO SHALLOW!!!). I have vitiligo (runs in my family) since I was three years old. You should not be scared or frantic about your condition…it actually defines your uniqueness as a person (at least that’s how I feel about myself). I’ve taken Dr. Li’s Vitilax and they somewhat worked; I did not do a refill since it’s quite expensive and not covered by health insurance, but continued on taking vitamins (B-12, folic and C). I take the methyl form of B-12 v. the more common cyano form. It’s a bit pricey but it seems to be more effective in my progress (I take 3,000 mcg daily). About 50% of my face was covered with vitiligo (I am Asian, so my V’s are more transparent) before I started the regimen. I use DermaBlend for cover-up since I was 15; I also read about DY-O-Derm but never tried it. Elizabeth says it all, you will find wonderful people who will truly love you and will look beyond your appearance. If I were you, I’ll tell your husband to look in the mirror and check if he thinks he has a perfect image before he even criticizes you…he should be ASHAME of himself for acting so ignorant! You stay positive and be true to yourself about who you are, not how you look like…because then, people will see you how you see yourself
Take care!
Hi, Suki I don’t know where you live, but If I were you I would leave him. It is sad in most undeveloped nations and mostly Muslim they consider vitiligo “God Curse” but actually it is nothing more than pagment disorder. Believe it or not, I am sure we would soon find cure but in the meantime no one is perfect. When I look to my vitiligo it makes me sad and depressed but I do’nt let it bother me too much because I always look at people who are in worst circumastance than us. Your Husband is stupid damn. Why is he so sick-minded. I have vitiligo, but my wife loves even more.
My advise best on my vitiligo experience, as every individual is unique, do’nt let it bother you, the more you are stressed the more your vitiligo will irritate. There is a correlation between stress and vitiligo. Also, I am not trying any medicin at all, I believe most of the time when I try something it spreads my vitiligo even more. I tried Marry Clinc’s Vitilax not only didn’t work but spear even more patches on my hands. Bottomline, be positive, keep excersis and remember we do’t judge books by its cover but by its contenents.
I have vitiligo for 40 years. Any help? I tried every thing
I have been reading and reading.Whatever you are doing is just wasting money and your efforts all I feel after tryng to get rid of vitiligo and spending a lot on it, cehated by doctors too with UV light treatments. The only PUVA ( whole body light and psorolen pills) gave me major coverage and meladinina tinture. I met a guy who completely covered his hands just using meladinina tinture and sun shine every second day for a year but be so careful as meladinina makes that areas sensitive to the light, begin with 5 minutes and increase 2 minutes each day you do or 1 min. I really got tired of it like all of you and just begin to think to depigment all my normal color. I live in St. Croix USVI so all year aorund sun shine, it is very distracting having tanned skin rest of vitiligo, wet and hot weather doesn’t go with self tanners or wth the other type of coverages.Besides thinking depgmentation, I see some good news about biological drugs, but it will take time and also piperine compand. Knowing millions lived with vitiligo all along their lives for centries must be the way i feel now and they all hoped one day one day and it did never come for them, who can say it will come to us. Maybe it will maybe not, so this is the breaking point of waiting for the biological drugs or piperine, on the other hand depigmentation is permanent and makes us sensitive to sun so how it will make me feel living with it. I would be pretty good looking with light complex just not sure how sensitive i would be with depigmentation and how long it will take or if much place stay with a normal color it means i would have more viti areas. All those in my mind, I think i will first try meladinina tintura with sun shine for a while more so I can wait for the new drugs those I mentioned above, if nothing I will defintely degigment all my normal nice color. I just want to add, I did recover nearly all my spots several time with long and tiredness efforts but they all and even much worse came back at the following months. This is hard part..I wish best luck for all of us and I do believe if there is someone consider this condition seriously for along time may find a way to get rid off it, but definitely none of those we were doing work enough…
Hi I am from the west indies. I am reading all the comments and am wondering which one i should use. I burn easily in the sun sothat is not going to work for me. It would be nice if we could have the dosage of the different vitamins. I have had vitiligo since 1992 and it has spread to almost all over my body . the most that I worry about is on my face and neck. Fort people of the West Indies what can you recommend. I have spent so much money and something less expensive would be nice
when I read all these posts I then started to try the simple method of B12 and Folic acid and some sunshine here in London. I am currently on homeopath pills from Dr Shah, I’ve been on them a year now and I started taking B12 and folic and ’sun’ since 6 months ago. Since then I haven’t noticed a new spot anywhere which is amazing because I normally have a new one show itself once – twice a year. Also the other good news is that I have seen some repigmentation in some areas, they come out as little frickles and grown bigger. However, a little bit of sun is needed for the repigmentation from my exeprience because I only noticed repigment spots after I spent time in the sun. Now that we are in winter season, there is no warm sun but all I can do is keep on taking the B12 and folic and hopefully it stays the way it is – no news white spots!
