Hey guys, I used to use self tanner lotion …
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Comment posted The Instant Vitiligo Cure: Your Shining Personality by suz.
hey guys,
I used to use self tanner lotion all the time to help cover the spots- but recently the vitiligo patches stopped taking any color from the lotion. I had also just started using topical corticosteroid cream …I’m wondering if there was a connection?? I’ve stopped the cortisone for about a week now but still the tanning cream will not work. Has this ever happened to anyone?
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Hey, my name is Kristin I am 16 and I have had vitligo ever sense I was like 4. The people around me say that I am very pretty. But I cannot believe that. Everyone around me is use to my skin. But I will never be. Everyday I look up things to cover or remove some of my vitligo online and show them to my father who says he is not wasting his money on something that will not work. I pray everynight that I will just wake up and it will be gone. I would die to be normal for one week.
Hiya Kristen!
I know just what you mean. People tell me that they think I am pretty, but there are days that I feel like the vitiligo looks so obvious and I couldn’t possibly look pretty.
We’re very lucky that there are plenty of reasonably priced sunless tanning lotions and sprays on the market. Have you tried them? When I use them the vitiligo is barely noticeable. My favorites are the Banana Boat lotion for dark skin (for my body and face) and the Sally Hansen spray (it says for legs but I use it on my hands.
Also, have you tried taking supplements and tanning either outside or at a tanning salon?
All the very best to you!!
Nathalie
Go for Excimer laser. it really works.
Confidence and personality reigns!
I currently have a crush on a guy with vitiligo. He has a wonderful personality and very confident. Frankly, I would see him in the same way with or without this condition. He’s hot!
I have had vitiligo since I can remember. It stared on my leg my mom said. I have patches on my neck, eye lids, under arms, and a really cool patch on my left arm. My husband and I always trace it and it looks like a county. I thinks its really depends on your personality and confidence. I think since I grew up having it it really does not bother me. I have a spot on my right leg 6 in (vertical) by 2in and when I where dresses out I get told my birth mark is really sexy, so there you go, learn to love it!
Hi dulce, yours are few inches , but what do you wanna say about those that have it on their on vertical half of their body!
And what was your husbands reaction when he saw it the day you guys met?
Hi guys,it is so true try to relax stop stressing and what people think.Iam trying that and is starting to so good signs.Most of the guys are lucky to only have vitiligo.I have psirisis and vitiligo can you imagine that 2 blows.I try to think positively and know there will be medical cure soon.
Thanks so much RUSSELL .I pray we get a cure soonest , i can’t wait myself!
)
Nathalie ~ Thanks for this article. I have reference for what you have experienced also. And when people say they don’t notice I always feel that they are sparing my feelings and make them swear they are not lying. They always seem so surprised by my questioning. I go without makeup on my hands lots of times because it’s such a huge problem and my time is spent looking if my makeup is coming off. I resent having to put so much effort on my hands, you know? HERE IS WHAT I WANT TO KNOW:
I have written you before about your product wanting to know if it covers brown skin as well as white skin. Is it waterproof as in going swimming and how do I order it.
Hi Ad,
For me, dealing with my vitiligo during the summer months is the most trying. I have a fair complexion, but I tan very easily which makes the white patches more obvious and consequently, I am more self-conscious about my looks.
My xtrac laser treatments are working, but even the new freckled areas are tanning. I seem to be in a phase where it has to look worse in the process to be completely better.
I’ve use the vitiligo cover lotion to blend in all of the areas, and it works wonderfully. Fortunately, the color does not come off with water, but the chlorine in pools does shorten the life of the “tan”, so i reapply it a couple of times a week rather than just once.
The trick to making the cover lotion work for any skin type is using the product on your “normal skin” as well as the white patches…otherwise there will be an obvious line where the new color ends.
I hope this answers your question…if not, shoot me an email.
all the best
nathalie
This is a great website. My vitiligo started when I was 29yrs and I am 44 yrs old now. I have had it on my hands and feet but lately it is starting on my chin, elbows and knees I guess started due to stress at work . It does not bother me as much, I guess because I have a loving and supportive wife and 2 wonderful boys. There are times though it bothers me. I even told my wife maybe I should get some concealer for my chin, she said what for. Any suggestions?
