“I am 99% re-pigmented”
I had sent an email to my previous customers of Vitiligo Cover asking if they would like to submit a story, for my book, about their experience with their vitiligo. This is an email I received last month from a man in Yucatan, Mexico. He also happens to have been my very first online customer when I was selling Vitligo Cover Lotion. He first wrote to me 3 years ago to let me know that he was so happy with the results from the cover lotion because he could finally go to the beach.
Well, 3 years later, he wrote me again and now he is even happier…
p.s. english is not his native language.
email #1
hi nathalie,
i been doin a treatment and i am about to 100% repigment.
i am so happy but i could write a story about the drug abuse i fell in while havin vitiligo and about the loss of 6 years since i didn’t want to go school etc…
o btw i am 23 year old. i get vitiligo at 16 and heal at 23.
in 4 months i repigment the 90 % of lost pigment.
I wrote him back inquiring what he did for the re-pigmenting…
email #2
tx for the interest and its really hard to explain how hapy i am, probably as hard as it is to explain to people witout vititligo how hard is to deal with the condition… but i still live with the fear of its come back 
but the last thing that dies is the hope 
.
the treatment was:
i used flaxseed oil
fish oil (omega 3)
vitamin b injections
multi-vitamin (centrum)
green tea (as much as i can drink)
vitamin e
i drink beet juice also.
shark cartilage
i also work out (lift weights)
and i do cardio vascular exercice everyday (spinning or box or go out to run, etc)
since i start to work out i start a diet which was based on eating only healthy stuff.
(no fat, no trash food, only clean chicken meat ) i also eat protein which some ppl think it help the body to asimilate all the other stuff (some ppl with vitiligo eat keffir for that) i start using it cause its a very well known suplement in the body builders world.
i also start a puva treathment twice a week using oxioralen pills on it.
i think the combintation of all of these help me.
the difference on quality of life is incredible. i wish everyone with vitiligo could feel it.
ill be waitin for your mail, the best of luck
The “I am 99% re-pigmented” by Nathalie Pelletier, unless otherwise expressly stated, is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Wow… very inspiring. I was (officially) diagnosed with having Vitiligo on Tuesday July 10th 2007 at 13:37 EST (funny how I remember)… but I started to notice skin pigmentation loss around my waist a year earlier. I am going to try what you have said (already using Flax Seed oil as a laxitive) an I hope I will return to ‘normal’ as society calls it. If I do not regain the pigmentation, well, oh well, what is the world going to do? Sue me?
I am fifteen years old with dreams of becoming a commercial pilot (already started flight training). I wish all you ’suffering’ (for lack of a better word) with Vitiligo the best of luck and I hope to post again with my progress.
Max Udaskin
Toronto, Ontario, Canada
15 Year Old Diagnosed with Vitiligo
Thanks for your comment Max! Do keep us posted with any changes in your vitiligo. And btw, your site, http://www.virtualzoom.net , is wicked.
Haha… Well, Only someone with Vitiligo could do it
. At 15 I can do a full website with an administration panel!
I just started B-12 shots for another medical condition and found that it is repigmenting the vitiligo on my body, especially around my lips and eyes in a matter of days….I have used Paba & L-PHENALALALYNE, the piss w/ the light box, grafts etc….these shots have reacted to my body as quick as lightning!!!!!
That’s great news Rene. How many ml per shot are you getting? Keep us posted. Do you have any pictures that you can share? We’d love to see the changes.
Please send the information on treatment to restore pigmentation
Oh, that’s great! Good going for him! Thanks for making me smile!
I am so happy for all of you that has repigmented, and for the rest of us, don’t give up hope!
I would really like to see more before and after pictures!
Nathalie– How is everthing working out for you so far?
I finally gave up on it. If this is how I am supposed to be, my peers better deal with it.
During the winter it went away on my face and receded on my arm, but now it is starting to show again. Oh well…
Good morning all,
When guys are giving up , how do you want the female folks that had vitiligo from as early as almost birth feel?
we need more testimonies and each written ones should be specific with the kinds and types of treatment used and how it can be accessed. Here in Africa , it’s like we’ve been “screwed” when it comes to anything about it’s treatment , groups and awareness !
I need quick answers to this and am sure my fellow Africans are too!
NOVITIL – Hi guys, please do have any experience with this product ? Does it work ?
Please let me know. Thanks a lot
Have increased my B-12 to 3x’s a week …added Flax seed oil and Vitamin E to my Paba 1000mg and L-phenalalyne and almost 90% color back around my lips along with clusters of color appearing on my hand/fingers which are the most difficult to get the color to return…stay away from sunlight and too much red meat….I am told that the cure is in Cuba and have seen for my own eyes people who have gone there and returned within a week with color repigmentation — they detoxify the patients body and do a maintenance tea which keeps the body calm (stress increases loss of color)…keep Faith — besides I always say this is God’s way of showing that we are all the same color underneath it all
Hi Rene, could you give details regarding the exact place in Cuba where there is Vitiligo treatment? Thank you very much!
The information about the physicians who have been treating vitiligo for many years by detoxifying the body’s system is in a travel book written by Christopher P. Baker and I think the book is just titled “Cuba”…am in the process of moving but when I can locate the info will post it…in the meantime look up the book and buy it because everything is there from the treatment to the doctors or Google physicians in Cuba treating Vitiligo…my progress with B-12 is working like a miracle and I have tried everything since 1980…Google B-12 and see all the benefits it has – I take 1cc now 4-5 times a week and have blood work each month and was told by a physician that if there is too much b12 in me that my body would just eliminate it naturally….will stay in touch
Hi there it has been a while since I last chatted my ,vitiligo seems to be under control no new spots but my psirisis is showing more I have both I cant even go out with a short sleeve shirt my skin looks terrible.I have been using folic acid and multivitamins.Please do not try to stress this wursin the viltiligo and psirisis
Hi Nathalie
I ,m 21 years old , and 6 ft tall , i have vitiligo since 12 years i was doing a treatment that has stopped working for me now , don know y . i used to do modelling but because of this disease i had to stop it , quite honest they chuked me out. i have this thing on my hands lil bit and my feets , now i hav god two lil spots on my lip and on under lip as well, i don know wat to do may i should just sucide , i dont know y god has given me this kind of life . no body seems to be helping me i hav spend hell lot of money on this , it has spoiled my whole carrier , pls help me if u can know i can see some hope from ur website , pls let me know , and get back to me asap.