I am on the hunt for the B12 with methylcobalamin but cannot seem to find it anywhere, would anyone know where in the UK I can get this one?
Thanks in advance
Hi Rene,
I live in UK but I never get a sunshine here, whereabouts do you live
I am using B12 which I ordered off justvitamins.co.uk and they are quite effective. Also, I am using a herbal cream HYDROCOTYL and herbal tablets that have been quite effective for me and I have seen good results.
Let me know if you require herbal medicines, the good thing about them is there’s no side effect if unfortunately there’s no improvement.
thanks
YOU ALL ARE WONDERFUL PEOPLE.!!!
KEEP UP THE GOOD WORK OF ELIGHTENMENT AND INFORMATION.:)
Hi,
I live in the US, and i have had vitiligo for over 10 years and ive tried UV light but not really effective. Is there something else that has shown positive effects. please let me know.
Thank You,
Husnain Safdar
hi Hasnain,
I would say if you don’t get sun burn then go under the sun as long as you can hope (providing there’s lots of sunshine in US where you live), should be arite then.
Also, fruits, vegetables are good source of repigmentation.
Thanks,
Kashif
Just getting started dont know where to begin .My vitiligo is getting worse.Very deppressing .Any comments
Everything is gonna be alright!
Just remove “Inferiority complex” k? Good!!!!
Hello all, it’s been a wonder to read all your comments. I don’t know if I have Vitiligo. I have a white spot on my face (cheek/near chin) and have developed two tiny spots on my lower back. I was given a steroid cream, but I feel it is making my condition worse.
My doctor said to use the ointment for 3 weeks, and come back. But I’m going to be going back this week (only been using the ointment for a week). He said it may be a fungus. But I’d rather know for sure.
I’ve been using Head & shoulders shampoo, just in case it is a fungus – and do see my spot redding at times.
I think I’ll start taking b-12 and folic acid vitamins. No one in my family has vitiligo, so hopefully I’m not unlucky enough to just get it. (It’s been over a month since this started).
I live in the U.K. and as you know no sun here. I’m Asian too, so my white spot(s) are highly visible. I just hope to God they disappear. However I have faith they will. If you can lose pigment – you can surely get it back.
I am not seeking tablets especially not from Merry Clinic or other places. Though I was giving DermaBest a look. However unless I am diagnosed with this disorder (and I hope I’m not). I shall wait and see what my dermatologist says.
hi Shaz,
Please don’t start applying steroid creams as they’ll worsen your condition. Infact, go to your doc and tell him to properly diagnose the issue. Eat fruits and vegetables and avoid eating too much red meat. Last but not least, don’t give no notice to your skin, its just the skin, won’t make any difference.
live happy n prosper everyone.
Cheers
hola es es mi messenger tu-papi13@hotmail.com
my little couse has white spots on her face when she was 8 years old and after taking worm medicine for several months,her white spotes dissapeared
Hi All,
My sun (2 years) and daughter ( 5 Years ) got Vitigo, this bad present comes from my Father. The protopic was very efficient on my daughters but the white patches came back this years .
Rigth now I m looking for Aryuvedique cure ( My wife comes from India ) . I know that someone from wife‘s family has been cured by “ Pigmento “pills and ointment ( Ayurvedique ) …
and I also found this very interesting article about the causes of the Vitiligo and not how can we cure the Vitiligo. I m gonna buy the Book of this doc ( Dr Sr Wadia )
I will purchase pills from Dr Shash .
I m gonna try these 3 treaments
I keep you posted ,
Marco
To soo,
I’ve heard that vitiligo can be treated by expelling worms. Do you know specifically what medication she took or the name of the practitioner who gave it to her? Any help is much appreciated.