Hi Miguel
Im glad you like this site! Have you tried taking vitamin b12, folic acid, and sitting in the sun? Also, a cover lotion applied on your face will blend the white patches with your pigmented areas.
all the best,
nathalie
hi my names rajpal and i suffer from vitiligo……does vitiligocover really cover vitiligo up?
hey guys,
I used to use self tanner lotion all the time to help cover the spots- but recently the vitiligo patches stopped taking any color from the lotion. I had also just started using topical corticosteroid cream …I’m wondering if there was a connection?? I’ve stopped the cortisone for about a week now but still the tanning cream will not work. Has this ever happened to anyone?
The number of people affected by vitiligo disorder ranges from 40-50 million. It forms about 1 to 2% of people in the world. 2 to 5 million people have the disorder in the United States alone.
Vitiligo affects all races and both sexes equally and ninety-five percent of its victims are below the age of 40.
These are some stats about vitiligo ,check these and your not alone with vitiligo.
Dont be depressed due to your appearence, vitiligo is today a common skin condition in every society.
Hey guys,
I’m 16 years old and have had vitiligo since i was a year of age. I’ve seen worse but i do have it bad, its pretty much everywhere except noticeable parts of my face. I haven’t taken any supplements or did that UVB tanning thing, but i have noticed over the years that in the summer, when i swim with sun block, the patches that do get sunlight improve and my normal skin doesn’t freckle.
hi guys thank you for yours comments about this illness it comes to happens that I am a vitligo victim too and this is an every day fight against this antagonist feeling.-I recommend you to convert the negative defect into a personal attribution by beeing a better person ourselves. thanks
im a 23 y/o male,and i am starting to have the signs of vitiligo..i just want to ask is heliocare that effective?what about PUVA?
hi karl,
i’ve never taken Heliocare, but maybe others who visit this site will give you an opinion.
For info about PUVA go to: http://www.aocd.org/skin/dermatologic_diseases/vitiligo.html
all the best
nathalie
cheers ezekeil…great advice! it’s difficult to do sometimes, but in the end, it’s the best way to handle any issue life throws at you.
all the best
nathalie
Hi everybody,
my doctor just offered me a light treatment using RED light. Please, does anybody have any experience with it or heard about it? Thanks
ive watchd a video from youtube of lee thomas and a youtube subscrber named makeupmakesmehappy…
dey wer so BRAVE and have many things and tips dat can help us open our minds!it gave me a boost just watching lee thomas!his my hero now!hahaha!
hey nathalie i just wanna ask,wat did heliocare do for u?did it helped?wat does it do?my dermtolgst said its the recent tx dat is being used,ds sept i’l be taking dem,can u enlightn me on this..coz im reallt at a loss..can any1 help me?tnx!!
tx means treatment..sorry im a fresh nursing grad.force of habbit,im from the philippines..dey said heliocare is d new tx being used in the market?
btw.im using a maybeline foundation and lacome make up to cover my patches!and its very time consuming to make the color even..etc etc..,first i put a sps45 coppertone sunscreens,then foundation,then the makeup(its my girlfrnd’s)
du u guys use any cosmetic products dat is less time consuming?and preferbly non comodogenic..tnx tnx tnx!
NOVITIL – Hi guys, please do have any experience with this product ? Does it work ?
Please let me know. Thanks a lot
For those who aren’t black and have vitiligo be grateful.. Especially if you don’t have any on your face… If I didn’t have any on my face I couldn’t care less about it…. It seems it’s getting darker slowly or I’m just getting whiter, but I doubt I’m getting whiter. It’s true everybody is always self conscious about it, but you eventually forget about it… If I woke up one day with no vitiligo on I must say life would me MUCH different… Oh well…. f they came up with cure that would be sooooooo sick.
Shook ,Although am light complexioned and have none on my face , i don’t still feel cool about it or do you?