Thanks
Anurag arora
+91-9910883715
anurag.arora@genpact.com
Hi Anurag,
I was just 21 when I got vitiligo and after that I ran 2. in beauty contest in my home country in Turkey. It is not all beauty shows the way you appear, all you can change it with the way what you think about yourself so the others will see you the way you see yourself. I saw the other girls were covering their legs with such sprays to look better, I had big spots and just covered them, didn’t even cover all like they covered and again I won. You can use self tanners, try different products and find the best one for your skin complex. Don’t even think it is bad, it is hard but not that bad as you think. I was like you till I saw one f my friend died front of my eyes every day with cancer in her just 20. She was loosing her hair but I haven’t seen her as unhappy as I was. I realised I don’t have any right to be in such bad mode if she can smile I would have smile more as I don’t even have pain or not even loosing my body parts as she was loosing. Believe me that we are lucky to have our general health and just having a color problem as there are ways to cover it. Also you are so young and very possible the cure or comfortable treatment that is going to be found soon. All developments shows lately many studies on vitiligo and such hopeful. I am sure you are sweet and beautiful that is why you think you lost it with vitiligo but believe me you didn’t and nothing can touch your beauty as long as you love yourself and keep your confidence strong. I am 35 now and living in St. Croix USVI. At least 10 times in a year, many people came to me to say how beautiful I am and also 3 of them said I am the most beautiful girl ( even I am 35 and mostly I just cover my face lightly ) in this island. I have seen no one really bothered with my vitiligo as I did to myself. No one even care. My husband fell in love with me when I didn’t even cover my vitiligo and I have it %13 nearly in all part of my body. My ex boy friends turn me how much they appreciate me as some of them very desperate with loosing me. There is no such strict way being beautiful, sweetness, kindness, smartness, make us earn much more appreciation from the others more than just being sexy or beautiful all Ii learned from my experiences. Otherwise they would just think oooo good she left me, or they wouldn’t even need to speak to me again, someone wouldn’t bother to come and say how beautiful I am. Life is such short and full with joys, just do your best to enjoy and make happy any one who is around you. This is the best we can to fulfill our self esteem, there is no problem to have vitiligo to be beautiful. Maybe you can’t be a model as they use static looks but you can be the one who is very beautiful even has vitiligo. Isn’t it better than just naturally being beautiful as you add something on it, even having some condition you still know how to look good and confident with it. I am sure there is going to soon sometimes we will have good result with the studies so why don’t you just relax and wait for it. Use some self tanners, don’t worry that someone see your vitiligo, explain them the way you can what it is, so you will see they will even like you better as any one had some problems and they will find you closer to themsleves. There is no one perfect and no one looks really so good, any one do something to look good. I wish you my best to go on in this world with the highest confidence that you are beautiful and strong. Take care..
Sermin
Sermin ,
thanks for ur sympathy , ur r 35 i,m 21 , may be i ,m not that matured enough to see things like you see them .I just want to cure these spots till the age of 40, because i dont want anybody will say to my wife , u have found a guy with vitiligo coudn,t u found someone else.
Very welcome. No one will say that to your wife FOR SURE. Lately many successful researches have being done and many are adding every year and it will be cured or successfully treated situation soon. I know it because I can compare what is going on since I got it. You can get vit. B shots, folic acid, mild sun bath what works for many one what I read. I will write here if I here something. I have done many things and one time it has gone all but cam back in a very stressful term. That is why I wanna try something easy, safe and long lasting, of course it would the best best if there is a cure. Keep smiling!
Best,
Sermin
I have have had vitiligo for 19 years.Can some one tell me where to start on my treatment or cure?.thanks
hey sermin / nathalie
i have got a good news for every body with vitiligo , i know very well that how difficult it is to live with vitiligo , i was very demotivated , wen sermin replied to my comment i felt lil bit alrite , because u can understand i had only one dream in my life to become a model a super model , but because of this my career has been spoiled any way , i was say to the people donot cry for what u have not got , be happy with what god has given you ..i was seriously crying wen i was writing this email , guys i was doing a ayurvadeic treatment from a village , i could,nt do the treatment properly becase i work for a call center i couldnt manage to apply that lotion everyday ,
guys this my advise to all of you that please do a treatment which ever has been advised by your doctor religously donot even miss on one day , i missed it , and i,m cryng now becasue now i,m grown up .
the recent treatment which i have got is
melonocyl tablebts one daily empty stomach
antioxidant multivitamin twice a day
main thing melanocyl ointment apply and give a sun exposure for 15 mints daily ..
avoid pattoos and pickle and rice donot eat it guys . you can eat once in a month , just think i donot eat non veg every day we cook patatoos i cant even live without it but still not eating it from last 3 months .
workout in gym everybody .if you donot find melanocyl ointement get it from india ..
guys this treatment has worked for lot of people for me as well like miracle ..
try this & best of luck i wish people see the beauty of you from inside not from outside …donot apply any cream on these spots like fairness or watever , use glyecrin soaps like pears onlyy
guys god is with us we must have got something which other people dont have may be brain may be strenth , may be beauty from inside ..take care
hi jc
i would call a local dermatologist to see if they offer, xtrac treatments,then call your insurance company to see if they cover the treatments
all the best!
hi anurag,
i read ur letter and have a question. Does melonocyl tablets contain steroids.
no steriods , other wise i would,nt have taken this medicine , if ur from india u can take this from any of the medical store ,
u can call me as well , there is other med called methylprednisolone tablets that i think contain steriods which my doctor has just suggested me .. i take once in a day ..but if u donot have much u can just take the previous medicines which i have told u ,
u can call me yar # 9818133229 i will tell u where the doctors and all
hi anurag..u hv ny improvement wt ur treatment??? n yes…methylprednisolone does contain steroids…..nyone else has taken up steroids with some results..plzz reply..