To Kashif,
No I am ok, I do not require herbal medicines. I am feelings content at the moment with the vitiligo on my skin but I will still continue using the homeopath pills and Vits. I still haven’t had any new spots which is amazing and for me I think it because I started taking the vitamins (B12, Folic and Vitamin C).
P.S Has everyone read about or sent their details to Dr Richard A. Spritz, M.D. who is conducting the huge research they have been funded for in the US?? It sounds very promising and I hope that this can be a break through…
Hi Sonia,
I had never heard of treating illnesses by expelling worms until I read your comment. It sounded just strange enough to make me do a search online, and to my surprise, i found loads of information.
Frankly, the thought of expelling (much less having) worms sounds horrid, but apparently there may be something to it.
If you try it, or if anyone else has, comment back here to let us know the results.
Nathalie
Hi Marco,
Have you seen any response to the new meds yet?
Nathalie
This is my progress so far. Please note I have NOT been officially diagnosed with Vitiligo. I am waiting on my dermatologist appointment, but it can take to 12 weeks and I am not waiting until they tell me. So I have started my own self-treatment.
1. I take multi vitamins, PABA capsules and Folic acid (with B-12).
2. I have been doing the ‘black pepper experiment’ and I first bought piperine tablets and black ground pepper and made my own paste, by crushing the tablets and mixing some black pepper powder. Sometimes I added water, other times my steroid cream, and once even olive oil. However the pepper burned my face too much (I have VERY sensitive skin) so I decided to stop for a bit.
3. So I bought PURE ESSENTIAL BLACK PEPPER OIL. For the last few days, I have been applying it once a day at night. It tingles slightly but the burning sensation is not there. I have seen my white spot turn a tannish colour in the center of my spot. The one on my chin is a bit bigger, and has taken to the oil quite a bit. The one on my left upper cheek takes on a redish colour – but that one has been there for YEARS compared to the one on my chin.
4. I also bought JOJOBA OIL, and it has definitely healed my right cheek considerably. The one I bought is ORGANIC and is 50mls. But this oil you can buy anywhere. But it’s great and gives your skin and lovely feel.
I have two small spots on my lower back. However I have only focused on my face right now. But tonight I shall start using the BLACK PEPPER OIL on my back.
I have set up a BLOG that I shall post post pictures on my progress. If you’d like to read it please let me know. I’m cautious myself when reading self-cure stories, so I hope the pictures will bring some peace of mind. I’ve only posted the once. But I won’t be posting regularly because I need to see change to do so.
I’m from the U.K. and I bought all my products online from UK stores.
Hope this helped someone.
Good luck all.
-Shaz
Hi Rene,
Dr Richard A. Spritz, M.D was one of the scientist who conducted the studies last year which found the gene linked to vitiligo. has a new study been announced?
RE: Worms
I found out last year that I had hookworms. I live in the US and probably contracted them by walking around barefoot in Florida, 4 years ago (!)
The doctor gave me a short course of a drug called Mebendazole, and it really worked. I won’t disgust you to tell you how I Know it worked. The drug had no side effects on me.
Since then, my anemia has almost gone away completely, I do feel stronger. I am also doing PUVA with good results and no new spots since November.
The doctor told me that in patients with vitiligo, the immune system is always involved, and that worms (hook, pin, pig, whip, etc.) compromise your immune system that much more, so best to be rid of them.
Good luck.
Hello
I started to get vitiligo on my face when I was 35. It started when I reduced my breastfeeds with my 1st child, just a small white patch, I didn’t pay much attention to it.Then when I had my 2nd child, again when I reduced by breastfeeding I got more white patches on my face. I am now 41 and have no pigmentation from the top of my forhead to my jaw line. We have no history of this in the family and I have tested negative to auto-immune disease. I do have slight b12 deficiency. Dermatologist said there was no point in trying to repigment as there is so much gone on my face. Has anyone had success with such a large area involved? What is the daily amount for b12 and folic acid. I had given up hope but after reading all your messages, think I should give something a go.
Thanks for reading my long message
Hi clare,
I liked your story…it wasn’t too long at all. You’re right to try the re-pigmentation; afterall, it was only one dermatologists opinion. It’s always a good move to confer with a few doctors before making a decision.
