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vitiligo research

Is UVB the best treatment for vitiligo?

uvb-vitiligoThere have been many comments asking about UVB treatment for vitiligo, so I will tell you about my experience with it.

One summer, years ago, I did a personal experiment to see if the sun could repigment my vitiligo. Each day I sat in the sun for 15-30 min and every day brought new dark freckling. It was very exciting to realize that my Continue Reading

How can you change your outlook of living with vitiligo?

vitiligo-resolutionsIt’s day 9 of the new year and over the past week I have been bombarded with that age old question, “what’s your new year’s resolution?”,  and I have been inundated, online, with unsolicited advice on how to fulfill some of the more common resolutions. So once again, I got out my notebook (somehow this old-fashioned method just seems more official.) to make the list. As I flipped the pages to find a blank sheet, I came across my list for 2010 and glanced through them. Ugh, about three-quarters of the items were not accomplished, and worse, they were at the forefront of what I wanted to get done this year.

“The definition of insanity: doing the same things over and over but expecting different results.” Albert Einstein

This time of year can be conducive to a couple of things, 1) micro-examining your life and 2) feeling depressed about certain aspects of your life. Every year it’s the same cycle: of making resolutions, breaking them, chastising yourself for not following through, forgetting about them, and then bringing them up again at the year end.  Einstein may have been on to something; it is insane.

After reading my list for 2010 I was a bit perplexed as to how I was going to achieve my goals, but I was excited when I finally came across an idea that will break the cycle: choosing 3 words that will be my guiding pillars for the year.

I am a techie nerd and a social media addict, so I am constantly exposed to ideas from people who are leaders in their industry.  One of my favorites is Chris Brogan. His words have inspired much of what I do to enhance our site, and yesterday his post titled, “My 3 Words for 2011”, opened my eyes to a viable way to actually make the changes I want to see in my life.

As you read Chris’s post, I want you to think about the positive changes that you can make in how you deal with living with vitiligo.

The post below is re-printed with permission from Chris Brogan.

Every year, I come up with three words that will be my guiding pillars for what I will focus on in the coming year. Instead of resolutions, which don’t usually help me very much, I work hard on using these words as a lighthouse for my actions and efforts. Here are my 3 words for 2011:

Reinvest. Package. Flow.

Reinvest – I will reinvest in my efforts in all areas of life that matter to me. I won’t phone it in. I have some fitness goals. I can’t keep playing at it. I have some financial goals that will be met. I have community goals that require me to reinvest in my projects and not take on new things.

Package – I just wrote about packaging the other day. Essentially, I’m going to get my own marketing house in order. I’m going to make sure things make sense, make sure they are easy to understand, and make sure that the right people know about them. Packaging will have other meanings, too, but this one is important to me in 2011.

Flow – In the last few months of 2010, I came to realize that I’m still doing too much. I went into redrawing mode yet again. One thing I have to do much better in 2011 is manage flow: that state of working on the most important stuff and eliminating distractions. I’ve cut a lot out of my original plans for 2011. I’ll surely cut a little more. The end result? Things will come out much better. I’ll have less stress. Things will flow nicely.

3 Words Aren’t Goals

The three words idea is built so that you can have something to reflect upon. As you know, goals should be SMART ( Specific, Measurable, Achievable, Realistic and Timely). The way you use the two together is that you think up goals that will match up to your words. For instance, one goal of mine in 2011 that ties to “reinvest” is to lose 50 pounds over 10 months. 5 pounds a month is specific, measurable, achievable, realistic, and timely.

There you go.

And You?

What are your three words for 2011? How will you guide your actions?

My 3 words are: action, focus, simplify


Vitiligo conference in london, england

royal-society-medThe meeting “Medicine & Me: Vitiligo”, organised jointly with the Vitiligo Society, will bring together patients, their families, caregivers, advocates, patient support groups, clinicians and researchers to discuss Vitiligo. This meeting will focus on initial experiences at diagnosis, psychological aspects of the disease with especial reference to issues of ethnicity, and issues around patient pathways within the NHS. Continue Reading

Self Esteem For Vitiligo

Morris Rosenberg states that self esteem is formulated in 3 ways (1) reflected appraisals, (2) social comparison, (3) self attribution.

Reflected appraisal comes from Mead and Cooleys’ idea that if other respect us and look up to us in some way, we are likely to have a higher self esteem than if they are degrading us.

Social comparison is the process by which we compare ourselves to others in either a positive, neutral or negative way. Poor children (as a generalization) will often do less well at school than their wealthier classmates as the comparison of life styles may develop a negative self esteem, making it less likely that the poorer child will perform well in school and the low level of achievement will then further damage the self esteem. Continue Reading