Sharon , yes.i know methylprednisolone does have steriods i have stopped taking them , yes i had some improvement about 20 % but i used to take it once in a week , now when i consulted so many doctors , i got to know that it has steriods and may have side effects , i will see my doctor next month till that time i,am just applying that cream and taking multivitamins , and i ,am sure u just start taking multivitamin and a sun exposure u will see diffrence.
hw long did u take steroids..?? when did u last take the steroids…n wen u stopped taking them did u see any differene??? i mean hw did the patches react once u were taking treatment n after u stopped??
i cannot see any diffrence dear , coz multivitamins help reducing the spots very much it is just that if i take steriods it will start reducing a bit quickly , i dont have any problem taking steriods but this methylprednisolone hav a bad effect on ur marriage & sex life and that risk i cannot take , if god wants to fix this problem he will for sure and i know this time when i see my doctor i will ask him to change the medicine .i goes to gym as well . so what my suggestion is start taking good & healthy diet u will find that ur spots have actually stopped spreading .. have juice every day a big glass
Do B-12 vitimins work as well as B-12 shots. How much B-12 per day
Has anyone out there had success with Dr. Schallreuter MD in Germany? (pseudocatalase cream)If so tell me about the process and how long to see results???
Hello guys… i have a vitiligo from last 18-19 years and now im 23 years old. I am originally from Pakistan and currently living in Florida US. i have tried alottt of treatments including Skin grafting.. laser treatment .. and im still on steroids injection ( Triamcinolone acetonide ) once a month and taking from around last 4years. I dont know whats goin on inside my body cause of these steroids and all..but it does stop it from spreading.. what i want is to just cure this thing. Recently i have joined gym ..like 3months back and from last 1week i have been noticing that my spots are getting worse.. and even got one spot reappeared under my lips what i treated around 2years back. Pleasee tell me does working out make this vitiligo worse? cause i noticed it twice.. 3years back when i joined gym n i left it cause it made it worse.. and same thing happened again to me.. im jus curious because ppl say salt is not good for vitiligo. and what i think is salt make your blood pressure high and hence make it worse.. so same happens when you go to gym ? does that make any sense? i lovee working out and now i have to stop goin again cause of this vitiligo.. i have been trying for my whole life to accept this that i ahve a vitiligo.. but i just cant … i have to cure it.. i just cant live with it..please help.
Thanks
Umer
from all that I have been reading and researching, I have not heard anywhere that exercise is bad for our vitiligo. On the contrary, I have been reading from many sources that a healthy diet and exercise are always a good thing, not just for your body but for your mind as well. You feel better because of the feel good endorphins that are produced when you exercise. I have however been reading from people and other articles that stress seems to play a part in spreading vitiligo. Try to think back to the times that you were working out and maybe it was just a coincidence that your vitiligo spread. Maybe there were other reasons, like a stressful hectic schedule. Also, I have been reading that too much sun exposure can also spread vitiligo because the sun damages/kills your pigment-producing skin cells.
Im personally going to start applying lotion with sunscreen on my body everyday and look into this B12 shots, flaxseeed oil, vitamin E, and my dermatologist recently prescribed phototherapy.
By the way, I live in Orange County California and it is very important that we all wear sunscreen/sunblock anyway because it is a well known fact that sun exposure causes signs of aging/wrinkles and can even cause skin cancer. For us people that have vitiligo, we are especially vulnerable to the suns harmful rays on our white skin patches because there is no pigmentation to protect us.
Hang in there everybody, and remember, try to stay positive.
Oh, I forgot to mention, when I first got vitiligo it was very little bits around my fingernails. I was also a semi vegetarian, I ate fish and chicken but no beef or pork. I dont know if that helped keep it from spreading but from some of the articles I have read online, it seems it is a good idea to stay away from red meat. When I started eating meat again, it has spread faster. I will be going back to my semi vegetarian life style. It is healthier over all anyway.
Hi all,
I have been reading posts from Jason, Len and a couple of other people regarding their experiment with Piperin potion (mixed with a flaxseed oil and beeswax base) and NB UVB phototherapy …. it sounds amazing!! I am becoming hopeful and I think Im going to try it myself, as well as the vitamins, antioxidants and minerals and healthier diet (cut waay down on the meat).
The only other question I have is although this may help with repigmentation, does anyone have any good info on how to stop the hyperactivity of the autoimmune system to keep it from destroying our melanocytes?? This would be very important in addressing the cure and not just treating the symptoms.
Thank you all sooo much for sharing all this info with us. God bless.
Hello everyone, I just turned 19 today, and i have had vitiligo for a year and a half. It started with a spot on my right hand and gradually spread, I noticed that it also began to happen to my left hand and it seems that it is somewhat symmetrical to the spots on my right hand. I began a laser treatment and at the time I was really depressed because of what was happening to me, also the treatment cost a lot and i decided to stop. I did researched about uvb rays and found this to be an interesting subject. I will be trying this along with vitamins, and b12 shots as well as keeping a healthy diet and exercise . Finding this site gave me hope and I hope that soon there will be a world wide cure.
Good luck to all!
Hi guys, I have a two year old boy, his doctor told me he has vitiligo, at first I didn’t know much about that, but now that I found out what it is honestly I feel so angry and sad, he is a beautiful little boy with big blue eyes, I don’t even want to think what’s gonna happen in the future. I’m so angry because I don’t understand that is no cure for vitiligo, we pay to much money in this country for hospital, medicines…the doctors really cares about us? Sadly they only want our money rrrrrrr
Hello All,
I recently returned back from home,Afghanistan. My two brothers,my niece and myself we all for suffer from vitiligo. The good news is my niece is under the treatment of herbal doctor and the treatment is promising. she got somehow little pigmentation but most importantlly her vitiligo stopped from spreading. The doctor promised us within three years we will be fine. I saw many pictures before and after of vitiligo patients in his office. It was very promising.
Here is what the doctor recommended for vitiligo patients:
Don’t eat any fried food at all, especially fried eggs.
Don’t eat any spices food at all.
Don’t be exposed to the sun.
Don’t eat any bananas or Mango
Don’t eat greasy food.
Take is easy, stop being depressed, exercise regularly and try to keep yourself happy.
Try to eat grapes, reasons,vegetables, food rich with vitamin C a lot.
I have been doing all this for past one month, believe it or not my vitiligo stopped from spreading and the most recent spots have became somehow pale.
Conclustion:
It worked for my niece, it is early to assess my vitiligo, however I am optimistic for the treatment and it stopped from spreading. It make sense to treat vitiligo from inside not from outside. I will keep you all update for any further improvement.
