An Idea That’s Working

nathalie vitiligo emailsI received this comment today…

Hello everyone, I am from Western New York. The treatments I have been doing, seem to have had a positive change. I am taking folic acid, Vitamins E and C, as well as PABA two to three times a day. In doing this, I have started to get large patches of brown spots.
Good Luck to everyone on our individual searches!!

and wanted to share our email exchanges that followed…

Hi
Thanks for your comment today. I have a few questions for you so that when others read your comment they can get a better idea of your situation compared to theirs.

How long you’ve had vitiligo? What is your skin tone? Where are your white patches and which were the first areas to re-pigment? How much of each supplement do you take?

Hi Nathalie,
I am 20 years old and i have had it for what would be going on 11 years. My white patches are in the normal areas; my face, behind my ears, chest, under my arms, elbows, knees, starting to go down my legs and my feet. I recently developed it on my hands within the past year. I have patches on my upper arms that are new; they developed around April of this year. After getting a sunburn over the summer, the spots on my upper arms seemed to fill in quite a bit, as well as my chest (around my collar bone area). I take about 15 vitamins a day. The PABA is the one that seems to be working the best in the re-pigmentation process. I go tanning once or twice a week for no more than 5 minutes. My nationalities are half Italian, quarter Ukrainian and quarter German. I look mostly Italian, and Ukrainian. I have olive skin tones so when i tan I do not turn red like most Caucasians, I turn almost black. I tan VERY easily, so when I got this disease I was devastated.

I take 500mg of Spirulina, 300mg of Pantothenic Acid, 500mg Vitamin C, 800 I.U. of E, 2400mg of Folic Acid, 1000mg of fish oil (for my arthritis) and 4100mg of PABA through out the day.

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20 comments

  1. Jenz says:

    I went gluten-free a year ago and this summer I noticed substantial pigment returning to areas that have not been pigmented for almost 40 years! I am hopeful! There seems to be good evidence that a healthy gut is critical in autoimmune disorders.

    • Aamir says:

      Jenz, I have been Gluten Free for 2.5 months now and have seen pigmentation return on palm. I have also taken B-complex for a month and now started B12 in liquid form. Have you taken any supplements?

  2. Sanika says:

    Hello I am Sanika Vidhate I am 13 years old
    I have been suffering vitiligo since 12 and
    tired of looking for solution

    I have 4 patches 2 over my anckle
    1 over my knee
    and one near my eye

    I hope you help

  3. Sanika says:

    Hello I am Sanika Vidhate I am 13 years old
    I have been suffering vitiligo since 12 and
    tired of looking for solution

    I have 4 patches 2 over my anckle
    1 over my knee
    and one near my eye

    I hope you help

  4. Kayla says:

    Hi all,

    I was diagnosed with Vitaligo when I was 9 years old. The spots are only on my knees, behind my legs, some on my stomach and around my moles. Only when a new mole comes in is when I get more white spots around them. Otherwise, the patches have remained the same since I was 9. The doctor told me that if I become pregnant ever or when I get older they will become worse. That makes me never want to have kids cause I can live with not wearing shorts-being doing it since I was 9 but I don’t know how I am going to cover my hands, etc. I guess I am just going to have to live with it.

    I was diagnosed last year with a Vitamin B12 deficiency and have been taking vitamins for that…my hope is that I had a vitamin problem for years and that is why vitaligo developed. I am a picky eater and avoid meat.. so hopefully if I just take my vitamins daily then I won’t have the patches spread. It was great hearing about how vitamins may be the reason from you all.

  5. tani says:

    Hello
    I am 30 and I got vitiligo since I was 5yrs. My dad has it, too. Someone on the internet said that he got rid of it by using BLACK VINEGAR. He applies it on the spots and waits ten minutes then wash it with water. after that, he stays in the sun for few minutes. He got rid of it in two months only.Also, you can mix three tablespoons of honey in a cup of water and add one lemon juice. Drink this every morning. You will get results after six months and in one year you will be cured. I will start using these methods and vitamins and tell you about the results.
    good luck

    • Hi everyone,
      Though I created this site for us to share information and healing ideas for vitiligo, i want to remind you to always use caution in trying treatments that are posted…especially ones that require taking something internally.

  6. Angela says:

    Hi,
    I’m 40 years old, I have had Vitiligo for the past 20 years, started with a small spot on my hand and it spread consistently. In the past 3 years I have had 2 children, and I noticed that my vit started re-pigmenting in the past year or so. I also had a sunburn this past summer (caught without wind while sailing in the Aegean for 4 hours)and it looks like I started re-pigmenting where I got the sunburn, lower legs and arms. I don’t know if taking the prenatals which are rich in folic, and other vitamins or the sunburn or a combination of all that caused me to repigment. My face and neck are still unchanged no color in the white spots, which is a large area on my forehead and chin/mouth. I also have hypothyroidism, and taking my synthroid daily. I recently got tested for celiac, still waiting for the results. My younger sister also has the vit, but not hypothyroid. Can’t wait for a cure.
    Thank you all for sharing, maybe together we can find a cure.
    Best,
    Angela

  7. Russ says:

    I noticed it on my genitals around age 28. It has only spread about fifty percent in that area the past twenty five years. I have gotten a few new small spots on my legs and hands over the last couple of years but they come and go. I have always taken suppliments as an adult. Fish and flaxseed oil, E,C, B complex, minerals, garlic oil, gingko among others. I have recently started eating according to my blood type to regain some energy and that part is working great. No wheat products allowed(gluten). There is some speculation that gluten may play a role in certain people that have vitiligo. I wish I could remeber where I read that. I will give you an update in six months if there is any change.

  8. Anne says:

    I am 14 years old, my vitiligo started when I was 9. My dad has it too, which is weird because the doctors say its not hereditary.
    Its on my chest, stomach, elbows, kneees, and the back of my neck.
    I take folic acid. Anything else that will help?
    Thank you,
    Anne.

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