Keep me updated.
all the best
nathalie
i have used vitiligo treatment from merry clinics but i finished my medicine and i didnt see any inprovement…now i have more white patches by my neck an the one by my eyelashes is growing im getting one more on my left eye too;im thinking of using meladinina but im afraid cause it says if you use too much sun light you could get second degree burns im still thinking about it if anybody knows something please let me know..thank you
Abel I’m wondering how long you were on the Merry Clinic medication. I don’t know it it works or not but I know that new spots are in the deeper layers of skin not visible (unless examined by a wood lamp) It takes 6 months for them to reach the surface.
Have you tried anti-vitiligo oil? By all accounts it’s very good. I’m waiting for my order to arrive.
My daughter is 7 year old & she is having Vitiligo from past 1 year. We tried lots of creams, but nothing went right, we even treated her with Homeopathy for 6 months but nothing cured.
Now we are treating her with Vitix gel cream & Phototherapy Treatment from 2 months and it is doing wonders, most of her patches are gaining original skin colour.
I just got my order of Vitilax oil in today. Will see how it goes, as it goes don’t knock it if you haven’t tried it – and I’m going to see what happens – despite not being diagnosed with vitiligo.
I have two small vitiligo spots on the testicules, due to a medication that was too strong on my skin, and it kind of burnt me. I’ve been putting Dovonex for 6 months now, with the only result that the white spots were only more red, so kind of pink. Now, I’m starting to have brown spots. I have them more and more, and they are browner than the rest of the testicules. I don’t know if this is the healing part or if I’m gonna be stuck with white spots AND frikles…
peux-tu me dire ce qui se passe?
merci beaucoup Nathalie
To sonia:i have not tried the oil i think the one from merry clinics dont work at all i bought these medication its called “tintura de meladinina” and you can also find it in tablets or cream(ointment) you can only find this in mexico or in some countries by southamerica but i have been told that this medicament its going out of the market because its use its too delicate and people is not using it correctly and they are getting second degree burns today its my first day of using it i waited untill the sun almost went down to put it on my patches i only used a little bit on one of my knees to test it and i exposed it to the sun like for 5 minutes after i put it on my skin i felt like a warm sensation but that was it i hope it works if any of you guys wanna try it get it but make sure you read the instructions on the internet just write tintura de meladinina and press search web and it will show you all the indications..good luck
First of all, this is a hell big topic, and loads to read… loads of suggestions/ideas but I am still confused and dont know an answer.
I am 26 and live in UK since 8 years.
First time I realised the white patches on my forhead, was just after taking a 6 minute SunBed … which I never ever did in my life, never did use the sunbed before, and despite the fact, in UK there is not really much SUN at all.
However, thats the time when I was shocked and didnt know what happened and got diagnosed that I have vitiigo (about 4 years ago).
As usual, the UK’ doctors (GPs) as dump as they are, they said NO YOU CANT DO NOTHING ABOUT IT, JUST LIVE UR LIFE…. well i would say for those who aint effected of vitiligo, its an easy saying.
Anyway… I had search on internet and Ordered AntiVitligo Oil from (www. antivitiligo .com) I was suspicious when it says PAKISTAN lol well I still had a go and orered 2 pack of the oil… been applying them for few months and nothing has improved.
Did ever anyone else try it?! for longer as me, and did they have any kind of results or is it just a bloody SCAM!?
Now, I been reading about the MerryClinic – Vitilax capsules & Vitilax Skin Oil – and wanting to try but 1st they cost a lot of money and 2ndly is it REAL or just another money maker!?
By the way:
I been taking the following chinese tablets:
+ BAI SHI WAN
+ BAI DIAN FENG JIAO NANG
Anyone else tried those before!?
========
Oh yeh… I do not have only on my forhead, but as well as:
+ round my both eyes/eyebrowns
+ finger tips
+ “man’s area”
+ on my arse
at moment, they are not that visible cos my skin is still white (always was white
*not tarnned* but now planning to go to my country and being afraid of SUN, as then they would be more visible…
==============
Thank You very much
B
I was 10 when I was first diagnosed with Vitiligo, this was over 20 years ago – I consulted Dr. Lakshman Ranasinghe a Sri Lankan dermatologist, an expert in the area (who is still practicing), and I am happy to say that the condition has not recurred. I recently had a baby however, and went on to be diagnosed with celiac disease and hypothyroidism.