Peace to all
~K
Don’t eat any beans, egg plant, milk, cheese and fish. take shower two or three times a day with cool water, drink beer.
Hi Umar,
Not gym or any type f excercise can cause it but chortizon can. Still much unknown about chortizons and I had the same thing when I got a depot chortizon shot once about 3 years ago. I got two new and very sudden big areas right after that shot in a week, it was a big warning to me and since then I never think is chortizon good for us, they say (doc.) good for us but I think it is the worst what we could do to ourselves if you know a bit about chortizons. Go with antioksidants and excercises, you can add tryptophan and hydrocloric acid if you also have lack of itin your digestive system. I use dapsone for 6 months along with multivitamin centrum, tryptophan and MSM, I got some brown freckless but not sure if these gave me or sun was helping much, anyway I am watching but not as I use to, I will write if any dramatic change occurs in time…
Everything seems to contridict itself for the treatments. The only consistant thing that I have seen is that taking vitamin b-12 and folic acid will help. and this fish oil. IDK if taking vitamin b-12 is the same as taking the shots. I asume it is, just less potent. I started this treatment about four days ago. I’ve been taking 1 800 mcg tablet of folic acid, 1 B-12 2500 mcg(as Cyanocobalamin), 1 315 mg plus green tea plus hoodia, one 400 Vitamin E 400 I.U.
I dont have any exposure to the sun except for when i drive, i dont wear sunscreen cuz thats just rediculous for the amount of time i drive. Im going to try using the steriod cream again maybe 3-4 times a week. Its recomended twice a day but i cant stand it that long. If this works, I will try to be as specific as possible on what i’ve been doing daily, from hygeine to sleep. I encurage others to do the same. Alot of people are saying they’ve had progress with their treatments but are not being specific at all. Please do so… if anyone has any sugestions please feal free to say something ill be checking this site at least once a week
im so scared anything seems to help. it started spreading after 10 years and i dont know why? somebody helpppppppppppp!!!!!!!!!!!!
Opps also forgot to mention, I am a make up artist and even though I know that a cure from the inside of us is what counts (including and most importantly the healing of our hearts)…I am trying to come up with a plan to go out and make over people with vitiligo. I want to open a shop where people can go to get “treated” on the outside, even if it is just for a couple days. My Fiance is a professional photographer and I was just telling him last night that I would love for him to be apart of my plan. I would love to have him give beauty shots after I do my make up applications on US. I know that self esteem and feeling beautiful is a very important thing, even if our hearts are healed, we are still humans living in this crazy world… Please pray about this because I hope this is Gods calling for my life. Maybe even then, we can set up support group nights at my shop and share treatment plans…. YAY…. I am praying on this and hoping that it is somehow His will for my life… In His Love~ Sabrina
Sabrina,
That is a wonderful idea…somewhere we can go, and not feel strange about showing our skin, especially our faces.
I think this will be your calling in life…you have turned a negative into a positive.
You could keep what you know for yourself, but instead you are willing to go out, and make people feel better about themselves.
It’s a win win for all.
God bless you!
Mary
Thank you Mary… Thank you!… I pray that I can help and make a difference for the Glory of God and for His beautiful people… Have a blessed New Years and may this coming year bring us peace, contentment, healing and joy! ~ In Christ ~ Sabrina
I suffer from chronic eczema. Took immunosuppresants for 2 years but stopped as was giving me side effects. Now taking clindamycin to keep it under control. Started getting vitiligo on breasts. What form of vit b12 should I buy or will l I need to see a doctor. Thank u
Hi Zara,
I havent done any research on eczema, but I can tell you that you would be a great candidate for excimer xtrac laser treatments. I used to get treatments for my vitiligo and it did help re-pigment for a while, but the technician did tell me that they have excellent, long-lasting results with their patients who have eczema. check with your insurance company because they may cover most of the costs per visit.
all the best,
nathalie
Do u know if red meat aggrevates vitiligo or not?
I am so scared, upset and lonely since seen the spots on my breasts. Haven’t told any one only my doctor. Started taking 400micro folic acid, vit b complex and vit c plus 2 tbs of flax seed in cereal every day. How do I check the right dose of vits required for my body. Need help? X
hi everybody i got ” dis thing” i like to call it so coz i hate it
since 2005. it started from my right thumb.now i have on both hands
and on my face. i used to live in germany and my first doctor said
u cant do nothin its just spot. dont worry
since then i never go to doctor and tried to heal myself.
i guess that was wrong and im gonna take care of myself from
tommorow on.
dont giveup ppl… see ya soon with good news
yeah onemore question… its gonna cover when i go to tanning?????
I have been suffering from vitiligo for over 30 years and in Ontario dermatologists do not care enough for their patients period. I have visited Chile and in an social event met with a doctor a friend of mine for many years. He mention to me a Doctor in Santiago, so he arranged an appointment for me. After 2 months of narrow band UVB light treatment and protopic I have repigmented my face. Now back in Ontario is so hard to get a dermatologist who treats with the Narrow band light; mostly they use the broadband which is more damaging to the skin than the narrowband. Moreover, there is not a clinic in Mississauga to offer such treatment of NB-UVB I had to travel to Markham ontario and even there, they do not have the narrowband. So this is Ontario.
In conclusion, I do not think that dermatologist give a dumm about curing vitiligo as long as they can get paid from health insurance, that all. In Mississauga there no one doctor who really have a NB UVB light in their office.
hi J,
you’re correct; doctors in general do not seem to be all that interested in helping people with vitiligo. i have heard from many who have visited doctors who simply dismiss the skin issue, thereby leaving the patient feeling alone and helpless. this is one of the reasons that i am promoting the “vitiligo world conference 2010″ scheduled for september in italy. the main topics they are going to discuss are ‘how to care for patients with vitiligo’ and ‘the emotional aspect of having vitiligo’. simply because a doctor has no cure to offer, he/she can discuss options in dealing with the emotional side of it, and at the very least, leave the patient with a feeling that their issues are recognized and valid.
as for the nb-uvb treatments, i wouldn’t be all that upset. the truth is, at least in my case, even after 2 years of visits some repigmentation did occur but since stopping last summer, all of that has faded. in other words, i don’t think that it’s a permanent solution. therefore, the cost per session and time spent are not worth it.