I have had vitiligo for more than 10 years now, always trying to leave a normal life but now I’m 33 years old feels like the burden, and sadness is just increasing. For the first time I cried with lot of pain inside don’t know why, fell like I live in my own world where no one understand except me…or I don’t but still have hope…
Don’t cry. Even if no one understands we all do here.
Or what does everyone here think?
Have a great day!
I agree with Eyitayo, we who have vitiligo know exactly what you’re going through because we live with it everyday, too. Any time you need to feel that you’re not alone, just leave a comment here and someone will be there for you. or join the vitiligo community I set up because it has live chat available.
One thing more, sometimes crying is a great way to relieve the pressure and anxiety we feel, and this a very good thing. Just remember to always do your best to stay positive about your life!
I know how you feel. Hang in there. I know on some days it gets you down but it will get better. The best way to overcome it is to educate people around you. Like Natalie said stay positive it really helps.
Hi Nathalie, how do i access the online chat feature ?
Am hearing it for the first time.
Hi Eyitayo,
The chat is available in the Vitiligo Support Group section (link @ top of this page) or http://vitiligofriends.ning.com/
Just sign up and you can talk with any members who are signed in.
I’m going to see if i can get one for this site too.
cheers,
nathalie
Hey there,
My name is Wally and I have Vitiligo, Alopecia Areata and a sun allergy. It is really stressful for me as my hair is all patchy right now, and when it grows back the hair will be white and stay white, and I have a huge vitiligo patch on the back of my head where I sunburned last spring, and I am native american so I have pretty dark skin.
I went to a dermatologist and he basically told me I have to learn to live with this. he gave me all the statistics and said that since I am allergic to the sun, (burning makes me get new patches), that uv therapy is not a viable option for me. He’s never even heard of piperine and treated me like I was stupid or something for even mentioning it.
I work as a driller in an underground diamond mine and there are 500 people on site at any one time. I can’t stand being stared at but I have to work. People are always asking me “what’s up with your head, because it looks really really messed up. And this in turn makes me stressed out. I have noticed several new patches on my legs. And this is stressing me out as well. I feel like I’m drowning in stress, and the only advice the dermatologist gave me was, “try not to get stressed”
I have made a lot of friends on site, because I try to not let it affect the way I interact with people, and it is true that the more they get to know you, the less they notice, but it is still very hard to deal with this.
I just wish i would wake up and look the way i used to. I used to be handsome.
Hi Wally,
Well, there is so much to say…
Most Doctors and Dermatologists have absolutely no ability to relate to their patients. It’s funny; math is a prerequisite to graduate with an art degree, and public speaking classes are required for a business degree, so why don’t doctors have to have a class or two in patient relations? I have found that with cases such as vitiligo, where there is not a lot of information known, doctors tend to deal with it from an insecure standpoint by belittling the patient rather than just show concern and helpfulness.
People never seize to amaze me with their inability to filter their thoughts before they speak. Before you let their words touch you so profoundly, consider the source.
I think it’s wonderful that you’ve made so many friends…that’s what life is all about; focus on the good and do your best to let the negativity pass right though you. It sounds like you’ve got that already figured out.
Stress- everyone has it, but each deals with it differently. What may be a major stressor for me, could be just a bump in the day for you. Unfortunately, stress is a major trigger for the skin conditions you have, so maybe focusing on learning and implementing ways to deal with stress as it arises would be key to curing, or at the very least minimizing, your symptoms. Please go back and read some of my blogs on NLP (neuro linguistic programming). Basically, NLP uses tried-and-true methods to retain your brain…it teaches us how to change our perception of any given situation so that we can better handle the stress of it. My next few blogs will include a few methods that you can try.
I had a boyfriend who had alopecia areata. he shaved his head so the spots wouldn’t be noticeable. One day after talking about it, he decided to let his hair grow out and see what happened. It came back with a few bald patches, then those areas sprouted white hairs. do you know what we did to make him feel better? We used hair coloring to cover the white and the results were brilliant. In fact, the new hairs coming in after that were his natural brown. Perhaps because he saw what he liked when he looked in the mirror, his stress went down, and the process reversed.