Hello Nathalic,
Right now when I start to search the vitiligo herbal medicine called pigmenthum-inc.com. I found you and all other folks who are suffering like me. I am suffering vitiligo around 27years.I Am 40 now. From 2007 to 2008 I took NUVB. It works for new attacking place such as my forehead, neck and shoulder. I took 100 NUVB and my doctor said I couldn’t take any more because it can cause skin cancer. When I stopped NUVB then I start loosing my pigment again. Yesterday I found Marry Clinic and pigmentum-inc.com. That website has graph and the medicine come from New Zealand.I don’t know what to do. If any one know about the pigmentum pill please let me know.
I ordered the Pigmentum, and it die arrive, but I am sorry to say, that after seeing it was shipped from Pakistan, not New Zealand, I know that I was totally ripped off. I also Google Mapped the address in New Zealand and it is a country road, with a nursery across the street, not anything that looked like a real company. Now I have $195 of who knows what from Lahore, and no way am I going to try it. I just hope that my credit card number won’t be sold somewhere.
Another thing, if the ingredients are not listed, BEWARE. Don’t get ripped off like stupid me. There has to be something else.
please help me anyone I am so afraid that this is getting worse almost two years ago I notice these patches and they are spreading please help I have vitiligo I’ve tried oinment and it does not work, I have on my elbows, below my nose, and my knuckles.
Thanks a lot ANNE! You saved my time and money. Don’t blame yourself. When you have something shortage you will start to believe everything. I am another person just like you. I always dreamed of this as a girl. In my whole life, I thought something like a miracle is gonna happen; I will be a normal person just like others.Thank you.
hi i noticed this patches in my genital area and also in my face very small but i am so scare and afraid it wont stop or it will spread all over my body i have another one in my finger and its getting bigger and whiter i noticed this 5 onths ago dont know what to do please please some body help me i dont fell like seing any body specially my partner i am so emv=barrase what i am going to do…………………….:(
i just orderd the vitlax pills should get them soon hope they work ill keep u guys updated see how it goes
im using meladinina i belive on it cause the person who told me about it had vitiligo and now she is clean every time i use it i spend ten minutes a day on the sun and all my white patches or where ever i put the liquid looks like a sunburn the patches become pink and the rest of my skin which is brown becomes browner i know if i go over the ten minutes i could end at he hospital with second degree burns
Hi everyone I am just letting you know I ordered “VitaligoTab” from Pakistan and it is a 150 dollar SCAM. They taste like sugar pills and when I break them open it looks like they just filled a pill with dirt. It says full refund but what they don’t tell you is the warranty runs out before you’re even supposed to see results. I just wanted to share that because that was one of the first things I tried I was diagnosed at 20 and buying this product just made me more depressed than ever. I’ve been much happier with my own vitamin and sun treatment. Hopefully one of the recipes of vitamins I read here today will be even more helpful. Much love to all thank you Nathalie for making this support net if I ever find the perfect cure I promise to shout it from the rooftop!
Those of you who have seen good results with protopic, was it because you used uvb lights? I’m thinking of going to a sunbed and seeing if the healing will work better with artificial lighting. However it says not to use with sunlight or sunbed…so I’m confused. Any help?
Hi EVERONE WHO HAVE VITILIGO, I want to thank ANN for tell use that Pigmentum is scam, you have save us money, i don’t know why these scam think there is cure for vitiligo if there was this PIGMENTUM WOULD HAVE MILLIONS OF DOLLAS OR POUNDS.Once again ANN you have been world to me i was about to order and send $150.00.
I also like to say big thanks to DylanM who said VitaligoTab was SCAM as will. I like to everyone do not by any medicine from pakistan india,or any part of asia but i do not know about CUBA , PLEASE LET ME KNOW ANY CURE FROM CUBA HAVANA.
I am going to try XTRAC laser treatment becasue I seen proof of photo that there is a cure using laser treatment. I had vitiligo since i was 10 years in june 1985, 68% of my body is white,I am 31 years old.i going use Vitiligo lotion i have order 5 day ago thanks to NATHALIE yo are star,without you i would’nt know what vitiliogo people around the world doing to combat vitiligo. I hope there is some cure soon for vitiligo because i don’t want have vitiligo all my life.
My last question if any one can help. I want to an Airline Pilot and will be start my training in Jan 2010, if have Vitiligo will be any problem when i go for my medical and is there any restriction. are any one who has vitiligo who is Airline Pilot flying for major Airline.i trying to will airline company will hire who has Vitiligo.