try looking at your own situation to narrow down what may be causing the vitiligo. for example, i had hypothyroidism which is often associated with vitiligo. so, i delved deeper. what causes hypothyroidism? it was classified under the umbrella of auto-immune diseases. then i read an article about chemicals causing vitiligo and i remembered that right before my vitiligo manifested, each time i cleaned my carpets i had a reaction to the cleaning solution; i got a funny taste in my mouth and i wouldn’t feel well. perhaps this played a role in triggering the vitiligo gene. it’s all trial and error, but the process of elimination may take you closer to finding a way to repigment or halt further depigmentation.
all the best
nathalie
hi zara,
i would talk to your doctor or an herbalist to get the correct dosages for vitamins. also, try adding vitamin d. vitamin b12 (sublingual). many ppl with vitiligo are low in b12 which may be due to malabsorption by the stomach. if you have any issues with your intestines, try solving that, too.
you’re not alone
many hugs,
nathalie
zara, i would think that this would relate to what i said in my other comment about solving intestinal issues. there isn’t one known cause for vitiligo, so dealing with it with your whole body system in mind may be the best way to conquer it.
J Herrejab – There is a clinic in Oakville and D/T Toronto if you are interested in Narrowband UVB.
Hi Bobby,
Can you pls let me know the doctor or clinic that has Narrowband UVB in Oakville and toronto.Is it covered by OHIP ?
Thx
hey natalie thank u for so much information and the blog that connects the people with same problem.
Is it gonna cover my white spots when i use the tanning cream and go to tanning.
about the vitamin b there is lots of different dosage ,what dosage should start taking.
greatful enkhbold
Dear natalie,
I saw my dermatalogist and baically begged her to give me nb phototherapy and she agreed but she made negative comment about taking vits. Saying that I’ve started taking vit b12, folic acid, vit c and 2 tbsp of flax seed in cereal since I’ve been on this website. I noticed v tiny pigment on my biggest White spot. I’m very very lonely and thought of this might spread makes me cry non stop. Where did u have excimer laser done? How many sessions did u have? Xxx lol zara
Dear all , I’m having worse time of my life. Today I felt tingles and itch in front of my scalp. When i looked in the mirror noticed that I’m loosing hair so so much and in fact got bold patches. So upset over it. Is it related to vitiligo? Taking vit b12 2micro gram a day and 2 folic acid 400 plus 500 vit c. has vitamis got anything to do with it that I don’t know of? Xxx desparate for help!!! Bald and White spots all at the sam time. Can’t cope!
Hi Zara
I’ve been trying to post this massage for the past 2 days and I don’t know what’s going on with my computer or may be this site? It keeps saying‘comment awaiting for moderation’ hmmmmm. Anyways, I’m so sorry ur feeling a bit down…believe me I know how you feel, cos there are days (believe me, many of them) when I do feel exactly the same. The thought of vitiligo worsening scares the hell outta me & if I’m honest it’s driving me nuts!!! However, I’m trying my best not to get stressed out cos it’s a well known FACT that stress can make vitiligo get worse. So eventhough it’s very difficult I try my best not get stressed out…anything to prevent/slow down its progression,UFFFFF!!
Yeah, hair loss (alpecia) sometimes happens in many people with vitiligo … so don’t worry it’s nothing to do with the vitamins ur taking…if anything, the vitamins are suppose to help:)
check the sites out, there are loads of info on treatments, vitamins, herbal products and ‘vitiligo diet’. I can’t post the link here as the site will not allow it in order to pevent ad companies, so u can google it.
Vitiligo Support International
For emotional support, u can join Ning Vitiligo Friends
Both are great sites, I found loads of info/support!
Good luck!!
Hello all,
I wondered if anyone has tried allergy testing, including for histamine intolerance? I have been suffering from vitiligo for almost 3 yrs and it is spreading quite fast recently. I have also hypothyroidism and had some bowels and stomach problems and migraines recently which I believe are all connected. At least I managed to stop the migraines since I stopped drinking orange juice. So, researching on the internet, I started reading about histamine intolerance and am thinking about taking a test. I should mentioned that there is no case of vitiligo in my family and my vitiligo started 3 years ago after a very bad allergy reaction I had to shitaki mushroom.
My doctor recommended treatment with protopic and oxralen but I have just started so no progress yet. I’ve read some comments about protopic but has anyone heard about oxralen (topic with sunlight or uv lamp)?
It was great to find this website. Thanks all for sharing your experiences.
G x
Hi Gabriela,
I’ve had all of the allergy tests done over years as I suffer from chronic eczema. Do not have family history of vitiligobite at age of 41 all of sudden developed vitiligo. Is hard but stress defenitely makes it worse. Try taking ginko bilopa 40 mg tablets three times a day , apparently you get 40 percent repigmentation in 6 month. I’ve only taken around 1 month and noticed very tiny pigment middle of White patches appearing. I’m taking vit b12 2000mg a day but can anyone tell me what they mean by shots? Is it ampoules? Do u buy them online?I am starting NB phototherapy in couple of wks. I used to be very happy and cheerful but now turned into a very quiet person who cannot be bothered to socialise . Lol
z
hello all…i’m writing this because i am in love with a person who suffers from vitiligo and seemingly cannot begin to understand why she was “cursed” with this skin disorder. although she is so incredibly beautiful both internally as well as externally, she cannot begin to appreciate her own image given the incidents of patching throughout her body. i am attempting to find both a cure for her condition as well as various products / solutions to better help her live with this as best as possible. i have read about b12 injections, creams, and tablets, lotions with tropical and exotic fruits in them, sunlight, uva ray tx’s, etc. and would love help in providing me with a possible outline on how to best experiment with the multitude of varying therapies, both natural and otherwise. can someone help me with this venture? i hope that i don’t seem or appear to be demanding but time has been ticking for a bit and i would love for nothing more than to help her find something that will make her feel good again about her self image and life…it’s been a very long and winding road, thus far. thanks to anyone who might offer suggestions of links…cheers! jimy
Hi Jimy sorry about ur girl.
Try Vitiligo Support International, I can’t put the link here but u can google it and it’s great site, you’ll find loads of info i.e treatments, vitamins, diet and remedies and more as well as a lot of feedbacks from people who been on any of them.