You’re job sounds very interesting…diamond driller, pretty cool…and it definitely keeps you out of the sun all day, yeah?
lol, i’ve probably gone on far too long…take good care of yourself, wally. and write back any time.
all the best,
nathalie
Great Nathalie.
:D:D
Don’t worry, be happy , Wally!
I agree I wish we all could wake up and all our white spots be gone…. I went on a field trip with my daughter yesterday and this kid yelled out “YOUR HANDS ARE WHITE” I know he is just a kid and doesn’t know better, but it was very hard not to break down and cry right there. Thanks for this web site Nathalie:) it does help to know we are not alone
Hi terri,
I’m glad you like the site…it’s a great pleasure for me to do.
Next time someone-no matter their age- has a comment about vitiligo, make yourself the educator and it will give you power.
once on thanksgiving, my step-sisters daughter who was 4, pointed to my hand and said ‘what is that on your hand?’ her dad immediately jumped in and said, ‘honey, don’t ask questions like that.’ I in turn said, ‘no, it’s a great question. she would like to know…’ then i continued to tell her about vitiligo-the short version, of course. when i was finished, she shrugged her shoulders, smiled, and said, ‘ohhhh, okay.’ then she played with the ring on my finger.
the way i figure it, there are two choices…shy away out of shame, or stand up and tell it like it is because there is nothing wrong or weird about vitiligo.
big hugs
nathalie
I used ti shy away out of shame , but hence forth!
I’ll be standing up and telling it like really is!
Thanks for the inspiring motivation.
Thanks Nathalie:)
my pleasure, terri
Love your enthusiasm, Eyitayo…I bet you can’t wait for the next person to ask you, “what’s that on your hand?”
You Bet!!
Thanks for all the encouragement. I would love to know if Novitil is a realable product. Do you know anyone who had sucsess with it Is it very expensive? regards esther.
Thanks for the encouragement. Could you tell me if anyone used Novitil. Do you think its worth trying. Is it very expensive? regards esther.
hey wally..i tried some make up and some foundation to cover up some of my patches..i use sun screen first then the foundation and make up..hmmm only a few of my close friends know abt my disease..i guess im not yet prepared to fully disclose my disease…hmmmm…abt stress managemnt..its really hard at first..but reading some of the post here,it kinda inspired me..it tells me that im not alone..kinda like the song of sting “message in a bottle” its nice to know that wer not alone..
Hi Karl
You’re def not alone and I am so glad that this site has helped even a little in knowing that. Your words have inspired me to write a blog on just that.
all the very best
nathalie
hey guys ive been using HELIOCARE for about a week now…the commercial price here in the philippines is 3000pesos..but my doctor(my moms friend) gave us a discount of so its P2500..
she told me to take two capsules every morning of the day for 2 months then after that 1 capsule per day as a maintainance dose
she told me that this product has been available around 2007,wer she had a conference..but did not yet recommended to us at that time because she is afraid that it wont work and its too costly,and thought it would be a waste of time… but a year has passed…some of her colleagues told her that a dramatic change have come to those people using HELIOcaRE…
SA LAST jan3 she recommended it to me..assuring me that its the real deal..so i take the capsules,together with a topical corticosteriod cream and OIL of bergamot..im also applying a SPF50 coppertone sunblock on my skin..everyday!even when im at home cause she told me that ITS NOT ONLY the SUN that triggers..as well as the LIGHTS,TV,COMPUTER can give off RADIATION that is bad for us!
and also avoid smoking,some perfumes and insect repelants,dishwashing soaps..etc as some can contain this CHEMICAL CALLED PHENOL that is really the CULPRIT that triggers the disease!
i guess results will be seen after 2 months..
and i’ll just update you guys!hope that this is the cure that we’ve all been waiting for!!HAPPY NEW YEAR TO ALL!!!and our nursing board exam is over!hopefully i can pass!