Please rply question. FROM ENGLAND UK
I am a 51 year old female who was diagnosed with Vitiligo about three years ago after finding a white spot about the size of a nickle in my left arm pit. After reading the comments on this site, I realize that everyone with vitiligo has the same fears, concerns and questions. My questions is, does anyone seem to fade before they turn white or do they just show up milky white? Does anyone have any tingling in the site they are losing their pigmentation? Also I would like to note that I had begun taking PABA for my graying hair around February and it was about August that I found the Vitiligo under my arm and received the diagnosis. Does anyone have any thoughts on a possible connection between the two?
Praying for a cure.
WARNING!!! to ALL Vitiligo peoples.
Do not purchase any VITILIGO TAB and PIGMENTUM from Pakistan,which is SCAM and is there any way authorities in pakistan to block the websites. if any one can help otherwise we all be victims.
please help!
Kind Regards to all vitiligo surfars.
ENGLAND LON
Did anyone try Vitix Gel yet?!
If so, did you see any results?!
I been having vitiligo for like about 4 years now and trying ELIDEL CREAM 1% at moment…. hope that will help :*( if some1 got any real advice, please reply.
thanks
Hello everyone,
I am a mother who just heard her daughter receive the diagnosis of vitiligo. I feel as if my life had come to a hault. Luckily, I am seeing a great perdiatri e
Hi Delta
Wonderful news about wanting to be an airline pilot. Simply do an online search for the company you’d like to work for, and the pilot requirements should be listed.
all the very best wishes,
nathalie
Hi Sherry,
I have heard some people link their use of PABA with the onset of vitiligo, so there may be a connection. I usually don’t notice a new vitiligo area until the patch is all white; however, I have noticed that the skin turns a light pink and itches before it re-pigments.
Looking forward to hearing from you again soon,
nathalie
Hi Julie,
The good news is that your daughter has a strong, resourceful, mother who is already searching for ways to help her. The best thing you can do is continue to help your daughter build a strong self-esteem/ confidence…this is all anyone needs to triumph in life
big hugs to you both,
nathalie
DID ANYONE TRY VITIX GEL OR NOT!?
PLEASE HELP ………
Hi guys, I personally believe through my own experience that when you start treatment and it doesn’t work it is going to deteraiot your. Yeah, I agree that sometime when I used to lay in sun, I would notice more spots on my skin. The best thing you can do is just take it and don’t worry about it. It is highly correlated with the stress level. vitiligo
So true, sooo true! When you are stressed out, you are holding your breath, your blood vessels constrict, which leads to oxygen deprivation, decreased perfusion of organs, skin, everything. I do recommend to all of us affected with vitiligo, deep breathing exercises–very beneficial in relieving stress. I personally believe my vitiligo is stress related, five years ago when I noticed my first white spot, I was going through a lot in my life, and was very stressed out.
I completely agree, Tarana! I will do a post on breathing to reduce stress
Heya,
I from Belfast in Northern Ireland. I have vitilago now for 6 years. At the start I used hoemopathic medicines and it worked well it stopped but then it didn’t improve anymore and stayed like this, so I stopped it. At the moment I’m 18 years old and I want to treat it again.
I found merryclinics and thought about taking the Vitalix tabs and the oil. I’ve got vitiligo at the hands, face and feets. I heard as well black pepper is helping against Vitiligo and drinking a lot of water.
Does anyone recommend to take the Vitalix tabs and oil. As I’m a professional model and it is able to destroy my carrer.
My Vitiligo is as well not that noticeable because I have a light brown skin as I’m a mixed race.
Can anyone help me please.
Kind Regards
Said
Hi Said,
I have heard of Vitalix but haven’t actual used it, so wouldn’t beable to comment on that but what I do want to say is that I started taking the simple method, as described much earlier on on this thread, Vit B12 Complex, Folic Acid and vitamin C. And one day when the sun was shining last year I sat outside for a short well, 20mins, and the next few days I noticed small cirlces of pigment appear on my arm. That to me was the best thing I saw!
Though living in the UK we are not as privileged to have the sun shining as much as a month but now I am excited to try again this summer.
So for you all I can recommend is try the B12, Folic Acid and Vita C. Do some research on the recommended dosages though and they do need to be taken together.
I have a question for you: I have Vitiligo on my face as well, around my eyes. What do you use to cover it up on your face?