Good luck
Jimy
ur partner is a very lucky lady to have u. My husband used to be very love and caring but after 19 Years I don’t seem to know him any more. So I do every thing on my own. I have started getting a few pigmentations after following the advise given by people on this web site. Also use elidel cr twice a day and waiting to start nb phototherapy twice a day for 3 to 6month . Is meant to be very successful. Ask ur partner to see her gp and suggest this treatment. Stress makes it worse so I’ve decided not to be sad anymore instead do something about it. If this doesn’t work there is clinics around that can do excimer laser. I also make sure I take my vitamins properly plus flaxseed .
Good luck
z
Hi All,
I am an african leaving in Kenya. I have had vitiligo since 2008, my vitiligo was triggered by henna which had a mixture of a chinese hair dye. Apparently it has spread leaving me diverstated and desparate. I can no longer wear my nice cloths as its on both my arms, my chest/neck and my legs. I had started using a UVB therapy and after 6 session I got repegmentation on my neck, however as they continued increasing the dosage I realized that immediately after the theray I was really itching and this would go on for the whold day. The UVB therapy is 2 times a week and its doing great for other patients. Could someone assist and let me know what I can use to avoid the itching? I have also started taking Mega B which contains the stress, I am on B12 and Folic as well. I will post my progress after a while when I see some reaction.
Hi Maureen, I get very itchy at times as well, even before I started doing the UVB treatment, I saw my derm. for it, who recommended I take reactine (allergy medication) and keep my skin very well moisturized at all times
I treat myself at home with a uvb narrowband lamp that I bought at ebay and the seller gave me a free bottle of TevaSkin bottle. It is one month now and 50 percent of the white skin is almost in it’s normal color. My Vitiligo is in the legs, 2″ X 1″.
Wow, thats amazing Daniel! I have been using UVB for about 3 months now and I haven’t seen any significant change. The white skin looks duller though, i.e., not as white as it used to be. So it looks promising. My doctor said it might take up to 8 months before I see any significant changes.
Hi I have had vit for over 10 years now, and have been doing the narrow-band for 1 1/2 years now, I was going 3 times an week and now I go 2 times a week, not sure if nay thing is going to change any more, but it was successful for a while, taking b-12 and Folic acid, anyone heard anything about Ginko Biloba also?
hi i am from india(21 yr.) and i have vitiligo since i was 12
at first when i was 15-16 yr old i didnt care much about it but as i am growing older its getting worse and worse , i can’t think of anything else , someday i just think that many people dies through accidents and i pray to god to just kill me that way , but than i love my family very much and they love me too ahd i dont wanna hurt them , i dont care about myself i just dont wanna hurt them
I hav a spot on the navel. Av been taking multivitamins, prednisone, n applying tacrolimus. Avoiding stress as much as i can and it has kind of stoppd spreading. I would like to know if u treat a spot will others appear in other areas?
Hi,
I have vitiligo for about 25 years. Its just a small patch on the left side of my cheek and in the middle of my neck. I used to take trixosalen tabs and and apply topical cream on the spots. Now almost 40% recovered. Due to the prolonged sufferer of this disease I have noticed that this disease increases with the intake of sour or citric acid.Try to avoid it. And stress is the killer. If you break out with your girlfriend or friends or jobs if you are stressed out this disease will spread and if you dont get stressed it wont spread. And one of the most important thing is try to practice Yoga. The yoga schedule by Swami Ramdev does improves your skin condition. try doing Kapalbhati more and with repetitions.
Eczema is really so itchy and i cant help but scratch it. Corticosteroid is a heaven sent because it can relieve the itchiness and redness. ,
I have vitiligo from last 18 years, i am 28 now, 3 months ago i started taking homeopathy tablets Ars. flav. 3x (4 tablets a day), and one booster dose after every 15 days, and after started taking tablets my vitiligo stopped spreading and i can see some repigmentation around my eyes, well i am vegetarian from last 7-8 years which helped me to stop spreading this problem, and also not eating any fruits except bananas and blue berries, and not even any fruit juice as my physician adviced me to ignore all these things.couple of months ago i started drinking orange juice and it put very bad impact on my vitiligo. additionally i am taking multi vitamin tablets. i hope i will overcome this problem soon. all the different kind of treatments avaiable on internet are totally waste as i have tried almost all of them, so i reccomend to my frnds please dont waste any money on them. please dont let them to take advantage of this problem,they just making money..so please save your money.
gudluck to all of you.
This is a great thread. Finally some good news!
I am 43 years old and have had vitiligo for 20 years. I started with a small circle in my groin and a small 1cm patch on my side. Three years ago significant white patches appeared around my eyes and on my hands. I am lucky to have fairly pale skin so while I notice it a lot, others don’t seem to and it hasn’t really bothered me.
I have just had a son and have been looking at treatments our of fear that he will get vitiligo too. Looking through various medical research on databases such as PubMed, excellent promising results have been found for creams such as ProTopix and I am now going to try these.
In contrast to the positive findings in medical research, patient forums on vitiligo seem very negative and I was so glad to find this thread. I guess the problem with patient forums are that people turn to them when they feel in need of help. When our vitiligo isn’t bothering us, we don’t post anything!
So thanks for the positive stories fellow spotty people. Please keep them coming!
Hi ALL,
Thanks all of of ur comments.
They are really very inspiring
This is time when am really frustrated from this disease.
I just want a miracle
This disease has really effected my personal life
I loss my confidence. I try to be seprate from everyone
I dun talk much to people at my work place
I tried my best to recover this disease but it does not go away
n m taking medicines from my childhood.
Guys seriously m fully frustrated now
i’ve started taking U-V rays treament but my skin is so sensitive now
that it got rashes when ever i take that treatment
This was my last hope to get cured
I also read others users comments and I’ll try to aplly those ideas
Please suggest me if any one has fastest treatment for this
Thanks,,
Palak
I also wanted to share that please avoid juk food as much as possible because this is the main reason for vitilgo.
This disease starts from stomach. care for ur stomach and it will care for ur disease.