I have had vitiligo for 21 yrs since the age of 8,it is very extensive+my whole body was affected…initially it was difficult especially growing up, I hated myself and wished I was dead and hey I also had the wish that one day I would wake up and it would all go away but suprise,suprise it never did..so what did I do?..I decided I wouldn’t let it get the better of me..up until the age of 18…I didn’t wear makeup..I had a dark complexion..so yeah it was v.noticeable..people would laugh+stare+point..yeah it was hard i won’t deny it but I had to go out there+live my life i couln’t stay in+be cooped up in the house..so from the age of 8 my mum would encourage me to enage in social activities+go out there..+live life like any other human being…+ i’m glad that I have..I realised that I had to work a little bit harder for people to give me a chance to get to know me + to see beyond my vitiligo+that they did…they saw me..my personality+my infectious sense of humour..people liked me for who i was+not what i looked like+that’s the way it should be…a person can look completely beautiful/handsome but if they are horrible within or have no substance who wants to know them..no one..BEAUTY LIES WITHIN..and if some1 doesn’t like u for who u are..then they are NOT worth knowing…I am proud to say despite my vitiligo the opposite sex has always found me attractive+they found the fact that i was out there attractive also…i then started wearing makeup to cover up+my life completely changed..i was getting attention like i wouldn’t believe..i can’t deny it has been a difficult haul but here i am 20 yrs later, now a doctor and happily married with loads of friends..i am happy to say that i haven’t let the vitiligo ruin my life+ i don’t want it to ruin any of your lives either..yes it gets u down..it still does for me from time to time..but lets live with it..find solutions to work with the problem..+not let it get the better of u…there are treatments/camouflage options etc…find out what is out there+waste no time…we are normal..we just look different…ur life is waiting to be lived..so live it…u deserve to…and remember BEAUTY LIES IN THE EYE OF THE BEHOLDER !!!
@ Sha,
beautiful and inspiring story! thanks for sharing it!
i have just found this site..Nathalie how can i get hold of your book?…
Sha — Thanks for the post!!
My son (age 11) was recently diagnosed with Vitiligo; therefore, I’m new to the community. I have to share this with my son. Thanks again!!
Hi guys it has been a while since since my last chat with you guys.I think things are going well with my vitiligo no new spots.
Hi! My name’s Cara and I’m 22 years old. I’ve had vitiligo since I was 10. I think what triggered this disease was when my mother had passed away. Everything just seemed to go downhill. I couldn’t stand to look at myself in the mirror, sometimes I still can’t. I’m even currently looking for a 2nd job part time, but it’s so hard because most places want you to wear short sleeves… Throughout my teen years I’ve experimented with different cosmetic products to cover up this disorder. The cover cream usually last a little over a month before I have to buy another one, the leg and body cover lasts a really long time since I only use it on my hands… probably about 5-6 months I’d say. Wearing this make-up boosts my confidence a lot, but it’s kinda digging a hole in my pocket along with all the bills I have to pay… any 2nd part time job suggestions?
Update
Hello All!!
It’s been a while since I’ve been back to this site. I took my son to the Dermatologist on the day of my last post. I must tell you that I was very pessimistic concerning the prescribed treatment. However, 5 months later, we’re seeing results. My son’s doctor put him on Protopic, when we first started using the cream my wife and i thought that his condition was getting worst, but we decided to stay with it. The spot my son had under his eye and on his elbow are gone. The one on his back looks like it will be gone in a month or two. I will say that the spots on his feet don’t seem to be responding as well to the treatment, BUT, I’m dealing with a 12 year old boy who forgets to put deodorant on (I need to start a blog on that
), so it’s very possible that he wasn’t being as consistent with applying the medicine to this area.
Hi iv got a mild condition of vitiligo but its starting on my face and thats my greatest fear what can i do to get that problem resolved?pls can i get a few coments on that…..
Hello Badmanjj,
In my experience the spots on legs where there is little hair present will take too long to cure and may not cure at all and I tried all the medicines… but as he is only 12 years I think he has a better chance of cure than conditions like me who had vitiligo for around 27 years…
Good luck to you and your son.