VITAMINE C for VITILIGO?!
How come then on a lot of web site it states, MIND CHILLY / SPICY & SOURE FOOD.. such as Citamine C *LEMON* shoud be avoided!?
Hi everyone how are you all doing. I was searching online for forums with vitilgo patient and this came across. sorry my english is not so good.
I have vitilgo and my mother have got it too. My mother got vitilgo in 1990 and i just got it in 1999. At the begining i was very dishearted and didn’t know what to do and used to cry. I am very thankful to might Allah that it is not on my face. I have got it on the right side on my stomach upper part and on the back too and on my butt as well.
after reading posts on this site i came to know that folic acid and vitamin a and c are helping people.
i would like to get advice from you guys to what should i use to get rid of vitilgo. anyone who wants to talk please feel free to add me on msn > aamir_suhail@hotmail.com.
i will be coming here very often now since i have this bookmarked.
best of luck to all the patient with vitilgo. do not give up.
Bye
hey everyone! I am 27 and I first got my first patch or spot when i was 16 when I went to a tannning bed for the first time, since then I would get spots on my back or arm occasionally but very small and you could barely see, but I just had my baby 7 months ago and I’m not sure if the hormones influenced it but I just got the worst spread after going o the the tanning bed for a few days. I hadn’t gone to the tanning beds in years!! Now I got it all over my chest and tummy area, and my upper thighs!! I feel so horriable:( My self esteem is so low!! i have always been so skinny and gained 75 pounds during pregnancy, I have lost 55 pounds and was starting to feel sexy again and now this happened. I have seen the vitalax with merry clinic page, and now pigmentum-inc.com, any one tried the pigmentum? I am thinking about bying some, but want to know if it works!! Please help i need some success stories, and advice:(
hi everyone and this question to LIZ
Do not purchase any VITILIGO TAB and PIGMENTUM from Pakistan,which is SCAM and fake .otherwise we all be victims.
I did mention this before.
all the best to all vitiligo patient.
Hi,
I was wondering if anyone knows the different types of vitiligo. I am 51 and have been diagnosed almost 3 years. As I wrote earlier the really white spot was under my arm, but it seems that I have extreme fading over large areas of my arms and other parts of my body. (Not white as with under my arm, but much lighter. I am very splotchy. Last week my job was very stressful and I felt my arms burning. ( Something I had never experience before) I noticed that I could feel it as my arms were losing color. They are not really white like under my arm but much lighter. I thank God that noone looks at me as having a disease yet.
Can anyone relate to the burning sensation when their vitiligo is active? Also does anyone experience the fading before turning completly white? Is there any chance it will just stay faded and not turn milky white?
Thanks for being here, no one in my world begins to understand the fear that this disease brings into your life.
Sherry,
I can completely relate to your experiences with the spreading of vitiligo. Alot of times I experience a slight burning sensation (along with slight itching) when my vitiligo is spreading. I think that this reaffirms the autoimmune hypothesis of vitiligo. I think that these burning and itching sensations are produced by the mast cells in our skin, which can cause inflammation (burning) and release histamines (cause for itching).
I have some spots that are blotchy and some that are well defined, but it always seems that the older a spot gets, the whiter it becomes. I think that the definition of the spots that appear on our skin just depends on how sparsely our melanocytes are being killed. If it is a few killed over a larger amount of space, then it will visually be seen as fading, but if its a whole bunch being killed in just one area, it will be a defined spot.
Vitiligo is a hard disorder to deal with, especially if you have darker skin. I have had it for five years on my hands and a little bit on my face. I try not to think about this disease much and just carry on with my life.
All the best
i too hv dealt with the same type of problem recently..n my arms…it was etchy n dry n flaky n then fading…..what to do about this condition????gtn screwed up…my doc has gvn me sysyemic steroids….presently doing peprine n chickpea for a month..no result till now..