Best of Luck
hello everyone,
I have been living with vitiligo since I came to Canada which was about 17 yrs ago. I first got a spot on my cheek when I was 7 yrs old and it gradually spread all over my face and body over years. Doctors had no cure for it, some of them did not even know what it was. I finally was told by a doctor to start Ultra-violet Narrow band treatment. It treated 90% of my vitiligo. It however is not a permanent cure to vitiligo and can cause skin cancer if done too much. I stopped for a couple of years and it came back a bit. Its been a struggle. I am now back on it just treating my hands. Non of those topical creams worked for me. I am a makeup artist so I do cover it well with makeup. Cover-fx concealer works well as well as MAC full coverage concealer. I have also used dermablend, but it is very thick. I mix different colours to match my skin tone. And I wear long sleeve shirts and scarfs a lot when I do not have time to apply body makeup. No one can tell unless I show them. I am now 24 yrs old and am married. My husband doesn’t care at all, but I know it is hard to deal with it. Till now even though I can cover most of it I still have very low self esteem and wish my skin was normal, but I am still thankful and you all should be too that you do not have a harmful disease. Keep positive guys, I am going to look more in to these B12 shots and see if it works for me…
GOD BLESS
Hi Anisa,
Have you been successful in trying to cover the vit. on your hands? I have tried so many different products: makeup, food colour stains, sunless tannng lotions but nothing seems to work. They make the vit. turn orange and my hands just look creepy lol. I live in Canada as well so the winter lasts forever and the vit doesnt bother me much. It’s the summer months when I just want to wear tank tops and just dont have the self-esteem too. I also got vit. when I was 7 and mine started spreading rapidly when I moved to Canada. Before then I just had small spots on my knees and elbows and it had been stable till my move to Canada. Maybe the stress of moving made it worse?? Hmmm….
Everybody’s personal plan and treatment is a little different, but one thing we all agree on is that nothing they sell and guarantee on the Internet really works. I totally agree with Natalie and appreciates that she says over and over again that there is no cure for vitiligo and don’t waste your money in Internet pills and potions etc. I tried Vitiligo oil for while, and then went out in the sun. The vit spots got pink, but so what? But the pink was a sunburn and not repigmentation. The only advantage was they weren’t so noticeable, but then the rest of my skin got darker so there was more contrast!
Besides Demablend, what make up do you use to cover? I would like to hear from as many of you as possible!
I have been doing these things for one year: lots of vitamins, no booze, very healthy living and exercise; no red meat and little eggs or milk product, no wheat, pretty much vegan; lots of wheatgrass; skin brushing about three times a week; lots of alkaline water.
And guess what? No repigmentation. The vit is spreading right up from my arms to my face. When it hits my face I think I will die. But I do get some courage from all of your stories. After all, It only start on me at age 66. Probably too much sunscreen and sunburn.
What about diet? Why cant we eat mangoes and cashews and tumeric? Honestly, I feel that since so many people from India have vit, probably due to chemical toxins in the water and air, that the doctors just say, don’t eat Indian spices and fruits, nuts etc. What is the validity of this?
I would like to go to the Dead Sea for 16 days in May when I can afford it. I have head this is a great way to get a really major dose of UVB rays that just might shock the vit right out of you.
Does anybody know anybody who really had vit and it just went away? I would really like to wake up one morning and find it GONE so I could look at my beautiful skin again and not be splotched and botched.
HOLA
HE LUCHADO MUCHO CON EL VITILIGO, LES RECOMIENDO CUIDAR SU ESTADO EMOCIONAL, DORMIR BIEN, EVITAR EL ESTRESS Y TRATAR APLICANDO ALGUN PRODUCTO MEDICO INDICADO POR SU DERMATOLOGO, NO SE DESESPEREN YA QUE ESTAS MANCHAS SON MUY FEAS Y NADIE QUIERE TENERLAS PERO NOS HA TOCADO Y LO QUE HAY QUE HACER TRATARLAS.
HE USADO UNA CREMA FABRICADA EN MEXICO QUE SE LLAMA MELADININA Y ME HA DADO BUENOS RESULTADOS AUNQUE UN POCO LENTO, DEBE SER COLOCADO EN LAS PARTES AFECTADAS Y TOMAR DIEZ MINUTOS DE SOL DOS VECES AL DIAS (PERO MUY CONTROLADO Y A PRIMERAS HORAS DE LA MAÑANA Y FINAL DE LAS TARDES)PUES TE PUEDES CAUSAR QUEMADURAS MUY FUERTES, QUE DE OCURRIR DEBEN SER TRATADAS CON OTRA POMADA LLADA DERMOVATE, DE LO CONTRARIO PUEDEN CAUSARTE MUCHO DAÑO LAS QUEMADURAS.
ESTO ME HA RESULTADO Y HE LOGRADO REPIMENTAR UN 70% DE LA PARTES AFECTADAS.
LES RECUERDO A TODOS QUE DEBEN EVITAR EL ESTRESS A TODA COSTA
PALAK
My advise to u ! You need to increase ur diet and a healthy diet.
I have studied cases where girls donot eat much their diet is like nothing so if ur diet is not much increase it .
Have eggs they are help ful . and doctors who says eggs are not good because they are white they are mad .. they dont know anything about vitiligo !!
keep on taking multivitamins without vitamin c !! B12 should be high !! U should be alrite ..
Thanks
Anurag
Hi all!
I am glad to find this website. i had vitiligo since 2007 and now it cover 20 percent of my whole body. I really frustrated n helpless n depressed all this while. every morning when i wake up n looked at the mirror i will cry endlessly feeling how ugly i am and will be in the future.
But thanks God i can share my feelings and views here, who understand how the feeling to be diagnosed with vitiligo.
I wud like to know your point of view, is it good to take oral tablets steroid to stop the vitiligo from spreading?is it true? that’s what my doc gave me, he instruct me to swallow 6 tablets of steriod. I really in confused state now. shud i take it or not?
Hi Maria,
I haven’t tried oral steroids but I’ve tried topical steroids and long term use worsened my vitiligo.
What I suggest is for you to ask your doctor on how long he/she plans to make you take steroids.
Please ask him/her a definite plan on how long you’re suppose to take the steroids and make him/her set a
checkpoint to determine whether you should continue with the medication or not.
I wish we can all find the most appropriate treatment for us!
Have a nice day.
Hey guys,
In the past three years, it has spread in such small amounts that it is not even noticeable. It has shrunk on my face, but has increased on the sides of my hips and around my penile area. I have, for two years now, accepted it and I am not trying any remedies.
I hope you can all accept it, and realize that it does not make you look ugly or disfigured, but it makes you even more unique. In fact, I know of some people who are aroused by vitiligo, as odd as that may be.