Regards
Hello has anyone tried products from skintech in south Florida? the guy who I talked to claimed he has reputation for more than 30 yrs and he has patients from all over the world. thanks, Also I asked several time about laser treatment or other surgery, please I would really appreciate if anyone has gone through any of these procedures. Furthermore because my vitiligo is kind of stable, I am thinking tattooing the white spots to match my skin? any thoughts or idea please…
hi, everybody ! i am 41, female.They say i am pretty.And I know I am. I just wish I could walk on the beach or pool without feeling the stares of people with normal skin. I am nervous of dating new people. i hate to tell them that i dont do outdoor activities . Other than that I m glad it is not lifethreatening disorder. And people say they didn’t notice my skin disorder because of my cheerful personality.I m still looking forward to cure. there so many websites right now on internet promising garanteed results …. I just wish to know real people behind their testimonials ! Can they be trusted ?
Hi,I am 25 and ive had spots for 7-8 years now and thay are very slowly spreading all over my torso. I am lucky….i guess to be fair skined and not to have it on my arms, hands or face..YET! I just cant help thinking it is inevitable and it gets me down sooo much. I have a supportive family and the best boyfriend but still lack self esteem and would rather cover up and hide from it. I even have a hard time looking at my body in the mirror and would do anything to avoid such a situation. I try telling myself to wise up if I cant love me…who will?! I also get cross with myself and say its not life threatening and could be so much worse. I feel bad reading the positive statements on here and that I am letting fellow sufferers down…the resentment about having it will just always be there
I’m 52 and had Vitiligo since my divorce in 1983. It started on my torso. I never was self-conscious until I stopped working and then I had more time to focus on it. Keep busy! Live your life! I went to 2 dermatologists here and both refused to do a biopsy. One was actually kind of mean to me, telling me I’m just wired up that way. It could also be tinea versacolor, which was confirmed on parts of my body. I think vitiligo is connected to a congested or scarred liver. Most of the women here who have it also have hypothyroidism. I read that juice diets 3-5 days help a lot. Also, I try things but don’t stay with it. I really don’t care anymore. I was at a party last night and the hostess told me I had beautiful skin (on my face). Luckily, my face is still uniform. They have a product here called Tanning Towels which are like tanning wipes. They work great. I used them on my legs last summer.
Hi I’m 41. I developed vitiligo when I was in my early 30’s. I have never allowed it to stop me from enjoying my outdoor activities. I got married to a very handsome man and we have a beautiful 2 year old daughter. My husband loves me for who I am. I am a self-confident woman who did not allow vitiligo to get in her way of enjoying life. The way I see it is: It’s cosmetic and since I don’t make a big deal about it, neither do people who I meet. I go out, wear bathing suits, go kayaking, horse back riding, I participate in marathons, etc. I NEVER cover it, ever.
The other day a little boy asked me. “Why is your skin like that?” (referring to my hands) I said: “Because it is.” He said, “OK” and went on to playing again. I didn’t make a big deal about it.
I have SO much to be thankful for. It’s not cancer, it’s not deadly and it has made me a better person.
Does vitiligocover works for people like me with brown skin?
Please let me know as i am using colortration now and I have to apply it every day and it ruins my cloths every day as it rubs off easily.
hi,
i have had vitiligo for abour fifteen years. I have very little patches on my hands and feet and on my eyes. I use dermablend to cover it, no one notices my vitiligo. Even though it bothers me from time to time, I feel lucky that i have little of it. Also, i am taking medication to get cured of it, ayurvedic herbal medicine, and am hoping i will be cent percent cured one day. Stress and worry only makes it worse, so remember to stay motivated and do whatever you can to get cured!And it’s nothing to be embarassed of, it’s only skin.