Dear Nathalie Pelletier :
Have you or anyone else heard about the Lazier treatment for vitiligo? I made an appointment to see a doctor in Los Angels about this treatment. When I talked to to them they give me almost a great assurance and stated that they never had any patients to complain everyone was satisfied with the result. It is 150$ per session, two sessions per week and total number of sessions required varies from person to person but it ranges between 20-30 sessions.
any thoughts or idea please
thank you all
To everyone,
I have had vititligo for the past 3 years and I cannot stand it. I hate this disease and I hate all of you for being so gullible. Let’s face it; we will never find a solution if we keep giving away money to these M.Fs. who claim that their lotion works, or these POS foundations that do not do anything. There should be a simple solution or no solution at all. I rather live with no solution at all. But, do you know what the problem is? We do not have anybody famous with vitiligo. Even Michael Jackson does not acknowledge it, or a 48 hour television program once a year like Jerry Lewis. We do not even have a scientist with vitiligo.
hello to all!
this is sundeep. and i have vitiligo since 7-8 years iam taking homeopathy since then, before it was working fine but now last few months i’ve got more patches on my hands and on other part of my body iam taking B12 AND FOLIC ACID 400MG with my medicine i dont know but i didnt see any good result at all my patches are increasing day by day idont know what to do.
CAN ANYNE HELP ME IN THIS? ONE MORE QUESTION IS VITAMIN C WORKS ON IT BECAUSE I’VE HEARD YOU CAN NOT EAT FOOD CONTAINS VITAMIN C IDONT KNOW PLEASE HELP ME OUT ON THIS.
THANK YOU
SUNDEEP
Hi does anyone know about Excimer lasers please? I read many news articles about this new treatment and it seems one of the best treatment. Any thoughts or ideas please? I have actually appointment with a doctor in Los Angels tomorrow and will discuss the possibility of this treatment.
My son was recently diagnosed with Vitilego….I am already tired of reading all the bull crap about pills with cures…..Here is what I can say so far…Western medicine has no idea of a cure for this… They are mostly idiots..I took my son 7 1/2 yrs. old to NYU and it cost me $ 450 for this IDIOT doctor to say …. it could stay the same — it could get better – or it could get worse…. He suggested we give him Ginco Biloba and Helio care pills…
I have been doing research for this. I have read that black pepper extract could work… I am looking into Vitilax from the merry clinic in California… but I am a bit skeptical as of yet… I am looking into and starting Petey on natural herbs which must be cooked… I dont care what it takes … I will get rid of this friggin thing…
Dont forget…. this is an autoimmune deficiency and/or disease … This is internal… these creams being used are like saying …MY ENGINE IN MY CAR IS BROKEN… SO LETS POLISH THE PAINT JOB…sounds pretty foolish if you look at it in those terms !!!!! bullshit…you must fix this issue in your bodies system…Thats my belief ….. please email me with any comments or issues at… rockmard @ aol.com ……. I am new at this … but I will be damned if I will let my son not have every opportunity in the world to correct this CONDITION !!!!!!!!!!!!!!!!!!!!!!!!!!
Gene
Dear all,
I would like to ask if any of you is, or if you know anyone, on depigmentation therapy.
I have vitiligo spead all over my body, my skin is (was) light mediterranean type. I only tried UVA and protopic on my face last year. On the face seems to work although the color just fades when UVA treatment is discontinued.
The large (I mean,very large) areas of vitiligo on my body are not white paper style but are very good looking skin.
Now a depigmentation therapy is the option, using a compound with hidroquinone. I´m a bit scared. Don´t know what to expect.
Any stories you might know or any advice?
Thank you so much.
Joao
Good Day
I have vitiligo in my face, it started about 6 years ago on my chin which has spread around my mouth and to my nose. i have tried light treatment but there were no visable results and think it’s very expensive. I stay in Cape Town.
Hello everybody
Has anyone every tried the laser excimer or any other surgery please? I am planning to do either one, I have a kind of stable vitiligo on my hands and feet.
Any advise or help please
Guys – I’ve tried “Divya Kayakalp Oil” from Ramdev, and its very effective, i’m using since last year, and have seen great improvements, and also his yoga called “Pranayam” is known to cure completely, but i’ve just started to do the yoga… keep your thoughts posted
Thanks -
Kush
Hi,
I was thinking of taking vitamin b12, c and folic acid on a daily basis. What dosages are good to start with? Should i add some other vitamins as well or is that sufficient?
I will try and combine this with sun exposure.
Hello, I have some small spots on my hands and feet. I am thinking about to tattoo above my vitiligo? Any thoughts or idea please? Has anyone tried tattooing their vitiligo?
Thanks
K,
I dont think tatoo is a good idea… skin grafting is a better option (only if it is not spreading and if you dont have lot of spots)
Check the UVB treatment as well it might help…
V