They say stress spreads it, and maybe so, but hey, then most of the world would have vitiligo, right?
All I can say is that vitligo seems to have a mind of its own!
Hi Besty,
If u go back and read my comments it Stress spreads vitiligo !! It doesnt Create or give a white patch to every one who has stress , People who have vitiligo if they take stress then it will spread more
My brother different people have different views. Depends on u beleive them or not or if you have other option .Take care
hi all
just come back form the dermatology.. i live in the uk…dermtology in the uk are useless , i have wait over a month to see her about my white patchs and all she does is looked at me patch and just prescip me protopic and ask me to c her in 4 months time…
has anyone in here use protopic and narrow band uvb and had any results….now i have to treat my white patchs myself….i have research about on the web.. people is saying that use protopic and narrow band uvb is very effective has anyone in here used it and had any results…please reply as soon as u can caz i neeed help
Hi Anurag,
Thanks for the replying
I am taking good care of my diet now
But its not onkly diet can help me out
Vitilgo is spreading all over my body
and m really fed up now from this
I have started using the ointment melanocyl ointment its seems to be
effective but its not a new thing verytime i start any medicine.
Small dots starts appearing to my skin but I am not able to heal it fully
I am really losing my faith in my self now
Thsi disease had ruined my life
I have been presribed Protopic which has lessened the patches around my eyes. I see a couple more coming near my mouth, I have bought some makeup online to cover it, Colourtration and Covermask, I think it is called. Canadian dermatologists are not really concerned about it.
My hands are also starting to be covered in it, as it under my arms, various tiny spots on my arms and legs, and large areas on my breasts.
I try to tell myself that this is not the worst thing to happen to me, and mostly I beleive it, but sometimes it gets me down.
I am interested in the diet part, I do eat citrus and it has been spreading and I moved across the country last year, went back to work full time in a new job and it spread like mad, so I think stress aggravates it. My husband says he doesn’t see it, but I see it, and I hope it doesn’t spread to my kids.
My twin brother has it, much more than I do, all his hands, on his legs and half his face, he doesn;t care.
thanks for the forum to chat, no one else gets it
Hi Angela,
I am from Canada as well. Where do u live in Canada? I totally agree with you, derms. are so insensitive. But don’t lose hope. I believe persistence and diligence can treat anything! I started using UVB a few months ago and absolutely love the results. I use protopic on a small new spot I just got beside my lip. It started to dull within a few days. As for diet, most people find it helpful to go gluten and dairy free. I am off dairy, with the exception of occasional cheating with cheese, but I find gluten difficult to give up. But I am thinking to go off it completely. Don’t lose hope and keep treating. One more thing, our vit. looks the worse to us. I am of Indian background so I have fairly dark skin but most people I meet just dont seem to care. Don’t get me wrong, I do meet the shallow ones who just see me as the girl with vit. but most people don’t really seem to even notice it. Good luck with it all!
RA: where in Canada? I am in central Ontario but derms are far and few between, I have a follow up appt in early August…..I just cover the spots on my face with makeup, (easy as a female) you can still see them but they are better….. I am not sure I can give up dairy or gluten, and that is funny as my brother, with lots of vit. is lactose intolerent and hasn’t eaten dairy for over 20 yrs!! so that kinda blows that theory, lol but I also read things about liver and bowels, and this is related, it is hard to pick the reality from the bs…
Yes, there is so much hype about what to eat and what not to eat for our skin condition. Mangoes are bad, oranges are bad, pears are bad, lemons are good, cashews are bad, almonds are good, tumeric is bad…really? Why? Sometimes I think that they pick out everything that people from India eat and say no to it, because vitiligo is more prevalent in India. I doubt if it is caused by the food! I think Indian cuisine is very healthy. How do we separate the hype from the truth here?
I have been on a low gluten, low dairy, hardly any meat, mainly vegan diet for a year, and it has gotten worse, but I am still hoping. Of course I take all the usual vit supplements, and am starting a course of B12 shits soon. Maybe it takes longer to make a change through diet. Protopic and steroids made no difference to the vit in my arms, and now it’s creeping up to my face. One thing I am doing is trying to alkalinize my PH chemistry. I am growing and drinking wheatgrass smoothies, and by God, if this doesn’t cure the vit, live to a hundred with it!
I am eager for all your responses to this diet thing…
Hi Betsy and Angela,
There are certain diet restrictions that work for some people and don’t work for others. I didn’t say all benefit from going off gluten and dairy. Our skin reflects and eliminates problems that are inside our body. It can be allergies to gluten, lactose or anything else. I do believe that diet combined with several other factors can trigger and worsen vit. Each person may have diff. food triggers, for example, every time I have had a high vit. C diet my vit. worsens, however, there are many people who take vit. C without any issues. The triggers, however, are not limited to our diet. Stress, supposedly is another one. There is not much research done on vitiligo so it is difficult to decide what a “good” diet is. Different things work for different people. I have heard a lot about turmeric making vit. worse but have never had a problem with it, while others have. Hope this makes sense… I am half asleep.
I just received my vitiligo cover lotion. how long it’s gonna take to start working? does it have any side effect?
Hi Dadoue,
There are no side effects when using vitiligo cover lotion. it takes about 8 hours for the color to fully develop because it is all natural. Please take a look at the pamphlet that came with your order for detailed instructions.
Hello, my name is Aida and I’ve diagnosed with vitiligo 6 years ago at the age of 20. I’m 26 now and my vitiligo is expanding from year to year. I have to say that I was always hoping for vitiligo to cure itself, never really focused on the treating it. Later I discovered Demabest novitil who hasn’t really showed results on me. I must admit I wasn’t eating healthy as well. But now I think its time for me to cure my vitiligo. I am pretty dark skin so its very noticeable. I do cover it with powder but I can not imagine doing that till the rest of my life. So as I sad, I wanna treat it and I read this first email from man, who is clamining that his vitiligo is 90% repigmented. I am so excited and happy when I hear that kind of news because it gives us others hope! I do have a few questions about the theraphy:
-flaxseed and fish oil – how do u use them in every day life? do you take like a small spoon every day of each oil or..?
-can u use vitamin B in pills or does it have to be injections?
I would appreciate all the answers I can get, thank you.
Aida.
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