Hi Natahlie,
I have been havng vitiligo since 10 yrs its very embarassing the way society look at me…………..am very happy dat i got married to a person who really loves me…..he got married to me inspite of knowing i hd vitiligo……………………..dat he fought with my parents and got married…………..am so happy dat god is ther 4 me……………now i have been blessed with a baby boy…………….but am lill scared…………..is vitiligo heredity?
hi,
will this really work out if i apply.vitiligo cover lotion……………cos am in a position were i cant tie saree at all………….cos its on my neck……………can i use this lotion how it works………..can u pls brief abt this.pls…………..and i dont know sumtymes i feel like hanging my self……………dats i dont know y god is created this disease
I will tell you how it started, i found a guy 8 months ago from another country was so excited to talk to him everyday soon fell in love and short after he wanted to marry me, so i was the happiest person in the world bc he is really good man. but short after that ONE DAY I WOKE UP AND SAW IN THE MIRROR LIGHT WHITE PATCHES AROUND MY EYES, SO AWEFUL, I WENT TO UNIVERSITY AND ONE OF MY FRIENDS KEPT ON ASKING WHAT WAS THAT, AND DOCTOR DIAGNOSED VITILIGO SAYING THAT NO CURE FOR IT. I THOUGHT MY LIVE ENDED AND I WAS SO SCARED TO LOSE MY BF BUT HE ACCEPTED MY NEW LOOK AND WE MARRIED ALREADY 6 MONTHS, I READ THIS SITE AND IM USING VITAMIN b12 AND FOLIC ACID ALREADY 6 MONTHS MY VITILIGO STARTED GETTING BETTER AFTER 3 MONTHS I IST USED, NOW ITS HARDLY VISIBLE AND WITH SIMPLE MAKE UP NOT VISIBLE AT ALL, U CAN E MAIL ME, ALL PATCHES BECAME DARK PINK ALMOST BROWN SO IM AGAIN SELF CONFIDENCE AND HAPPY I CAN SAY VERY HAPPY BC HAVING VITLIGO IS TERRIBLE SPECIALLY ON FACE
Hi,
AM kavitha……………can anyone give me clear picture on vitaminb12 and folic acid are these medicines r wat it is were do we get?
am fed up of taking any treatment cos i don’t thnk its worth……….so can anyone pls update on targeted therapy cos one of da dermatologist suggested me to take……………..?
kavitha just go to pharmacy and ask them to give u 1mg folic acid and vitamin B12 0,5 mg do injection of vitamin B12 every day and take one pill of folic acid every day inform me after 3 months about ur success i hope u will have it
Hi,
Can any one give me more details abt these creams protopol and Genewize because this creams are very good it helps in pigmentng very soon……and i have read dat many ppl are getting cured from vitiligo…………….pls can any1 update on da same
Hi! I’m new here and this is difficult for me. I’m 42 and a fair skin black man, so inquiring about makeup is difficult . I noticed my spots about 3 years ago. I was fine with it and it didn’t realy bother me . Well in the last three months the center of my face has turned white. Everywhere I go people look at me like I’m some freak, and it’s realy starting to bother me. I just want to cover the spots on my face. I’m having a hard time dealing with the spots in my face, I need some help!
Hi Andre
Sorry to hear that. Try Dermablend brand, although I’ve never used it I heard it’s great for covering vitiligo spots.
U can check Vitiligo Support International website and ning Vitiligo Friends if you need further support.
I’m new 2 this site but not to Vitiligo. I noticed a light patch on my middle right hand figure when I was 30 — I’ll B 40 this year.
Since that 1st batch, I have light patch all over my hand, feet, inner thigh, both my eyes are white & it scalp is know turning white.
At 1st it didn’t bother me that much. I’m around friends and family that remember how I us to look & don’t really bring up the way I look now. I wear Dermablend on my face & over the years I’ve gotten pretty good @ covering it up. I’m looking into the Dermablend body cover for my hand & other body parts.
I know a lot of people think I’m handling this really well, but I’m not. I just try not to worry about it 2 much. However, I’m still changing colors. Under my noise, my lips & the back of my legs.
I could deal with this if it would just stop at the point that it’s @ now. It would B manageable ——- however, since I never know were the next patch is gonna pop-up. I’m always worried.
I was never a make-up kind of girl. Now I can’t leave my house unless I have it on. I was N a wedding about 3 years ago & had my make-up air-brushed on. I can’t tell U how much of a difference that made. I thought I was pretty good with the Dermablend —- but that Air-brush took it 2 another level.
Even thought I like that look mush better. Air-brush make-up and the kit I would need for it would cost more than the Dermablend, Either way, I’m not looking forward 2 putting on make-up 4 the rest of my life —— The scary part is what happens when it get 2 the point were the make-up want help.
Josette,
Have you tried the Vitiligo cover lotion?
You should really try it.
I’m fair skinned, so I know that it’s easier for me to cover it up but
It can really effective, if you apply it properly, you have to work in layers.
I do have Vitiligo spots on my face, so this is what I do;
I put it on my whole face, as if it was moisturizer (very thin layer), I’ll do this about every other day.
Then I go back and put thin layers on the white spots.
Then I apply my makeup over that (I use CoverFX). You can’t even tell I have Vitiligo.
I know it’s scary (it is for all of us), but, we have to have HOPE.
I really find comfort with this website.
We are getting so close to a cure, and everyday you hear of something that may help to cover it or eventually cure it!
It is far better now than a few yrs ago, just think of the next few years!!
Don’t worry, you’ll get more spots (lol) and life will still go on.
I have days where I get down, but the people that love me, see me, not my spots.
take care.
Hi Nathalie
I’m a 33yrs old african woman. I’ve had vitiligo since I was a little girl.Now the patches are evenly spreading on my face,for the past years I’ve used the stratedgy of accepting my self which has worked for me, I have managed to go to university and obtained my qualification , have a very handsome fiance with two little angels aged 6 & 4.Now lately the vitiligo is putting me down in so many ways ,before i see myself i see the sports which lowers my selfesteem and most of all my childrens do not like it as well.I wish you can assist me to bring back that shining personality in me.Do vitiligo sufferers have to avoid certain food?
Hello Peggy,
I know how you feel. My vitiligo started when I was 27 and I am 46 years old know. I have vitiligo mostly on my hands and feet but lately it has become more aggressive and is spreading to my elbows. My skin tone is brown so its more obvious in the summer time. The funny thing is I have two boys and they get after their Mom in skin tone who is half American. My wife and my boys are very supportive and in fact we sometimes laugh about it. I just tell them that when I become totally white I will dye my hair blond so that people will not doubt I am their Father. But the truth is I think it bothers me more than my own family. They have been really supportive and my vitiligo has never been an issue with them. In fact my wife always says that she loves me more now than before. I would lie if I did not say that my vitiligo never bothered me, but it does not bother me as much anymore. I am a very confident person and when there are times I feel down about it I just think that here are other people who are far worse than me and that I am thankful that I am physically able.
Hope this helps you
you are 100% right Miguel,
We have just as much right to walk this earth and breath this air as anyone else!
When ever I get down, it’s so strange, a person in a wheelchair will go by. It’s happened so many times to me.
I feel it’s a sign telling me, you have many blessings, your not in a wheel chair.
Life is so short, we have to live in the moment, we can’t live in the past, and we don’t know the future — a cure could be right around the corner–so we need to take a deep breath today and count our blessings.
I have a wonderful husband, and so when ever I get down, I always say to myself; “If there was a plan for me to get this disease, and I get to spend my life with this man, then I’ll take it”.
I’ve really been struggling with my self esteem and feel like I’m entering hectic depression. Broke up with my girlfriend of many yrs and still don’t have answers as to why…been very stressed lately but try my best to be calm…It helps to know that there are ppl out there living happy lives even with vitiligo
I am happy to hear about people who are living happy lives with vitiligo. I am a dark skinned African American woman with vitiligo. It has not effected my face as much as my hand, elbow, thighs and genital area. I think that I have a lot of confidence but when it comes to intimacy I do not. I had a husband who made me feel less than because of the disease so I left him, however that experience has made it really difficult for me to think about intimacy with anyone.
I think that even when you exude confidence on the outside, the disease still effects your relationships with others and stops you from doing things that other people don’t even think about doing like going on vacation and sharing a room with a friend.
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